Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 Hi Jeanne welcome to the group. Congratulations....well I guess not quite yet haa? I was just wondering if I could ask....did the parents of this baby know he has CF? Is that the reason that they may not want him and did you know he had CF before you became a foster parent to him? My name is . I'm married and have 2 children. has CF and he's 5 yrs. old. Alyssa doesn't have CF, although sometimes I think she is a carrier, and she is 6 but will be 7 in April. My son was diagnosed by the blood screening they did at birth. At our hospital this is one of the mandatory illnesses they check for. Thank goodness he had a common gene for CF. If not we'd probably still be going rounds at the hospital since CF has never been in our family until now. When he was born and came home from the hospital, every time I'd feed him he would not only throw up but it would go 5 - 10 feet across the room. No kidding. I tried telling the Doctors about it but they said it's normal for babies to spit up. They didn't understand or didn't believe what I was saying. When the blood came back positive for CF, at least one Delta F508 Gene, they did the sweat test and that was positive. So, and also with the poops they were like a couple of the other kids on this group just recently mentioned. BIG, BULKY, and LOADS of poop at 1 TIME. POOP EVERYWHERE! They switched him to a formula called Progestamil. It's a predigested formula so it's easier on the infants. Anyway Good luck with the adoption if that's what you end up doing. from Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 I realized that with my last post I neglected to give my name. In any case, I am Jeanne and currently a foster mother to a 10 month old boy with cf who my husband and I are hoping to adopt. Some people think we are crazy (both my husband and I are in our mid-40's but married later in life and have no children of our own), but most have been very supportive. I am a nurse and used to work at Children's Hospital in Boston when I was younger, but not with children with cf which has made dealing with his medical needs a little easier. He has had pneumonia x3 since birth, recently cultured positive for staff and pseudomonos so is on oral Augmentin and TOBI and has also had problems with weight gain. He is only between the 5th to 10th percentile. In any case, I am glad I found this group so I can learn as much as I can about cf and what our future will hopefully hold. We are obviously taking this on willingly which many think we are crazy to do but he is such a beautiful and great little boy that I think the effort will be well worth it. Jeanne 10mos boy wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 I don't think you are crazy at all. There needs to be people who are willing to take a chance on kids who are medically fragile. Dawn mom of 4, 6 and under, the youngest wcf RE-introduction > I realized that with my last post I neglected to give my name. In > any case, I am Jeanne and currently a foster mother to a 10 month old > boy with cf who my husband and I are hoping to adopt. Some people > think we are crazy (both my husband and I are in our mid-40's but > married later in life and have no children of our own), but most have > been very supportive. I am a nurse and used to work at Children's > Hospital in Boston when I was younger, but not with children with cf > which has made dealing with his medical needs a little easier. He > has had pneumonia x3 since birth, recently cultured positive for > staff and pseudomonos so is on oral Augmentin and TOBI and has also > had problems with weight gain. He is only between the 5th to 10th > percentile. In any case, I am glad I found this group so I can learn > as much as I can about cf and what our future will hopefully hold. > We are obviously taking this on willingly which many think we are > crazy to do but he is such a beautiful and great little boy that I > think the effort will be well worth it. > Jeanne 10mos boy wcf > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 What makes you think your daughter is a carrier? Being a carrier isnt detectable through them having a cough or anything, I was just wondering. Liam 7 wocf & Eilish 4wcf /ySSFAA/b0SolB/TM > ---------------------------------------------------------------------~-> > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Jeanne, I think it is GREAT that you are taking it on! He is a very lucky little boy. But can I ask what happen to his biological parents? Could they not handle the CF? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 You and your husband are wonderful people! Best of luck:) Stein..mom to CF (20 mo) & Tori wo/CF in mass. RE-introduction I realized that with my last post I neglected to give my name. In any case, I am Jeanne and currently a foster mother to a 10 month old boy with cf who my husband and I are hoping to adopt. Some people think we are crazy (both my husband and I are in our mid-40's but married later in life and have no children of our own), but most have been very supportive. I am a nurse and used to work at Children's Hospital in Boston when I was younger, but not with children with cf which has made dealing with his medical needs a little easier. He has had pneumonia x3 since birth, recently cultured positive for staff and pseudomonos so is on oral Augmentin and TOBI and has also had problems with weight gain. He is only between the 5th to 10th percentile. In any case, I am glad I found this group so I can learn as much as I can about cf and what our future will hopefully hold. We are obviously taking this on willingly which many think we are crazy to do but he is such a beautiful and great little boy that I think the effort will be well worth it. Jeanne 10mos boy wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Jeanne, Well he is a very lucky little boy to have you two has parents. I hope you get to keep him. I work with to coworkers that have foster kids before and adopted it takes very special people to do what you are doing. I think it is GREAT! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 > Jeanne, > I think it is GREAT that you are taking it on! He is a very lucky little boy. > But can I ask what happen to his biological parents? Could they not handle > the CF? Deb A Deb, cf had nothing to do with the our " son " being in foster care. His parents are stuggling with addiction and he was born heroin addicted. That is actually how they found out he had cf. He lost a lot of weight after he was born and they didn't know why and started a work-up of causes of wgt loss in newborns. His cf test came back positive but so did his toxic screen for heroin which was probably the real reason he lost wgt as he was in withdrawal. His parents are still hoping to get him back but have not made much progress with getting their act together and with all of the special needs of a child with cf, it is unlikely that they will be able to manage. They can barely manage to feed him so far, never mind CPT, nembulizer treatments, meds, MD appointments, etc. etc... The state has custody at present and they are have a long way to go to prove that they could provide a safe environment for him. Jeanne Quote Link to comment Share on other sites More sharing options...
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