vitamin supplements question

[Guest guest]

Has anyone had any experience on the diet with either alpha-lipolic

acid or CoQ-10 as a supplement? If so, has there been any

improvement shown after useing either of these? Our daughter has

been on the keto diet for 4 1/2 months and shown some improvement.

Like any good parent out there we are looking everywhere for

something that works to stop these spasms.

Jeff & , parents to , 18 months, diagnosed IS at 2

1/2 months.

[Guest guest]

Hi Jeff &

I give ph alot of supplements including ALA(in omega 3-6

complex).As soon as I started to give ph fatty acids his Infant

development worker and a speech pathologist noticed improvement in

cognitive skills and his behaviour also improved.I am not sure about

seizure control though.

Natasha,mom to 2 years old ph,suspected SMEI/Dravet's

syndrome,keto kid since August 23 2004

> Has anyone had any experience on the diet with either alpha-

lipolic

> acid or CoQ-10 as a supplement? If so, has there been any

> improvement shown after useing either of these? Our daughter has

> been on the keto diet for 4 1/2 months and shown some

improvement.

> Like any good parent out there we are looking everywhere for

> something that works to stop these spasms.

>

> Jeff & , parents to , 18 months, diagnosed IS at

2

> 1/2 months.

[Guest guest]

Hannah is 8 1/2 months old, has been on some version of the diet since birth,

diagnosed IS at 2 months, has some kind of unknown metabolic/mitochondrial issue

going on not yet dx, and takes 30mg CoQ10. It is supposed to provide energy and

help in the digestion of fats. It has not stopped any spasms. We continue to

hope and pray.

vitamin supplements question

Has anyone had any experience on the diet with either alpha-lipolic

acid or CoQ-10 as a supplement? If so, has there been any

improvement shown after useing either of these? Our daughter has

been on the keto diet for 4 1/2 months and shown some improvement.

Like any good parent out there we are looking everywhere for

something that works to stop these spasms.

Jeff & , parents to , 18 months, diagnosed IS at 2

1/2 months.

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Thank you, if we have a good response we will let you know.

> Hannah is 8 1/2 months old, has been on some version of the diet

since birth, diagnosed IS at 2 months, has some kind of unknown

metabolic/mitochondrial issue going on not yet dx, and takes 30mg

CoQ10. It is supposed to provide energy and help in the digestion of

fats. It has not stopped any spasms. We continue to hope and pray.

> vitamin supplements question

>

>

> Has anyone had any experience on the diet with either alpha-

lipolic

> acid or CoQ-10 as a supplement? If so, has there been any

> improvement shown after useing either of these? Our daughter

has

> been on the keto diet for 4 1/2 months and shown some

improvement.

> Like any good parent out there we are looking everywhere for

> something that works to stop these spasms.

>

> Jeff & , parents to , 18 months, diagnosed IS

at 2

> 1/2 months.

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just

a last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-

unsubscribe

>

>

>

>

>

[Guest guest]

Thanks, Natasha.

We were thinking of starting omega 3 and were a little concerned

about the sorbitol-d in it. Is the supplement you are giving ph

carbo free?

We will let you know if we get good results off the other

supplements.

Jeff &

-- In ketogenic , " natashagainford "

wrote:

> Hi Jeff &

> I give ph alot of supplements including ALA(in omega 3-6

> complex).As soon as I started to give ph fatty acids his

Infant

> development worker and a speech pathologist noticed improvement in

> cognitive skills and his behaviour also improved.I am not sure

about

> seizure control though.

>

> Natasha,mom to 2 years old ph,suspected SMEI/Dravet's

> syndrome,keto kid since August 23 2004

>

>

>

> > Has anyone had any experience on the diet with either alpha-

> lipolic

> > acid or CoQ-10 as a supplement? If so, has there been any

> > improvement shown after useing either of these? Our daughter

has

> > been on the keto diet for 4 1/2 months and shown some

> improvement.

> > Like any good parent out there we are looking everywhere for

> > something that works to stop these spasms.

> >

> > Jeff & , parents to , 18 months, diagnosed IS

at

> 2

> > 1/2 months.

[Guest guest]

Yes I give ph carb-free supplement.I buy capsules for adults(not

for kids that usually are sweetened with something).I just make a

hole with knife in a capsule and squeeze oil out of it,then I

surringe it and ph takes it with no problem

Natasha

> > > Has anyone had any experience on the diet with either alpha-

> > lipolic

> > > acid or CoQ-10 as a supplement? If so, has there been any

> > > improvement shown after useing either of these? Our daughter

> has

> > > been on the keto diet for 4 1/2 months and shown some

> > improvement.

> > > Like any good parent out there we are looking everywhere for

> > > something that works to stop these spasms.

> > >

> > > Jeff & , parents to , 18 months, diagnosed IS

> at

> > 2

> > > 1/2 months.

[Guest guest]

We were curious what kind of dose you give ph, what his weight

is? No one seems to know (doctors) what should be given. Thanks.

Jeff &

> > > > Has anyone had any experience on the diet with either alpha-

> > > lipolic

> > > > acid or CoQ-10 as a supplement? If so, has there been any

> > > > improvement shown after useing either of these? Our

daughter

> > has

> > > > been on the keto diet for 4 1/2 months and shown some

> > > improvement.

> > > > Like any good parent out there we are looking everywhere for

> > > > something that works to stop these spasms.

> > > >

> > > > Jeff & , parents to , 18 months, diagnosed

IS

> > at

> > > 2

> > > > 1/2 months.

[Guest guest]

Hi Jeff &

Yes,doctors seem to know very little about fatty acids

supplements.Our dietitian said there are now established doses for

children.Well on the bottle I give ph there is instruction to

geive 1-2 capsules 3 times a day ( for adults).So I figured 2

capsules a day would be just fine for ph.He is 13 kilos ( 2

years old) and each capsule contains 400 mg of fixh oil,400 mg og

flax oil,400 mg of borage oil.I had been giving this aamount for

quite a few months before the diet.When we started the diet out

diatitian said it was a bit too much as they do not really know

exact ammount of oils for kids and that these oils can " thin "

blood.We checked ph's blood and it was perfectly normal.Anyways

she suggested to continue supplements but cut the dose to 1 capsule

a day.So now I give ph just 1 capsule and I also add flax oil o

his meals

Hope it helps

Natasha

> > > > > Has anyone had any experience on the diet with either

alpha-

> > > > lipolic

> > > > > acid or CoQ-10 as a supplement? If so, has there been any

> > > > > improvement shown after useing either of these? Our

> daughter

> > > has

> > > > > been on the keto diet for 4 1/2 months and shown some

> > > > improvement.

> > > > > Like any good parent out there we are looking everywhere

for

> > > > > something that works to stop these spasms.

> > > > >

> > > > > Jeff & , parents to , 18 months,

diagnosed

> IS

> > > at

> > > > 2

> > > > > 1/2 months.

[Guest guest]

Natasha,

Thank you so much for the quick reply. We will give it a try.

Jeff &

> > > > > > Has anyone had any experience on the diet with either

> alpha-

> > > > > lipolic

> > > > > > acid or CoQ-10 as a supplement? If so, has there been

any

> > > > > > improvement shown after useing either of these? Our

> > daughter

> > > > has

> > > > > > been on the keto diet for 4 1/2 months and shown some

> > > > > improvement.

> > > > > > Like any good parent out there we are looking everywhere

> for

> > > > > > something that works to stop these spasms.

> > > > > >

> > > > > > Jeff & , parents to , 18 months,

> diagnosed

> > IS

> > > > at

> > > > > 2

> > > > > > 1/2 months.