Re: Introduction - question

[Guest guest]

I also added her photo:) - #20

> Hi folks,

>

> I have been a regular watcher here; thought I should introduce us.

> You've been so helpful already by being a resource I can get to any

> time of the day or night. My daughter Indigo is a beautiful little

> girl with asian eyes and dark curly hair. She is nearly 14 months

> old with an inquisitive personality. She's very active, and

> although developmentally delayed, her mobility has taken some very

> large advances in the last two months. We think her progress is

due

> in large part to the diet.

>

> She has had seizures since she was 3 weeks old, starting with

> Infantile Spasms, and she was diagnosed at 3 months with focal

> cortical dysplasia. She's been in and out of the hospital, failed

> multiple meds (topomax, trileptal, vigabatrin, keppra, now

currently

> on lamictal), and has been on the diet for 3 months now. She still

> continues to have complex partial, tonic and focal seizures, but

> they are more mild than they used to be. Unfortunately, she still

> has 30-40 seizures per day. We wanted to try the diet as a last

> ditch effort to avoid surgery. She's a candidate, but we are just

> not ready to remove 70% of her left hemisphere.

>

> Since starting the diet, she went from being flat on her back and

> rolling occasionally to sitting up by herself, then pulling up, and

> then crawling. We saw this progress in two-month's time. She's

now

> standing up on her own for 8-10 seconds at a time. We are

> astonished with her progress. Since her seizures have gotten more

> mild, she's become more alert and responsive. She still does not

> make any consonant sounds, but we feel that she will get there

> eventually.

>

> Now for my question. A few weeks ago, she developed an ear

> infection and we went on antibiotics. We treated her with

> acidophilus to combat yeast - she's been prone to it. Since then,

> she's been spitting up a lot more - she rarely did before. Now,

she

> done with the antibiotics, and we've continued with acidophilus for

> another week or so. But she spits up so much now, and we're not

> sure where it is coming from. Has anybody else encountered

spitting

> up on the diet? How do you fix it? Is there something we are

doing

> wrong? Could the acidophilus be causing it? Any help would be

> appreciated.

>

> Thanks and Regards,

> , and Indigo.

[Guest guest]

I also added her photo:) - #20

> Hi folks,

>

> I have been a regular watcher here; thought I should introduce us.

> You've been so helpful already by being a resource I can get to any

> time of the day or night. My daughter Indigo is a beautiful little

> girl with asian eyes and dark curly hair. She is nearly 14 months

> old with an inquisitive personality. She's very active, and

> although developmentally delayed, her mobility has taken some very

> large advances in the last two months. We think her progress is

due

> in large part to the diet.

>

> She has had seizures since she was 3 weeks old, starting with

> Infantile Spasms, and she was diagnosed at 3 months with focal

> cortical dysplasia. She's been in and out of the hospital, failed

> multiple meds (topomax, trileptal, vigabatrin, keppra, now

currently

> on lamictal), and has been on the diet for 3 months now. She still

> continues to have complex partial, tonic and focal seizures, but

> they are more mild than they used to be. Unfortunately, she still

> has 30-40 seizures per day. We wanted to try the diet as a last

> ditch effort to avoid surgery. She's a candidate, but we are just

> not ready to remove 70% of her left hemisphere.

>

> Since starting the diet, she went from being flat on her back and

> rolling occasionally to sitting up by herself, then pulling up, and

> then crawling. We saw this progress in two-month's time. She's

now

> standing up on her own for 8-10 seconds at a time. We are

> astonished with her progress. Since her seizures have gotten more

> mild, she's become more alert and responsive. She still does not

> make any consonant sounds, but we feel that she will get there

> eventually.

>

> Now for my question. A few weeks ago, she developed an ear

> infection and we went on antibiotics. We treated her with

> acidophilus to combat yeast - she's been prone to it. Since then,

> she's been spitting up a lot more - she rarely did before. Now,

she

> done with the antibiotics, and we've continued with acidophilus for

> another week or so. But she spits up so much now, and we're not

> sure where it is coming from. Has anybody else encountered

spitting

> up on the diet? How do you fix it? Is there something we are

doing

> wrong? Could the acidophilus be causing it? Any help would be

> appreciated.

>

> Thanks and Regards,

> , and Indigo.

[Guest guest]

Hi , welcome to the group. I'm afraid I don't have an answer to

your question, but I was so impressed with Indigo's progress since

being on the diet. Even with the amount of seizures she is having

she is able to stand and crawl, that gives me hope for my little

Kristan who is 20 months old and has just been sitting for about 2

months, but still falls over and tries to get up but hasn't figured

it out.

I'm sure someone on this group will have an answer to your question,

I saw Indigo's picture, what a little cutie. Good luck.

Satnam, mom to Kristan, 20 months

Keto kid since August 2003

> Hi folks,

>

> I have been a regular watcher here; thought I should introduce us.

> You've been so helpful already by being a resource I can get to any

> time of the day or night. My daughter Indigo is a beautiful little

> girl with asian eyes and dark curly hair. She is nearly 14 months

> old with an inquisitive personality. She's very active, and

> although developmentally delayed, her mobility has taken some very

> large advances in the last two months. We think her progress is

due

> in large part to the diet.

>

> She has had seizures since she was 3 weeks old, starting with

> Infantile Spasms, and she was diagnosed at 3 months with focal

> cortical dysplasia. She's been in and out of the hospital, failed

> multiple meds (topomax, trileptal, vigabatrin, keppra, now

currently

> on lamictal), and has been on the diet for 3 months now. She still

> continues to have complex partial, tonic and focal seizures, but

> they are more mild than they used to be. Unfortunately, she still

> has 30-40 seizures per day. We wanted to try the diet as a last

> ditch effort to avoid surgery. She's a candidate, but we are just

> not ready to remove 70% of her left hemisphere.

>

> Since starting the diet, she went from being flat on her back and

> rolling occasionally to sitting up by herself, then pulling up, and

> then crawling. We saw this progress in two-month's time. She's

now

> standing up on her own for 8-10 seconds at a time. We are

> astonished with her progress. Since her seizures have gotten more

> mild, she's become more alert and responsive. She still does not

> make any consonant sounds, but we feel that she will get there

> eventually.

>

> Now for my question. A few weeks ago, she developed an ear

> infection and we went on antibiotics. We treated her with

> acidophilus to combat yeast - she's been prone to it. Since then,

> she's been spitting up a lot more - she rarely did before. Now,

she

> done with the antibiotics, and we've continued with acidophilus for

> another week or so. But she spits up so much now, and we're not

> sure where it is coming from. Has anybody else encountered

spitting

> up on the diet? How do you fix it? Is there something we are

doing

> wrong? Could the acidophilus be causing it? Any help would be

> appreciated.

>

> Thanks and Regards,

> , and Indigo.

[Guest guest]

Hi , welcome to the group. I'm afraid I don't have an answer to

your question, but I was so impressed with Indigo's progress since

being on the diet. Even with the amount of seizures she is having

she is able to stand and crawl, that gives me hope for my little

Kristan who is 20 months old and has just been sitting for about 2

months, but still falls over and tries to get up but hasn't figured

it out.

I'm sure someone on this group will have an answer to your question,

I saw Indigo's picture, what a little cutie. Good luck.

Satnam, mom to Kristan, 20 months

Keto kid since August 2003

> Hi folks,

>

> I have been a regular watcher here; thought I should introduce us.

> You've been so helpful already by being a resource I can get to any

> time of the day or night. My daughter Indigo is a beautiful little

> girl with asian eyes and dark curly hair. She is nearly 14 months

> old with an inquisitive personality. She's very active, and

> although developmentally delayed, her mobility has taken some very

> large advances in the last two months. We think her progress is

due

> in large part to the diet.

>

> She has had seizures since she was 3 weeks old, starting with

> Infantile Spasms, and she was diagnosed at 3 months with focal

> cortical dysplasia. She's been in and out of the hospital, failed

> multiple meds (topomax, trileptal, vigabatrin, keppra, now

currently

> on lamictal), and has been on the diet for 3 months now. She still

> continues to have complex partial, tonic and focal seizures, but

> they are more mild than they used to be. Unfortunately, she still

> has 30-40 seizures per day. We wanted to try the diet as a last

> ditch effort to avoid surgery. She's a candidate, but we are just

> not ready to remove 70% of her left hemisphere.

>

> Since starting the diet, she went from being flat on her back and

> rolling occasionally to sitting up by herself, then pulling up, and

> then crawling. We saw this progress in two-month's time. She's

now

> standing up on her own for 8-10 seconds at a time. We are

> astonished with her progress. Since her seizures have gotten more

> mild, she's become more alert and responsive. She still does not

> make any consonant sounds, but we feel that she will get there

> eventually.

>

> Now for my question. A few weeks ago, she developed an ear

> infection and we went on antibiotics. We treated her with

> acidophilus to combat yeast - she's been prone to it. Since then,

> she's been spitting up a lot more - she rarely did before. Now,

she

> done with the antibiotics, and we've continued with acidophilus for

> another week or so. But she spits up so much now, and we're not

> sure where it is coming from. Has anybody else encountered

spitting

> up on the diet? How do you fix it? Is there something we are

doing

> wrong? Could the acidophilus be causing it? Any help would be

> appreciated.

>

> Thanks and Regards,

> , and Indigo.

[Guest guest]

You shouldn't need to continue the acidopholus for more than a week if

you have completed the antibiotic treatment. Try a bit of yogurt to add

more good bacteria. Try giving a little extra water for a couple of days

and some milk of magnesia at night to settle things down. I haven't any

experience with lamictal, but I seem to remember that many AED's can

cause stomach upset.

Bill

jiosmith wrote:

> Hi folks,

>

> I have been a regular watcher here; thought I should introduce us.

> You've been so helpful already by being a resource I can get to any

> time of the day or night. My daughter Indigo is a beautiful little

> girl with asian eyes and dark curly hair. She is nearly 14 months

> old with an inquisitive personality. She's very active, and

> although developmentally delayed, her mobility has taken some very

> large advances in the last two months. We think her progress is due

> in large part to the diet.

>

> She has had seizures since she was 3 weeks old, starting with

> Infantile Spasms, and she was diagnosed at 3 months with focal

> cortical dysplasia. She's been in and out of the hospital, failed

> multiple meds (topomax, trileptal, vigabatrin, keppra, now currently

> on lamictal), and has been on the diet for 3 months now. She still

> continues to have complex partial, tonic and focal seizures, but

> they are more mild than they used to be. Unfortunately, she still

> has 30-40 seizures per day. We wanted to try the diet as a last

> ditch effort to avoid surgery. She's a candidate, but we are just

> not ready to remove 70% of her left hemisphere.

>

> Since starting the diet, she went from being flat on her back and

> rolling occasionally to sitting up by herself, then pulling up, and

> then crawling. We saw this progress in two-month's time. She's now

> standing up on her own for 8-10 seconds at a time. We are

> astonished with her progress. Since her seizures have gotten more

> mild, she's become more alert and responsive. She still does not

> make any consonant sounds, but we feel that she will get there

> eventually.

>

> Now for my question. A few weeks ago, she developed an ear

> infection and we went on antibiotics. We treated her with

> acidophilus to combat yeast - she's been prone to it. Since then,

> she's been spitting up a lot more - she rarely did before. Now, she

> done with the antibiotics, and we've continued with acidophilus for

> another week or so. But she spits up so much now, and we're not

> sure where it is coming from. Has anybody else encountered spitting

> up on the diet? How do you fix it? Is there something we are doing

> wrong? Could the acidophilus be causing it? Any help would be

> appreciated.

>

> Thanks and Regards,

> , and Indigo.

>

>

>

>