Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 We're just off on holiday and I must confess I am going to be doing so with baited breath and a large knot in my stomach. It will be hard to enjoy our bank holiday knowing that you have to wait until Tuesday to get at the medical profession again. Alice sounds wonderful - is exactly the same, and I regard him as an ally and a friend. My hubby does his bit when he can but he's not around often. I'm sorry you've got to ride this on your own but be sure we're all thinking of you and hoping desperately you will find some answers soon, and that someone will do an ree dx for him asap. Hang in there, and when we get back I'll be in touch to see if I can give you a bit of a break somehow. Try to get yourself some switch off time if you can or you'll find it so much harder to look after yourself and your kids. Can someone sit with at night so they can watch him while he sleeps and call you if the seizures need dealing with. I honestly don't know how you can go all night without sleep and make any sense of life the next morning. Take care Rose Quote Link to comment Share on other sites More sharing options...
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