Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Hello all!!! I just got back from a 3 day 2 night stay in the hospital with my son Lucas. He had tubes put in for the 3rd time, had his huge, infected tonsils taken out and had his adnoids removed again. They did an ABR test on him and did noitce that there is some hearing loss but will not have the definate test results unitl next week. We are hoping that this will improve his speech!!! He was diagnosed with receptive/expressive disorder a few months ago. He can follow commands and can make sentences but is sometimes unintelligible. The only problem is that he sometimes does aviod eye contact. Perhaps he feels embarassed that he is sooooo far behind and he just doesn't want to look at people. I am not sure. I know he never had the eye contact thing until lately. For the most part he is a normal boy who loves to play with kids after he warms up. I love when poeple ask him " do you have any brothers or sisters?' and he can not answere because he does not understand them or even know how to reply!!!! Then poeple stare at me and him and think that he is weird or something. Do any of you have any encouraging stories for me !!! I am at an all time low and just need some help. VERY depressed!!!!! Jill --------------------------------- Sports Fantasy Football ’06 - Go with the leader. Start your league today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 I am glad you and your son are home from the hospital! My youngest has had 2 surgeries but they were both out-patient. I hope he feels better soon. You didn't say how old your son is. My youngest just turned 3. At a restaurant yesterday the waitress spoke to my son and my husband who was sitting next to him answered for my son. My other children were generally shy around others until they were about 4 1/2. In fact at the tiny restaurant my husband, my youngest, and me were sitting in one booth and my oldest three children were at a booth across from us. They were both nervous and excited to sit *alone* and give their orders by themselves! (They remembered to say " please " and " thank you " without being reminded! LOL!) Sincerely, Debra > > Hello all!!! > I just got back from a 3 day 2 night stay in the hospital with my son Lucas. He had tubes put in for the 3rd time, had his huge, infected tonsils taken out and had his adnoids removed again. They did an ABR test on him and did noitce that there is some hearing loss but will not have the definate test results unitl next week. We are hoping that this will improve his speech!!! He was diagnosed with receptive/expressive disorder a few months ago. He can follow commands and can make sentences but is sometimes unintelligible. The only problem is that he sometimes does aviod eye contact. Perhaps he feels embarassed that he is sooooo far behind and he just doesn't want to look at people. I am not sure. I know he never had the eye contact thing until lately. For the most part he is a normal boy who loves to play with kids after he warms up. > I love when poeple ask him " do you have any brothers or sisters?' and he can not answere because he does not understand them or even know how to reply!!!! Then poeple stare at me and him and think that he is weird or something. > Do any of you have any encouraging stories for me !!! I am at an all time low and just need some help. VERY depressed!!!!! > Jill > > > --------------------------------- > Sports Fantasy Football '06 - Go with the leader. Start your league today! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Jill and Debra, I agree that some children can be shy around others, especially when they are asked to talk when they can't do that too well yet. In addition Jill your child has the issue of a possible mild hearing loss from all the ear infections on top of his speech impairment. My nephew is/was just like that and he is mainstreamed in school and has been since kindergarten. For preschool he did attend the same school as my son Tanner, The Summit Speech School for the Hearing Impaired and Deaf in New Providence NJ. has lots of friends and extra curricular activities...but he does wear hearing aids. And those hearing aids to this day secure him tons of expensive services through his public school. It's very impressive. (sad for our group -but impressive on the advocacy of the parents of the hearing impaired population what they have accomplished in the past few decades) And don't feel guilt in any way about all the ear infections. My sister in law is a researcher for and who works hand in hand with all kinds of doctors and my brother is a senior partner at a Maritime Law Firm on Wall Street and very particular about which professionals work with his children. In spite of all their work, time and money and in spite of tubes and all the other things you are going through - lost part of his hearing in both ears from so many ear infections. To me the best news about having a speech impaired child who also may have mild hearing loss from ear infections is the fact that he is now qualified for the services offered to the hearing impaired/deaf community -which BTW blows away all the problems of having to advocate like we do when our children are " just " speech impaired. You can check out the oral deaf schools for the hearing impaired in your area, especially if your child is still in preschool since I know they all cover those years http://www.oraldeafed.org/schools/index.html Statistically those that attend the schools for the hearing impaired have way better majority odds of being mainstreamed in regular school, graduating from HS, going on to college. There is far less discrimination and much more compassion in our society to someone with a speech impairment when it's co-existing with a hearing impairment. In fact the average Joe on the street will think your child is talking " good for a deaf person " (!!) once they see the hearing aids if it ends up he has to wear them like my nephew does. can hear without his hearing aids when he doesn't have an ear infection, but not every sound. If he has an ear infection however which he still gets -he's almost deaf -you can stand in back of him and scream and he can't hear you. saving the best for last is doing great in school. And you want another bright spot, I joked with all of you here years ago and joke with Tanner now that if he's ever discriminated against because of the way he speaks as he gets older -I'll buy him some mock hearing aids he can stick in his ears so then his speech will be viewed as great. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 My son is 3 1/2. Thanks for your story!!! debjward <debjward@...> wrote: I am glad you and your son are home from the hospital! My youngest has had 2 surgeries but they were both out-patient. I hope he feels better soon. You didn't say how old your son is. My youngest just turned 3. At a restaurant yesterday the waitress spoke to my son and my husband who was sitting next to him answered for my son. My other children were generally shy around others until they were about 4 1/2. In fact at the tiny restaurant my husband, my youngest, and me were sitting in one booth and my oldest three children were at a booth across from us. They were both nervous and excited to sit *alone* and give their orders by themselves! (They remembered to say " please " and " thank you " without being reminded! LOL!) Sincerely, Debra > > Hello all!!! > I just got back from a 3 day 2 night stay in the hospital with my son Lucas. He had tubes put in for the 3rd time, had his huge, infected tonsils taken out and had his adnoids removed again. They did an ABR test on him and did noitce that there is some hearing loss but will not have the definate test results unitl next week. We are hoping that this will improve his speech!!! He was diagnosed with receptive/expressive disorder a few months ago. He can follow commands and can make sentences but is sometimes unintelligible. The only problem is that he sometimes does aviod eye contact. Perhaps he feels embarassed that he is sooooo far behind and he just doesn't want to look at people. I am not sure. I know he never had the eye contact thing until lately. For the most part he is a normal boy who loves to play with kids after he warms up. > I love when poeple ask him " do you have any brothers or sisters?' and he can not answere because he does not understand them or even know how to reply!!!! Then poeple stare at me and him and think that he is weird or something. > Do any of you have any encouraging stories for me !!! I am at an all time low and just need some help. VERY depressed!!!!! > Jill > > > --------------------------------- > Sports Fantasy Football '06 - Go with the leader. Start your league today! > > Quote Link to comment Share on other sites More sharing options...
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