Kalob-New Keto Kid

[Guest guest]

Again. We just got home last night from restarting the diet after

being off for a year about. I have to admit that this time around it

has been a NIGHTMARE!

Not sure how many of you would remember us, or some may know us from

EFA, but i'm , mom to 6yo Kalob who has epilepsy resulting from

a traumatic brain injury. We just got home from the hospital last

night where we've been since last Thursday, when Kalob went

completely unresponsive after what were guessing was a seizure. I

say it like that because he normally doesn't have a post ictal

period after seizures (myoclonic jerks). We were supposed to be

admitted on Tuesday to start keto but they just kept us over the

weekend and we started on Monday.

I hate to bombard everyone, but we are already having PROBLEMS! We

didn't go through this last time, last time things went smoothly.

They sent Kalob home last night, but he's vomiting EVERYTHING since

we've been home. He was in the hospital but they figured that he

would be fine, that he just had a bad day. Personally I think his

ratio may be too high, and he's too ketotic??

When you test his urine, the strip instantly goes darker than the

darkest block on the bottle. He keeps going through periods of

EXTREME sleepiness, spaciness, throws up, doesn't want to eat. Then,

if we give him sugar water (the dietician showed me to do this) he

perks right up.

His dexi in the hospital went as low as 54, but mainly ranged 59-67.

THey didn't send us home with a monitor but my husbands cousin has

one and i've been checking it anyway.

I'm nervous, and scared for him. Part of me wants to say screw the

diet, but this is our last non-surgical option and the only surgical

option we have is VNS so were giving this our all. Any tips? Ideas?

Why is this happening? He is on a 4:1 ratio and at 1250 calories.

I'm gonna try to slow drip a ketocal meal into him this am and see

how he does, i've given him his meds early so that if he does vomit

those will stay down. I'm fearing were gonna end up back in for

dehydration if this doesn't stop soon, he threw up just sugar free

jello last night! And the neurologist that was on call when I paged

him got upset cuz I woke him up! The dietician had told me once

before that if something like this happened they should page her but

they insist theres no way to get in touch with her... UGH!

Sorry for the book here, i'm terrified. I hope to get to know you

all better, and look forward to seeing those of you that I do know

from EFA's site... Thanks for anything that you guys can add to

this, ya ole pros! hehe...