Re: Should We Sit Tight for a While?

[Guest guest]

Yes, the BHB levels could probably be explained by the changes in diet.

We definitely saw withdrawal symptoms from coming off keto, just like

the medications. Dr. Freeman recommends one or two years to wean off the

diet, but little scientific evidence exists to support any particular

schedule.

Bill

langansmom wrote:

> Hello all. Well, per the neuro's ok, we lowered Langan to a 2:1

> ratio on Saturday. Wow! What a difference in food! But for the

> scale, I would swear she wasn't even on keto any more. She gets more

> fruit now than I think she ate BEFORE the diet. And she is loving it!

>

> On to the not so great part: After 13 days seizure free (on 3:1

> ratio and small amount of trileptal), she had a sz Saturday night.

> She spit out most of her trileptal dose a few hours before, so I have

> no idea whether it was that or the new ratio or her adjusting to the

> new ratio. Ugh. Last night, she woke up and looked like she was

> going to have a sz, but she seemed to " shake it off " and went back to

> sleep. So who knows. I don't want to increase the meds, esp. since

> she is also waking up at night with what appears to be tummy pain and

> I worry that it is the meds, but at the same time I am not sure what

> to do. We are coming off keto b/c of the acidosis, so it is only a

> matter of time, but when it comes to the meds I am all about delay,

> delay, delay.

>

> I took BHB levels and they are strange- really low before bed and

> then large in the morning????? That is the total opposite of how

> they have been. I wonder if they are low at night b/c of all the

> extra carbs during the day and then are getting higher overnight when

> she's not eating??? Any thoughts from the keto experts out there?

>

> Also, do you get withdrawal when coming down off of keto, like you do

> with the meds? I am trying to decide whether the sz and the almost

> sz last night could be withdrawal or whether we need to up the

> trileptal. Should I just hold tight for a week and see if things

> settle? That 13 days spoiled me....

>

> Thanks!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> 4/2/04 until this month, now coming off keto due to metabolic

> acidosis and on 2:1 ratio and small amount of trileptal.

>

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