Re: Detroit Children's Hospital for

[Guest guest]

I guess I never met anyone on the team other that June, the former dietician.

We also used to see Dr. Chugani, but then switched to Bronson Hospital in

Kalamazoo which is closer as we live in Battle Creek.

Yes, I got the letter today from June informing us of her replacement and I

talked to this morning on the phone. She seems well informed so let's

cross our fingers!

, do you live in Michigan?

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired, Ketokid since 12/03) and twin brother, (4

years), and

big sis Madison (6).

[Guest guest]

I don't know if they have one in Grand Rapids. If they did it would probably

be at DeVos Childrens Hospital which is part of Spectrum Health. They have

done it at Bronson in Kalamazoo in the past, but my daughter's neuro at Bronson

said they didn't have much luck there. Not enough experience to make it

work. That's why we drove to Detroit because they do about 1 child per week, I

think. Then the dietician coordinates with our neuro in Kazoo (with me in the

middle). Most of the time this works out well for us.

What hospital do you go to for neurology?

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired, Ketokid since 12/03) and twin brother, (4

years), and

big sis Madison (6).