Stella's doc apt- 7days seizure free... yippeee

[Guest guest]

Hi all, Had to write I am just so excited,

We just got back from Stella's doc apt, I was so happy to announce 7 days

of no seizures, can you believe it, last week she was having dozens a day.

The most unusual to report however is her BHB was 1.7, now that is low, it's

never been that low, is it a lab mistake they are assuming it is as her

carnatine levels looked good. I have no idea what else it could be. I'm

just so tickled she's had such a good week.

School is walking on egg shells though waiting the 1st seizure, but i'm

feeling this is going to be a good year for her. I hope this is the start

of a very long stretch for her of being seizure free. Her doc and dietician

both said she was sooo cute today, such personality full of energy and non

stop 5 year old chatter. I love it!!!

Her platelet count is low though so we have to meet with a specialist about

that, especially if we end up going ahead with the VNS.

We did have a nasty evening Wednesday she woke up at 11:30pm vomiting, so

the doc is putting her on a reflux medicine to help her stomach out.

I know there was some mention on here of some minerals your children are

taking the cal-mag-zinc I think, where do you get it from, is it different

from the ones at the health store?

--

-mom to Stella, 5years old, started keto diet May 10th 2004 still

waiting to be seizure free. Also on Lamictal, epam and Diamox. Anisa

is almost 10 and a happy healthy girl.