Re: Weaning from the diet - VNS

[Guest guest]

Hi

This is a link to a report about the efficiacy of the VNS. It was

undertaken by my daughter's neurologist.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstra\

ct&list_uids=11903103

The results seem quite positive, but unfortunately it was not successful

for my daughter.

Jill

At 03:52 PM 2/09/2004, you wrote:

>There is the VNS or surgery if she is a candidate

>for it. My son also had mild success with the diet

>and less so with AEds. Though at the moment he's

>on Keppra. We are awaiting the VNS.

>The surgeon who's going to do the VNS wasn't

>very encouraging about positive results from it.

>He may have been trying not to get our hopes up

>too much but we've got to try!

>Saro.........Rohan's mum

>megustotu wrote:

>

> >Hi,

> >My daughter has been on the diet for 1.5 years. She is 11 and we

> >are starting to wean. The diet was mildly successful for us, but

> >not enough to endure the stress on the family and my child.

> >Any suggestions for weaning,

> >Any new ideas or treatments out there for kids who don't respond to

> >anything?

> >I have an appointment at the D'amoto Institute in Portsmouth NH.

> >Has anyone been there?

> >

> >Would love some feedback or moral support right about now.

> >

> >Barbar, mom of Leah (11 years), absence seizures

> >Boston, MA

> >

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-unsubscribe

> >

> >

> >

[Guest guest]

Jill,

Thanks for the addy. Lowe who is on this list

started having success with the VNS only after an

year or so (I think). He'll be able to tell you himself.

So don't lose hope yet.

Saro.........Rohan's mum

Jill wrote:

>Hi

>This is a link to a report about the efficiacy of the VNS. It was

>undertaken by my daughter's neurologist.

>

>http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstr\

act&list_uids=11903103

>

>The results seem quite positive, but unfortunately it was not successful

>for my daughter.

>Jill

>

>At 03:52 PM 2/09/2004, you wrote:

>

>

>>There is the VNS or surgery if she is a candidate

>>for it. My son also had mild success with the diet

>>and less so with AEds. Though at the moment he's

>>on Keppra. We are awaiting the VNS.

>>The surgeon who's going to do the VNS wasn't

>>very encouraging about positive results from it.

>>He may have been trying not to get our hopes up

>>too much but we've got to try!

>>Saro.........Rohan's mum

>>megustotu wrote:

>>

>>

>>