Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Really sounds like apraxia. Consider starting omega 3 and vit E, in addition to the 1:1 ST (which is also critical since your ST suspects apraxia hopefully is familiar with good approaches for apraxia). Get him evaluated by an OT as well, since many of these children have coordination issues and low tone that are not picked up on regular pediatric exams, but becomes obvious upon special testing. There is still 6 months left before he turns 3 that you could get some of the services covered through EI program if you can get him in to be evaluated. All the private therapy is expensive and whatever help you can get from the state is a good thing while its available. - > My son was evaluated by a SLP today and she said she suspects he has > Apraxia. She said that children are normally not offically diagnosed > with such a disorder until they are 3, and Terry is 30 months old. > > Terry did not start talking much at all until about 4-5 months ago, > and most of his words are not understandable to anyone except me and > sometime my husband, because I have taught him. > For example: fish=key, snake=nay-o, milk=ma, daddy=die, ball=ba, > balloon=ba, vacuum=ba, star-kwai, airplane=ah, trian=try-a, > Santa=Sha, present=pee, please=pee, pencil=pee. > Terry NEVER babbled or cooed as an infant and was really just a quiet > toddler for the most part, unless he was crying for something. Never > babbleing or cooing though like most babies do. > His vocabulary was also very limited to about 20-35 words until > recently. Recently he broke his leg and that has sort of " forced " him > into talking more to get his needs met. He has also been watching > more TV than playing like he used to, and I try to make some of that > TV " educational " as well. > > Now he has about 80 words he uses, although I understand this is no > where, where he should be for his age. > > Terry will occasionally gag on his food, depending on the texture of > what I offer him, and how hungry he is. I have learned not to try to > bribe him to eat-or he definitly gags. If he isnt absolutly hungry - > no matter what time of day - he will gag the food. At first I thought > he was being difficult, but he really isnt that kind of child. He > never has been " difficult " about anything. > Terry also will use words and then either stop using them altogether, > or stop for a day or two or more and then use a different variation > of the word. Like he used to say dada, but now Dada has become " die " . > I have found though, that over time, he has kept and keeps more words > than he used to. > It seems like he can say a portion of a lot of words, but can't > finish it. Like, Ball=ba, cool=coo, dog= da, moon=mmmmm, cat=ca, > Terry=Tee. > The SLP wants to see Terry for one on one sessions twice a week. > I am wondering what any of you could offer on what I have said. Any > words/advice/comments would be greatly appreciated!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Really sounds like apraxia. Consider starting omega 3 and vit E, in addition to the 1:1 ST (which is also critical since your ST suspects apraxia hopefully is familiar with good approaches for apraxia). Get him evaluated by an OT as well, since many of these children have coordination issues and low tone that are not picked up on regular pediatric exams, but becomes obvious upon special testing. There is still 6 months left before he turns 3 that you could get some of the services covered through EI program if you can get him in to be evaluated. All the private therapy is expensive and whatever help you can get from the state is a good thing while its available. - > My son was evaluated by a SLP today and she said she suspects he has > Apraxia. She said that children are normally not offically diagnosed > with such a disorder until they are 3, and Terry is 30 months old. > > Terry did not start talking much at all until about 4-5 months ago, > and most of his words are not understandable to anyone except me and > sometime my husband, because I have taught him. > For example: fish=key, snake=nay-o, milk=ma, daddy=die, ball=ba, > balloon=ba, vacuum=ba, star-kwai, airplane=ah, trian=try-a, > Santa=Sha, present=pee, please=pee, pencil=pee. > Terry NEVER babbled or cooed as an infant and was really just a quiet > toddler for the most part, unless he was crying for something. Never > babbleing or cooing though like most babies do. > His vocabulary was also very limited to about 20-35 words until > recently. Recently he broke his leg and that has sort of " forced " him > into talking more to get his needs met. He has also been watching > more TV than playing like he used to, and I try to make some of that > TV " educational " as well. > > Now he has about 80 words he uses, although I understand this is no > where, where he should be for his age. > > Terry will occasionally gag on his food, depending on the texture of > what I offer him, and how hungry he is. I have learned not to try to > bribe him to eat-or he definitly gags. If he isnt absolutly hungry - > no matter what time of day - he will gag the food. At first I thought > he was being difficult, but he really isnt that kind of child. He > never has been " difficult " about anything. > Terry also will use words and then either stop using them altogether, > or stop for a day or two or more and then use a different variation > of the word. Like he used to say dada, but now Dada has become " die " . > I have found though, that over time, he has kept and keeps more words > than he used to. > It seems like he can say a portion of a lot of words, but can't > finish it. Like, Ball=ba, cool=coo, dog= da, moon=mmmmm, cat=ca, > Terry=Tee. > The SLP wants to see Terry for one on one sessions twice a week. > I am wondering what any of you could offer on what I have said. Any > words/advice/comments would be greatly appreciated!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Hi , Your son sounds just like my grandson Damon who is apraxic and has been in therapy since he was 2. He is now four and is making good progress, but it is a slow process. Therapy twice a week is great, and working with him at home will also play an important part. This disorder is a mystery not only in its origin but in the ways that it manifests itself in children....everyone is different. Celebrate every victory, and know that he can overcome this concern with lots of time and therapy......Fay, Damon's grandmother [ ] New and confused My son was evaluated by a SLP today and she said she suspects he has Apraxia. She said that children are normally not offically diagnosed with such a disorder until they are 3, and Terry is 30 months old. Terry did not start talking much at all until about 4-5 months ago, and most of his words are not understandable to anyone except me and sometime my husband, because I have taught him. For example: fish=key, snake=nay-o, milk=ma, daddy=die, ball=ba, balloon=ba, vacuum=ba, star-kwai, airplane=ah, trian=try-a, Santa=Sha, present=pee, please=pee, pencil=pee. Terry NEVER babbled or cooed as an infant and was really just a quiet toddler for the most part, unless he was crying for something. Never babbleing or cooing though like most babies do. His vocabulary was also very limited to about 20-35 words until recently. Recently he broke his leg and that has sort of " forced " him into talking more to get his needs met. He has also been watching more TV than playing like he used to, and I try to make some of that TV " educational " as well. Now he has about 80 words he uses, although I understand this is no where, where he should be for his age. Terry will occasionally gag on his food, depending on the texture of what I offer him, and how hungry he is. I have learned not to try to bribe him to eat-or he definitly gags. If he isnt absolutly hungry - no matter what time of day - he will gag the food. At first I thought he was being difficult, but he really isnt that kind of child. He never has been " difficult " about anything. Terry also will use words and then either stop using them altogether, or stop for a day or two or more and then use a different variation of the word. Like he used to say dada, but now Dada has become " die " . I have found though, that over time, he has kept and keeps more words than he used to. It seems like he can say a portion of a lot of words, but can't finish it. Like, Ball=ba, cool=coo, dog= da, moon=mmmmm, cat=ca, Terry=Tee. The SLP wants to see Terry for one on one sessions twice a week. I am wondering what any of you could offer on what I have said. Any words/advice/comments would be greatly appreciated!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Hi my name is Leane and I have 2 sons 4.5 and Ethan 2.5. is very articulate and Ethan has Speech Apraxia. Ethan's story reads just like your son's. Loves preschool, sensory issues, frustration you name it. Some days are very challenging and other days are rewarding and some days I just wonder if he will ever talk like his older brother. When I first started reading The Late Talker, I just cried. I couldn't understand why this was happening to us. After a lot of thinking and praying. I started to realize, Ethan is in every other way a very happy thriving " little man " . He lights up a room and everyone is drawn to him, even though he can't say words clearly. His smile is what snapped me out of self pity. I realized that his happiness and desire to learn is what we need to preserve to get through this challange. As long as he has the desire we will move forward, at his pace. He is currently working 2x/week with a speech therapist and was also working with an OT. However, we are looking for a new OT. (Long story). I don't know what the future holds, but I do know that Ethan is truly a gift from GOD and Ethan was given to us for a reason, however challenging it might be some times. Currently, we give Ethan 2 Omega 3-6-9 (same as ProEFA's) in his morning yogurt and 2 in his evening yogurt. He has had an increase in partial words. His SLP started him on Horn Therapy on Tuesday and he seemed to love it. His drooling has decreased...thank God!! So at this point any change is good...he also has started to make faces when taking bitter tasting medication. I just wish that I could say his progress was fast, but for the most part it is very slow. I live for the day he stays " Mommy, I love you! " or " , wait for me! " I think I'll just cry. But this time it will be tears of joy. Leane Mom to 4.5 and Ethan 2.5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 I have had my son on the complete omega and have had aggression issues that do not go away. He was on it at first for a month and finally took him off it. He would scream a lot , trying to be very verbal, and had a much harder time transitioning. I decided to put him back on it after I saw the movie Lorenzo's Oil.. Anyway, has been on it for 90 days, and still very aggressive ,loud and difficult to transition. I took him off when we went on vacation for a week and he was very quite again. The teachers ask me what I have done different as since he has been back (3 days) he has been very good in school as far as transitioning from activities in his preschool . Not as aggressive with the other children.. My son is 4 1/2 years old and has down syndrome as well as Apraxia. He is very healthy, but has been experiencing more ear infections and sinitus and the last year. Previous to this he never was sick. I read so many positive things on the fish oil and I have really tried.. Anyone experiencing same of the same issues?? Dawn P. Uhlein Inside Sales Piedmont Plastics 2175 Mason Ave. Daytona Beach, Fl 32117 800-874-7512 extension #219 [ ] Re: New and confused Really sounds like apraxia. Consider starting omega 3 and vit E, in addition to the 1:1 ST (which is also critical since your ST suspects apraxia hopefully is familiar with good approaches for apraxia). Get him evaluated by an OT as well, since many of these children have coordination issues and low tone that are not picked up on regular pediatric exams, but becomes obvious upon special testing. There is still 6 months left before he turns 3 that you could get some of the services covered through EI program if you can get him in to be evaluated. All the private therapy is expensive and whatever help you can get from the state is a good thing while its available. - > My son was evaluated by a SLP today and she said she suspects he has > Apraxia. She said that children are normally not offically diagnosed > with such a disorder until they are 3, and Terry is 30 months old. > > Terry did not start talking much at all until about 4-5 months ago, > and most of his words are not understandable to anyone except me and > sometime my husband, because I have taught him. > For example: fish=key, snake=nay-o, milk=ma, daddy=die, ball=ba, > balloon=ba, vacuum=ba, star-kwai, airplane=ah, trian=try-a, Santa=Sha, > present=pee, please=pee, pencil=pee. > Terry NEVER babbled or cooed as an infant and was really just a quiet > toddler for the most part, unless he was crying for something. Never > babbleing or cooing though like most babies do. > His vocabulary was also very limited to about 20-35 words until > recently. Recently he broke his leg and that has sort of " forced " him > into talking more to get his needs met. He has also been watching more > TV than playing like he used to, and I try to make some of that > TV " educational " as well. > > Now he has about 80 words he uses, although I understand this is no > where, where he should be for his age. > > Terry will occasionally gag on his food, depending on the texture of > what I offer him, and how hungry he is. I have learned not to try to > bribe him to eat-or he definitly gags. If he isnt absolutly hungry - > no matter what time of day - he will gag the food. At first I thought > he was being difficult, but he really isnt that kind of child. He > never has been " difficult " about anything. > Terry also will use words and then either stop using them altogether, > or stop for a day or two or more and then use a different variation of > the word. Like he used to say dada, but now Dada has become " die " . > I have found though, that over time, he has kept and keeps more words > than he used to. > It seems like he can say a portion of a lot of words, but can't finish > it. Like, Ball=ba, cool=coo, dog= da, moon=mmmmm, cat=ca, Terry=Tee. > The SLP wants to see Terry for one on one sessions twice a week. > I am wondering what any of you could offer on what I have said. Any > words/advice/comments would be greatly appreciated!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 - > Even if your child is too old for Early Intervention, you can still receive free services through your school district. My oldest son didnt qualify for center based school since he only needed speech, but he got his services after preschool at 3yrs old in the center after THEIR regular day. I have been told that most SD will recommend an OT with a SP evaluation in most cases, since they are aware that certain things will show up. You should not have to pay for any private services. good luck. My 5 dd has APraxia and CP. she was in a center based pre-school where she got all her services and is now in K in the SD. Quote Link to comment Share on other sites More sharing options...
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