Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 > > Funny, I just wrote something similar. Now that we are seeing > > several > > families with this experience...I am really thinking vitamin E > > issues > > are directly contributing to sensory issues. I am a supporter > > of " evidence based medicine " . Even though all of this is > anecdotal, > > we are really collecting quite a bit of new information. Keep it > > up!! I just bought some phosphocholine (soy lecithin)...since > I've > > read enough to suggest it " might " help, and its completely safe. > > ph has leveled off on all his vitamin E surges...and is doing > > just > > awesome, but it would be nice to take him to the next level with > > intelligibility. Most people would not realize he talks any > > different > > than a normal 3 year old...but just last week someone asked where > > his " accent " was from. My husband told them he was from Brooklyn. > > Oh...didn't realize you guys were from new york. My husband just > > smiled. Too much energy to try to explain.... - > > > > I just posted that my daughter used to show side effects when I > > increased or reintroduced the EFA's (they were sensory and > emotional > > in nature). We also discovered later that she is deficient in > > Vitamin > > E. It is possible that we were worsening her symptoms with EFA's > > because it is possible it increased her demand for the Vit E > > (further > > depleting supplies). We stopped the EFA's, gave her Vit E at > 400IU > > for a couple of weeks, then reintroduced the EFA's. In our case > she > > is now able to tolerate the EFA's without any side effects. > Perhaps > > this is also your son's case, or there may be another issue going > > on. > > It might be worth a try... I hope or some one else can > give > > you additional input. > > > > > > > > --- End forwarded message --- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 > > Funny, I just wrote something similar. Now that we are seeing > > several > > families with this experience...I am really thinking vitamin E > > issues > > are directly contributing to sensory issues. I am a supporter > > of " evidence based medicine " . Even though all of this is > anecdotal, > > we are really collecting quite a bit of new information. Keep it > > up!! I just bought some phosphocholine (soy lecithin)...since > I've > > read enough to suggest it " might " help, and its completely safe. > > ph has leveled off on all his vitamin E surges...and is doing > > just > > awesome, but it would be nice to take him to the next level with > > intelligibility. Most people would not realize he talks any > > different > > than a normal 3 year old...but just last week someone asked where > > his " accent " was from. My husband told them he was from Brooklyn. > > Oh...didn't realize you guys were from new york. My husband just > > smiled. Too much energy to try to explain.... - > > > > I just posted that my daughter used to show side effects when I > > increased or reintroduced the EFA's (they were sensory and > emotional > > in nature). We also discovered later that she is deficient in > > Vitamin > > E. It is possible that we were worsening her symptoms with EFA's > > because it is possible it increased her demand for the Vit E > > (further > > depleting supplies). We stopped the EFA's, gave her Vit E at > 400IU > > for a couple of weeks, then reintroduced the EFA's. In our case > she > > is now able to tolerate the EFA's without any side effects. > Perhaps > > this is also your son's case, or there may be another issue going > > on. > > It might be worth a try... I hope or some one else can > give > > you additional input. > > > > > > > > --- End forwarded message --- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 , which brand is a good one for phosphocholine and where did you get it? Thanks, Deborah > > > Funny, I just wrote something similar. Now that we are seeing > > > several > > > families with this experience...I am really thinking vitamin E > > > issues > > > are directly contributing to sensory issues. I am a supporter > > > of " evidence based medicine " . Even though all of this is > > anecdotal, > > > we are really collecting quite a bit of new information. Keep it > > > up!! I just bought some phosphocholine (soy lecithin)...since > > I've > > > read enough to suggest it " might " help, and its completely safe. > > > ph has leveled off on all his vitamin E surges...and is doing > > > just > > > awesome, but it would be nice to take him to the next level with > > > intelligibility. Most people would not realize he talks any > > > different > > > than a normal 3 year old...but just last week someone asked where > > > his " accent " was from. My husband told them he was from Brooklyn. > > > Oh...didn't realize you guys were from new york. My husband just > > > smiled. Too much energy to try to explain.... - > > > > > > I just posted that my daughter used to show side effects when I > > > increased or reintroduced the EFA's (they were sensory and > > emotional > > > in nature). We also discovered later that she is deficient in > > > Vitamin > > > E. It is possible that we were worsening her symptoms with EFA's > > > because it is possible it increased her demand for the Vit E > > > (further > > > depleting supplies). We stopped the EFA's, gave her Vit E at > > 400IU > > > for a couple of weeks, then reintroduced the EFA's. In our case > > she > > > is now able to tolerate the EFA's without any side effects. > > Perhaps > > > this is also your son's case, or there may be another issue going > > > on. > > > It might be worth a try... I hope or some one else can > > give > > > you additional input. > > > > > > > > > > > > --- End forwarded message --- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 -- I agree that the fat solubles should not show a difference with a 4 day removal -- but I've witnessed it twice now. The first time my son did not have his typical 2000 - 3000mg of Omegas it took just 3 days to see a decline in his speech. That was after only being on them for about 3 weeks, however. 2 months ago I added Vit E (I tried a Pioneer brand with selenium added) and had to remove it after abuot a week due to a very emotional teary eyed boy. So, last month I added phosphatidyl choline complex from Country Life AND vitamin E again. No emotional changes. It seemed that he was able to handle more complex tasks -- and that he was increasing his language complexity -- but it's hard to tell. Anyway -- off of everything for 4 days , no decline in speech -- but teary eyed emotional little boy again. Hmmm The good news - I feel like I'm onto something. The bad news -- what is it? Also, I purchased phosphatidylcholine -- but you said phosphocholine. I see that phosophocholine is a precurser to phosphatidylcholine -- but I really can't see any studies to see which is better. > > > > Funny, I just wrote something similar. Now that we are seeing > > > > several > > > > families with this experience...I am really thinking vitamin E > > > > issues > > > > are directly contributing to sensory issues. I am a supporter > > > > of " evidence based medicine " . Even though all of this is > > > anecdotal, > > > > we are really collecting quite a bit of new information. Keep > it > > > > up!! I just bought some phosphocholine (soy lecithin)...since > > > I've > > > > read enough to suggest it " might " help, and its completely > safe. > > > > ph has leveled off on all his vitamin E surges...and is > doing > > > > just > > > > awesome, but it would be nice to take him to the next level > with > > > > intelligibility. Most people would not realize he talks any > > > > different > > > > than a normal 3 year old...but just last week someone asked > where > > > > his " accent " was from. My husband told them he was from > Brooklyn. > > > > Oh...didn't realize you guys were from new york. My husband > just > > > > smiled. Too much energy to try to explain.... - > > > > > > > > I just posted that my daughter used to show side effects when I > > > > increased or reintroduced the EFA's (they were sensory and > > > emotional > > > > in nature). We also discovered later that she is deficient in > > > > Vitamin > > > > E. It is possible that we were worsening her symptoms with > EFA's > > > > because it is possible it increased her demand for the Vit E > > > > (further > > > > depleting supplies). We stopped the EFA's, gave her Vit E at > > > 400IU > > > > for a couple of weeks, then reintroduced the EFA's. In our > case > > > she > > > > is now able to tolerate the EFA's without any side effects. > > > Perhaps > > > > this is also your son's case, or there may be another issue > going > > > > on. > > > > It might be worth a try... I hope or some one else can > > > give > > > > you additional input. > > > > > > > > > > > > > > > > --- End forwarded message --- > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 , which brand is a good one for phosphocholine and where did you get it? Thanks, Deborah > > > Funny, I just wrote something similar. Now that we are seeing > > > several > > > families with this experience...I am really thinking vitamin E > > > issues > > > are directly contributing to sensory issues. I am a supporter > > > of " evidence based medicine " . Even though all of this is > > anecdotal, > > > we are really collecting quite a bit of new information. Keep it > > > up!! I just bought some phosphocholine (soy lecithin)...since > > I've > > > read enough to suggest it " might " help, and its completely safe. > > > ph has leveled off on all his vitamin E surges...and is doing > > > just > > > awesome, but it would be nice to take him to the next level with > > > intelligibility. Most people would not realize he talks any > > > different > > > than a normal 3 year old...but just last week someone asked where > > > his " accent " was from. My husband told them he was from Brooklyn. > > > Oh...didn't realize you guys were from new york. My husband just > > > smiled. Too much energy to try to explain.... - > > > > > > I just posted that my daughter used to show side effects when I > > > increased or reintroduced the EFA's (they were sensory and > > emotional > > > in nature). We also discovered later that she is deficient in > > > Vitamin > > > E. It is possible that we were worsening her symptoms with EFA's > > > because it is possible it increased her demand for the Vit E > > > (further > > > depleting supplies). We stopped the EFA's, gave her Vit E at > > 400IU > > > for a couple of weeks, then reintroduced the EFA's. In our case > > she > > > is now able to tolerate the EFA's without any side effects. > > Perhaps > > > this is also your son's case, or there may be another issue going > > > on. > > > It might be worth a try... I hope or some one else can > > give > > > you additional input. > > > > > > > > > > > > --- End forwarded message --- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2006 Report Share Posted November 11, 2006 -- I agree that the fat solubles should not show a difference with a 4 day removal -- but I've witnessed it twice now. The first time my son did not have his typical 2000 - 3000mg of Omegas it took just 3 days to see a decline in his speech. That was after only being on them for about 3 weeks, however. 2 months ago I added Vit E (I tried a Pioneer brand with selenium added) and had to remove it after abuot a week due to a very emotional teary eyed boy. So, last month I added phosphatidyl choline complex from Country Life AND vitamin E again. No emotional changes. It seemed that he was able to handle more complex tasks -- and that he was increasing his language complexity -- but it's hard to tell. Anyway -- off of everything for 4 days , no decline in speech -- but teary eyed emotional little boy again. Hmmm The good news - I feel like I'm onto something. The bad news -- what is it? Also, I purchased phosphatidylcholine -- but you said phosphocholine. I see that phosophocholine is a precurser to phosphatidylcholine -- but I really can't see any studies to see which is better. > > > > Funny, I just wrote something similar. Now that we are seeing > > > > several > > > > families with this experience...I am really thinking vitamin E > > > > issues > > > > are directly contributing to sensory issues. I am a supporter > > > > of " evidence based medicine " . Even though all of this is > > > anecdotal, > > > > we are really collecting quite a bit of new information. Keep > it > > > > up!! I just bought some phosphocholine (soy lecithin)...since > > > I've > > > > read enough to suggest it " might " help, and its completely > safe. > > > > ph has leveled off on all his vitamin E surges...and is > doing > > > > just > > > > awesome, but it would be nice to take him to the next level > with > > > > intelligibility. Most people would not realize he talks any > > > > different > > > > than a normal 3 year old...but just last week someone asked > where > > > > his " accent " was from. My husband told them he was from > Brooklyn. > > > > Oh...didn't realize you guys were from new york. My husband > just > > > > smiled. Too much energy to try to explain.... - > > > > > > > > I just posted that my daughter used to show side effects when I > > > > increased or reintroduced the EFA's (they were sensory and > > > emotional > > > > in nature). We also discovered later that she is deficient in > > > > Vitamin > > > > E. It is possible that we were worsening her symptoms with > EFA's > > > > because it is possible it increased her demand for the Vit E > > > > (further > > > > depleting supplies). We stopped the EFA's, gave her Vit E at > > > 400IU > > > > for a couple of weeks, then reintroduced the EFA's. In our > case > > > she > > > > is now able to tolerate the EFA's without any side effects. > > > Perhaps > > > > this is also your son's case, or there may be another issue > going > > > > on. > > > > It might be worth a try... I hope or some one else can > > > give > > > > you additional input. > > > > > > > > > > > > > > > > --- End forwarded message --- > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 > > > > > Funny, I just wrote something similar. Now that we are seeing > > > > > several > > > > > families with this experience...I am really thinking vitamin E > > > > > issues > > > > > are directly contributing to sensory issues. I am a supporter > > > > > of " evidence based medicine " . Even though all of this is > > > > anecdotal, > > > > > we are really collecting quite a bit of new information. > Keep > > it > > > > > up!! I just bought some phosphocholine (soy lecithin)...since > > > > I've > > > > > read enough to suggest it " might " help, and its completely > > safe. > > > > > ph has leveled off on all his vitamin E surges...and is > > doing > > > > > just > > > > > awesome, but it would be nice to take him to the next level > > with > > > > > intelligibility. Most people would not realize he talks any > > > > > different > > > > > than a normal 3 year old...but just last week someone asked > > where > > > > > his " accent " was from. My husband told them he was from > > Brooklyn. > > > > > Oh...didn't realize you guys were from new york. My husband > > just > > > > > smiled. Too much energy to try to explain.... - > > > > > > > > > > I just posted that my daughter used to show side effects when > I > > > > > increased or reintroduced the EFA's (they were sensory and > > > > emotional > > > > > in nature). We also discovered later that she is deficient in > > > > > Vitamin > > > > > E. It is possible that we were worsening her symptoms with > > EFA's > > > > > because it is possible it increased her demand for the Vit E > > > > > (further > > > > > depleting supplies). We stopped the EFA's, gave her Vit E at > > > > 400IU > > > > > for a couple of weeks, then reintroduced the EFA's. In our > > case > > > > she > > > > > is now able to tolerate the EFA's without any side effects. > > > > Perhaps > > > > > this is also your son's case, or there may be another issue > > going > > > > > on. > > > > > It might be worth a try... I hope or some one else > can > > > > give > > > > > you additional input. > > > > > > > > > > > > > > > > > > > > --- End forwarded message --- > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 > > > > > Funny, I just wrote something similar. Now that we are seeing > > > > > several > > > > > families with this experience...I am really thinking vitamin E > > > > > issues > > > > > are directly contributing to sensory issues. I am a supporter > > > > > of " evidence based medicine " . Even though all of this is > > > > anecdotal, > > > > > we are really collecting quite a bit of new information. > Keep > > it > > > > > up!! I just bought some phosphocholine (soy lecithin)...since > > > > I've > > > > > read enough to suggest it " might " help, and its completely > > safe. > > > > > ph has leveled off on all his vitamin E surges...and is > > doing > > > > > just > > > > > awesome, but it would be nice to take him to the next level > > with > > > > > intelligibility. Most people would not realize he talks any > > > > > different > > > > > than a normal 3 year old...but just last week someone asked > > where > > > > > his " accent " was from. My husband told them he was from > > Brooklyn. > > > > > Oh...didn't realize you guys were from new york. My husband > > just > > > > > smiled. Too much energy to try to explain.... - > > > > > > > > > > I just posted that my daughter used to show side effects when > I > > > > > increased or reintroduced the EFA's (they were sensory and > > > > emotional > > > > > in nature). We also discovered later that she is deficient in > > > > > Vitamin > > > > > E. It is possible that we were worsening her symptoms with > > EFA's > > > > > because it is possible it increased her demand for the Vit E > > > > > (further > > > > > depleting supplies). We stopped the EFA's, gave her Vit E at > > > > 400IU > > > > > for a couple of weeks, then reintroduced the EFA's. In our > > case > > > > she > > > > > is now able to tolerate the EFA's without any side effects. > > > > Perhaps > > > > > this is also your son's case, or there may be another issue > > going > > > > > on. > > > > > It might be worth a try... I hope or some one else > can > > > > give > > > > > you additional input. > > > > > > > > > > > > > > > > > > > > --- End forwarded message --- > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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