Detroit Children's Hospital for Ann

[Guest guest]

Hi Ann,

was on 5 or 6 meds when she started the diet in December and having 2

seizures per week. She's down to 2 meds (almost only one since I'm weaning

Keppra at the moment). She still has a seizure about every 10 days, but I

figure that some of them are " withdrawal seizures " from the weaning process.

She

is more alert, happy (giggling), and participates with her sister and brother.

She did have 3 seizures this week but after talking to (new

dietician), we figured had gained too much weight too quickly and she was

going

to change her ratio and give me a few new recipes. I raced back home to send

her the needed information on (this isn't in her file at Detroit

Children's?) yesterday morning and have yet to get a reply from . I hate

it

when this stuff happens on the weekend and you are " alone " and helpless.

At least 's ketones were back to 160 this morning, but probably because

I only gave her half the portion of her applesauce yesterday.

You live in Grand Rapids? I'm hoping do to my occupational therapy field

work (internship) at DeVos Children's Hospital next summer. Have you ever been

there for therapy services? How long has your child been on the diet? It

would be nice to meet someone in person that is doing the same thing as we are.

At least we have this support group on line - I don't know what I'd do without

it!! Feel free to email me directly if you'd like.

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired, Ketokid since 12/03) and twin brother, (4

years), and

big sis Madison (6).