Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hello My name is Jackie and I have one child called Sonny, he is now 18 months old, he was diagnosed with cf at the age of 5 months, there wasn`t any history of cf on either side of the family,so it was a complete and utter shock to both of us. We are just about coming to terms with his condition. In the sense of being able to talk openly about it, the practical side of caring for him came almost instantly, as we felt we could finaly do something positive to help our little boy. Up until his diagnosis life was pretty miserable, as I am sure, all you parents already know about that. We both now feel that life is finally becoming `normal` and that visits to hospital and all the medications are under control so to speak,we both feel that use of the cf parents group will be beneficial to all of us. Sending love, peace and hope to all the families out there Jackie, Simon and Sonny. _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hello Jackie, Welcome on the list. Where do you live ? , Mom of Leo 3 wcf and Colin 8 months wocf introduction to cfparents Hello My name is Jackie and I have one child called Sonny, he is now 18 months old, he was diagnosed with cf at the age of 5 months, there wasn`t any history of cf on either side of the family,so it was a complete and utter shock to both of us. We are just about coming to terms with his condition. In the sense of being able to talk openly about it, the practical side of caring for him came almost instantly, as we felt we could finaly do something positive to help our little boy. Up until his diagnosis life was pretty miserable, as I am sure, all you parents already know about that. We both now feel that life is finally becoming `normal` and that visits to hospital and all the medications are under control so to speak,we both feel that use of the cf parents group will be beneficial to all of us. Sending love, peace and hope to all the families out there Jackie, Simon and Sonny. _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Jackie, Welcome to cfparents, it is a great list for info, laughs, and tears, whatever you feel like that day. , mommy of 4, , almost 17 and wanting her license, so Jersey drivers beware, Caleb, 7 and acting as the man of the house until his daddy gets home from overseas, , almost 6, my budding artist, draws and colors everything in site, and I do mean everything, and , 2 1/2, with great blue eyes, a mischievious smile, and personality plus (lets just say he is stuck in the terrible twos and loves it) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Welcome Jackie & Simon --- This group is so interesting. I have learned so much here. Always ask questions - with CF there is so much to learn! Welcome.......where are you from? Rosemary in New York with three children with CF - they are 11, 9, 5....... I coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Welcome to the group Jackie. Im glad Sonny is doing well know. That first year after dx is the hardest and things eventually look up. Were are you from? from Australia Mummy to Liam 7 & Eilish 4wcf introduction to cfparents > > Hello > > My name is Jackie and I have one child called Sonny, he is now 18 months > old, he was diagnosed with cf at the age of 5 months, there wasn`t any > history of cf on either side of the family,so it was a complete and utter > shock to both of us. We are just about coming to terms with his condition. > In the sense of being able to talk openly about it, the practical side of > caring for him came almost instantly, as we felt we could finaly do > something positive to help our little boy. Up until his diagnosis life was > pretty miserable, as I am sure, all you parents already know about that. We > both now feel that life is finally becoming `normal` and that visits to > hospital and all the medications are under control so to speak,we both feel > that use of the cf parents group will be beneficial to all of us. > > Sending love, peace and hope to all the families out there > Jackie, Simon and Sonny. > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hello I live in a town called Wigan, nr Manchester in the UK. Its a small place and is famous for sport mainly rugby. Jackie Mum of Sonny wcf > >Reply-To: cfparents >To: cfparents > >Subject: RE: introduction to cfparents >Date: Sun, 30 Dec 2001 16:14:04 -0800 > >Hello Jackie, > >Welcome on the list. Where do you live ? > >, Mom of Leo 3 wcf and Colin 8 months wocf > > > introduction to cfparents > > > >Hello > >My name is Jackie and I have one child called Sonny, he is now 18 months >old, he was diagnosed with cf at the age of 5 months, there wasn`t any >history of cf on either side of the family,so it was a complete and utter >shock to both of us. We are just about coming to terms with his condition. >In the sense of being able to talk openly about it, the practical side of >caring for him came almost instantly, as we felt we could finaly do >something positive to help our little boy. Up until his diagnosis life was >pretty miserable, as I am sure, all you parents already know about that. We >both now feel that life is finally becoming `normal` and that visits to >hospital and all the medications are under control so to speak,we both feel >that use of the cf parents group will be beneficial to all of us. > >Sending love, peace and hope to all the families out there >Jackie, Simon and Sonny. > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi all I am from a place called wigan in the UK. Thanks for the welcome!! Happy New Year. Jackie Sonny and Simon >From: ROSEMARY3FOR3wCF@... >Reply-To: cfparents >To: cfparents >Subject: Re: introduction to cfparents >Date: Mon, 31 Dec 2001 07:17:42 EST > >Welcome Jackie & Simon --- > This group is so interesting. I have learned so much here. Always >ask >questions - with CF there is so much to learn! > > Welcome.......where are you from? > >Rosemary in New York with three children with CF - they are 11, 9, 5....... >I coined the phrase " BREATHE DAMMIT " _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hello Its nice to hear that, especially from someone who must know what its all about and what is involved. I am from a town called Wigan in the UK, you might know about it(?) Its famous for rugby but thats about it! ha ha Jackie > >Reply-To: cfparents >To: cfparents >Subject: Re: introduction to cfparents >Date: Tue, 01 Jan 2002 18:53:08 +1030 > >Welcome to the group Jackie. Im glad Sonny is doing well know. That first >year after dx is the hardest and things eventually look up. Were are you >from? > > from Australia >Mummy to Liam 7 & Eilish 4wcf > introduction to cfparents > > > > > > Hello > > > > My name is Jackie and I have one child called Sonny, he is now 18 months > > old, he was diagnosed with cf at the age of 5 months, there wasn`t any > > history of cf on either side of the family,so it was a complete and >utter > > shock to both of us. We are just about coming to terms with his >condition. > > In the sense of being able to talk openly about it, the practical side >of > > caring for him came almost instantly, as we felt we could finaly do > > something positive to help our little boy. Up until his diagnosis life >was > > pretty miserable, as I am sure, all you parents already know about that. >We > > both now feel that life is finally becoming `normal` and that visits to > > hospital and all the medications are under control so to speak,we both >feel > > that use of the cf parents group will be beneficial to all of us. > > > > Sending love, peace and hope to all the families out there > > Jackie, Simon and Sonny. > > > > _________________________________________________________________ > > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Sorry I didn`t realise I had just typed Dear its because of your email address. Still getting used to all these computer thingies. Jackie Trying again, getting it right this time ! > >Reply-To: cfparents >To: cfparents >Subject: Re: introduction to cfparents >Date: Tue, 01 Jan 2002 18:53:08 +1030 > >Welcome to the group Jackie. Im glad Sonny is doing well know. That first >year after dx is the hardest and things eventually look up. Were are you >from? > > from Australia >Mummy to Liam 7 & Eilish 4wcf > introduction to cfparents > > > > > > Hello > > > > My name is Jackie and I have one child called Sonny, he is now 18 months > > old, he was diagnosed with cf at the age of 5 months, there wasn`t any > > history of cf on either side of the family,so it was a complete and >utter > > shock to both of us. We are just about coming to terms with his >condition. > > In the sense of being able to talk openly about it, the practical side >of > > caring for him came almost instantly, as we felt we could finaly do > > something positive to help our little boy. Up until his diagnosis life >was > > pretty miserable, as I am sure, all you parents already know about that. >We > > both now feel that life is finally becoming `normal` and that visits to > > hospital and all the medications are under control so to speak,we both >feel > > that use of the cf parents group will be beneficial to all of us. > > > > Sending love, peace and hope to all the families out there > > Jackie, Simon and Sonny. > > > > _________________________________________________________________ > > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Another European on the list !!! I am Swiss, but live in California What kind of chest physiotherapy do you practice in the UK ? introduction to cfparents > > > >Hello > >My name is Jackie and I have one child called Sonny, he is now 18 months >old, he was diagnosed with cf at the age of 5 months, there wasn`t any >history of cf on either side of the family,so it was a complete and utter >shock to both of us. We are just about coming to terms with his condition. >In the sense of being able to talk openly about it, the practical side of >caring for him came almost instantly, as we felt we could finaly do >something positive to help our little boy. Up until his diagnosis life was >pretty miserable, as I am sure, all you parents already know about that. We >both now feel that life is finally becoming `normal` and that visits to >hospital and all the medications are under control so to speak,we both feel >that use of the cf parents group will be beneficial to all of us. > >Sending love, peace and hope to all the families out there >Jackie, Simon and Sonny. > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi What we do over here is called percussion, where you clap on the five different parts of the chest for five mins on each part. We pat for 30 seconds then wait for thirty seconds. As Sonny is only 19 months we are not able to do any other type of physio yet, although we do go out lots and run around the park like raving lunatics any chance we can get, as long as its not raining. Which is not easy with our climate! Jackie out of puff for now Lol > >Reply-To: cfparents >To: cfparents > >Subject: RE: introduction to cfparents >Date: Thu, 3 Jan 2002 11:20:50 -0800 > >Another European on the list !!! >I am Swiss, but live in California >What kind of chest physiotherapy do you practice in the UK ? > > > > introduction to cfparents > > > > > > > >Hello > > > >My name is Jackie and I have one child called Sonny, he is now 18 months > >old, he was diagnosed with cf at the age of 5 months, there wasn`t any > >history of cf on either side of the family,so it was a complete and utter > >shock to both of us. We are just about coming to terms with his >condition. > >In the sense of being able to talk openly about it, the practical side of > >caring for him came almost instantly, as we felt we could finaly do > >something positive to help our little boy. Up until his diagnosis life >was > >pretty miserable, as I am sure, all you parents already know about that. >We > >both now feel that life is finally becoming `normal` and that visits to > >hospital and all the medications are under control so to speak,we both >feel > >that use of the cf parents group will be beneficial to all of us. > > > >Sending love, peace and hope to all the families out there > >Jackie, Simon and Sonny. > > > >_________________________________________________________________ > >Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
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