Re: I am NEW......PLEASE HELP/for Mike

[Guest guest]

Mike...

How many cals did you have to drop? Was it hard on him? How long do you wait

before the med wean. That med wean may really cut the seizures!!! Keep us

posted. .

is@... wrote:

Is he still on meds? Broc is on Depakote and we haven't had an opportunity

to decrease this yet because they only like to make 1 change at a time and

we have been lowering cals.

Mike

_____

From: kenai22000

Sent: Tuesday, September 28, 2004 2:14 PM

To: ketogenic

Subject: Re: I am NEW......PLEASE HELP/for Mike

Dear Mike,

Sorry things aren't working out for you either. Hang in there...

has been talking much more and seems much more alert and aware since

the diet. So it is still worth it to us. Good luck!

Ann

> > Hi Christy,

> >

> > What medications have you tried? Two medications isn't that

> uncommon. My

> > son also had IS that has progressed to other seizure types. He

has

> been on

> > the diet for about 1 1/2 months so there are others that may be a

> better

> > source of info on the diet but I may have some experience with IS

> that may

> > help you.

> >

> > Mike

> >

> > _____

> >

> > From: CHRISTY VELA [mailto:christysebas@y...]

> > Sent: Monday, September 13, 2004 9:08 AM

> > To: ketogenic

> > Subject: I am NEW......PLEASE HELP

> >

> >

> >

> >

> > HI,

> >

> > I have been searching for an alternative for my 9 month old

> child, who

> > has been just ben diagnosed with infantile spasms and I believe

> another type

> > of seizure too.....that is not picked up by the EEG. He is

> currently on two

> > medications, in which, I believe is too much .....and for what?

> The meds

> > don't assure me that he won't be getting seizures anymore and the

> doctor jus

> > told me plainly that he is going to be " Retarded. " Him telling

me

> this

> > hurt me deeply. I did request that if he could do this diet on

him

> and he

> > jus said, " No, that we only do that if the child's spasms are

> > uncontrolable " . I thought....well why would you want for him to

> get to

> > that point. He jus started getting these seizures in the month

of

> August.

> >

> > What is your opinion (anyone)? I did request to get a second

> opinion,

> > though.

> >

> > Concerned mother,

> >

> > Christy

> >

> >

> >

> > ---------------------------------

> > Do you Yahoo!?

> > New and Improved Yahoo! Mail - 100MB free storage!

> >

> >

[Guest guest]

We dropped 100 cals. It wasn't too hard on him. We were giving him 2 100

cal snacks and we just eliminated one. We are going to Disney World next

week and I am going to ask if we can't start to decrease his meds when we

return. I hate to make any changes before the trip because even thought he

is still having seizures we have a pretty good idea of when to expect them

and how long they will last.

Mike

_____

From:

Sent: Tuesday, September 28, 2004 8:30 PM

To: ketogenic

Subject: RE: Re: I am NEW......PLEASE HELP/for Mike

Mike...

How many cals did you have to drop? Was it hard on him? How long do you

wait before the med wean. That med wean may really cut the seizures!!!

Keep us posted. .

is@... wrote:

Is he still on meds? Broc is on Depakote and we haven't had an opportunity

to decrease this yet because they only like to make 1 change at a time and

we have been lowering cals.

Mike

_____

From: kenai22000

Sent: Tuesday, September 28, 2004 2:14 PM

To: ketogenic

Subject: Re: I am NEW......PLEASE HELP/for Mike

Dear Mike,

Sorry things aren't working out for you either. Hang in there...

has been talking much more and seems much more alert and aware since

the diet. So it is still worth it to us. Good luck!

Ann

> > Hi Christy,

> >

> > What medications have you tried? Two medications isn't that

> uncommon. My

> > son also had IS that has progressed to other seizure types. He

has

> been on

> > the diet for about 1 1/2 months so there are others that may be a

> better

> > source of info on the diet but I may have some experience with IS

> that may

> > help you.

> >

> > Mike

> >

> > _____

> >

> > From: CHRISTY VELA [mailto:christysebas@y...]

> > Sent: Monday, September 13, 2004 9:08 AM

> > To: ketogenic

> > Subject: I am NEW......PLEASE HELP

> >

> >

> >

> >

> > HI,

> >

> > I have been searching for an alternative for my 9 month old

> child, who

> > has been just ben diagnosed with infantile spasms and I believe

> another type

> > of seizure too.....that is not picked up by the EEG. He is

> currently on two

> > medications, in which, I believe is too much .....and for what?

> The meds

> > don't assure me that he won't be getting seizures anymore and the

> doctor jus

> > told me plainly that he is going to be " Retarded. " Him telling

me

> this

> > hurt me deeply. I did request that if he could do this diet on

him

> and he

> > jus said, " No, that we only do that if the child's spasms are

> > uncontrolable " . I thought....well why would you want for him to

> get to

> > that point. He jus started getting these seizures in the month

of

> August.

> >

> > What is your opinion (anyone)? I did request to get a second

> opinion,

> > though.

> >

> > Concerned mother,

> >

> > Christy

> >

> >

> >

> > ---------------------------------

> > Do you Yahoo!?

> > New and Improved Yahoo! Mail - 100MB free storage!

> >

> >

[Guest guest]

Boy, Mike... After reading all the responses to Adam re: Amelie, I am thinking

that Broc is going to do beyond what you are hoping and thinking once he is

weaned. It may be hard initially, and I can see you don't want to be weaning on

a vacation. It will be hard to wait, though, too. But if the wean is hard, you

want to be at home with all the support of being home. Keep us posted. It will

be pretty exciting!

is@... wrote:We dropped 100 cals. It wasn't too hard on him. We were

giving him 2 100

cal snacks and we just eliminated one. We are going to Disney World next

week and I am going to ask if we can't start to decrease his meds when we

return. I hate to make any changes before the trip because even thought he

is still having seizures we have a pretty good idea of when to expect them

and how long they will last.

Mike

_____

From:

Sent: Tuesday, September 28, 2004 8:30 PM

To: ketogenic

Subject: RE: Re: I am NEW......PLEASE HELP/for Mike

Mike...

How many cals did you have to drop? Was it hard on him? How long do you

wait before the med wean. That med wean may really cut the seizures!!!

Keep us posted. .

is@... wrote:

Is he still on meds? Broc is on Depakote and we haven't had an opportunity

to decrease this yet because they only like to make 1 change at a time and

we have been lowering cals.

Mike

_____

From: kenai22000

Sent: Tuesday, September 28, 2004 2:14 PM

To: ketogenic

Subject: Re: I am NEW......PLEASE HELP/for Mike

Dear Mike,

Sorry things aren't working out for you either. Hang in there...

has been talking much more and seems much more alert and aware since

the diet. So it is still worth it to us. Good luck!

Ann

> > Hi Christy,

> >

> > What medications have you tried? Two medications isn't that

> uncommon. My

> > son also had IS that has progressed to other seizure types. He

has

> been on

> > the diet for about 1 1/2 months so there are others that may be a

> better

> > source of info on the diet but I may have some experience with IS

> that may

> > help you.

> >

> > Mike

> >

> > _____

> >

> > From: CHRISTY VELA [mailto:christysebas@y...]

> > Sent: Monday, September 13, 2004 9:08 AM

> > To: ketogenic

> > Subject: I am NEW......PLEASE HELP

> >

> >

> >

> >

> > HI,

> >

> > I have been searching for an alternative for my 9 month old

> child, who

> > has been just ben diagnosed with infantile spasms and I believe

> another type

> > of seizure too.....that is not picked up by the EEG. He is

> currently on two

> > medications, in which, I believe is too much .....and for what?

> The meds

> > don't assure me that he won't be getting seizures anymore and the

> doctor jus

> > told me plainly that he is going to be " Retarded. " Him telling

me

> this

> > hurt me deeply. I did request that if he could do this diet on

him

> and he

> > jus said, " No, that we only do that if the child's spasms are

> > uncontrolable " . I thought....well why would you want for him to

> get to

> > that point. He jus started getting these seizures in the month

of

> August.

> >

> > What is your opinion (anyone)? I did request to get a second

> opinion,

> > though.

> >

> > Concerned mother,

> >

> > Christy

> >

> >

> >

> > ---------------------------------

> > Do you Yahoo!?

> > New and Improved Yahoo! Mail - 100MB free storage!

> >

> >