Re: starting schoolDebA

[Guest guest]

keep up the good work Deb, my 2 were only dx last

year, and i really, really struggle doing physio on

them both in the morning before the bus comes at 8,

some mornings we just dont complete it, which makes me

feel so guilty,feels like im neglecting my other 2

kids too, i never thought life could be this hard, but

hell you just get used to it i suppose, you've got to

for them. i feel like shouting its not fair, most

days, but they make up for it when they sit and hug me

after their night time physio!!!! and then i think i

cant be doing such a bad job after all :-)

hugs

Natasha mum to Marc 10 wo/cf, Jake & Jordan 8 w/cf and

Dee-anna 5 with Asthma. ---

gdattig@... wrote: > Rosemary,

> I do all those things in the morning but we are the

> first to get on the bus

> in the morning and the bus driver seems to think he

> has to be her 15 minutes

> earlier then he is supposed to be which really

> pisses me off. I have tried to

> talk to him about it but he is an old man that only

> cares about himself. I

> get the girls up at 6:00AM and he is there by 7:10

> and school does not start

> until 8:30. Today I went into the school and reamed

> into the superintended

> and told him I can't do it, the bus schedule has to

> change. I can't do 30

> minutes of vest treatments on 2 kids and 40 minutes

> of nebulizer treatments

> on two kids and somehow get breakfast in there

> before the bus comes. I don't

> think I should have to get them up at 5:30 AM. This

> medication makes them

> really tired and they seem so run down as it is. I

> talked to her teacher

> today when I was there and she noticed it too. I

> just feel so stressed out

> right now I don't know if I can handle much more. I

> bawled all the way home

> after talked to everyone at the school. I don't want

> to be that kind of a

> person I have always been a person not to complain

> and handle anything that

> comes my way. I never thought I would say I can't

> HANDLE THIS!! It just

> doesn't seem fair why we have to go through this and

> it is not fair to the

> kids either. I feel like I have turned into this

> evil mom who all she does is

> yell and say hurry up, don't turn the nebulizer off

> your not done yet, all I

> do is yell I hate it and I am so worry my kids will

> be so rebellions because

> of it. I don't want to be this way. I would love to

> hear others how they

> handle things. Thanks for letting me vent it has

> been a really bad day. Deb A

>

>

[Guest guest]

Natasha,

I am sure you are doing a wonderful job! I only have one of my CF kids in

school right now but am dreading the day when I do have to worry about

getting to of them on the bus in the morning. Next year we will thou. Thanks

for you support. Deb A