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6 weeks since transplant

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I just wanted to update everyone on . It is amazing what a

little time will do in terms of healing the body. He is getting so

much stronger, and he has more energy than he had for months, maybe

even the past year before transplant.

Family and friends who saw him over Christmas all commented on how

well he looks now. I don't think we realized just how bad he was

getting for the transplant. We did, but we didn't talk about it.

He went back to his local GI for bloodwork yesterday. I thanked his

nurses for all they have done, because of the experience I heard from

another transplant patient during a visit to the surgeon on the last

day we were in Nashville. His MELD, the other patient, was a 39 and

his GI would not see him. His wife took him to the ER and his

primary care dr. called Vanderbilt who then flew him to Nashville

where he waited a week for his kidneys to begin functioning before

transplant. The patient is doing well now, but afraid to go back to

the local GI where he was from. Who could blame him! Anyway, our GI

has been wonderful and even sent us flowers while we were in the

hospital. We are thankful for him and his staff.

We go back to Nashville on January 3, and 4 for an ERCP and visit

with surgeon. The ERCP is to see if they can remove the stent they

placed in his bile duct the week after surgery.

It is about time I thought about going back to work. My students

might not remember me. I haven't worked since the middle of November.

wife of

UC/PSC 1999/2000

J pouch 2004

liver tx November 18, 2006

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,

It is great to hear such a good

story. So sad for the family who’s GI was not willing to even see

them …what the heck is up with power hungry doctors.

Good to hear that has had such a

major turn around.

Blessings for a great new year.

Mom of Zoe

(13) super soccer player;

Noah (9) UC,

PSC, enthesopathy and osteopenia and a great soccer and basketball player and;

Aidan (5)

moderately-severely hearing impaired great basketball shot (10-foot

hoop none-the-less)

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,

Glad to hear that is rapidly gathering strength. I hope that he

continues to do well and you both can get back to living your lives

without thinking about PSC. I'm sure your students and co-workers will

eagerly welcome you back and that you will have much to offer from

your recent experiences.

Best regards and wishing you a happy new year,

Tim R

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It's great to hear that 's doing better! I'm going to see if I'll

be following his example soon... the x-ray committee is meeting tuesday

to review my CT scan and see if they'll be giving me extra MELD points

or not. Based on the initial report from the radiologist it looks like

they won't, but maybe the committee will be more willing to stick their

necks out and ask for the extra points.

Hope things continue to improve for y'all!

athan

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,

Thanks for the update. I'm so glad that is healing so well! We all

love to hear good stories like his. Here's to a Happy New Year with your

new .

Ricky

6 weeks since transplant

>I just wanted to update everyone on . It is amazing what a

> little time will do in terms of healing the body. >

> wife of

> UC/PSC 1999/2000

> J pouch 2004

> liver tx November 18, 2006

>

>

>

>

>

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