Re: changes - how often

[Guest guest]

You are doing things correctly. The problem with the diet is that each

person reacts differently depending on their particular metabolism and

individual characteristics. If you are getting 16 ketones that is where

you should be. There can be an initial weight loss when starting the

diet. There is the fast then partial meals. As well, I understand that

with Atkins there is an initial weight loss which is from water loss as

the body adjusts to ketosis. This may or may not be a fact. What I mean

to say is that the initial weight loss is not significant as there is or

are good reasons to explain it. What is important is what happens now.

Does weight go up or down from now on.

You have changed the ratio slightly and it seems to have helped with too

high ketones. You may have to adjust it in the future if ketones change

again or you want to try to get better seizure control.

Calories could be too high or too low or okay. Usually you will have to

adjust them. Many people are very sensitive to calorie levels and

usually they are too high at the beginning of the diet. 1500 calories

seems like it could be okay or too high or too low. My daughter is on

830 calories. I determined this from months of trial and error.

It is normal to see some lethargy from the state of ketosis as well as a

diminished appetite. Since you saw no seizures during the first 2 days,

you have a very good chance of getting that result in the long term. You

could be getting problems from reflux and constipation. They can

interfere with the diet. If you are still using medications there can

also be problems as they seem to operate differently when combined with

the diet.

Keep detailed records of everything; weight, height, fluids, meals, etc.

We usually make changes every 2 weeks unless there is something critical.

Good luck,

Bill

jaana rantama wrote:

> My son, Panu, started ketodiet week ago. He started to fast last

> Sunday afternoon and was in ketosis on Tuesday morning. During the

> first two days he was seizure-free (normally 30-50 drops per day) but

> on the third day when he got his first meal seizures came back.

> Beforehand I was afraid of the fasting period but he took that period

> very calmly. On Thursday he got the full tree meals and was very

> active in the evening - he was almost the same boy as he was before

> epilepsy.

>

> But on Friday he was very very tired and on Saturday he refused to

> drink anything and was almost all the time asleep. Blood sugar was

> okay (3.4) but ketones in the urine were very high (>16). Actually

> ketones were very high since Wednesday. According what we have read

> about ketogenic diet we thought that the ketones was too high. Our

> dietitian told us during the hospital period that if the ketosis is

> too hight we should add 2 g cardohydrates and decrease 1 g fat. In

> fact ratio lowered from 3:1 to 2.6:1 (1500 kcal per day; 12,7 g prot,

> 5,6 g cards, 47,7 g fat per meal, tree meals per day). Panu picked up

> and started to drink again. The ketones has been after the ratio

> change still 16 or almost 16.

>

> He is still tired and I think that his kalories might be too low - he

> has lost 2,5 kg in one week. Now his weight is 50,6 kg and his ideal

> weight is 48 kg. Even his mobility is rather low (he is retarded) he

> goes on all fours. He used to walk with help before epilepsy and last

> Thursday he walked almost like good old days. But how soon we can

> make another change - we just changed the ratio.

>

> Somebody said that she hates seizures - so do I and in addition I

> hate epilepsy medicines. One of them (Lamictal) cause s

> Syndrome to Panu and his face, hands. feet, mucous of eyes, nouse,

> lips and mouth literally burned but he survived. I just wish that the

> diet will help him and we get ride of all medicines.

>

> Jaana

>

>

>