Re: Re: recurrence after tx.

[Guest guest]

Merry Christmas to you too, Ivor. And a really Happy New Year.

Interesting stats. I will ask in Pittsburgh when I am next there.

Gosh I hope they are wrong!

Ali

[Guest guest]

I would be happy to e-mail Dr. Slivka as I

have a direct relationship with him. I don’t know if he would provide

the information wanted thought, so it might not be a good effort for me…but

let me know either way. He could always go to Shaw-Stiffel to ask the same

thing…if I ask. I am sure they cross paths…and I am sure he can

contact him if he does not cross paths.

Let me know…and I will do it…or

I won’t…offer made.

Best,

Mom of Zoe

(13) super soccer player;

Noah (9) UC,

PSC, and osteopenia and a great soccer and basketball player and;

Aidan (5)

moderately-severely hearing impaired great basketball shot (10-foot

hoop none-the-less)

Prof. Neuberger's figure of 60% PSC

recurrence after tx has been mentioned before. He's a leading British hep and

works in one of our largest liver units. But no other liver units report such a

high figure. It's usually around 20-30%. On the other hand his figure for

recurrence of PBC post-tx is unusually low and I don't think has been

repeated elsewhere.

Why doesn't somebody in the group

directly contact some of America's leading liver units and ask some heps who know us and with whom

we've had contact, what the PSC recurrence rate is in their clinics.

Someone like Prof. Shaw-Stiffel, (Med. Director of Liv Tx at UPMC), who's

always very helpful to us.

Barb is still of the opinion that over

90% of us will need a tx. I've said before that that isn't our experience

here in the UK. Neither within our group of 400 (and I know that's not hard

evidence), but nor from the answers I get from some of our heps. The figure is

more like one third.

Our newsletter, " PSC News " was

posted yesterday and I hope subscribers amongst you will get it before

Christmas.

Meanwhile from all of us to all of you -

Have a merry Christmas and all the very best for 2007.