Living in AK with CF was Re: 2 wcf

[Guest guest]

If anyone still has the info. that Torsten gave us concerning OGTT could you

forward it to me? Somehow mine got missing and my filing cabinet is packed.

Thanks

from PA

[Guest guest]

,

I don't have the info. on hand but it is in the archives.

Mom to Elliot

11mths wcf

[Guest guest]

, we desperately want to move back to Alaska someday, we loved it there.

Can you e-mail me, privately if you like, with how exactly you manage to

handle the CF medical care? This has been our major concern with moving

back...well, also the impact, if any, of the cold on 's lungs, so any

insight you have there would be appreciated as well.

Thanks,

>

> Hi Melinda, I guess there has been some confusion...with all the 's on

> the list. I live in Alaska, have for almost 28 years...moved here from

> Arkansas way back when. I'm glad it helps to read of others for you...it has

> for me too. There was no one for us when our kids were young. We live in a

> very small town, flying into Anchorage a couple of times a year for checkups.

> There seems to be a lot of parents of young and newly diagnosed on here and

> are all very fortunate to have this support, as I am now. To be able to

> read of so many others who have and are dealing with this is great. When I

> found one of the support lists a couple of years ago, I had never really

> heard of an adult living successfully with cf...or met one. Our children

> were teenagers then, so you can imagine the doubt and uncertainty that we

> were dealing with. We still are in many ways, but it sure has helped to

> *meet* others and learn from the real *experts*...those wonderful pwcf who

> are willing to share their lives with us to help us gain insight and

> knowledge. Thanks and take care, lisa from ak

[Guest guest]

I think I have it, but it will take me a while to get to it.

Dawn mom of 4, 6 and under, the youngest wcf

Re: Living in AK with CF was Re: 2 wcf

> If anyone still has the info. that Torsten gave us concerning OGTT could

you

> forward it to me? Somehow mine got missing and my filing cabinet is

packed.

> Thanks

> from PA

>

>

>

[Guest guest]

It was sent out to list on the January 11th if that helps any.

I had it and deleted after I found it. Maybe torsten would send again if

you wrote him directly.

LOVE, GRDMBEV

Re: Living in AK with CF was Re: 2 wcf

I think I have it, but it will take me a while to get to it.

Dawn mom of 4, 6 and under, the youngest wcf

Re: Living in AK with CF was Re: 2 wcf

> If anyone still has the info. that Torsten gave us concerning OGTT

> could

you

> forward it to me? Somehow mine got missing and my filing cabinet is

packed.

> Thanks

> from PA

>

>

>