Re: Severe Constipation as a symptom of Celiac

[Guest guest]

Hi Deanna, I'm right there with you. Are the raw fruits and veggies helping? Unfortunately, they don't help me. I've also been adding ground flax seed to smoothies, salads... just about everything. Sometimes it helps and sometimes it doesn't. I've been told we're suppose to go 2-3 times per day. I go once every 4 days. I've also tried Enzymatic Therapy Fiber Fusion. There again... sometimes it helps and sometimes it doesn't. I've noticed, though, I'm not as constipated when I use ground flax seed and Fiber Fusion. HTH a little. Cheryl in NM souldream74 wrote: Hey everybody! I have been a constipation sufferer for most of my life, but my bowels became paralyzed around 21 years old. When I smoked cigarettes, I didn't seem to have a problem, but as soon as I quit - bam - totally stopped. So, I have recently discovered that I am likely celiac..never diagnosed since I didn't discover that full-blown celiac could be the problem till after eliminating gluten. I am eight months pregnant and my symptoms are so bad that I am switching to an almost all raw food diet. I can't handle the possibility of

getting contaminated and God only knows what else I might be intolerant to. I am going to go almost totally raw vegan (with the exceptions of bean soup made with a ham hock...mmmmmmm) to see if my system can begin to heal. Anyone else out there present with exclusive constipation? I never, ever, ever get diarrhea. Unless it's food poisoning..I ate a couple of handfuls of goldfish and it took more than seven days for my system to move again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows of anyone..I feel very, very alone! Take care, Deanna

[Guest guest]

Hi Deanna, I'm right there with you. Are the raw fruits and veggies helping? Unfortunately, they don't help me. I've also been adding ground flax seed to smoothies, salads... just about everything. Sometimes it helps and sometimes it doesn't. I've been told we're suppose to go 2-3 times per day. I go once every 4 days. I've also tried Enzymatic Therapy Fiber Fusion. There again... sometimes it helps and sometimes it doesn't. I've noticed, though, I'm not as constipated when I use ground flax seed and Fiber Fusion. HTH a little. Cheryl in NM souldream74 wrote: Hey everybody! I have been a constipation sufferer for most of my life, but my bowels became paralyzed around 21 years old. When I smoked cigarettes, I didn't seem to have a problem, but as soon as I quit - bam - totally stopped. So, I have recently discovered that I am likely celiac..never diagnosed since I didn't discover that full-blown celiac could be the problem till after eliminating gluten. I am eight months pregnant and my symptoms are so bad that I am switching to an almost all raw food diet. I can't handle the possibility of

getting contaminated and God only knows what else I might be intolerant to. I am going to go almost totally raw vegan (with the exceptions of bean soup made with a ham hock...mmmmmmm) to see if my system can begin to heal. Anyone else out there present with exclusive constipation? I never, ever, ever get diarrhea. Unless it's food poisoning..I ate a couple of handfuls of goldfish and it took more than seven days for my system to move again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows of anyone..I feel very, very alone! Take care, Deanna

[Guest guest]

Yes!! I was diagnosed with colon inertia right before I was diagnosed with celiac. It is still just as bad even though I've been gf for six months. Tomorrow I am visiting a MD who is also a Chinese woman doc who does adjustments, accupunture and the like. She asked to see me to see if she could help. She is one of the last three ideas I have. If you want to visit about this more off-list please email me privately. I'd love to see what you've found that works....or doesn't.souldream74 wrote: Hey everybody! I have been a constipation sufferer for most of mylife, but my bowels became paralyzed around 21 years old. When Ismoked cigarettes, I didn't seem to have a problem, but as soon as Iquit - bam - totally stopped. So, I have

recently discovered that I amlikely celiac..never diagnosed since I didn't discover that full-blownceliac could be the problem till after eliminating gluten. I am eightmonths pregnant and my symptoms are so bad that I am switching to analmost all raw food diet. I can't handle the possibility of gettingcontaminated and God only knows what else I might be intolerant to. Iam going to go almost totally raw vegan (with the exceptions of beansoup made with a ham hock...mmmmmmm) to see if my system can begin toheal. Anyone else out there present with exclusive constipation? I never,ever, ever get diarrhea. Unless it's food poisoning..I ate a couple ofhandfuls of goldfish and it took more than seven days for my system tomove again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows ofanyone..I feel very, very alone!Take

care,Deanna

[Guest guest]

Has anyone tried the new constipation med. that begins with the letter A and just came out in January? I tried it for about three days. It made me fell like I really needed to get to the br soon, but still no results.Cheryl wrote: Hi Deanna,I'm right there with you. Are the raw fruits and veggies helping? Unfortunately, they don't help me. I've also been adding ground flax seed to smoothies, salads... just about everything. Sometimes it helps and sometimes it doesn't. I've been told we're suppose to go 2-3 times per day. I go once every 4 days. I've also tried Enzymatic Therapy Fiber Fusion. There again... sometimes it helps and sometimes it doesn't. I've noticed, though, I'm not as constipated when I use ground flax seed and Fiber Fusion.HTH a little.Cheryl in NMsouldream74 wrote: Hey everybody! I have been a constipation sufferer for most of mylife, but my bowels became paralyzed around 21 years old. When Ismoked cigarettes, I didn't seem to have a problem, but as soon as Iquit - bam - totally stopped. So, I have recently discovered that I amlikely celiac..never diagnosed since I didn't discover that full-blownceliac could be the problem till after eliminating

gluten. I am eightmonths pregnant and my symptoms are so bad that I am switching to analmost all raw food diet. I can't handle the possibility of gettingcontaminated and God only knows what else I might be intolerant to. Iam going to go almost totally raw vegan (with the exceptions of beansoup made with a ham hock...mmmmmmm) to see if my system can begin toheal. Anyone else out there present with exclusive constipation? I never,ever, ever get diarrhea. Unless it's food poisoning..I ate a couple ofhandfuls of goldfish and it took more than seven days for my system tomove again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows ofanyone..I feel very, very alone!Take care,Deanna

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[Guest guest]

Has anyone tried the new constipation med. that begins with the letter A and just came out in January? I tried it for about three days. It made me fell like I really needed to get to the br soon, but still no results.Cheryl wrote: Hi Deanna,I'm right there with you. Are the raw fruits and veggies helping? Unfortunately, they don't help me. I've also been adding ground flax seed to smoothies, salads... just about everything. Sometimes it helps and sometimes it doesn't. I've been told we're suppose to go 2-3 times per day. I go once every 4 days. I've also tried Enzymatic Therapy Fiber Fusion. There again... sometimes it helps and sometimes it doesn't. I've noticed, though, I'm not as constipated when I use ground flax seed and Fiber Fusion.HTH a little.Cheryl in NMsouldream74 wrote: Hey everybody! I have been a constipation sufferer for most of mylife, but my bowels became paralyzed around 21 years old. When Ismoked cigarettes, I didn't seem to have a problem, but as soon as Iquit - bam - totally stopped. So, I have recently discovered that I amlikely celiac..never diagnosed since I didn't discover that full-blownceliac could be the problem till after eliminating

gluten. I am eightmonths pregnant and my symptoms are so bad that I am switching to analmost all raw food diet. I can't handle the possibility of gettingcontaminated and God only knows what else I might be intolerant to. Iam going to go almost totally raw vegan (with the exceptions of beansoup made with a ham hock...mmmmmmm) to see if my system can begin toheal. Anyone else out there present with exclusive constipation? I never,ever, ever get diarrhea. Unless it's food poisoning..I ate a couple ofhandfuls of goldfish and it took more than seven days for my system tomove again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows ofanyone..I feel very, very alone!Take care,Deanna

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[Guest guest]

My husband was going every three to four days before his

diagnosis. He did get diarrhea once in a while though. He said for most

of his adult life he would only go every few days though.

After a month GF he is now going daily.

Kris

souldream74 <deannanwhite (AT) elitemail (DOT) org>

wrote:

Anyone else out there present with exclusive constipation? I never,

ever, ever get diarrhea. Unless it's food poisoning..I ate a couple of

handfuls of goldfish and it took more than seven days for my system to

move again (and by move I mean for enemas/colonics/laxatives to

work).

I'd love to hear from anyone who has had this symptom or knows of

anyone..I feel very, very alone!

Take care,

Deanna

[Guest guest]

My husband was going every three to four days before his

diagnosis. He did get diarrhea once in a while though. He said for most

of his adult life he would only go every few days though.

After a month GF he is now going daily.

Kris

souldream74 <deannanwhite (AT) elitemail (DOT) org>

wrote:

Anyone else out there present with exclusive constipation? I never,

ever, ever get diarrhea. Unless it's food poisoning..I ate a couple of

handfuls of goldfish and it took more than seven days for my system to

move again (and by move I mean for enemas/colonics/laxatives to

work).

I'd love to hear from anyone who has had this symptom or knows of

anyone..I feel very, very alone!

Take care,

Deanna

[Guest guest]

Thanks wonderful!! I was hoping the same would happen for me but it did not. I really think the celiac damaged the nerves in my colon.Kris Swofford wrote: My husband was going every three to four days before his diagnosis. He did get diarrhea once in a while though. He said for most of his adult life he would only go every few days though.After a month GF he is now going daily.Kris souldream74 <deannanwhite (AT) elitemail (DOT) org> wrote: Anyone else out there present with exclusive constipation? I never,ever, ever get diarrhea. Unless it's food poisoning..I ate a couple ofhandfuls of goldfish and it took more than seven days for my system tomove again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows ofanyone..I feel very, very alone!Take care,Deanna

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[Guest guest]

Thanks wonderful!! I was hoping the same would happen for me but it did not. I really think the celiac damaged the nerves in my colon.Kris Swofford wrote: My husband was going every three to four days before his diagnosis. He did get diarrhea once in a while though. He said for most of his adult life he would only go every few days though.After a month GF he is now going daily.Kris souldream74 <deannanwhite (AT) elitemail (DOT) org> wrote: Anyone else out there present with exclusive constipation? I never,ever, ever get diarrhea. Unless it's food poisoning..I ate a couple ofhandfuls of goldfish and it took more than seven days for my system tomove again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows ofanyone..I feel very, very alone!Take care,Deanna

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[Guest guest]

Thanks wonderful!! I was hoping the same would happen for me but it did not. I really think the celiac damaged the nerves in my colon.Kris Swofford wrote: My husband was going every three to four days before his diagnosis. He did get diarrhea once in a while though. He said for most of his adult life he would only go every few days though.After a month GF he is now going daily.Kris souldream74 <deannanwhite (AT) elitemail (DOT) org> wrote: Anyone else out there present with exclusive constipation? I never,ever, ever get diarrhea. Unless it's food poisoning..I ate a couple ofhandfuls of goldfish and it took more than seven days for my system tomove again (and by move I mean for enemas/colonics/laxatives to work). I'd love to hear from anyone who has had this symptom or knows ofanyone..I feel very, very alone!Take care,Deanna

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[Guest guest]

Hi Deanna and Cheryl,

You are describing my sister and my husband. In my sister's case we

think it was candida (a yeast that can grow in your intestines). It

has been found to completely turn off the bowels. It can just shut

them down entirely. She had been hospitalized a few times in her life

because it was so severe. One doctor said he gave her " enough to

unstop an elephant " (TMI) and very little happened. She had to go on

some very serious antifungal medicines after a surgery and she was a

different person after that. Regular and normal. She has to watch her

sugar and dairy consumption and her yeast consumption (no alcohol,

yeast " breads " , etc.)

I suspect my husband is dealing with the same thing but he is

unwilling to change his diet any more than he already has. He is gf

and egg free and feels that if you eliminate his sugar, limit dairy

and take away his occasional glass of wine you are taking away the

last of his few enjoyments. So he suffers through it.

He has tried all kinds of natural remedies and herbal compounds. Some

have had a limited success but nothing really noteworthy. A friend of

ours who suffers from the same thing was just recently diagnosed as

gluten intolerant. Her doctor told her to go gf, dairy free and take

psyllium husks with A LOT of water during the day. She also started

probiotics. She said she feels like a new person.

I hope you both can find an answer. 8 months pregnant and

constipated. Oh, I feel for you.

MArcie

Artistart.com

Hey everybody! I have been a

constipation sufferer for most of my

> life, but my bowels became paralyzed around 21 years old. When I

> smoked cigarettes, I didn't seem to have a problem, but as soon as

I

> quit - bam - totally stopped. So, I have recently discovered that

I am

> likely celiac..never diagnosed since I didn't discover that full-

blown

> celiac could be the problem till after eliminating gluten. I am

eight

> months pregnant and my symptoms are so bad that I am switching to

an

> almost all raw food diet. I can't handle the possibility of getting

> contaminated and God only knows what else I might be intolerant

to. I

> am going to go almost totally raw vegan (with the exceptions of

bean

> soup made with a ham hock...mmmmmmm) to see if my system can begin

to

> heal.

>

> Anyone else out there present with exclusive constipation? I never,

> ever, ever get diarrhea. Unless it's food poisoning..I ate a

couple of

> handfuls of goldfish and it took more than seven days for my

system to

> move again (and by move I mean for enemas/colonics/laxatives to

work).

> I'd love to hear from anyone who has had this symptom or knows of

> anyone..I feel very, very alone!

>

> Take care,

> Deanna

>

[Guest guest]

Also, don't forget that constipation is one of the major complaints

during pregnancy. The digestive tract slows down significantly to

help absorb as many nutrients as it can. This also my have

something to do with your symptoms.

I am also pregnant and have constipation. Increasing the fiber will

definitely help. I also have been taking metamucil when it gets bad.

>

> Hey everybody! I have been a constipation sufferer for most of my

> life, but my bowels became paralyzed around 21 years old. When I

> smoked cigarettes, I didn't seem to have a problem, but as soon as

I

> quit - bam - totally stopped. So, I have recently discovered that

I am

> likely celiac..never diagnosed since I didn't discover that full-

blown

> celiac could be the problem till after eliminating gluten. I am

eight

> months pregnant and my symptoms are so bad that I am switching to

an

> almost all raw food diet. I can't handle the possibility of getting

> contaminated and God only knows what else I might be intolerant

to. I

> am going to go almost totally raw vegan (with the exceptions of

bean

> soup made with a ham hock...mmmmmmm) to see if my system can begin

to

> heal.

>

> Anyone else out there present with exclusive constipation? I never,

> ever, ever get diarrhea. Unless it's food poisoning..I ate a

couple of

> handfuls of goldfish and it took more than seven days for my

system to

> move again (and by move I mean for enemas/colonics/laxatives to

work).

> I'd love to hear from anyone who has had this symptom or knows of

> anyone..I feel very, very alone!

>

> Take care,

> Deanna

>

[Guest guest]

I have a cousin who, as a child, needed to have part of his bowel removed as the result of constipation so severe that it caused infection in the intestine. It was diagnosed as Hirschsprung's Disease which is very rare as I understand it. Now that Celiac has been found in our family, I REALLY question if this was correct. I wonder if it also was not mis-diagnosed celiac/gluten intolerance just like mine was blamed on allergy. This is my Mother's sister's family. I am pretty certain my Mom had undiagnosed celiac (can't tell for sure as she died 4 years ago), but I do really wonder about her sister and their family as well. Several have symptoms including my Aunt, who is in a nursing home with what they believe is Alzheimer's. Alzheimer's was blamed for her mother's death, but this family has a higher incedence rate than Alzheimer's usually has. With the articles of gluten ataxia, I wonder if it is not more that. Especially since our family tends to be IgG positive.... Cheryl in MNrxp_us@...

[Guest guest]

I never had constipation problems as an adult until I was pregnant.

Zanna

http://groups.yahoo.com/group/Art_on_A_Budget/

My daily rantings!

www.zannasstory.blogspot.com

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[Guest guest]

Hi there! Well, I actually was having some great luck the first month

of my pregnancy. Basically, I decided that there was a BIG problem

that wasn't going away on it's own. So, I contacted a good friend who

is a colon hydrotherapist and asked her for advice. She suggested the

following:

eliminate gluten, dairy (except goat milk/cheese/yogurt), sugar

(including most fruits except apples and pears), and red meat. I made

a flax seed tea that I tried to drink daily..

Flax seed tea: Boil six cups of distilled water. Remove from burner.

Add 3 tablespoons of flax seeds and let sit for 6-8 hours. It extracts

the oil. Pour it into a glass and enjoy the next day. It doesn't keep,

so throw any out that you don't finish at the end of that day. If you

pour the whole thing into a large travel cup/water bottle, you can let

the flax seeds float to the bottom; they will stay there when you

drink the " tea " .

I also take a product which I heartily recommend. It's called

puracleanse and cleanse caps through a company called Miracles of

Health. http://www.miraclesofhealth.net/ It's out of Fort , CO

and an amazing product. I take a tblsp of fiber (Puracleanse) at night

and in the morning. It's finely ground and I don't get painful gas and

distention like I do from metamucile and pharmacy products. I started

out taking one cleanse cap in the morning and one at night.

I also was drinking lots of green drink - juicing that I did myself in

the juicer and I bought a vitamix at www.vitamix.com (if you can

afford it - get one of these!) and started making fruit/veggie

smoothies and adding 1-2 tblsps of ground (raw) almonds, (raw) pumpkin

seeds, (raw) sunflower seeds. I grind the almonds & seeds in the

vitamix dry blender and then further blend them in a coffee grinder. I

store what's remaining, and then I add one-two tablespoons of that to

any smoothie I make..along with ground flax seed. But flax seed has to

be ground each time I want to use it, since it begins to expire as

soon as it's ground. Flax seed is most effective when you buy it whole

and grind it yourself in a coffee grinder. I was also adding hemp

protein (very high in fiber..like 11 grams per serving) but it turns

out I am highly intolerant to hemp. Makes me very ill - throwing up

and stuff.

I also took a tablespoon of emulsified fish oil every morning.

And then I started to see some results. And by results I mean that in

one month, I went two days without feeling like I had to do an enema.

And the enemas were actually productive. (I generally have to do two

enemas a day and often, not enough matter has made it to the exit

point for it to be effective, but it doesn't mean I am in any less

pain, of course.) During that month, life was good. Of course, the day

I started this was also the day I conceived my second child. So, it

was at the end of this month that I developed nausea and couldn't keep

up. I am just now getting back in the swing..

I also started doing weekly colonics. And the colonics were very

productive during this time. Colonics are believed to massage the

colon walls and increase muscle tone which gets very bad when the

bowels never move. I also did acupuncture during that time and a

meditation made just for me by a friend who works with client to

create individually designed meditations..www.meditationmindset.com.

Well, when the nausea started, I ate gluten again and even the

colonics didn't work! We would put water in for a full hour and

absolutely nothing but water came out. It was horrifying. I knew then

that there was a big problem with gluten and there was no way to turn

this train around.

I am also planning to do a parasite cleanse under the guidance of my

friend who is the colon hydrotherapist after baby is born and

breastfeeding is over. It's important to follow the diet I mentioned

above when doing a parasite cleanse. Some people think parasites are

hogwash and maybe so..but I don't feel like I have the luxury of

ruling anything out. This problem will kill me - and sooner rather

than later. The miracles of health company sells a parasite cleanse

that my friend has seen great results from. She sees a difference in

people after they have done the parasite cleanse. Do I think it's

going to change everything? No way, but I feel like I have give it a

shot. And colonics are really useful when doing a parasite cleanse.

So, I found that just trying to remain gluten free wasn't working. I

knew I was eating at restaurants who didn't know if what I was

ordering contained it. It was too easy to go ahead and eat fries

cooked in the same grease as something with wheat. And other grains

seem to pose a problem as well, so I decided to give it all up. All

dairy (even goat) and grains and go as natural as possible. That is

new - I am just doing that this week. And like I said, where I am in

this pregnancy..eating that way simply helps the enemas be productive

and even then..it is no guarantee. I ate nothing but greens, juices,

avacados, and nuts yesterday and today nothin is happening..not even

with the cleanse caps (three of them!) I took last night. If this diet

fails to produce results in the next year, I will consider a full

removal and colostomy bag. I have truly had enough of living like

this. But, like I said, I was having great results following the diet

I mentioned above..

Unfortunately, there seems to be NO magic " bullet " when total

constipation is your affliction. It's a wholistic, entire-person deal.

And it is absolutely the most important bodily function we can have.

Unfortunately most western med doctors do NOT recognize this. Storing

this level of toxins is a really really bad thing..For people who have

otherwise working bowels (and by that I mean, can have a bowel

movement on their own at some point..even if it's just a couple of

times a week w/o intervention) can respond to just increasing

exercise, fiber, etc.

Wow! that turned out to be a book! Oh - another thing - water..I found

I needed to increase water - while doing all of that other stuff -

far, far higher than the recommended daily allowance. To 1-1.5 liters

3-4 times a day...about 30 minutes before meals.

Absolutely none of that stuff by itself did anything. I had to put it

all together without fail to start to see things moving.

> Hey everybody! I have been a constipation sufferer for most of my

> life, but my bowels became paralyzed around 21 years old. When I

> smoked cigarettes, I didn't seem to have a problem, but as soon as I

> quit - bam - totally stopped. So, I have recently discovered that I am

> likely celiac..never diagnosed since I didn't discover that full-blown

> celiac could be the problem till after eliminating gluten. I am eight

> months pregnant and my symptoms are so bad that I am switching to an

> almost all raw food diet. I can't handle the possibility of getting

> contaminated and God only knows what else I might be intolerant to. I

> am going to go almost totally raw vegan (with the exceptions of bean

> soup made with a ham hock...mmmmmmm) to see if my system can begin to

> heal.

>

> Anyone else out there present with exclusive constipation? I never,

> ever, ever get diarrhea. Unless it's food poisoning..I ate a couple of

> handfuls of goldfish and it took more than seven days for my system to

> move again (and by move I mean for enemas/colonics/laxatives to work).

> I'd love to hear from anyone who has had this symptom or knows of

> anyone..I feel very, very alone!

>

> Take care,

> Deanna

>

>

>

>

>

>

>

>

[Guest guest]

Thought I would (belatedly) throw my experience in here too. Constipation had been a persistent and ongoing problem for me. I thought that going gluten free once I was diagnosed would make me more "normal" again. I had also tested positive for casein intolerance with Enterolabs - and wanted to ignore it since gluten free was enough for me, I didn't want to deal with it. The constipation was totally, finally, miraculously gone once I bit the bullet and removed casein from my diet. And those pesky sinus headaches disappeared too. So it's something you might want to consider. Remove the dairy from your diet as a test and perhaps you will have some relief too. Good luck!! Dara in Massachusetts

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[Guest guest]

I am the same way. I have to avoid ALL cross-contamination, or everything stops again.Magnesium helps. I've taken about 1,000 mg at a time, but start with less than that just in case. Also, I find I just cannot take calcium supplements.Of course, in terms of food to help you along. Try to avoid white grains, bananas and too much processed food. Sweet potatoes are good for this issue, and a couple other things I forget because I've too tired.If you are stopped up for a very long time you might consider an enema or even a colonic. Because once everything gets stopped up for me, it's very difficult to get it going again without a fresh start.I also personally found ago that I cannot tolerate caesin.Best of luck,Ciara

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