Re: (again!)/Bill

[Guest guest]

Thanks for your message Bill - Yep I am pretty much going through

everything at the moment. It is looking like a major calorie issue -

he wasn't having enough of them which made him go catabolic, his

dietician whacked them up (by 400!) he started to improve and then

put on too much weight too quickly and the seizures went nuts again,

I fasted him for 24 hours and reduced the calories down - he is

improving again but is still having some seizures at night - last

night he had two, so far tonight he has had 3 - they all start about

10pm which is about an hour and half after going to sleep - I can

practically set my watch by him at the moment.

I am going through everything and there is obviously some more

tweaking that needs to be done - am going to weigh him again tomorrow

and see how that is going. I think his metabolism is just all over

the place at the moment.

Take Care and all the best to you and yours too.

Emma. Mum to (who is supposed to go back to school tomorrow!)

> > had another seizure at 9.15pm and I gave the rectal

valium,

> > unfortunately he then had another seizure at 11.05 not even 2

hours

> > after the valium was given - I may have to give it at 4 hourly

> > intervals - I just need to see how regularly the seizures are

going

> > to come this evening.

> >

> > I have done another test at 11.15 (I know it was long after the

> > seizure he had but I wanted to see what was happening) the

readings

> > were Ketones 1.3 and Glucose 4.9 - so in the space of a couple of

> > hours the ketones have plummeted and the glucose has gone up

> > substantially. I have a feeling it is going to be another long

night.

> >

> > Anybody throw any light on this?

> >

> > Emma - Mum to who is have a really crappy time at the

moment.

> >

> >

> >

> >