Do I have any legal standing?

[Guest guest]

I am not sure if anyone would know the answer to this question or not:

I have Celiac and I want to get my children tested. The initial

bloodwork was fine, but their doc and I spoke and thought that it would

be a good idea to have them see a specialist since the bloodtests are

so unreliable. I made an appointment. My ex-husband is protesting (he

carries their insurance) and stating that the children will not go and

he will talk to the insurance company (I can not since I am not on it)

and tell them to not pay for any testing. I will pay for anything out

of my own pocket if need be. However, are there any laws on the books

that anyone knows of that can force him to allow the children to go?

He is catholic and I am jewish, the kids are being raised catholic.

So religious belief is not an excuse. Thanks and hope everyone has a

great week!

Tracie

[Guest guest]

Best advice - consult an attorney. If you used one for your

divorce, call them. Otherwise, get a recommendation from a friend

or poke around on the web. I found an attorney just by searching

around on the web who is well-respected locally who gives you a free

30 minute consultation. That said, here are my thoughts -

If you have joint custody, you have just as much a right to make

decisions about their health care as he does, so you should be able

to call the insurance company on their behalf. Joint custody means

you both have equal rights, not that you have to agree.

It's a tricky situation, that's for sure.

Sue in Denver

>

> I am not sure if anyone would know the answer to this question or

not:

> I have Celiac and I want to get my children tested. The initial

> bloodwork was fine, but their doc and I spoke and thought that it

would

> be a good idea to have them see a specialist since the bloodtests

are

> so unreliable. I made an appointment. My ex-husband is protesting

(he

> carries their insurance) and stating that the children will not go

and

> he will talk to the insurance company (I can not since I am not on

it)

> and tell them to not pay for any testing. I will pay for anything

out

> of my own pocket if need be. However, are there any laws on the

books

> that anyone knows of that can force him to allow the children to

go?

> He is catholic and I am jewish, the kids are being raised catholic.

> So religious belief is not an excuse. Thanks and hope everyone has

a

> great week!

> Tracie

>

[Guest guest]

Yes: consult an attorney. If you (or better, if the children) have a

doctor who believes they should see a specialist for testing, I don't

believe your former husband will have a lot of luck. Your attorney

could simply write a cogent letter to him -- and the insurance

company if it comes to that -- and that would probably end the

matter.

Good luck,

> Best advice - consult an attorney. If you used one for your

> divorce, call them. Otherwise, get a recommendation from a friend

> or poke around on the web. I found an attorney just by searching

> around on the web who is well-respected locally who gives you a free

> 30 minute consultation. That said, here are my thoughts -

>

> If you have joint custody, you have just as much a right to make

> decisions about their health care as he does, so you should be able

> to call the insurance company on their behalf. Joint custody means

> you both have equal rights, not that you have to agree.

>

> It's a tricky situation, that's for sure.

>

> Sue in Denver

>

>

>>

>> I am not sure if anyone would know the answer to this question or

> not:

>> I have Celiac and I want to get my children tested. The initial

>> bloodwork was fine, but their doc and I spoke and thought that it

> would

>> be a good idea to have them see a specialist since the bloodtests

> are

>> so unreliable. I made an appointment. My ex-husband is protesting

> (he

>> carries their insurance) and stating that the children will not go

> and

>> he will talk to the insurance company (I can not since I am not on

> it)

>> and tell them to not pay for any testing. I will pay for anything

> out

>> of my own pocket if need be. However, are there any laws on the

> books

>> that anyone knows of that can force him to allow the children to

> go?

>> He is catholic and I am jewish, the kids are being raised catholic.

>> So religious belief is not an excuse. Thanks and hope everyone has

> a

>> great week!

>> Tracie

>>

>

>

>

>

>

>

[Guest guest]

The contract for insurance is between your doctor and the insurance company, not

your husband. I don't think he can demand them not to pay. The doctor's office

can fight that themselves and get paid by the insurance company.

Why is he so against this? By the way, my daughter went to a specialist too,

who did her bloodwork and a biopsy and read all her symptoms (she had so many

and was sick most of her life) and still swore that she didn't have it even

though she had 2 genetic markers for the disease. We finally went through

entero lab and had the whole family tested. We all have it!

I don't understand why he is against this.....does he think it would be unfair

to the kids to be on this diet? My husband didn't like the diet either until he

found out he also had it. Now that I am getting more inventive in the kitchen,

it is getting easier!

This must be a very stressful time for you. I wish you all the best!

Zanna

http://groups.yahoo.com/group/Art_on_A_Budget/

My daily rantings!

www.zannasstory.blogspot.com

My picture trail:

www.picturetrail.com/xanadoodles

[Guest guest]

Tracie,I am sorry to hear you are having such difficulties with the ex. Consult the attorney. Ask about the difference with who has custody and who has physical placement. I don't believe this should make any difference with your pursuing medical advice for your children. If you are a legal guardian, you should be able to make medical decisions for them. As far as the insurance, I don't think he has any say over what gets paid and what does not. The insurance company would be in pretty hot water if they started to deny claims based on marital discord. Also ask your attorney (while you are there) if there is any standing on making him follow the diet with the children if and when it becomes prescribed. If he is this nasty about just being tested, there is a good chance he won't follow the diet with the children when they go on it. Cheryl in MNrxp_us@...

[Guest guest]

I am actually dealing with much of the same thing as you are--my ex is supposed to pay half of all medical expenses for the kids above and beyond the insurance coverage--he has refused to pay anything to do with Molly's testing, special supplements or special foods that I need to buy. Our lawyer said that I do have a case, but now I need something written from the doctor to verify this and then we can take him to court. You know--and they wonder why the kids don't want anything to do with them....ya just gotta wonder.

A MahoneyWrite 2 the PointJournalist

[Guest guest]

Does anyone ever goto Enterolab and find out that they

do not have celiac disease and do not have to go on a

gluten-free diet?

Barbara in SoCal

__________________________________________________

[Guest guest]

Yes, I know of serveral people who tested negative. They aren't on

these boards though.

Sue in Denver

>

> Does anyone ever goto Enterolab and find out that they

> do not have celiac disease and do not have to go on a

> gluten-free diet?

>

> Barbara in SoCal

>

> __________________________________________________

>

[Guest guest]

If you start them out on gluten free and he feeds them gluten, they will be sick

the whole time they are at his house. I don't understand why he would try to

forbid you to have tests run. It sounds like he is trying to one up you in the

power struggle. That's too bad.

Zanna

http://groups.yahoo.com/group/Art_on_A_Budget/

My daily rantings!

www.zannasstory.blogspot.com

My picture trail:

www.picturetrail.com/xanadoodles

[Guest guest]

>

> I am not sure if anyone would know the answer to this question or

not:

> I have Celiac and I want to get my children tested. The initial

> bloodwork was fine, but their doc and I spoke and thought that it

would

> be a good idea to have them see a specialist since the bloodtests

are

> so unreliable. I made an appointment. My ex-husband is protesting

(he

> carries their insurance) and stating that the children will not go

and

> he will talk to the insurance company (I can not since I am not on

it)

> and tell them to not pay for any testing. I will pay for anything

out

> of my own pocket if need be. However, are there any laws on the

books

> that anyone knows of that can force him to allow the children to go?

> He is catholic and I am jewish, the kids are being raised catholic.

> So religious belief is not an excuse. Thanks and hope everyone has

a

> great week!

If your CD is late onset chances are so will be your childrens, and

more than likely if it is going to show up it will start showing

up well after the first symptoms. The testing in the US is pretty

lousy.

However there is one solution to this problem. DQ typing can detect

whether an individual might later on get the disease or not.

DQ2.5 (DQA1*0201:DQB1*0501) DQ8(A1*0301:B1*0302) and the

trans DQ2.2/DQ7.55 (A1*0201:B1*0202/A1*0505:B1*0301)

If your children do not have either the first of the second

or both to the trans type there is a very low risk that they

will have CD in their life times.

If they have any of the three, then they should be aware of the

symptoms and be open to the possibility of seeing of gluten challenge

or ommission affects thier state.

I don't have a problem with testing, but you should be aware of

that there are two catagories of CD.

1. Early onset - 6 months to 2 years earliest symptoms typically

diagnosed between the 12month and 36month of life, severe.

Progression is rapid, untreated the common outcome is death.

a. Floating stools, steatorhea - fat in the feces.

b. fussiness, particularly around food.

c. wasting of the buttocks and extremities

d. distention of the abdomen.

e. smelly flatus

f. diarrhea but not like normal loose stools, feces are bulky

and have a whitish or greyish sheen to them.

g. vomiting.

h. avitaminosis, A, B, D

i. hypocalcenimia

j. pernecious anemia (megalocytic anemia, vitamin problem)

2. Late onset - first symptoms appear between puberty and 40 years

of age, the late 20s is the median age of first symptoms.

progression of symptoms is slow. Symptoms are generally less severe

but can complicate the normal aging process.

many symptoms are similar to early onset.

Testing. Even though we can define when symptomology begins in older

individuals it is _impossible_ in the US at present to get a

diagnosis at the onset of symptoms. Definition of symptom onset

is only credited after a positive diagnosis is made. Its like this

'Oh, look you have flat cilia, that explains your 14 years of

symptoms' The reason for this is that the

ability for clinicians to evaluate IELs and tTG deposits in the

diseased small intestinal epithelium is developed and restricted to

Northern Europe. Even if a person has mild symptoms of CD, chances

are they cannot be diagnosed.

I would say this.

Have the DQ type

Have some symptoms

Have a family history

Age of onset of symptoms is consistent with family history

increases in wheat consumption increase symptoms

decreases of wheat consumption decrease symptoms

[in the old days they repeat the process 2 or three times]

Choices:

- stop eating wheat

- got to finland, pay out of pocket for an expensive test

- wait until symptoms progress or disappear or become something else.

[Guest guest]

You both would share the bill for the testing 50/50....whether or not he likes

it; or else you

drag him back to court. That's a typical legal agreement with children in

divorce/relationship

dissolvement situations. I'm not an attorney, and it's best to seek the consult

of a good

attorney. Talk to several paralegals and whoever's name they refer you to the

most, hire

them. :-) Trust me on that one.

Something to ponder. This sounds like a case for child protective services

(CPS). You have a

medical concern and the other parent is purposely road-blocking you. My mother

in-law

works for CPS and I know she'd say to get the children tested. Better to be

safe than sorry.

In fact; my husband and I had a disagreement about whether to bring our youngest

boy (who

shows CLASSIC CD signs) to the pediatrician. He wanted to wait for me to get

tested--which

I won't because my doctor refuses to hear me). I brought in his mother and

presented our

situation, and she sided with me. So, tomorrow we consult with the

pediatrician. (Hope this

goes better than my doctor experience). side note: usually I think CPS goes

overboard on

little things (which my mother in-law admits that CPS is really on a parental

witch-hunt); I

only suggest CPS when it's a real serious situation...not something petty.

Good luck!

Cheyenne

[Guest guest]

>> > I would say this.> > Have the DQ type> Have some symptoms> Have a family history> Age of onset of symptoms is consistent with family history> > increases in wheat consumption increase symptoms> decreases of wheat consumption decrease symptoms> [in the old days they repeat the process 2 or three times]> > Choices: > - stop eating wheat> - got to finland, pay out of pocket for an expensive test> - wait until symptoms progress or disappear or become something else.>,The testing here is not expensive compared to US even without a residency card. The Finnish Government is very willing to issue "health" visa's for testing/diagnostics that are available here. Yes, you will have to pay your air fare, however, off season (ie, end of Sept to mid April) you can find fares round trip for appx 2 Dr visits in the US (around $450-$550 US). To obtain a Visa, I would contact your Finnish Consulate in the US to get complete information. Here is a good place to start http://www.vn.fi/ministeriot/stm/en.jsp Infomation is in English, and should you need to call the ministry of health here, a phone card from Walmart is about 14 cents a minute.Best!Cassi