Re: Celiac Disease symptoms

[Guest guest]

WOW!!! I feel like you just read a description of my 6 year old son. That

is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic and has all

of the same " buzz words " you described except for the noise avoidance

(post-OT for your son).

Ironically, we just had him tested for celiac as well as inflammatory bowel

and the levels came back in the " normal " range. Due to the symptoms he

deals with on a consistent basis and my Mom's autoimmune history, Crohn's

disease, etc., we are being referred to a pediatric gastroenterologist in

the next week or so. I find it hard to believe that one little blood test

can rule in or rule out a celiac diagnosis so I will be interested to see

what this doctor has to say and recommend.

Does anyone know anything more about this? If so, responses thereto would

be greatly appreciated.

Thanks!

Debbie - NJ

[ ] Celiac Disease symptoms

Hi - I've been wondering if a gluten-free diet would be right for my

son who is 3 years 3 mos. I know it would be easy to say just try

it - but it is rather traumatic to a non-verbal child to be told that

he can't have all the things that he loves and I want to spare him

_,_._,___

[Guest guest]

I don't want to worry you but you may want to see a pedi neurologist to check

out the pupil dialation and shift in consciousness to rule out any neuro issues

as well.

take care

karen

fkewatson <kwatsoneei@...> wrote:

Hi - I've been wondering if a gluten-free diet would be right for my

son who is 3 years 3 mos. I know it would be easy to say just try

it - but it is rather traumatic to a non-verbal child to be told that

he can't have all the things that he loves and I want to spare him

that if I can. I've been looking at archives until I'm bleary-eyed

as well as other web pages re: Celiac disease and can't find any real-

life " this is what a Celiac kid looks like " info. I realize that the

symptoms can vary, so I'm not looking for a cookie-cutter picture. I

guess the best thing to do is throw out what my kid looks like and

see if anyone will share their thoughts:

- He is skinny. We have pictures of him as a baby that looks like he

is from an impoverished country. He really hasn't been a " failure to

thrive " child, but he is tall for his age and, as we describe, " can't

keep an ounce of fat on him " . That may also have something to do

with the fact that he is a sensory seeker and is always on the move,

but who knows?

- We believe he is verbally apraxic. No official diagnosis yet but

we have an appointment with Dr. Agin in Jan, so hopefully we'll know

more then.

- He has self-limited his diet to entrees of chicken nuggets,

spaghettios (no meatballs), and pizza (any will do). He loves fries,

chips, etc. He will eat several other things with varying textures

(oatmeal, peas, corn, rolls, bananas, cheerios, anything chocolate).

Still eats baby-food yellow veggies (carrots, sweet potatoes, squash).

- He has sensory issues including sensory seeking (proprioceptive-

type), vestibular issues (does not enjoy swinging for fun. He is

becoming tolerant of it through OT). Sensory avoidance of certain

wet textures (foam soap, shaving cream). He never avoided noises

until we began OT and then it became an issue, but is beginning to

resolve itself.

The sensory issue that bothers me most is visual - and I'm beginning

to wonder if it is truly sensory or if it is peripheral

neuropathological in nature (it that's a word!). His pupils will

change in the course of a few seconds. He will zone out and his

pupils will be huge. I can actually watch them shrink (without

change in lighting) and he will become lucid and making eye-contact

again in a matter of 10 seconds.

He has never cried about having his finger-pricked, which tells me he

has limited feeling in his fingertips.

- His stool varies from firm to mushy daily. Mostly it is mushy and

somewhat grainy. The only time I've seen a real, steatorrhea episode

was just a about 6 weeks ago when he had been ill with vomiting,

diarrhia, and fever with a 24-hour-type bug. The entire week

afterward he had very odd-odored, pale, khaki-colored stool with a

foamy, frothy consistency. But after about a week that ended.

He has greasy stools with the ingestion of too many fries or really

greasy pizza (both of which I try to avoid, but has occurred on at

least one occasion that I recall). And the only thing I have every

seen give him mild constipation is eating too much shredded cheddar

cheese.

Well, that's everything you probably didn't want to know about my

boy. We just recently begain supplementation (Pro-EFA and low-dose

Vit E) and I'm seeing subtle improvements. Trying to get my courage

up to go higher with the E (just doing 200IU right now).

[Guest guest]

What you describe doesn't sound hugely like Celiac to me, but who knows.

If you think you might pursue testing, though, don't go on the diet as it can

mess up the results.

The first step can be a screening blood test, which can be very informative.

I'll tell you our story. We first wondered about celiac when my daughter was 12

months because of chronic consitpation, poor weight gain, and developmental

delays, but it was dismissed. At about 12 months, she started with chronic

diahreah. We started doing all kinds of tests, but nothing came was conclusive.

Meanwhile she started losing weight. (Not good when you are already below the

1%tile). And, she was having these horrible, thrashing fits. True they

coincided with the " terrible twos " and it was also true that she was becoming

increasingly frustrated with her communication difficulties, but still it wasn't

typical for her personality.

Our GI doctor was wonderful. He immediately suspected celiac, and everything

seemed to point that way. She was IgA deficient which meant that the blood test

wasn't conclusive, but also seemed to point to celiac; but, her biopsy came back

fine. To make a long story short, she ended up having an enzyme deficiency.

Now, she takes some medication before each meal, and she is back to her normal

happy self, and having normal stools. (Oh, and finally gaining weight).

I wondered a lot if this was maybe just a coincidence, but then we went on

vacation and got off schedule, and she missed a few doses. Uh Oh, the

thrashing fits and tantrums started right back up and then the diahrea. The

bottom line is that she was technically mkalnourished and that may have

contributed greatly to the apraxia (which we did finally get an official

diagnosis).

I say all this to tell you that it is well worth while to go and see the doctor

and have them get to the bottom of it all.

Jeanne

[Guest guest]

Youre son sounds alot like my son who just turned 5. I too suspected he had

celiac, but because he has a very limited diet, I didn't want to cut out

any of his food. What I did change was the type of milk he drank from

organic whole milk to organic lactose free milk. That completely changed

his stool to " normal " from grainy, mushy, yellowish. So, my guess is that

he is lactose intolerant. He too is thin and can't seem to put on weight

but is very active from morning until bedtime. I will get him formally

tested in Nov. for celiac. It wouldn't hurt to just change his milk to

lactose free and see if that does anything. Warning: it is expensive but

worth the $ if his belly is absorbing nutrients like it should be.

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

There is a simple genetic test for Celiac Disease. I ordered a kit

online and then sent the swabs back for testing. It was not covered

by my insurance, but it was worth it. My family history is very

significant for severe allergies and undiagnosed gi problems. Low

and behold, I have one of the genetic markers for Celiac Disease and

the clinical adult symptoms. I also have a very severe wheat

allergy. It might be worth doing the genetic testing which is a

very non-invasive test (mouth swab). The actual recommended test is

a biopsy which I was not willing to go through nor did my MD think

was necessary. I decided after that to try a gluten free diet.

That, in my opinion, is all I and my MD needed to know whether or

not this was my problem. Good Luck in your search for answers.

There is a really good episode of I think Diangosis unkown on

Discovery Health about a child with Celiac.

Katina

p.s. many processed potato products have wheat and/or gluten in them

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> that if I can. I've been looking at archives until I'm bleary-

eyed

> as well as other web pages re: Celiac disease and can't find any

real-

> life " this is what a Celiac kid looks like " info. I realize that

the

> symptoms can vary, so I'm not looking for a cookie-cutter

picture. I

> guess the best thing to do is throw out what my kid looks like and

> see if anyone will share their thoughts:

>

> - He is skinny. We have pictures of him as a baby that looks like

he

> is from an impoverished country. He really hasn't been a " failure

to

> thrive " child, but he is tall for his age and, as we

describe, " can't

> keep an ounce of fat on him " . That may also have something to do

> with the fact that he is a sensory seeker and is always on the

move,

> but who knows?

>

> - We believe he is verbally apraxic. No official diagnosis yet

but

> we have an appointment with Dr. Agin in Jan, so hopefully we'll

know

> more then.

>

> - He has self-limited his diet to entrees of chicken nuggets,

> spaghettios (no meatballs), and pizza (any will do). He loves

fries,

> chips, etc. He will eat several other things with varying

textures

> (oatmeal, peas, corn, rolls, bananas, cheerios, anything

chocolate).

> Still eats baby-food yellow veggies (carrots, sweet potatoes,

squash).

>

> - He has sensory issues including sensory seeking (proprioceptive-

> type), vestibular issues (does not enjoy swinging for fun. He is

> becoming tolerant of it through OT). Sensory avoidance of certain

> wet textures (foam soap, shaving cream). He never avoided noises

> until we began OT and then it became an issue, but is beginning to

> resolve itself.

>

> The sensory issue that bothers me most is visual - and I'm

beginning

> to wonder if it is truly sensory or if it is peripheral

> neuropathological in nature (it that's a word!). His pupils will

> change in the course of a few seconds. He will zone out and his

> pupils will be huge. I can actually watch them shrink (without

> change in lighting) and he will become lucid and making eye-

contact

> again in a matter of 10 seconds.

>

> He has never cried about having his finger-pricked, which tells me

he

> has limited feeling in his fingertips.

>

> - His stool varies from firm to mushy daily. Mostly it is mushy

and

> somewhat grainy. The only time I've seen a real, steatorrhea

episode

> was just a about 6 weeks ago when he had been ill with vomiting,

> diarrhia, and fever with a 24-hour-type bug. The entire week

> afterward he had very odd-odored, pale, khaki-colored stool with a

> foamy, frothy consistency. But after about a week that ended.

>

> He has greasy stools with the ingestion of too many fries or

really

> greasy pizza (both of which I try to avoid, but has occurred on at

> least one occasion that I recall). And the only thing I have

every

> seen give him mild constipation is eating too much shredded

cheddar

> cheese.

>

> Well, that's everything you probably didn't want to know about my

> boy. We just recently begain supplementation (Pro-EFA and low-

dose

> Vit E) and I'm seeing subtle improvements. Trying to get my

courage

> up to go higher with the E (just doing 200IU right now).

>

[Guest guest]

WOW!!! I feel like you just read a description of my 6 year old son. That

is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic and has all

of the same " buzz words " you described except for the noise avoidance

(post-OT for your son).

Ironically, we just had him tested for celiac as well as inflammatory bowel

and the levels came back in the " normal " range. Due to the symptoms he

deals with on a consistent basis and my Mom's autoimmune history, Crohn's

disease, etc., we are being referred to a pediatric gastroenterologist in

the next week or so. I find it hard to believe that one little blood test

can rule in or rule out a celiac diagnosis so I will be interested to see

what this doctor has to say and recommend.

Does anyone know anything more about this? If so, responses thereto would

be greatly appreciated.

Thanks!

Debbie - NJ

[ ] Celiac Disease symptoms

Hi - I've been wondering if a gluten-free diet would be right for my

son who is 3 years 3 mos. I know it would be easy to say just try

it - but it is rather traumatic to a non-verbal child to be told that

he can't have all the things that he loves and I want to spare him

_,_._,___

[Guest guest]

I don't want to worry you but you may want to see a pedi neurologist to check

out the pupil dialation and shift in consciousness to rule out any neuro issues

as well.

take care

karen

fkewatson <kwatsoneei@...> wrote:

Hi - I've been wondering if a gluten-free diet would be right for my

son who is 3 years 3 mos. I know it would be easy to say just try

it - but it is rather traumatic to a non-verbal child to be told that

he can't have all the things that he loves and I want to spare him

that if I can. I've been looking at archives until I'm bleary-eyed

as well as other web pages re: Celiac disease and can't find any real-

life " this is what a Celiac kid looks like " info. I realize that the

symptoms can vary, so I'm not looking for a cookie-cutter picture. I

guess the best thing to do is throw out what my kid looks like and

see if anyone will share their thoughts:

- He is skinny. We have pictures of him as a baby that looks like he

is from an impoverished country. He really hasn't been a " failure to

thrive " child, but he is tall for his age and, as we describe, " can't

keep an ounce of fat on him " . That may also have something to do

with the fact that he is a sensory seeker and is always on the move,

but who knows?

- We believe he is verbally apraxic. No official diagnosis yet but

we have an appointment with Dr. Agin in Jan, so hopefully we'll know

more then.

- He has self-limited his diet to entrees of chicken nuggets,

spaghettios (no meatballs), and pizza (any will do). He loves fries,

chips, etc. He will eat several other things with varying textures

(oatmeal, peas, corn, rolls, bananas, cheerios, anything chocolate).

Still eats baby-food yellow veggies (carrots, sweet potatoes, squash).

- He has sensory issues including sensory seeking (proprioceptive-

type), vestibular issues (does not enjoy swinging for fun. He is

becoming tolerant of it through OT). Sensory avoidance of certain

wet textures (foam soap, shaving cream). He never avoided noises

until we began OT and then it became an issue, but is beginning to

resolve itself.

The sensory issue that bothers me most is visual - and I'm beginning

to wonder if it is truly sensory or if it is peripheral

neuropathological in nature (it that's a word!). His pupils will

change in the course of a few seconds. He will zone out and his

pupils will be huge. I can actually watch them shrink (without

change in lighting) and he will become lucid and making eye-contact

again in a matter of 10 seconds.

He has never cried about having his finger-pricked, which tells me he

has limited feeling in his fingertips.

- His stool varies from firm to mushy daily. Mostly it is mushy and

somewhat grainy. The only time I've seen a real, steatorrhea episode

was just a about 6 weeks ago when he had been ill with vomiting,

diarrhia, and fever with a 24-hour-type bug. The entire week

afterward he had very odd-odored, pale, khaki-colored stool with a

foamy, frothy consistency. But after about a week that ended.

He has greasy stools with the ingestion of too many fries or really

greasy pizza (both of which I try to avoid, but has occurred on at

least one occasion that I recall). And the only thing I have every

seen give him mild constipation is eating too much shredded cheddar

cheese.

Well, that's everything you probably didn't want to know about my

boy. We just recently begain supplementation (Pro-EFA and low-dose

Vit E) and I'm seeing subtle improvements. Trying to get my courage

up to go higher with the E (just doing 200IU right now).

[Guest guest]

What you describe doesn't sound hugely like Celiac to me, but who knows.

If you think you might pursue testing, though, don't go on the diet as it can

mess up the results.

The first step can be a screening blood test, which can be very informative.

I'll tell you our story. We first wondered about celiac when my daughter was 12

months because of chronic consitpation, poor weight gain, and developmental

delays, but it was dismissed. At about 12 months, she started with chronic

diahreah. We started doing all kinds of tests, but nothing came was conclusive.

Meanwhile she started losing weight. (Not good when you are already below the

1%tile). And, she was having these horrible, thrashing fits. True they

coincided with the " terrible twos " and it was also true that she was becoming

increasingly frustrated with her communication difficulties, but still it wasn't

typical for her personality.

Our GI doctor was wonderful. He immediately suspected celiac, and everything

seemed to point that way. She was IgA deficient which meant that the blood test

wasn't conclusive, but also seemed to point to celiac; but, her biopsy came back

fine. To make a long story short, she ended up having an enzyme deficiency.

Now, she takes some medication before each meal, and she is back to her normal

happy self, and having normal stools. (Oh, and finally gaining weight).

I wondered a lot if this was maybe just a coincidence, but then we went on

vacation and got off schedule, and she missed a few doses. Uh Oh, the

thrashing fits and tantrums started right back up and then the diahrea. The

bottom line is that she was technically mkalnourished and that may have

contributed greatly to the apraxia (which we did finally get an official

diagnosis).

I say all this to tell you that it is well worth while to go and see the doctor

and have them get to the bottom of it all.

Jeanne

[Guest guest]

Youre son sounds alot like my son who just turned 5. I too suspected he had

celiac, but because he has a very limited diet, I didn't want to cut out

any of his food. What I did change was the type of milk he drank from

organic whole milk to organic lactose free milk. That completely changed

his stool to " normal " from grainy, mushy, yellowish. So, my guess is that

he is lactose intolerant. He too is thin and can't seem to put on weight

but is very active from morning until bedtime. I will get him formally

tested in Nov. for celiac. It wouldn't hurt to just change his milk to

lactose free and see if that does anything. Warning: it is expensive but

worth the $ if his belly is absorbing nutrients like it should be.

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

There is a simple genetic test for Celiac Disease. I ordered a kit

online and then sent the swabs back for testing. It was not covered

by my insurance, but it was worth it. My family history is very

significant for severe allergies and undiagnosed gi problems. Low

and behold, I have one of the genetic markers for Celiac Disease and

the clinical adult symptoms. I also have a very severe wheat

allergy. It might be worth doing the genetic testing which is a

very non-invasive test (mouth swab). The actual recommended test is

a biopsy which I was not willing to go through nor did my MD think

was necessary. I decided after that to try a gluten free diet.

That, in my opinion, is all I and my MD needed to know whether or

not this was my problem. Good Luck in your search for answers.

There is a really good episode of I think Diangosis unkown on

Discovery Health about a child with Celiac.

Katina

p.s. many processed potato products have wheat and/or gluten in them

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> that if I can. I've been looking at archives until I'm bleary-

eyed

> as well as other web pages re: Celiac disease and can't find any

real-

> life " this is what a Celiac kid looks like " info. I realize that

the

> symptoms can vary, so I'm not looking for a cookie-cutter

picture. I

> guess the best thing to do is throw out what my kid looks like and

> see if anyone will share their thoughts:

>

> - He is skinny. We have pictures of him as a baby that looks like

he

> is from an impoverished country. He really hasn't been a " failure

to

> thrive " child, but he is tall for his age and, as we

describe, " can't

> keep an ounce of fat on him " . That may also have something to do

> with the fact that he is a sensory seeker and is always on the

move,

> but who knows?

>

> - We believe he is verbally apraxic. No official diagnosis yet

but

> we have an appointment with Dr. Agin in Jan, so hopefully we'll

know

> more then.

>

> - He has self-limited his diet to entrees of chicken nuggets,

> spaghettios (no meatballs), and pizza (any will do). He loves

fries,

> chips, etc. He will eat several other things with varying

textures

> (oatmeal, peas, corn, rolls, bananas, cheerios, anything

chocolate).

> Still eats baby-food yellow veggies (carrots, sweet potatoes,

squash).

>

> - He has sensory issues including sensory seeking (proprioceptive-

> type), vestibular issues (does not enjoy swinging for fun. He is

> becoming tolerant of it through OT). Sensory avoidance of certain

> wet textures (foam soap, shaving cream). He never avoided noises

> until we began OT and then it became an issue, but is beginning to

> resolve itself.

>

> The sensory issue that bothers me most is visual - and I'm

beginning

> to wonder if it is truly sensory or if it is peripheral

> neuropathological in nature (it that's a word!). His pupils will

> change in the course of a few seconds. He will zone out and his

> pupils will be huge. I can actually watch them shrink (without

> change in lighting) and he will become lucid and making eye-

contact

> again in a matter of 10 seconds.

>

> He has never cried about having his finger-pricked, which tells me

he

> has limited feeling in his fingertips.

>

> - His stool varies from firm to mushy daily. Mostly it is mushy

and

> somewhat grainy. The only time I've seen a real, steatorrhea

episode

> was just a about 6 weeks ago when he had been ill with vomiting,

> diarrhia, and fever with a 24-hour-type bug. The entire week

> afterward he had very odd-odored, pale, khaki-colored stool with a

> foamy, frothy consistency. But after about a week that ended.

>

> He has greasy stools with the ingestion of too many fries or

really

> greasy pizza (both of which I try to avoid, but has occurred on at

> least one occasion that I recall). And the only thing I have

every

> seen give him mild constipation is eating too much shredded

cheddar

> cheese.

>

> Well, that's everything you probably didn't want to know about my

> boy. We just recently begain supplementation (Pro-EFA and low-

dose

> Vit E) and I'm seeing subtle improvements. Trying to get my

courage

> up to go higher with the E (just doing 200IU right now).

>

[Guest guest]

Sounds like some complex things going on there! I really don't know anything

about Celiac disease but was a little concerned with the zoning out episodes.

Is the doctor/ped concerned?? Could he be having seizures?? I don't want to

scare I just thought it might be worth bringing up.

It really amazes me how many of these kids have GI issues which probably goes

back to what is saying about absorption issues with Vit E, etc.

Please let us know if you find out anything more..

Amy D

[ ] Celiac Disease symptoms

Hi - I've been wondering if a gluten-free diet would be right for my

son who is 3 years 3 mos. I know it would be easy to say just try

it - but it is rather traumatic to a non-verbal child to be told that

he can't have all the things that he loves and I want to spare him

that if I can. I've been looking at archives until I'm bleary-eyed

as well as other web pages re: Celiac disease and can't find any real-

life " this is what a Celiac kid looks like " info. I realize that the

symptoms can vary, so I'm not looking for a cookie-cutter picture. I

guess the best thing to do is throw out what my kid looks like and

see if anyone will share their thoughts:

- He is skinny. We have pictures of him as a baby that looks like he

is from an impoverished country. He really hasn't been a " failure to

thrive " child, but he is tall for his age and, as we describe, " can't

keep an ounce of fat on him " . That may also have something to do

with the fact that he is a sensory seeker and is always on the move,

but who knows?

- We believe he is verbally apraxic. No official diagnosis yet but

we have an appointment with Dr. Agin in Jan, so hopefully we'll know

more then.

- He has self-limited his diet to entrees of chicken nuggets,

spaghettios (no meatballs), and pizza (any will do). He loves fries,

chips, etc. He will eat several other things with varying textures

(oatmeal, peas, corn, rolls, bananas, cheerios, anything chocolate).

Still eats baby-food yellow veggies (carrots, sweet potatoes, squash).

- He has sensory issues including sensory seeking (proprioceptive-

type), vestibular issues (does not enjoy swinging for fun. He is

becoming tolerant of it through OT). Sensory avoidance of certain

wet textures (foam soap, shaving cream). He never avoided noises

until we began OT and then it became an issue, but is beginning to

resolve itself.

The sensory issue that bothers me most is visual - and I'm beginning

to wonder if it is truly sensory or if it is peripheral

neuropathological in nature (it that's a word!). His pupils will

change in the course of a few seconds. He will zone out and his

pupils will be huge. I can actually watch them shrink (without

change in lighting) and he will become lucid and making eye-contact

again in a matter of 10 seconds.

He has never cried about having his finger-pricked, which tells me he

has limited feeling in his fingertips.

- His stool varies from firm to mushy daily. Mostly it is mushy and

somewhat grainy. The only time I've seen a real, steatorrhea episode

was just a about 6 weeks ago when he had been ill with vomiting,

diarrhia, and fever with a 24-hour-type bug. The entire week

afterward he had very odd-odored, pale, khaki-colored stool with a

foamy, frothy consistency. But after about a week that ended.

He has greasy stools with the ingestion of too many fries or really

greasy pizza (both of which I try to avoid, but has occurred on at

least one occasion that I recall). And the only thing I have every

seen give him mild constipation is eating too much shredded cheddar

cheese.

Well, that's everything you probably didn't want to know about my

boy. We just recently begain supplementation (Pro-EFA and low-dose

Vit E) and I'm seeing subtle improvements. Trying to get my courage

up to go higher with the E (just doing 200IU right now).

[Guest guest]

Sounds like some complex things going on there! I really don't know anything

about Celiac disease but was a little concerned with the zoning out episodes.

Is the doctor/ped concerned?? Could he be having seizures?? I don't want to

scare I just thought it might be worth bringing up.

It really amazes me how many of these kids have GI issues which probably goes

back to what is saying about absorption issues with Vit E, etc.

Please let us know if you find out anything more..

Amy D

[ ] Celiac Disease symptoms

Hi - I've been wondering if a gluten-free diet would be right for my

son who is 3 years 3 mos. I know it would be easy to say just try

it - but it is rather traumatic to a non-verbal child to be told that

he can't have all the things that he loves and I want to spare him

that if I can. I've been looking at archives until I'm bleary-eyed

as well as other web pages re: Celiac disease and can't find any real-

life " this is what a Celiac kid looks like " info. I realize that the

symptoms can vary, so I'm not looking for a cookie-cutter picture. I

guess the best thing to do is throw out what my kid looks like and

see if anyone will share their thoughts:

- He is skinny. We have pictures of him as a baby that looks like he

is from an impoverished country. He really hasn't been a " failure to

thrive " child, but he is tall for his age and, as we describe, " can't

keep an ounce of fat on him " . That may also have something to do

with the fact that he is a sensory seeker and is always on the move,

but who knows?

- We believe he is verbally apraxic. No official diagnosis yet but

we have an appointment with Dr. Agin in Jan, so hopefully we'll know

more then.

- He has self-limited his diet to entrees of chicken nuggets,

spaghettios (no meatballs), and pizza (any will do). He loves fries,

chips, etc. He will eat several other things with varying textures

(oatmeal, peas, corn, rolls, bananas, cheerios, anything chocolate).

Still eats baby-food yellow veggies (carrots, sweet potatoes, squash).

- He has sensory issues including sensory seeking (proprioceptive-

type), vestibular issues (does not enjoy swinging for fun. He is

becoming tolerant of it through OT). Sensory avoidance of certain

wet textures (foam soap, shaving cream). He never avoided noises

until we began OT and then it became an issue, but is beginning to

resolve itself.

The sensory issue that bothers me most is visual - and I'm beginning

to wonder if it is truly sensory or if it is peripheral

neuropathological in nature (it that's a word!). His pupils will

change in the course of a few seconds. He will zone out and his

pupils will be huge. I can actually watch them shrink (without

change in lighting) and he will become lucid and making eye-contact

again in a matter of 10 seconds.

He has never cried about having his finger-pricked, which tells me he

has limited feeling in his fingertips.

- His stool varies from firm to mushy daily. Mostly it is mushy and

somewhat grainy. The only time I've seen a real, steatorrhea episode

was just a about 6 weeks ago when he had been ill with vomiting,

diarrhia, and fever with a 24-hour-type bug. The entire week

afterward he had very odd-odored, pale, khaki-colored stool with a

foamy, frothy consistency. But after about a week that ended.

He has greasy stools with the ingestion of too many fries or really

greasy pizza (both of which I try to avoid, but has occurred on at

least one occasion that I recall). And the only thing I have every

seen give him mild constipation is eating too much shredded cheddar

cheese.

Well, that's everything you probably didn't want to know about my

boy. We just recently begain supplementation (Pro-EFA and low-dose

Vit E) and I'm seeing subtle improvements. Trying to get my courage

up to go higher with the E (just doing 200IU right now).

[Guest guest]

Try the diet. From what you describe, you can switch all of his

foods with gluten/casien free. It sounds really hard but it's not.

My kid didn't blink, maybe because he's not much of a food craver to

begin with. And he's go with the flow.

Do you have a whole foods near? A good health food store will have

a designated isle and their are on line bakeries. Once you get

tapped in, it's not hard.

I will warn you that you may see some really bad behavior or even a

cold within the first few weeks while his body is adjusting. And do

not cheat, it's not like cheating on your weight loss diet.

Their are several books on the market, Seroussi (sp) is one

mentioned a lot.

Best of luck... the gf/cf diet yields the most results reported by

parents. I am one, my boy " woke up " gradually but it's worth doing.

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> that if I can. I've been looking at archives until I'm bleary-

eyed

> as well as other web pages re: Celiac disease and can't find any

real-

> life " this is what a Celiac kid looks like " info. I realize that

the

> symptoms can vary, so I'm not looking for a cookie-cutter

picture. I

> guess the best thing to do is throw out what my kid looks like and

> see if anyone will share their thoughts:

>

> - He is skinny. We have pictures of him as a baby that looks like

he

> is from an impoverished country. He really hasn't been a " failure

to

> thrive " child, but he is tall for his age and, as we

describe, " can't

> keep an ounce of fat on him " . That may also have something to do

> with the fact that he is a sensory seeker and is always on the

move,

> but who knows?

>

> - We believe he is verbally apraxic. No official diagnosis yet

but

> we have an appointment with Dr. Agin in Jan, so hopefully we'll

know

> more then.

>

> - He has self-limited his diet to entrees of chicken nuggets,

> spaghettios (no meatballs), and pizza (any will do). He loves

fries,

> chips, etc. He will eat several other things with varying

textures

> (oatmeal, peas, corn, rolls, bananas, cheerios, anything

chocolate).

> Still eats baby-food yellow veggies (carrots, sweet potatoes,

squash).

>

> - He has sensory issues including sensory seeking (proprioceptive-

> type), vestibular issues (does not enjoy swinging for fun. He is

> becoming tolerant of it through OT). Sensory avoidance of certain

> wet textures (foam soap, shaving cream). He never avoided noises

> until we began OT and then it became an issue, but is beginning to

> resolve itself.

>

> The sensory issue that bothers me most is visual - and I'm

beginning

> to wonder if it is truly sensory or if it is peripheral

> neuropathological in nature (it that's a word!). His pupils will

> change in the course of a few seconds. He will zone out and his

> pupils will be huge. I can actually watch them shrink (without

> change in lighting) and he will become lucid and making eye-

contact

> again in a matter of 10 seconds.

>

> He has never cried about having his finger-pricked, which tells me

he

> has limited feeling in his fingertips.

>

> - His stool varies from firm to mushy daily. Mostly it is mushy

and

> somewhat grainy. The only time I've seen a real, steatorrhea

episode

> was just a about 6 weeks ago when he had been ill with vomiting,

> diarrhia, and fever with a 24-hour-type bug. The entire week

> afterward he had very odd-odored, pale, khaki-colored stool with a

> foamy, frothy consistency. But after about a week that ended.

>

> He has greasy stools with the ingestion of too many fries or

really

> greasy pizza (both of which I try to avoid, but has occurred on at

> least one occasion that I recall). And the only thing I have

every

> seen give him mild constipation is eating too much shredded

cheddar

> cheese.

>

> Well, that's everything you probably didn't want to know about my

> boy. We just recently begain supplementation (Pro-EFA and low-

dose

> Vit E) and I'm seeing subtle improvements. Trying to get my

courage

> up to go higher with the E (just doing 200IU right now).

>

[Guest guest]

In children, Celiac Diseas has also been known to cause zoning out

episodes. You bring up a good point though that seizures should be

ruled out. Katina

>

> Sounds like some complex things going on there! I really don't

know anything about Celiac disease but was a little concerned with

the zoning out episodes. Is the doctor/ped concerned?? Could he be

having seizures?? I don't want to scare I just thought it might be

worth bringing up.

>

> It really amazes me how many of these kids have GI issues which

probably goes back to what is saying about absorption issues

with Vit E, etc.

>

> Please let us know if you find out anything more..

>

> Amy D

>

>

>

> [ ] Celiac Disease symptoms

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> that if I can. I've been looking at archives until I'm bleary-eyed

> as well as other web pages re: Celiac disease and can't find any

real-

> life " this is what a Celiac kid looks like " info. I realize that

the

> symptoms can vary, so I'm not looking for a cookie-cutter picture.

I

> guess the best thing to do is throw out what my kid looks like and

> see if anyone will share their thoughts:

>

> - He is skinny. We have pictures of him as a baby that looks like

he

> is from an impoverished country. He really hasn't been a " failure

to

> thrive " child, but he is tall for his age and, as we

describe, " can't

> keep an ounce of fat on him " . That may also have something to do

> with the fact that he is a sensory seeker and is always on the

move,

> but who knows?

>

> - We believe he is verbally apraxic. No official diagnosis yet but

> we have an appointment with Dr. Agin in Jan, so hopefully we'll

know

> more then.

>

> - He has self-limited his diet to entrees of chicken nuggets,

> spaghettios (no meatballs), and pizza (any will do). He loves

fries,

> chips, etc. He will eat several other things with varying textures

> (oatmeal, peas, corn, rolls, bananas, cheerios, anything

chocolate).

> Still eats baby-food yellow veggies (carrots, sweet potatoes,

squash).

>

> - He has sensory issues including sensory seeking (proprioceptive-

> type), vestibular issues (does not enjoy swinging for fun. He is

> becoming tolerant of it through OT). Sensory avoidance of certain

> wet textures (foam soap, shaving cream). He never avoided noises

> until we began OT and then it became an issue, but is beginning to

> resolve itself.

>

> The sensory issue that bothers me most is visual - and I'm

beginning

> to wonder if it is truly sensory or if it is peripheral

> neuropathological in nature (it that's a word!). His pupils will

> change in the course of a few seconds. He will zone out and his

> pupils will be huge. I can actually watch them shrink (without

> change in lighting) and he will become lucid and making eye-

contact

> again in a matter of 10 seconds.

>

> He has never cried about having his finger-pricked, which tells me

he

> has limited feeling in his fingertips.

>

> - His stool varies from firm to mushy daily. Mostly it is mushy

and

> somewhat grainy. The only time I've seen a real, steatorrhea

episode

> was just a about 6 weeks ago when he had been ill with vomiting,

> diarrhia, and fever with a 24-hour-type bug. The entire week

> afterward he had very odd-odored, pale, khaki-colored stool with a

> foamy, frothy consistency. But after about a week that ended.

>

> He has greasy stools with the ingestion of too many fries or

really

> greasy pizza (both of which I try to avoid, but has occurred on at

> least one occasion that I recall). And the only thing I have every

> seen give him mild constipation is eating too much shredded

cheddar

> cheese.

>

> Well, that's everything you probably didn't want to know about my

> boy. We just recently begain supplementation (Pro-EFA and low-dose

> Vit E) and I'm seeing subtle improvements. Trying to get my

courage

> up to go higher with the E (just doing 200IU right now).

>

>

>

>

>

>

>

[Guest guest]

Thanks everyone and if anyone else has input to give I'm all for it.

You're responses were just what I was looking for - kids who look

like my kid.

Amazing things are happening at home today. He is ususally

a " proprioceptive seeker " with the bumping and crashing type of

behavior. Brushing/compression program prescribed by his OT has kept

that well under control, but I had to brush every 2 hours or he would

start up again.

Yesterday I only brushed him once in the morning, then we went out

into town and I didn't bring the brush. When we got home I realized

he wasn't seeking - so I just watched him for the rest of the day. I

held off brushing until I put him to bed where he was slightly

restless (normally if he needs to be brushed at bedtime he is kicking

against the bedrails and banging his face into his pillow, etc.).

Last night it was just a little restless movement. I brushed and he

immediately fell asleep.

Today I have not brushed him at all and he has not once sought out

proprioceptive input. I began giving him 200 IU Vitamin E last

Thursday and switched to High Gamma Tocopherols yesterday. It has to

be the Vitamin E. I'm praying this is only the beginning...

>

> WOW!!! I feel like you just read a description of my 6 year old

son. That

> is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic and

has all

> of the same " buzz words " you described except for the noise

avoidance

> (post-OT for your son).

>

>

>

> Ironically, we just had him tested for celiac as well as

inflammatory bowel

> and the levels came back in the " normal " range. Due to the

symptoms he

> deals with on a consistent basis and my Mom's autoimmune history,

Crohn's

> disease, etc., we are being referred to a pediatric

gastroenterologist in

> the next week or so. I find it hard to believe that one little

blood test

> can rule in or rule out a celiac diagnosis so I will be interested

to see

> what this doctor has to say and recommend.

>

>

>

> Does anyone know anything more about this? If so, responses

thereto would

> be greatly appreciated.

>

>

>

> Thanks!

>

>

>

> Debbie - NJ

>

>

>

> [ ] Celiac Disease symptoms

>

>

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> _,_._,___

>

>

>

>

[Guest guest]

A parellel universe, huh?

I just spoke with his pediatrician this morning about having him

tested and while he would do it if I ask him to, he feels that they

are not as reliable as seeing clinical reactions with just trying the

diet. I've read that as well, so I think I'm just going to jump in

and do it. He wasn't even keen on trying the diet until I told him

that we are getting results from the Vitamin E, and then he became

interested in what I've been learning about malabsorption. He felt

that we would have to be seeing a " failure to thrive " situation if

malabsorption were an issue, but he was definitely piqued. He is the

best pediatrician I could have ever asked for.

We have several stores that carry good gluten-free products around

here, so I'm going shopping tonight!

>

> WOW!!! I feel like you just read a description of my 6 year old

son. That

> is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic and

has all

> of the same " buzz words " you described except for the noise

avoidance

> (post-OT for your son).

>

>

>

> Ironically, we just had him tested for celiac as well as

inflammatory bowel

> and the levels came back in the " normal " range. Due to the

symptoms he

> deals with on a consistent basis and my Mom's autoimmune history,

Crohn's

> disease, etc., we are being referred to a pediatric

gastroenterologist in

> the next week or so. I find it hard to believe that one little

blood test

> can rule in or rule out a celiac diagnosis so I will be interested

to see

> what this doctor has to say and recommend.

>

>

>

> Does anyone know anything more about this? If so, responses

thereto would

> be greatly appreciated.

>

>

>

> Thanks!

>

>

>

> Debbie - NJ

>

>

>

> [ ] Celiac Disease symptoms

>

>

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> _,_._,___

>

>

>

>

[Guest guest]

Try the diet. From what you describe, you can switch all of his

foods with gluten/casien free. It sounds really hard but it's not.

My kid didn't blink, maybe because he's not much of a food craver to

begin with. And he's go with the flow.

Do you have a whole foods near? A good health food store will have

a designated isle and their are on line bakeries. Once you get

tapped in, it's not hard.

I will warn you that you may see some really bad behavior or even a

cold within the first few weeks while his body is adjusting. And do

not cheat, it's not like cheating on your weight loss diet.

Their are several books on the market, Seroussi (sp) is one

mentioned a lot.

Best of luck... the gf/cf diet yields the most results reported by

parents. I am one, my boy " woke up " gradually but it's worth doing.

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> that if I can. I've been looking at archives until I'm bleary-

eyed

> as well as other web pages re: Celiac disease and can't find any

real-

> life " this is what a Celiac kid looks like " info. I realize that

the

> symptoms can vary, so I'm not looking for a cookie-cutter

picture. I

> guess the best thing to do is throw out what my kid looks like and

> see if anyone will share their thoughts:

>

> - He is skinny. We have pictures of him as a baby that looks like

he

> is from an impoverished country. He really hasn't been a " failure

to

> thrive " child, but he is tall for his age and, as we

describe, " can't

> keep an ounce of fat on him " . That may also have something to do

> with the fact that he is a sensory seeker and is always on the

move,

> but who knows?

>

> - We believe he is verbally apraxic. No official diagnosis yet

but

> we have an appointment with Dr. Agin in Jan, so hopefully we'll

know

> more then.

>

> - He has self-limited his diet to entrees of chicken nuggets,

> spaghettios (no meatballs), and pizza (any will do). He loves

fries,

> chips, etc. He will eat several other things with varying

textures

> (oatmeal, peas, corn, rolls, bananas, cheerios, anything

chocolate).

> Still eats baby-food yellow veggies (carrots, sweet potatoes,

squash).

>

> - He has sensory issues including sensory seeking (proprioceptive-

> type), vestibular issues (does not enjoy swinging for fun. He is

> becoming tolerant of it through OT). Sensory avoidance of certain

> wet textures (foam soap, shaving cream). He never avoided noises

> until we began OT and then it became an issue, but is beginning to

> resolve itself.

>

> The sensory issue that bothers me most is visual - and I'm

beginning

> to wonder if it is truly sensory or if it is peripheral

> neuropathological in nature (it that's a word!). His pupils will

> change in the course of a few seconds. He will zone out and his

> pupils will be huge. I can actually watch them shrink (without

> change in lighting) and he will become lucid and making eye-

contact

> again in a matter of 10 seconds.

>

> He has never cried about having his finger-pricked, which tells me

he

> has limited feeling in his fingertips.

>

> - His stool varies from firm to mushy daily. Mostly it is mushy

and

> somewhat grainy. The only time I've seen a real, steatorrhea

episode

> was just a about 6 weeks ago when he had been ill with vomiting,

> diarrhia, and fever with a 24-hour-type bug. The entire week

> afterward he had very odd-odored, pale, khaki-colored stool with a

> foamy, frothy consistency. But after about a week that ended.

>

> He has greasy stools with the ingestion of too many fries or

really

> greasy pizza (both of which I try to avoid, but has occurred on at

> least one occasion that I recall). And the only thing I have

every

> seen give him mild constipation is eating too much shredded

cheddar

> cheese.

>

> Well, that's everything you probably didn't want to know about my

> boy. We just recently begain supplementation (Pro-EFA and low-

dose

> Vit E) and I'm seeing subtle improvements. Trying to get my

courage

> up to go higher with the E (just doing 200IU right now).

>

[Guest guest]

In children, Celiac Diseas has also been known to cause zoning out

episodes. You bring up a good point though that seizures should be

ruled out. Katina

>

> Sounds like some complex things going on there! I really don't

know anything about Celiac disease but was a little concerned with

the zoning out episodes. Is the doctor/ped concerned?? Could he be

having seizures?? I don't want to scare I just thought it might be

worth bringing up.

>

> It really amazes me how many of these kids have GI issues which

probably goes back to what is saying about absorption issues

with Vit E, etc.

>

> Please let us know if you find out anything more..

>

> Amy D

>

>

>

> [ ] Celiac Disease symptoms

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> that if I can. I've been looking at archives until I'm bleary-eyed

> as well as other web pages re: Celiac disease and can't find any

real-

> life " this is what a Celiac kid looks like " info. I realize that

the

> symptoms can vary, so I'm not looking for a cookie-cutter picture.

I

> guess the best thing to do is throw out what my kid looks like and

> see if anyone will share their thoughts:

>

> - He is skinny. We have pictures of him as a baby that looks like

he

> is from an impoverished country. He really hasn't been a " failure

to

> thrive " child, but he is tall for his age and, as we

describe, " can't

> keep an ounce of fat on him " . That may also have something to do

> with the fact that he is a sensory seeker and is always on the

move,

> but who knows?

>

> - We believe he is verbally apraxic. No official diagnosis yet but

> we have an appointment with Dr. Agin in Jan, so hopefully we'll

know

> more then.

>

> - He has self-limited his diet to entrees of chicken nuggets,

> spaghettios (no meatballs), and pizza (any will do). He loves

fries,

> chips, etc. He will eat several other things with varying textures

> (oatmeal, peas, corn, rolls, bananas, cheerios, anything

chocolate).

> Still eats baby-food yellow veggies (carrots, sweet potatoes,

squash).

>

> - He has sensory issues including sensory seeking (proprioceptive-

> type), vestibular issues (does not enjoy swinging for fun. He is

> becoming tolerant of it through OT). Sensory avoidance of certain

> wet textures (foam soap, shaving cream). He never avoided noises

> until we began OT and then it became an issue, but is beginning to

> resolve itself.

>

> The sensory issue that bothers me most is visual - and I'm

beginning

> to wonder if it is truly sensory or if it is peripheral

> neuropathological in nature (it that's a word!). His pupils will

> change in the course of a few seconds. He will zone out and his

> pupils will be huge. I can actually watch them shrink (without

> change in lighting) and he will become lucid and making eye-

contact

> again in a matter of 10 seconds.

>

> He has never cried about having his finger-pricked, which tells me

he

> has limited feeling in his fingertips.

>

> - His stool varies from firm to mushy daily. Mostly it is mushy

and

> somewhat grainy. The only time I've seen a real, steatorrhea

episode

> was just a about 6 weeks ago when he had been ill with vomiting,

> diarrhia, and fever with a 24-hour-type bug. The entire week

> afterward he had very odd-odored, pale, khaki-colored stool with a

> foamy, frothy consistency. But after about a week that ended.

>

> He has greasy stools with the ingestion of too many fries or

really

> greasy pizza (both of which I try to avoid, but has occurred on at

> least one occasion that I recall). And the only thing I have every

> seen give him mild constipation is eating too much shredded

cheddar

> cheese.

>

> Well, that's everything you probably didn't want to know about my

> boy. We just recently begain supplementation (Pro-EFA and low-dose

> Vit E) and I'm seeing subtle improvements. Trying to get my

courage

> up to go higher with the E (just doing 200IU right now).

>

>

>

>

>

>

>

[Guest guest]

Thanks everyone and if anyone else has input to give I'm all for it.

You're responses were just what I was looking for - kids who look

like my kid.

Amazing things are happening at home today. He is ususally

a " proprioceptive seeker " with the bumping and crashing type of

behavior. Brushing/compression program prescribed by his OT has kept

that well under control, but I had to brush every 2 hours or he would

start up again.

Yesterday I only brushed him once in the morning, then we went out

into town and I didn't bring the brush. When we got home I realized

he wasn't seeking - so I just watched him for the rest of the day. I

held off brushing until I put him to bed where he was slightly

restless (normally if he needs to be brushed at bedtime he is kicking

against the bedrails and banging his face into his pillow, etc.).

Last night it was just a little restless movement. I brushed and he

immediately fell asleep.

Today I have not brushed him at all and he has not once sought out

proprioceptive input. I began giving him 200 IU Vitamin E last

Thursday and switched to High Gamma Tocopherols yesterday. It has to

be the Vitamin E. I'm praying this is only the beginning...

>

> WOW!!! I feel like you just read a description of my 6 year old

son. That

> is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic and

has all

> of the same " buzz words " you described except for the noise

avoidance

> (post-OT for your son).

>

>

>

> Ironically, we just had him tested for celiac as well as

inflammatory bowel

> and the levels came back in the " normal " range. Due to the

symptoms he

> deals with on a consistent basis and my Mom's autoimmune history,

Crohn's

> disease, etc., we are being referred to a pediatric

gastroenterologist in

> the next week or so. I find it hard to believe that one little

blood test

> can rule in or rule out a celiac diagnosis so I will be interested

to see

> what this doctor has to say and recommend.

>

>

>

> Does anyone know anything more about this? If so, responses

thereto would

> be greatly appreciated.

>

>

>

> Thanks!

>

>

>

> Debbie - NJ

>

>

>

> [ ] Celiac Disease symptoms

>

>

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> _,_._,___

>

>

>

>

[Guest guest]

A parellel universe, huh?

I just spoke with his pediatrician this morning about having him

tested and while he would do it if I ask him to, he feels that they

are not as reliable as seeing clinical reactions with just trying the

diet. I've read that as well, so I think I'm just going to jump in

and do it. He wasn't even keen on trying the diet until I told him

that we are getting results from the Vitamin E, and then he became

interested in what I've been learning about malabsorption. He felt

that we would have to be seeing a " failure to thrive " situation if

malabsorption were an issue, but he was definitely piqued. He is the

best pediatrician I could have ever asked for.

We have several stores that carry good gluten-free products around

here, so I'm going shopping tonight!

>

> WOW!!! I feel like you just read a description of my 6 year old

son. That

> is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic and

has all

> of the same " buzz words " you described except for the noise

avoidance

> (post-OT for your son).

>

>

>

> Ironically, we just had him tested for celiac as well as

inflammatory bowel

> and the levels came back in the " normal " range. Due to the

symptoms he

> deals with on a consistent basis and my Mom's autoimmune history,

Crohn's

> disease, etc., we are being referred to a pediatric

gastroenterologist in

> the next week or so. I find it hard to believe that one little

blood test

> can rule in or rule out a celiac diagnosis so I will be interested

to see

> what this doctor has to say and recommend.

>

>

>

> Does anyone know anything more about this? If so, responses

thereto would

> be greatly appreciated.

>

>

>

> Thanks!

>

>

>

> Debbie - NJ

>

>

>

> [ ] Celiac Disease symptoms

>

>

>

> Hi - I've been wondering if a gluten-free diet would be right for

my

> son who is 3 years 3 mos. I know it would be easy to say just try

> it - but it is rather traumatic to a non-verbal child to be told

that

> he can't have all the things that he loves and I want to spare him

> _,_._,___

>

>

>

>

[Guest guest]

> >

> > WOW!!! I feel like you just read a description of my 6 year old

> son. That

> > is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic

and

> has all

> > of the same " buzz words " you described except for the noise

> avoidance

> > (post-OT for your son).

> >

> >

> >

> > Ironically, we just had him tested for celiac as well as

> inflammatory bowel

> > and the levels came back in the " normal " range. Due to the

> symptoms he

> > deals with on a consistent basis and my Mom's autoimmune

history,

> Crohn's

> > disease, etc., we are being referred to a pediatric

> gastroenterologist in

> > the next week or so. I find it hard to believe that one little

> blood test

> > can rule in or rule out a celiac diagnosis so I will be

interested

> to see

> > what this doctor has to say and recommend.

> >

> >

> >

> > Does anyone know anything more about this? If so, responses

> thereto would

> > be greatly appreciated.

> >

> >

> >

> > Thanks!

> >

> >

> >

> > Debbie - NJ

> >

> >

> >

> > [ ] Celiac Disease symptoms

> >

> >

> >

> > Hi - I've been wondering if a gluten-free diet would be right

for

> my

> > son who is 3 years 3 mos. I know it would be easy to say just

try

> > it - but it is rather traumatic to a non-verbal child to be told

> that

> > he can't have all the things that he loves and I want to spare

him

> > _,_._,___

> >

> >

> >

> >

[Guest guest]

> >

> > WOW!!! I feel like you just read a description of my 6 year old

> son. That

> > is Matt to a " T " . He is officially diagnosed apraxic/dyspraxic

and

> has all

> > of the same " buzz words " you described except for the noise

> avoidance

> > (post-OT for your son).

> >

> >

> >

> > Ironically, we just had him tested for celiac as well as

> inflammatory bowel

> > and the levels came back in the " normal " range. Due to the

> symptoms he

> > deals with on a consistent basis and my Mom's autoimmune

history,

> Crohn's

> > disease, etc., we are being referred to a pediatric

> gastroenterologist in

> > the next week or so. I find it hard to believe that one little

> blood test

> > can rule in or rule out a celiac diagnosis so I will be

interested

> to see

> > what this doctor has to say and recommend.

> >

> >

> >

> > Does anyone know anything more about this? If so, responses

> thereto would

> > be greatly appreciated.

> >

> >

> >

> > Thanks!

> >

> >

> >

> > Debbie - NJ

> >

> >

> >

> > [ ] Celiac Disease symptoms

> >

> >

> >

> > Hi - I've been wondering if a gluten-free diet would be right

for

> my

> > son who is 3 years 3 mos. I know it would be easy to say just

try

> > it - but it is rather traumatic to a non-verbal child to be told

> that

> > he can't have all the things that he loves and I want to spare

him

> > _,_._,___

> >

> >

> >

> >