Re: Cute CF Stories-Rosemary

[Guest guest]

Rosemary,

The things they say. Eilish and I had a 'girls' day the other day so I was

driving her to Mcs when she said " I want to be a normal kid " . When I

enquired why she said that normal kids dont have cf or physio. So I said

that lots of normal kids have masks and medicine. Dont think I convinced

her though. Makes me wonder were they get these things from

Re: Cute CF Stories

> My 9 and 5 boys made a list of rules for their clubhouse. One of the

rules

> was " NO BREATHING " .....I knew what it meant but can you imagine their

friends

> parents?

>

> My 11 yr. gets sick of breathing treatments and wants to know why she just

> can't get new lungs.....

>

> My 5 constantly tells me he HATES breathing....imagine whats Drs. would

think

> of that............

>

> Ah, there is always humor - albeit black humor.........

>

> Happy New Year........

>

>

>

> Rosemary in New York with three children with CF - they are 11, 9,

5.......

> I coined the phrase " BREATHE DAMMIT "

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

You can tell her all three of my normal kids do breathing treatments. So

much so that when Patti was first brought home after our dx hospitalization,

they actually cheered when we hooked her up to do her " breathing. " They

just considered her part of the group. :-)

Dawn mom of 4, 6 and under, the youngest wcf

Re: Cute CF Stories

>

>

> > My 9 and 5 boys made a list of rules for their clubhouse. One of the

> rules

> > was " NO BREATHING " .....I knew what it meant but can you imagine their

> friends

> > parents?

> >

> > My 11 yr. gets sick of breathing treatments and wants to know why she

just

> > can't get new lungs.....

> >

> > My 5 constantly tells me he HATES breathing....imagine whats Drs. would

> think

> > of that............

> >

> > Ah, there is always humor - albeit black humor.........

> >

> > Happy New Year........

> >

> >

> >

> > Rosemary in New York with three children with CF - they are 11, 9,

> 5.......

> > I coined the phrase " BREATHE DAMMIT "

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > -------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> >

[Guest guest]

When my kids were 3,4 and 5, my 4 year old told our neighbor that her

mommy hits her every day.....had to explain about physio...funny now

but really embarassing then.

, mom of 3 , 2 youngest with cf.

> Rosemary,

>

> The things they say. Eilish and I had a 'girls' day the other day

so I was

> driving her to Mcs when she said " I want to be a normal

kid " . When I

> enquired why she said that normal kids dont have cf or physio. So

I said

> that lots of normal kids have masks and medicine. Dont think I

convinced

> her though. Makes me wonder were they get these things from

>

>

> Re: Cute CF Stories

>

>

> > My 9 and 5 boys made a list of rules for their clubhouse. One of

the

> rules

> > was " NO BREATHING " .....I knew what it meant but can you imagine

their

> friends

> > parents?

> >

> > My 11 yr. gets sick of breathing treatments and wants to know why

she just

> > can't get new lungs.....

> >

> > My 5 constantly tells me he HATES breathing....imagine whats Drs.

would

> think

> > of that............

> >

> > Ah, there is always humor - albeit black humor.........

> >

> > Happy New Year........

> >

> >

> >

> > Rosemary in New York with three children with CF - they are 11, 9,

> 5.......

> > I coined the phrase " BREATHE DAMMIT "

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > -------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> >