Re: Success without supplements?

[Guest guest]

Thanks! That's what I was looking for-just some more info and opinions. I

appreciate your response.

crellin family <crellin.family@...> wrote: Hi Sherry,

I think that a bit of everything works to some degree. I think speech and

language therapy in all it's different forms is essential, but it may be that

the addition of supplements makes the therapy more effective. I don't think

supplements on their own would work for a child with severe apraxia, especially

if he/she was older.

I do know of a child with the same issues as mine but two years older and

further along in S & L therapy and I don't think they supplemented. But I don't

know enough to know if he had any sensory issues or any other 'symptom's' of

apraxia apart from delayed expressive language.

Personally I would not do without the therapy and special education my son

receives and although i am still not sure about the supplement's impact I don't

think they are doing any harm at the level he receives. 2 ProEFA in the morning

and one vit e.

Regards

UK Mummy to 8 and Rory 6 with severe verbal dyspraxia, both deaf with

Cochlear Implants

Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

[Guest guest]

Thanks so much for your response. I am just like most parents in our

situation-looking for answers, opinions, advice and support. I appreciate it!

l_digiallonardo <l_digiallonardo@...> wrote: Hi Sherry

I have had to take my son off supplements as he was becoming very

very emotional, to the point where I found a note written by him in

his school desk " I got no fens. " He is 6yrs old. He still doesn't

have any close " fens " but he is happier, maybe less aware of his

loneliness. I do know that supplements really helped him with his

school work and became much better with organizing himself. I am

devastated by this and trying to explore other options to help him.

I love reading the emails on the site because someone might be able

to offer other alternatives.

Loreta

-- In , Sherry

<houndog3_1@...> wrote:

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr

old apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ---------------------------------

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>

[Guest guest]

hi loreta,

my son would get bloody noses from the pro-efa. someone suggested that fish oil

sometimes thins blood so maybe that is why he had bloody noses. sooo I am now

thinking of going to other nutritional supplements with a doctors approval. i

acually have a soon to be cousin in law who went to school for this and may

contact her. also my son's body doesn't process a broken down form of b12 and

folinic acid. we found that with a blood test. the shots were very expensive

and was very emotional on those too. so i am trying to find out what else i can

do.... i hear ya, i was very disappointed too that he could not take the

pro-efa.

chris

[ ] Re: Success without supplements?

Hi Sherry

I have had to take my son off supplements as he was becoming very

very emotional, to the point where I found a note written by him in

his school desk " I got no fens. " He is 6yrs old. He still doesn't

have any close " fens " but he is happier, maybe less aware of his

loneliness. I do know that supplements really helped him with his

school work and became much better with organizing himself. I am

devastated by this and trying to explore other options to help him.

I love reading the emails on the site because someone might be able

to offer other alternatives.

Loreta

-- In @groups. com, Sherry

<houndog3_1@ ...> wrote:

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr

old apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ------------ --------- --------- ---

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>

[Guest guest]

Thanks for your response. That's why I asked-just to get other parent's

opinions and experiences-responders and non-responders alike.

debjward <debjward@...> wrote: My son is a non-responder. I

increased his fish oil from once a day

(4 month period) to three times a day (2 month period) and I thought

maybe he was babbling more but now that he's off the oils (we see

the neurologist next month and also will be getting blood tests so

we want him to be tested for how he is not how he is on fish oil) he

babbles the same if not more!?!

He is irrational on 400mg Vit E (6 week period) in the mornings; I

mean he has weird emotional melt downs that frighten me. (Like he's

having a seizure maybe?) When I broke it down to 200mg in the am and

200mg in the pm he was better. He wasn't quiet before but his

behavior is nerve wracking on Vit E.

My son was also born with hand defects and kidney defects so he

probably is very unlike the other children here. He has other issues.

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr

old apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

---------------------------------

Sponsored Link

$200,000 mortgage for $660/mo - 30/15 yr fixed, reduce debt, home equity - Click

now for info

[Guest guest]

Thanks so much for your response. I was merely asking for more info, opinions

and experiences. Not sure what prompted 's response....

But anyway, no, I have felt very warmly welcomed and have had a very good

experience with all other posts. Thanks!

Haukoos <catnip9@...> wrote:

Sherry

There is a lot of info on this board about supplements but there are

also many posts about therapy techniques, dealing with IEP stuff,

handling different situations with our kids, etc. My daughter does use

supplements but I think there are a lot of families reading posts, etc

that don't. Maybe I'm wrong but it seems there are many parents here

who's children are non-responders and then some families who haven't

gone down the supplement route at all. Sorry you felt like you were

not welcomed here. It seems your question was geared toward a research

kind of curiosity and that is exactly how I think about these things as

well. I think that is how approaches much of this and it is

that same kind of questioning and curiosity that led her to find out

more about vitamin E.

So, this board isn't just about supplements. The posts are " supplement

heavy " sometimes, especially lately. I like it here because I learn

about the supplements but also I learn about new therapy techniques to

try, techniques to avoid, IEP pitfalls and successes, etc. Sorry you

felt like you weren't welcomed here. I hope you stick around.

Kris

On Nov 13, 2006, at 4:40 PM, Sherry wrote:

> Gee thanks-obviously I realize that this particular message board is

> " weighted " more towards the supplements but since it is an APRAXIA

> message board (not a FISH OIL board or a SUPPLEMENT message board) I

> thought it would probably be interested in helping all people with

> apraxic kids-not just those who are sold entirely on the supplements.

> I thought it was for sharing, support and information-looks like I

> stumbled onto the wrong site if everyone else is like you.

>

> karen_peikert <jkpeikert@...> wrote: There are many, many

> apraxic children who have success without

> supplements. Some are non-responders, some have never tried them.

> Most people on this board have tried supplements, otherwise the

> discussions which are quite heavily weighted towards supplements would

> not be of interest. There are other message boards which would be

> " populated " more by people who have not had success with supplements.

>

>

>

>

> >

> > Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

> apraxic son (also has sensory issues). We have seen some great

> progress with his speech and other issues but it's difficult to tell

> is they are due to the fish oils or if it's due to therapy and his

> exposure to preschool. I was just curious if anyone out there has

> seen improvements in their kids with out the fish oils?

> >

[Guest guest]

Thanks! That's what I was looking for-just some more info and opinions. I

appreciate your response.

crellin family <crellin.family@...> wrote: Hi Sherry,

I think that a bit of everything works to some degree. I think speech and

language therapy in all it's different forms is essential, but it may be that

the addition of supplements makes the therapy more effective. I don't think

supplements on their own would work for a child with severe apraxia, especially

if he/she was older.

I do know of a child with the same issues as mine but two years older and

further along in S & L therapy and I don't think they supplemented. But I don't

know enough to know if he had any sensory issues or any other 'symptom's' of

apraxia apart from delayed expressive language.

Personally I would not do without the therapy and special education my son

receives and although i am still not sure about the supplement's impact I don't

think they are doing any harm at the level he receives. 2 ProEFA in the morning

and one vit e.

Regards

UK Mummy to 8 and Rory 6 with severe verbal dyspraxia, both deaf with

Cochlear Implants

Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

[Guest guest]

Thanks so much for your response. I am just like most parents in our

situation-looking for answers, opinions, advice and support. I appreciate it!

l_digiallonardo <l_digiallonardo@...> wrote: Hi Sherry

I have had to take my son off supplements as he was becoming very

very emotional, to the point where I found a note written by him in

his school desk " I got no fens. " He is 6yrs old. He still doesn't

have any close " fens " but he is happier, maybe less aware of his

loneliness. I do know that supplements really helped him with his

school work and became much better with organizing himself. I am

devastated by this and trying to explore other options to help him.

I love reading the emails on the site because someone might be able

to offer other alternatives.

Loreta

-- In , Sherry

<houndog3_1@...> wrote:

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr

old apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ---------------------------------

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>

[Guest guest]

Hi, Sherry. I am a mom to 2 identical twin boys both with oral apraxia (2 1/2 ).

Speech therapy for 5 months, 3x a week. Seeing positive but slow results without

supplements. I don't know too much about these, yet to consider them. Any info

that you can share would be great. Terri Re: [ ] Re: Success without supplements?

Gee thanks-obviously I realize that this particular message board is

" weighted " more towards the supplements but since it is an APRAXIA message board

(not a FISH OIL board or a SUPPLEMENT message board) I thought it would probably

be interested in helping all people with apraxic kids-not just those who are

sold entirely on the supplements. I thought it was for sharing, support and

information-looks like I stumbled onto the wrong site if everyone else is like

you.

karen_peikert <jkpeikert@...> wrote: There are many, many apraxic

children who have success without

supplements. Some are non-responders, some have never tried them.

Most people on this board have tried supplements, otherwise the

discussions which are quite heavily weighted towards supplements would

not be of interest. There are other message boards which would be

" populated " more by people who have not had success with supplements.

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ---------------------------------

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>

[Guest guest]

Hi, Sherry. I am a mom to 2 identical twin boys both with oral apraxia (2 1/2 ).

Speech therapy for 5 months, 3x a week. Seeing positive but slow results without

supplements. I don't know too much about these, yet to consider them. Any info

that you can share would be great. Terri Re: [ ] Re: Success without supplements?

Gee thanks-obviously I realize that this particular message board is

" weighted " more towards the supplements but since it is an APRAXIA message board

(not a FISH OIL board or a SUPPLEMENT message board) I thought it would probably

be interested in helping all people with apraxic kids-not just those who are

sold entirely on the supplements. I thought it was for sharing, support and

information-looks like I stumbled onto the wrong site if everyone else is like

you.

karen_peikert <jkpeikert@...> wrote: There are many, many apraxic

children who have success without

supplements. Some are non-responders, some have never tried them.

Most people on this board have tried supplements, otherwise the

discussions which are quite heavily weighted towards supplements would

not be of interest. There are other message boards which would be

" populated " more by people who have not had success with supplements.

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ---------------------------------

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>

[Guest guest]

Hey Terri,

Good to hear from ya! Well, so far, all I've had my son on is the ProEFA-one

capsule twice/day. I pierce the capsule and squeeze it into his juice-he's

always taken it just fine.

It seems that right around the time we started him on the fish oils, his

speech just " took off " . He was trying to say and repeat everything and has ever

since. It's just been steady progress. I don't know if it is just coincidence

but I'm not taking him off just in case it isn't. He had also been seeing a

speech therapist 2x a week for about 6 months with very slow progress, if any.

The fish oils haven't really cause us any problems as far as side effects go.

The only thing I can really think of might be a lag in appetite. That was only

temporary though and, again, could've just been a coincidence.

I wish I could tell you more but I am also pretty new to the supplements and

that is all I've tried so far.

Good luck-if there's anything more I can tell you, just let me know!

God Bless.

MATTHEW FISCELLA <fiscellaboys@...> wrote:

Hi, Sherry. I am a mom to 2 identical twin boys both with oral apraxia

(2 1/2 ). Speech therapy for 5 months, 3x a week. Seeing positive but slow

results without supplements. I don't know too much about these, yet to consider

them. Any info that you can share would be great. Terri Re: [ ] Re: Success without supplements?

Gee thanks-obviously I realize that this particular message board is " weighted "

more towards the supplements but since it is an APRAXIA message board (not a

FISH OIL board or a SUPPLEMENT message board) I thought it would probably be

interested in helping all people with apraxic kids-not just those who are sold

entirely on the supplements. I thought it was for sharing, support and

information-looks like I stumbled onto the wrong site if everyone else is like

you.

karen_peikert <jkpeikert@...> wrote: There are many, many apraxic

children who have success without

supplements. Some are non-responders, some have never tried them.

Most people on this board have tried supplements, otherwise the

discussions which are quite heavily weighted towards supplements would

not be of interest. There are other message boards which would be

" populated " more by people who have not had success with supplements.

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ---------------------------------

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>

[Guest guest]

Hey Terri,

Good to hear from ya! Well, so far, all I've had my son on is the ProEFA-one

capsule twice/day. I pierce the capsule and squeeze it into his juice-he's

always taken it just fine.

It seems that right around the time we started him on the fish oils, his

speech just " took off " . He was trying to say and repeat everything and has ever

since. It's just been steady progress. I don't know if it is just coincidence

but I'm not taking him off just in case it isn't. He had also been seeing a

speech therapist 2x a week for about 6 months with very slow progress, if any.

The fish oils haven't really cause us any problems as far as side effects go.

The only thing I can really think of might be a lag in appetite. That was only

temporary though and, again, could've just been a coincidence.

I wish I could tell you more but I am also pretty new to the supplements and

that is all I've tried so far.

Good luck-if there's anything more I can tell you, just let me know!

God Bless.

MATTHEW FISCELLA <fiscellaboys@...> wrote:

Hi, Sherry. I am a mom to 2 identical twin boys both with oral apraxia

(2 1/2 ). Speech therapy for 5 months, 3x a week. Seeing positive but slow

results without supplements. I don't know too much about these, yet to consider

them. Any info that you can share would be great. Terri Re: [ ] Re: Success without supplements?

Gee thanks-obviously I realize that this particular message board is " weighted "

more towards the supplements but since it is an APRAXIA message board (not a

FISH OIL board or a SUPPLEMENT message board) I thought it would probably be

interested in helping all people with apraxic kids-not just those who are sold

entirely on the supplements. I thought it was for sharing, support and

information-looks like I stumbled onto the wrong site if everyone else is like

you.

karen_peikert <jkpeikert@...> wrote: There are many, many apraxic

children who have success without

supplements. Some are non-responders, some have never tried them.

Most people on this board have tried supplements, otherwise the

discussions which are quite heavily weighted towards supplements would

not be of interest. There are other message boards which would be

" populated " more by people who have not had success with supplements.

>

> Hey everyone. I am currently using ProEFA, 2x a day for my 3 yr old

apraxic son (also has sensory issues). We have seen some great

progress with his speech and other issues but it's difficult to tell

is they are due to the fish oils or if it's due to therapy and his

exposure to preschool. I was just curious if anyone out there has

seen improvements in their kids with out the fish oils?

>

> ---------------------------------

> Sponsored Link

>

> Get a free Motorola Razr! Today Only! Choose Cingular, Sprint,

Verizon, Alltel, or T-Mobile.

>

>