Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi everyone Just thought I would add a bit to this little discussion. I don't like to be negative, but recently my husband learned a bit about SUDEP as he works at a neuro hospital on the medical engineering side. When we were contemplating the diet I decided that even if the diet has long term consequences for the heart, or whatever, I would sooner try to get him seizure free now and improve his quality of life while he still has life! I know that the diet doesn't work for every child but if it does work then the short-term benefits for the child and the family are so great I am sure it's worth a try. In practice I think these keto kids are so much under the medical spotlight from their vomit to their cardiac function to their blood gases to their poop etc etc that they probably have a better chance of staying healthy than we do. Anything bad would be likely to be picked up pretty quick. I would go for it, and I say that without any hesitation. For five years Ben gradually deteriorated from being a bright and lively four year old to practically a zombie at times. They were starting to ask questions about whether he would cope in mainstream school for much longer and I was seriously starting to crack up. The diet has been the most wonderful thing for us - hopefully it can be for you guys too. Good luck with whatever you decide to do. Take care, Rose Toms Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.