Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 , Well I'm glad you didn't unsub and have come out of lurkdome! Congrads on the weight you have lost! That is fantastic! How much more would you like to lose> You said about your eating, are you exercising? Exercise is soo important in many different ways! I do the treadmill and go to the gym to do weights. Lately have bee shoveling snow though. I live in Alaska. I hope to hear more from you! Gena > I've been lurking the past few days and thought I should introduce > myself. I've been a member for a year but never participated. I > didn't want to unsub cause I thought I might want to visit sometime. > > I'm , 37, sahm to Tyler who is 2, wife to Kip for 8 years. I > live in Alabama. I have lost weight twice now. The first time I > lost 15 pounds but it was hard and it took a long time, about a > year. I lost the last few pounds with the Carb Addicts Diet. Then I > got pg and after delivery had to start taking a drug that caused > weight gain. Over a period of two years I have lost 32 pounds. I > have 2 more pounds to go to reach my goal and they have been a bear > so I'm going back on the Carb Addicts Diet to lose them. I weigh in > at TOPS on Tuesdays. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi, , I'm Deganit and have a 19-month old daughter who has a mild-moderate loss. Where in SC are you? We live in Savannah, GA but see an AVT in ton at MUSC every few months. Welcome! > > My name is and we live in South Carloina. My son Noah is 8 and > he was implanted 5 years ago. We did AVT for three years but had to > add sign back when he became too frustrated in school. We are very > happy with his results even though it has gone a lot slower than we > first expected. My husband is a police officer and we have a six year > old also. He has normal hearing. I am excited to join your group and > getting to know more about you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 > > > > My name is and we live in South Carloina. My son Noah is 8 > and > > he was implanted 5 years ago. We did AVT for three years but had to > > add sign back when he became too frustrated in school. We are very > > happy with his results even though it has gone a lot slower than we > > first expected. My husband is a police officer and we have a six > year > > old also. He has normal hearing. I am excited to join your group > and > > getting to know more about you all. > > > We are in Beaufort and we see Nevitte @ MUSC. We only go up about every 6 months now-she is wonderful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 We love Nevitte! We are seeing her next week in fact. We love Beaufort and have been a few times and to Paris Island as well. > > > > > > My name is and we live in South Carloina. My son Noah is > 8 > > and > > > he was implanted 5 years ago. We did AVT for three years but had > to > > > add sign back when he became too frustrated in school. We are > very > > > happy with his results even though it has gone a lot slower than > we > > > first expected. My husband is a police officer and we have a six > > year > > > old also. He has normal hearing. I am excited to join your > group > > and > > > getting to know more about you all. > > > > > > We are in Beaufort and we see Nevitte @ MUSC. We only go up about > every 6 months now-she is wonderful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 , Thank you so much for your email. I really appreciated your input. I was excited to hear about the deaf/hoh adoption group and I just asked to join it. Thanks so much! It sounds like your little girl is doing so well. I am definitely most interested in trying to help Lillian be billingual ASL and English, at least as much as possible. Because of the situation in Liberia, Lillian has had no medical treatment at all for her hearing. We don't know why she is deaf, but we do know that she was relinquished at age 2 because she was deaf (the deaf are outcasts in Liberian society). So, I realize that the lack of early intervention may be an issue. But, I guess we'll just take it as it comes. We've said from the beginning that even if she is never able to hear or vocalize, that is fine with us. We just know she is our daughter and we can't wait to make her a part of our family. Again, I really appreciate your help. Sincerely, www.freewebs.com/whitmirefamily > > Hi , > > I read your family's website with great interest and excitement. > How wonderful that you are in the process of adopting two precious > children. I can't wait to hear more about them when you bring them > home. > > We adopted Lera, our deaf daughter, from Russia when she was 2. She > is now 4 and such a joy. We are raising her to be bilingual in > American Sign Language and spoken English, and she is doing > beautifully. When we adopted Lera, we immediately began signing to > her in ASL and immersing her in that language. She picked up ASL > nicely and was using 100 signs after a month and close to a 500 > expressive sign vocabulary after being home 6 months. She has a > severe to profound loss (genetic). After we adopted her, it took > about a month for her to get hearing aids. She got some benefit from > her hearing aids, but we knew that a cochlear implant would give her > so much more. When she was a little over 2 1/2 she got a cochlear > implant. She has had her CI for 20 months, and she's doing quite > well. She speaks in sentences (though not always perfect) and has a > good vocabulary. Her English is probably still about a year behind, > but she's made incredible progress. Lera signs beautifully, and her > ASL is on gave level. She is very comfortable with both languages > and loves them equally. > > I understand your concern about the controversy over cochlear > implants, but I don't think you need to worry much about it. We are > involved in the Deaf Community and have a lot of deaf friends. Lera > goes to preschool at the land School for the Deaf and at > Gallaudet's preschool (Kendall). Both schools have been very > supportive of the approach we've chosen, and teachers have done a > fantastic job of helping Lera acquire both ASL and spoken English. I > think that the controversy about cochlear implants within the Deaf > Commmunity has gotten much better. The Deaf Community does accept > children with CIs, but I have NO concerns about Lera being rejected > because she has a CI. I have had VERY few negative comments made to > me about Lera having a cochlear implant. Most of my deaf friends are > pretty neutral about the issue and it hasn't caused problems. They > see that we are doing our best for Lera, that she is becoming nicely > bilingually and she is happy and well adjusted. I was worried about > this, too, when we were in the process of getting a CI for Lera, but > everything has worked out well. It is true that most deaf people do > place great value on the use of sign language, so they are happy to > see deaf children (with or without CIs) given the opportunity to > learn to sign. Some deaf people will be concerned if they see a deaf > child who is being raised exclusively orally. But since you plan > Lillian to be bilingual in ASL and English, I don't think you have > much reason to worry about the reaction of the Deaf Community. > > You should know that a deaf child who was born deaf and hasn't gotten > good amplification from an early age may have a difficult time > learning spoken English if they get a cochlear implant at a later > age. I do not know your daughter's background, but how well she > might benefit from a cochlear implant would depend on several > factors. Was she born deaf? If not, when and how did she become > deaf? What is her hearing loss? Did she get hearing aids at an > early age and does she wear them consistently and get good benefit > from them? I don't want to be negative, but I thought I should > mention that success with a cochlear implant depends on a number of > factors. Unfortunately, age and early amplification and early > intervention are factors that older adopted deaf children often do > not have in their favor. Even if your daughter does have some > " strikes against her " , she is still going to do beautifully with > you. She is getting a new start at life with a wonderful family who > will give her so many opportunities, 2 languages, and so much love. > > You asked about books and articles to read. You might try looking at > this website: http://clerccenter.gallaudet.edu/KidsWorldDeafNet/e- > docs/CI/index.html > > Also, you might want to join another email list: DeafHOH- > Adoption . This group is for > families who have > adopted deaf or hard or hearing children, those in the process and > other interested people. It's a large and fairly active group. Hope > you'll join! > > I would love to chat with you any time. : ) > > > > ----------------- > As you all know, I'm still new to the group, so I hope this is an > okay question to ask. > > I have been reading everyone's posts and it looks to me like most of > you are choosing options for your children that will allow them to > hear as much as possible - cochlear (sp?) implants, etc. My > question is, have you found that the deaf community is > angry/discriminative because you have made this decision? Are your > deaf/hoh children involved in the deaf community or do you instead > strive to have them as much a part of the hearing community as > possible? > > I have heard that often the deaf community will not accept a deaf > person who has cochlear implants. Has this been your experience? > > The reason I'm asking is because I've been doing a lot of reading > about deaf culture and how they feel proud to be deaf and how they > hope to have a deaf child in order to pass on their culture. So, do > you think that your child will grow to adulthood and wish that you > had helped them to stay more in connection with the deaf culture? > > I feel so torn about this because I WANT Lillian to be able to hear, > even though I know that the deaf culture is also a beautiful thing. > It just seems to me that if Lillian can use any hearing that she has > (in addition to being fluent in ASL, which we want to help her > continue) then she should because it would make life easier for her > in a hearing world. But, I also don't want to force something on > her that she will be upset about later, so I wonder if we should > embrace her deafness because that's who she is? > > Can you guys help me to understand this whole debate better? Maybe > there are books or articles I can read? As you can tell, I'm very > confused. I just want to do the right thing for our daughter, but > how do you figure out what that is? > > > > > Thanks everyone for the replies. I feel better about wanting to > > consider hearing aids and CIs now, but like several people said, we > > will really need to wait until Lillian is here to know what will be > > best for her. There's just so much involved in all of this and I want > > to make the right decisions. It's hard when everyone you talk to has > > a very specific viewpoint! :-) > > > > I appreciate the help. This is a great group. > > > > ~ > > Adopting Jayden from Guatemala and Lillian (who is deaf) from Liberia > > www.freewebs.com/whitmirefamily > > > > > > . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 , Thank you so much for your email. I really appreciated your input. I was excited to hear about the deaf/hoh adoption group and I just asked to join it. Thanks so much! It sounds like your little girl is doing so well. I am definitely most interested in trying to help Lillian be billingual ASL and English, at least as much as possible. Because of the situation in Liberia, Lillian has had no medical treatment at all for her hearing. We don't know why she is deaf, but we do know that she was relinquished at age 2 because she was deaf (the deaf are outcasts in Liberian society). So, I realize that the lack of early intervention may be an issue. But, I guess we'll just take it as it comes. We've said from the beginning that even if she is never able to hear or vocalize, that is fine with us. We just know she is our daughter and we can't wait to make her a part of our family. Again, I really appreciate your help. Sincerely, www.freewebs.com/whitmirefamily > > Hi , > > I read your family's website with great interest and excitement. > How wonderful that you are in the process of adopting two precious > children. I can't wait to hear more about them when you bring them > home. > > We adopted Lera, our deaf daughter, from Russia when she was 2. She > is now 4 and such a joy. We are raising her to be bilingual in > American Sign Language and spoken English, and she is doing > beautifully. When we adopted Lera, we immediately began signing to > her in ASL and immersing her in that language. She picked up ASL > nicely and was using 100 signs after a month and close to a 500 > expressive sign vocabulary after being home 6 months. She has a > severe to profound loss (genetic). After we adopted her, it took > about a month for her to get hearing aids. She got some benefit from > her hearing aids, but we knew that a cochlear implant would give her > so much more. When she was a little over 2 1/2 she got a cochlear > implant. She has had her CI for 20 months, and she's doing quite > well. She speaks in sentences (though not always perfect) and has a > good vocabulary. Her English is probably still about a year behind, > but she's made incredible progress. Lera signs beautifully, and her > ASL is on gave level. She is very comfortable with both languages > and loves them equally. > > I understand your concern about the controversy over cochlear > implants, but I don't think you need to worry much about it. We are > involved in the Deaf Community and have a lot of deaf friends. Lera > goes to preschool at the land School for the Deaf and at > Gallaudet's preschool (Kendall). Both schools have been very > supportive of the approach we've chosen, and teachers have done a > fantastic job of helping Lera acquire both ASL and spoken English. I > think that the controversy about cochlear implants within the Deaf > Commmunity has gotten much better. The Deaf Community does accept > children with CIs, but I have NO concerns about Lera being rejected > because she has a CI. I have had VERY few negative comments made to > me about Lera having a cochlear implant. Most of my deaf friends are > pretty neutral about the issue and it hasn't caused problems. They > see that we are doing our best for Lera, that she is becoming nicely > bilingually and she is happy and well adjusted. I was worried about > this, too, when we were in the process of getting a CI for Lera, but > everything has worked out well. It is true that most deaf people do > place great value on the use of sign language, so they are happy to > see deaf children (with or without CIs) given the opportunity to > learn to sign. Some deaf people will be concerned if they see a deaf > child who is being raised exclusively orally. But since you plan > Lillian to be bilingual in ASL and English, I don't think you have > much reason to worry about the reaction of the Deaf Community. > > You should know that a deaf child who was born deaf and hasn't gotten > good amplification from an early age may have a difficult time > learning spoken English if they get a cochlear implant at a later > age. I do not know your daughter's background, but how well she > might benefit from a cochlear implant would depend on several > factors. Was she born deaf? If not, when and how did she become > deaf? What is her hearing loss? Did she get hearing aids at an > early age and does she wear them consistently and get good benefit > from them? I don't want to be negative, but I thought I should > mention that success with a cochlear implant depends on a number of > factors. Unfortunately, age and early amplification and early > intervention are factors that older adopted deaf children often do > not have in their favor. Even if your daughter does have some > " strikes against her " , she is still going to do beautifully with > you. She is getting a new start at life with a wonderful family who > will give her so many opportunities, 2 languages, and so much love. > > You asked about books and articles to read. You might try looking at > this website: http://clerccenter.gallaudet.edu/KidsWorldDeafNet/e- > docs/CI/index.html > > Also, you might want to join another email list: DeafHOH- > Adoption . This group is for > families who have > adopted deaf or hard or hearing children, those in the process and > other interested people. It's a large and fairly active group. Hope > you'll join! > > I would love to chat with you any time. : ) > > > > ----------------- > As you all know, I'm still new to the group, so I hope this is an > okay question to ask. > > I have been reading everyone's posts and it looks to me like most of > you are choosing options for your children that will allow them to > hear as much as possible - cochlear (sp?) implants, etc. My > question is, have you found that the deaf community is > angry/discriminative because you have made this decision? Are your > deaf/hoh children involved in the deaf community or do you instead > strive to have them as much a part of the hearing community as > possible? > > I have heard that often the deaf community will not accept a deaf > person who has cochlear implants. Has this been your experience? > > The reason I'm asking is because I've been doing a lot of reading > about deaf culture and how they feel proud to be deaf and how they > hope to have a deaf child in order to pass on their culture. So, do > you think that your child will grow to adulthood and wish that you > had helped them to stay more in connection with the deaf culture? > > I feel so torn about this because I WANT Lillian to be able to hear, > even though I know that the deaf culture is also a beautiful thing. > It just seems to me that if Lillian can use any hearing that she has > (in addition to being fluent in ASL, which we want to help her > continue) then she should because it would make life easier for her > in a hearing world. But, I also don't want to force something on > her that she will be upset about later, so I wonder if we should > embrace her deafness because that's who she is? > > Can you guys help me to understand this whole debate better? Maybe > there are books or articles I can read? As you can tell, I'm very > confused. I just want to do the right thing for our daughter, but > how do you figure out what that is? > > > > > Thanks everyone for the replies. I feel better about wanting to > > consider hearing aids and CIs now, but like several people said, we > > will really need to wait until Lillian is here to know what will be > > best for her. There's just so much involved in all of this and I want > > to make the right decisions. It's hard when everyone you talk to has > > a very specific viewpoint! :-) > > > > I appreciate the help. This is a great group. > > > > ~ > > Adopting Jayden from Guatemala and Lillian (who is deaf) from Liberia > > www.freewebs.com/whitmirefamily > > > > > > . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 , Thank you so much for your email. I really appreciated your input. I was excited to hear about the deaf/hoh adoption group and I just asked to join it. Thanks so much! It sounds like your little girl is doing so well. I am definitely most interested in trying to help Lillian be billingual ASL and English, at least as much as possible. Because of the situation in Liberia, Lillian has had no medical treatment at all for her hearing. We don't know why she is deaf, but we do know that she was relinquished at age 2 because she was deaf (the deaf are outcasts in Liberian society). So, I realize that the lack of early intervention may be an issue. But, I guess we'll just take it as it comes. We've said from the beginning that even if she is never able to hear or vocalize, that is fine with us. We just know she is our daughter and we can't wait to make her a part of our family. Again, I really appreciate your help. Sincerely, www.freewebs.com/whitmirefamily > > Hi , > > I read your family's website with great interest and excitement. > How wonderful that you are in the process of adopting two precious > children. I can't wait to hear more about them when you bring them > home. > > We adopted Lera, our deaf daughter, from Russia when she was 2. She > is now 4 and such a joy. We are raising her to be bilingual in > American Sign Language and spoken English, and she is doing > beautifully. When we adopted Lera, we immediately began signing to > her in ASL and immersing her in that language. She picked up ASL > nicely and was using 100 signs after a month and close to a 500 > expressive sign vocabulary after being home 6 months. She has a > severe to profound loss (genetic). After we adopted her, it took > about a month for her to get hearing aids. She got some benefit from > her hearing aids, but we knew that a cochlear implant would give her > so much more. When she was a little over 2 1/2 she got a cochlear > implant. She has had her CI for 20 months, and she's doing quite > well. She speaks in sentences (though not always perfect) and has a > good vocabulary. Her English is probably still about a year behind, > but she's made incredible progress. Lera signs beautifully, and her > ASL is on gave level. She is very comfortable with both languages > and loves them equally. > > I understand your concern about the controversy over cochlear > implants, but I don't think you need to worry much about it. We are > involved in the Deaf Community and have a lot of deaf friends. Lera > goes to preschool at the land School for the Deaf and at > Gallaudet's preschool (Kendall). Both schools have been very > supportive of the approach we've chosen, and teachers have done a > fantastic job of helping Lera acquire both ASL and spoken English. I > think that the controversy about cochlear implants within the Deaf > Commmunity has gotten much better. The Deaf Community does accept > children with CIs, but I have NO concerns about Lera being rejected > because she has a CI. I have had VERY few negative comments made to > me about Lera having a cochlear implant. Most of my deaf friends are > pretty neutral about the issue and it hasn't caused problems. They > see that we are doing our best for Lera, that she is becoming nicely > bilingually and she is happy and well adjusted. I was worried about > this, too, when we were in the process of getting a CI for Lera, but > everything has worked out well. It is true that most deaf people do > place great value on the use of sign language, so they are happy to > see deaf children (with or without CIs) given the opportunity to > learn to sign. Some deaf people will be concerned if they see a deaf > child who is being raised exclusively orally. But since you plan > Lillian to be bilingual in ASL and English, I don't think you have > much reason to worry about the reaction of the Deaf Community. > > You should know that a deaf child who was born deaf and hasn't gotten > good amplification from an early age may have a difficult time > learning spoken English if they get a cochlear implant at a later > age. I do not know your daughter's background, but how well she > might benefit from a cochlear implant would depend on several > factors. Was she born deaf? If not, when and how did she become > deaf? What is her hearing loss? Did she get hearing aids at an > early age and does she wear them consistently and get good benefit > from them? I don't want to be negative, but I thought I should > mention that success with a cochlear implant depends on a number of > factors. Unfortunately, age and early amplification and early > intervention are factors that older adopted deaf children often do > not have in their favor. Even if your daughter does have some > " strikes against her " , she is still going to do beautifully with > you. She is getting a new start at life with a wonderful family who > will give her so many opportunities, 2 languages, and so much love. > > You asked about books and articles to read. You might try looking at > this website: http://clerccenter.gallaudet.edu/KidsWorldDeafNet/e- > docs/CI/index.html > > Also, you might want to join another email list: DeafHOH- > Adoption . This group is for > families who have > adopted deaf or hard or hearing children, those in the process and > other interested people. It's a large and fairly active group. Hope > you'll join! > > I would love to chat with you any time. : ) > > > > ----------------- > As you all know, I'm still new to the group, so I hope this is an > okay question to ask. > > I have been reading everyone's posts and it looks to me like most of > you are choosing options for your children that will allow them to > hear as much as possible - cochlear (sp?) implants, etc. My > question is, have you found that the deaf community is > angry/discriminative because you have made this decision? Are your > deaf/hoh children involved in the deaf community or do you instead > strive to have them as much a part of the hearing community as > possible? > > I have heard that often the deaf community will not accept a deaf > person who has cochlear implants. Has this been your experience? > > The reason I'm asking is because I've been doing a lot of reading > about deaf culture and how they feel proud to be deaf and how they > hope to have a deaf child in order to pass on their culture. So, do > you think that your child will grow to adulthood and wish that you > had helped them to stay more in connection with the deaf culture? > > I feel so torn about this because I WANT Lillian to be able to hear, > even though I know that the deaf culture is also a beautiful thing. > It just seems to me that if Lillian can use any hearing that she has > (in addition to being fluent in ASL, which we want to help her > continue) then she should because it would make life easier for her > in a hearing world. But, I also don't want to force something on > her that she will be upset about later, so I wonder if we should > embrace her deafness because that's who she is? > > Can you guys help me to understand this whole debate better? Maybe > there are books or articles I can read? As you can tell, I'm very > confused. I just want to do the right thing for our daughter, but > how do you figure out what that is? > > > > > Thanks everyone for the replies. I feel better about wanting to > > consider hearing aids and CIs now, but like several people said, we > > will really need to wait until Lillian is here to know what will be > > best for her. There's just so much involved in all of this and I want > > to make the right decisions. It's hard when everyone you talk to has > > a very specific viewpoint! :-) > > > > I appreciate the help. This is a great group. > > > > ~ > > Adopting Jayden from Guatemala and Lillian (who is deaf) from Liberia > > www.freewebs.com/whitmirefamily > > > > > > . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi , Welcome! I know that you'll love being here. It's a great place for support and for asking questions. I'm Debbie, mom to who will soon be 7 and has a moderate SNHL, and her brother who is 3 and hears (EVERYTHING!). wasn't diagnosed with her loss until she was 2 1/2. We have followed her lead and she is definately an oral child, however she does know a little sign to help in certain situations. Glad you found us. Debbie D Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 I'm new to the group. My son has Down Syndrome and a bilateral hearing loss that is moderate in one ear, and moderate to severe in the other ear. I have been teaching him sign language since the age of 2 months, and his signing skills are outstanding; however, he has no verbal communication at this point. We didn't discover his hearing loss until January of this year, so there is some ground we need to make up. I'm hopeful that being a part of this group will bring insight from others who have blazed the trail ahead of us, or are struggling through, as we are. Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Welcome Leah, glad to have you with us. Nearly half of all kids with DS have hearing loss, usually conductive. A lot of them don't get any attention paid to the hearing loss so your little guy is lucky that you are clued in. And lucky to have already learned language! How old is he now?? Does he have hearing aids?? in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 > > Welcome Leah, glad to have you with us. Nearly half of all kids with DS have hearing loss, usually conductive. A lot of them don't get any attention paid to the hearing loss so your little guy is lucky that you are clued in. And lucky to have already learned language! How old is he now?? Does he have hearing aids?? in GA > Hi , Thank you for responding. I have learned a great deal about DS and the issues they face in the last three years. My son (he'll be 3 in August) has sensory-neural hearing loss. The first BAER test they did, the ENT told us that his hearing loss was mild, but he made it sound like it was just a " little " loss and didn't need to be pursued. Then we saw an otologist for other reasons, and he told us that the BAER test is a pass/fail, recommended and performed another BAER test, then gave us a great deal more information on n's hearing loss, including excess fluid in his inner ears. We had him fitted for hearing aids in May. He's been wearing them on and off...lots of problems with wax build-up. I also want to hear about your child(ren). Leah in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Leah, Welcome! How old is your son? Hi I'm new to the group. My son has Down Syndrome and a bilateral hearing loss that is moderate in one ear, and moderate to severe in the other ear. I have been teaching him sign language since the age of 2 months, and his signing skills are outstanding; however, he has no verbal communication at this point. We didn't discover his hearing loss until January of this year, so there is some ground we need to make up. I'm hopeful that being a part of this group will bring insight from others who have blazed the trail ahead of us, or are struggling through, as we are. Leah ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Hi , He is 2, but will be 3 in August. Leah > > Leah, > > Welcome! How old is your son? > > > > Hi > > I'm new to the group. My son has Down Syndrome and a > bilateral hearing > loss that is moderate in one ear, and moderate to severe in the other > ear. I have been teaching him sign language since the age of 2 months, > and his signing skills are outstanding; however, he has no verbal > communication at this point. We didn't discover his hearing loss until > January of this year, so there is some ground we need to make up. I'm > hopeful that being a part of this group will bring insight from others > who have blazed the trail ahead of us, or are struggling through, as > we > are. > > Leah > > > > > > > ______________________________________________________________________ __ > Check out AOL.com today. Breaking news, video search, pictures, email > and IM. All on demand. Always Free. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 HI Leah, I'm and have 3 daughters, the youngest has the hearing loss, she is nearly 15! Mod-severe loss in both ears and she wasn't diagnosed until 3 3/4 years. She did Auditory Verbal therapy and has been mainstreamed in school. I think that is so neat that you taught him sign. He got early intervention from you without the early diagnosis! So he probably doesn't have all the negative effects of the undiagnosed hearing loss since you taught him sign language anyway and from the beginning. I have a friend who used to be on this list who has a son with severe-profound hearing loss and another son with DS and a moderate loss. She had a really hard time with the school being willing to pay any attention at all to his hearing loss. They were clueless that maybe he didn't behave in the classroom or learn like the other kids in the class because he couldn't hear! in GA Re: Hi > > >> >> Welcome Leah, glad to have you with us. Nearly half of all kids >with DS have hearing loss, usually conductive. A lot of them don't >get any attention paid to the hearing loss so your little guy is >lucky that you are clued in. And lucky to have already learned >language! How old is he now?? Does he have hearing aids?? >in GA >> >Hi , > >Thank you for responding. I have learned a great deal about DS and >the issues they face in the last three years. My son (he'll be 3 in >August) has sensory-neural hearing loss. The first BAER test they >did, the ENT told us that his hearing loss was mild, but he made it >sound like it was just a " little " loss and didn't need to be >pursued. Then we saw an otologist for other reasons, and he told us >that the BAER test is a pass/fail, recommended and performed another >BAER test, then gave us a great deal more information on n's >hearing loss, including excess fluid in his inner ears. We had him >fitted for hearing aids in May. He's been wearing them on and >off...lots of problems with wax build-up. I also want to hear about >your child(ren). Leah in Texas > > > > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 HI Leah, I'm and have 3 daughters, the youngest has the hearing loss, she is nearly 15! Mod-severe loss in both ears and she wasn't diagnosed until 3 3/4 years. She did Auditory Verbal therapy and has been mainstreamed in school. I think that is so neat that you taught him sign. He got early intervention from you without the early diagnosis! So he probably doesn't have all the negative effects of the undiagnosed hearing loss since you taught him sign language anyway and from the beginning. I have a friend who used to be on this list who has a son with severe-profound hearing loss and another son with DS and a moderate loss. She had a really hard time with the school being willing to pay any attention at all to his hearing loss. They were clueless that maybe he didn't behave in the classroom or learn like the other kids in the class because he couldn't hear! in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Hi Leah, How wonderful for your son that you started teaching him sign language. I'm sure that has really helped him be less frustrated. Does he like to wear his aids? I'm Debbie mom to , 7, who has a moderate loss in both ears and to . 3, who is hearing, but has recently started to try and tell us that he " can't hear us that well " . Of course he only says that when we are telling him something he doesn't want to hear. If I say in a whisper two rooms away that I'm going to get a cookie, he comes running. I'm sure you'll learn a lot here. There are plenty of knowledgable parents here. Debbie Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Hi Deb, Thank you so much for the encouraging words. This group is GREAT for no other reason than the supportive gestures. Yes...sign language has been a tremendous help for his level of frustration. It has also given him the " desire " to communicate more effectively. Many of his signs are approximations, so there are times that I forget " his " sign for a word. So he will use other gestures to try to help me understand, rather than become frustrated. It has been a wonderful experience for us. As for the aids...we are still battling that. He gets the wax build-up (I read about the baking soda from another person in the group), and we're trying drops for now. We see the otologist next week to see if the drops are helping. So...to make a long story short, if there is no feedback with the hearing aids, we insist that he wears them. If there is feedback, we know his ears are plugged and we need to get them cleaned. It's been quite a battle. Hopefully, we will be able to get this resolved. I know you have a lot of wisdom with your experiences with (and ). That's sweet that it seems like he wants to be " like his sister. " Thanks for the e-mail. Leah > > Hi Leah, > How wonderful for your son that you started teaching him sign language. I'm sure that has really helped him be less frustrated. Does he like to wear his aids? > > I'm Debbie mom to , 7, who has a moderate loss in both ears and to . 3, who is hearing, but has recently started to try and tell us that he " can't hear us that well " . Of course he only says that when we are telling him something he doesn't want to hear. If I say in a whisper two rooms away that I'm going to get a cookie, he comes running. > > I'm sure you'll learn a lot here. There are plenty of knowledgable parents here. > > Debbie > > > > Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw > > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
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