Re: Head of Pancreas Separated from Body

[Guest guest]

Lily:

What makes you question a trip to The Cleveland Clinic?

That's where I finally got my CP diagnosis.

Dr. Conwell is known for his pancreas work.

-E

[Guest guest]

I have another question:

When you refer to " EUS, " which procedure do you mean?

I ask because EUS simply means endoscopic ultrasound, the method by which a

test or procedure is accomplished.

I've had an EUS assisted pancreatic biopsy, as well as a series EUS assisted

celiac nerve blocks. All were done at Winthrop

University Hospital in Mineola, NY.

The former confirmed the diagnosis that Dr. Conwell had found via blood

trypsinogen.

-E

-E

[Guest guest]

Where do you live in Ohio ? I am a Ohio gal.

I think that it is wize to go to a more expierenced place for a pancreatic

work up. Cleveland Clinic is well known and so isn't Dr. lehmans group in

Indiannapolosis. Did you discuss a MRCP or an EUS ultrasound with your doc ?

I imagin that the Cleveland Clinic or where ever you decide to go will want

that done. Check Marks web site and I think that he has lots of info on the

EUS. Also how were your liver enzyme results as well as your lipase and

amylase. Have you been tested for any kind or heridtary problem ? These are

just toughts to ponder. My typo' s are the pits today, I hunt and peck,

sorry .

Does the Viokase help at all ? Some pain meds help other not as much. Mostly

you may have to try others to see what works best for you . How is your

white blood count now ? If they are talking about removing part of the

pancreas you may want to check with Dr. Sutherland aboit removing the

pancreas. there have been alot of postings in this group fropm folks who

wished they did not have the partial removeal done but the complete removal.

Do some " homework " before you go to Cleveland and ask LOTS of questions !

Lily

Mark = www.top5plus5.com. I think Mark has Dr. Sutherlands info on that web

site as well. Good Luck.

Lily

Head of Pancreas Separated from Body

> I posted this several days ago late at night and have not received

> any feedback so I thought I would try again.

>

> I haven't posted for quite awhile. I had an ERCP on March 2, 2001

> and had Acute Pancreatitis on March 3. I spent fourteen days in the

> hospital , npo for ten days and I third spaced, blew up like a tick.

> Doctors have been telling me since that I would be better anyday.

> They couldn't understand why I have continued to have so much pain.

> I have been taking Diluadid 8mg X2 to 3 per day and Vicodin 3 to 4

> per day. Viocase with snacks and meals hasn't seemed to affect my

> pain at all. My original Gastroenterologist who is a personal friend

> finally sent me to a Pancreatic surgeon at OSU , Dr. Ellison. I have

> had CAT scans and MRI's monthly , he takes one look at them and

> tells me that he thinks that my pancreas has split in two, the head

> has separated from the body. This was caused by the necrosis that

> occurred during the initial acute stage. He sas that the only way

> for me to get relief from this pain is to have the body removed. He

> wants me to go to the Cleveland Clinic for a endoscopic ultrasound

> to confirm his diagnosis. Has anybody had or know of a similar

> experience?

>

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

As I posted last week, Dr. Sutherland is also a nice guy!

He took time out of his busy schedule to reply to my email inquiry. And

contacted me again with further info.

-E

[Guest guest]

E.R. Sutherland, M.D., Ph.D.,

E.R. Sutherland, M.D., Ph.D., is Director of the Diabetes Institute for

Immunology and Transplantation and Head of the University of Minnesota Division

of Transplantation. Regarded as the pioneer of pancreas transplants, Dr.

Sutherland and his associates have performed more than 900 pancreas and islet

transplants during his 30-year quest to perfect a cure for diabetes. Many of the

doctors who trained as residents and fellows under his direction have gone on to

develop pancreas transplant programs around the world. While his achievements

have brought him numerous awards and honors, Dr. Sutherland is known among his

patients as a man of great humility who is always available to answer their

concerns and who is determined to give back to them the quality of their days.

http://www.diabetesinstitute.org/people/Sutherland.htm

The Diabetes Institute For Immunology and Transplantation Department of Surgery

420 Delaware Street, SE Minneapolis, MN, 55455 Phone: (612)624-8402 Website:

http://www.Diabetesinstitute.org

Mark E. Armstrong

www.top5plus5.com

Oregon State Chapter Rep

Pancreatitis Association, International

Head of Pancreas Separated from Body

>

>

> > I posted this several days ago late at night and have not received

> > any feedback so I thought I would try again.

> >

> > I haven't posted for quite awhile. I had an ERCP on March 2, 2001

> > and had Acute Pancreatitis on March 3. I spent fourteen days in the

> > hospital , npo for ten days and I third spaced, blew up like a tick.

> > Doctors have been telling me since that I would be better anyday.

> > They couldn't understand why I have continued to have so much pain.

> > I have been taking Diluadid 8mg X2 to 3 per day and Vicodin 3 to 4

> > per day. Viocase with snacks and meals hasn't seemed to affect my

> > pain at all. My original Gastroenterologist who is a personal friend

> > finally sent me to a Pancreatic surgeon at OSU , Dr. Ellison. I have

> > had CAT scans and MRI's monthly , he takes one look at them and

> > tells me that he thinks that my pancreas has split in two, the head

> > has separated from the body. This was caused by the necrosis that

> > occurred during the initial acute stage. He sas that the only way

> > for me to get relief from this pain is to have the body removed. He

> > wants me to go to the Cleveland Clinic for a endoscopic ultrasound

> > to confirm his diagnosis. Has anybody had or know of a similar

> > experience?

> >

> >

> >

> >

> > PANCREATITIS Association, Intl.

> > Online e-mail group

> >

> > To reply to this message hit " reply " or send an e-mail to:

> Pancreatitis (AT) Yahoo

> >

> > To subscribe to this e-mail group, simply send an e-mail to:

> Pancreatitis-subscribe (AT) Yahoo

> >

> >

[Guest guest]

Thanks Mark,

You are definite keeper !!!! I hope that you are feeling better.

Lily

Head of Pancreas Separated from Body

> >

> >

> > > I posted this several days ago late at night and have not received

> > > any feedback so I thought I would try again.

> > >

> > > I haven't posted for quite awhile. I had an ERCP on March 2, 2001

> > > and had Acute Pancreatitis on March 3. I spent fourteen days in the

> > > hospital , npo for ten days and I third spaced, blew up like a tick.

> > > Doctors have been telling me since that I would be better anyday.

> > > They couldn't understand why I have continued to have so much pain.

> > > I have been taking Diluadid 8mg X2 to 3 per day and Vicodin 3 to 4

> > > per day. Viocase with snacks and meals hasn't seemed to affect my

> > > pain at all. My original Gastroenterologist who is a personal friend

> > > finally sent me to a Pancreatic surgeon at OSU , Dr. Ellison. I have

> > > had CAT scans and MRI's monthly , he takes one look at them and

> > > tells me that he thinks that my pancreas has split in two, the head

> > > has separated from the body. This was caused by the necrosis that

> > > occurred during the initial acute stage. He sas that the only way

> > > for me to get relief from this pain is to have the body removed. He

> > > wants me to go to the Cleveland Clinic for a endoscopic ultrasound

> > > to confirm his diagnosis. Has anybody had or know of a similar

> > > experience?

> > >

> > >

> > >

> > >

> > > PANCREATITIS Association, Intl.

> > > Online e-mail group

> > >

> > > To reply to this message hit " reply " or send an e-mail to:

> > Pancreatitis (AT) Yahoo

> > >

> > > To subscribe to this e-mail group, simply send an e-mail to:

> > Pancreatitis-subscribe (AT) Yahoo

> > >

> > >