Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 Hi everyone, just wondering how old everyones child/children were when they had their first lot of IV's? - and when diagnosed with CF, were they automatically put on antibiotics as a prevention thing? has been on 2 x types of medication for about 4 months even though he has not been sick - is this normal for DR's to do? Thanks,. Kirsty - & 6 months wcf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 My son was diagnosed at around birth. He is now 5 years old. I also have a daughter who is 7 but does not have C.F. My son was on 7 antibiotics within a 6 month period back in 1997. Because of this he was able to be approved for SSI in 1998. He has been in good health for a while now. I'm not sure if that has anything to do with pulling him out of Head Start or what but he hasn't been sick since before summer. Knock on wood. If you have anyother questions please don't hesitate to e-mail me. That goes for everyone else. Even if you just want to chat!!!! from P.A. ck570@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 Hi , Was this your son's first time with Pseudomonas and how is he now. I am curious because Elliot is 10mths and just tested positive. Mom to Elliot 10mths wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 was put on IV antibiotics at birth for aspirating mecomium. She was on many courses of them in NICU before the CF was diagnosed at 2 months. When she was diagnosed she was on them for psuedomonas. She has not been put on antibiotics as a preventative thing so far. Georgianna and (almost 21 months) > Hi everyone, just wondering how old everyones child/children were > when they had their first lot of IV's? - and when diagnosed with CF, > were they automatically put on antibiotics as a prevention thing? > has been on 2 x types of medication for about 4 months even > though he has not been sick - is this normal for DR's to do? > Thanks,. > > Kirsty - & 6 months wcf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 Hi Meilnda, sorry to jump in on your conversation, but just read your note. I have also got a son called and he is 6 months and has CF. Isn't that wired? Jakes just finnished 2 weeks IV's for psudomonas (think thats how it's spelt) and has oral antibiotics most of the time. It's quite a lot for a little bod of 6 mnths to take, don't you agree? Bentley GI Helpdesk Analyst Shell Information Technology International Limited Rowlandsway, Wythenshawe, Manchester M22 5SB, United Kingdom Tel: +44 Email: .P.Bentley@... Internet: http://www.shell.com http://www.shell.com/> IV's Hi everyone, just wondering how old everyones child/children were when they had their first lot of IV's? - and when diagnosed with CF, were they automatically put on antibiotics as a prevention thing? has been on 2 x types of medication for about 4 months even though he has not been sick - is this normal for DR's to do? Thanks,. Kirsty - & 6 months wcf. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 I would not think this is " normal " . Our docs avoid antibiotics, unless there is an obvious need for them, as they can become immune to them, and that would not be good, being that there are only so many antibiotucs used in CF. I would definately question this. Melinda - son 3 wcf and sister 25 wcf IV's Hi everyone, just wondering how old everyones child/children were when they had their first lot of IV's? - and when diagnosed with CF, were they automatically put on antibiotics as a prevention thing? has been on 2 x types of medication for about 4 months even though he has not been sick - is this normal for DR's to do? Thanks,. Kirsty - & 6 months wcf. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 - Well, I am very new to pseudomonus. My 3 year old just tested positive a month ago, and we have been on a month on TOBI. I think that when pseudo. has been detected, treatment takes a different course. They take this very seriously, and try to hit it hard. Our docs told us that a study had recently been done on children under 6 years of age, and with aggresive treatment of antibiotics, they were able to " eradicate " the pseudo, thus the large doses of antibiotics for your son - I would have to assume. I would not be too concerned, just continue to try to " eradicate " that pseudo! Melinda - son 3 () wcf and sister 25 wcf IV's Hi everyone, just wondering how old everyones child/children were when they had their first lot of IV's? - and when diagnosed with CF, were they automatically put on antibiotics as a prevention thing? has been on 2 x types of medication for about 4 months even though he has not been sick - is this normal for DR's to do? Thanks,. Kirsty - & 6 months wcf. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 our daughter who was 3mths old when she was diagnosed with pseudomo... she was in the hospitol for 17 days. The doctors at our cf clinic treated her very agressively and got rid of the pseudo... I will tell you from personal experience when your baby cannot breathe and starts to turn blue and you cant do a thing for her that is very scary. We were glad the doctors were real agressive with the treatments. The IVs with antibiotics, the steriods and other shots, oxygen constantly so she wouldnt have to work to hard to breathe. breathing treatments and chest therapy every 4 hours around the clock. It seemed like a lot for a 3mth old but she didnt have another episode where she couldnt breathe. She has been doing very good ever since they got rid of the pseudmo... however they said once they get it once they will always have it. the main thing is not to let it get real bad. good luck S&R 4mthwcf, and 2yrold still waitng to see. IV's > > > Hi everyone, just wondering how old everyones child/children were > when they had their first lot of IV's? - and when diagnosed with CF, > were they automatically put on antibiotics as a prevention thing? > has been on 2 x types of medication for about 4 months even > though he has not been sick - is this normal for DR's to do? > Thanks,. > > Kirsty - & 6 months wcf. > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 must be a very popular name! Anyway, my has a cold at the moment, & I am hoping it does not get any worse. I took him into the hospital the other day and they said that if it does get worse, they will more than likely start him on IV's. He has had no need to have IV's yet, so it kinda makes me a bit nervous. In some ways, I guess it feels like the start of it all?? Another thing why I am hoping he will not get worse is because we would be in hospital for xmas... his first xmas. so fingers crossed. How do small babies get pseudomonas?? would it be more than likely from the hospital? Do the babies that have pseudo have contact with other CF'ers? /Kristy - do you know if it is normal practise for Dr (if you have him) to put the bubs on oral antibiotics as a preventative? We have been on Cefaclor ( and rulide) for about 4 months now & doesnt look like he will come off it. Kirsty > Hi Meilnda, > > sorry to jump in on your conversation, but just read your note. I have also > got a son called and he is 6 months and has CF. Isn't that wired? > Jakes just finnished 2 weeks IV's for psudomonas (think thats how it's > spelt) and has oral antibiotics most of the time. It's quite a lot for a > little bod of 6 mnths to take, don't you agree? > > > Bentley > GI Helpdesk Analyst > Shell Information Technology International Limited > Rowlandsway, Wythenshawe, Manchester M22 5SB, United Kingdom > > Tel: +44 > Email: .P.Bentley@i... > Internet: http://www.shell.com http://www.shell.com/> > > IV's > > > Hi everyone, just wondering how old everyones child/children were > when they had their first lot of IV's? - and when diagnosed with CF, > were they automatically put on antibiotics as a prevention thing? > has been on 2 x types of medication for about 4 months even > though he has not been sick - is this normal for DR's to do? > Thanks,. > > Kirsty - & 6 months wcf. > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Patti had to have IV's right after her intial diagnosis as she was having a bad flare up of staph. She was 2 months old at the time. She was not put on antibiotics as a preventative long term, but if she starts a runny nose, be it viral or bacterial,then we generally get some. Now that she is older, I doubt I will call for oral antibiotics as much as she seems to be handling runny noses quite well on her own. Dawn, mom of 4, 5 and under, the youngest wcf IV's > Hi everyone, just wondering how old everyones child/children were > when they had their first lot of IV's? - and when diagnosed with CF, > were they automatically put on antibiotics as a prevention thing? > has been on 2 x types of medication for about 4 months even > though he has not been sick - is this normal for DR's to do? > Thanks,. > > Kirsty - & 6 months wcf. > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
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