Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi, I think this is my 2nd email to you. Regarding pretend play, my twins didn't really have to play pretend play, they got each other around all the time. When my twins were in 1st grade and I was working with one twin over homework, then that was the only time I saw the other twin keeping busy pretend play with his action figures waiting for me to be done with his brothers homework so they can play with each other again..... Hope my experience help you...JOYA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Don't get upset over this...My son @ 3y.o. was not playing to his SLP's liking either and even when I took him to the dev. pediatrician at 3y.o., she expressed concern, but told me to play pretend with him as much as possible. I went out and bought him a doll, a doll-house, pretend foods, puppets...and did just that. I found that the more he obtained Speech, the more the pretend play manifested itself. Now at 4.5 y.o., he is constantly pretend playing and having these pretend conversations back and forth with his toys...so, it's the language factor...(in my case). My son is intelligible only about 50% of the time..he speaks 4-6 word phrases and cannot yet dialogue but he is pretend playing. So, give it a chance. I think professionals today are labeling children too quickly with Autism & PDD and not taking into account other factors like their immaturity and lack of Speech into play. Don't be SCARED! You would know as his mother if there was something more than the Apraxia to deal with... " april_twin_mom " <april_twin_mom@... m> cc: Sent by: Subject: [ ] Terrified that there is more than Apraxia @yaho ogroups.com 06/13/2006 01:22 PM Please respond to I have 2 year old twin boys who have been in speech thereapy since October. The speech therepist and their special ed teacher are both leaning toward apraxia. To get a diagnoses the boys need to see a developmental pediatrician...the appointment is 4 months away. Both teacher DO NOT see any sines of autism or any other PDD problems. The special ed teach has said she is concerned about the way they play with toys. They don't do anyhitng autistic weird, but they do not pretend as much as she thinks 2 year olds should. They still do mouth a lot of ites, but the speech therepist said the the apraxic girl she just finished working with always did too. It is just so long to wait for that 4 month visit, to " rule out " everything. I'm just scared... Does anyone have anything they can tell me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Everyone said that my son at age 2 lacked imaginative play. It drove me nuts because I KNEW he was playing imaginatively, but he just had no way to explain to others what he was doing. There is no way a child his age could happily sit and entertain himself for hours on end doing non-repetitive things if he wasn't using his imagination. Now at age 4.5 his imaginative play is clear since he has a few words to express himself. He'll bring other children into his game and play along with their imaginary games as well. I've also heard from some on this list that felt their children truly did lack imaginative play at age 2. It seems that to some apraxic kids that kind of play might come later just as the " terrible twos " can come later as well! But at the same time without the self-talk that most 2 yr olds do and others overhear it might just seem like the play isn't imaginative when truly in the child's head who knows what imaginative plots could be happening! Miche >I have 2 year old twin boys who have been in speech thereapy since >October. The speech therepist and their special ed teacher are both >leaning toward apraxia. To get a diagnoses the boys need to see a >developmental pediatrician...the appointment is 4 months away. Both >teacher DO NOT see any sines of autism or any other PDD problems. The >special ed teach has said she is concerned about the way they play >with toys. They don't do anyhitng autistic weird, but they do not >pretend as much as she thinks 2 year olds should. They still do mouth >a lot of ites, but the speech therepist said the the apraxic girl she >just finished working with always did too. It is just so long to wait >for that 4 month visit, to " rule out " everything. I'm just scared... >Does anyone have anything they can tell me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Wow does this sound familiar! Our SEIT harps on pretend play a lot. We have been through anindepth diagnostic evaluation for ASD. Our Developmental Pediatrician, who along with 2 psychologists, agrees that is NOT on the spectrum, has stated that a lot of pretend play hinges on speech and language and, as 's speech develops, so will her pretend play. We are slowly starting to see aome small bits of pretend play coming out (at the same time as her speech is exploding). Go figure :-). Anecdotally, I have heard that lack of pretend play is quite common in apraxic kids. I hope that helps. Warm regards, ****************** (Rochester, NY) Mom to , 3.1 years, Verbal Apraxia & , 10 months ________________________________ From: [mailto: ] On Behalf Of april_twin_mom Sent: Tuesday, June 13, 2006 1:22 PM Subject: [ ] Terrified that there is more than Apraxia I have 2 year old twin boys who have been in speech thereapy since October. The speech therepist and their special ed teacher are both leaning toward apraxia. To get a diagnoses the boys need to see a developmental pediatrician...the appointment is 4 months away. Both teacher DO NOT see any sines of autism or any other PDD problems. The special ed teach has said she is concerned about the way they play with toys. They don't do anyhitng autistic weird, but they do not pretend as much as she thinks 2 year olds should. They still do mouth a lot of ites, but the speech therepist said the the apraxic girl she just finished working with always did too. It is just so long to wait for that 4 month visit, to " rule out " everything. I'm just scared... Does anyone have anything they can tell me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 " I think professionals today are labeling children too quickly with Autism & PDD and not taking into account other factors like their immaturity and lack of Speech into play. " AMEN to that!!! Warm regards, ****************** (Rochester, NY) Mom to , 3.1 years, Verbal Apraxia & , 11 months ________________________________ From: [mailto: ] On Behalf Of myra.bauza@... Sent: Tuesday, June 13, 2006 1:53 PM Subject: Re: [ ] Terrified that there is more than Apraxia Don't get upset over this...My son @ 3y.o. was not playing to his SLP's liking either and even when I took him to the dev. pediatrician at 3y.o., she expressed concern, but told me to play pretend with him as much as possible. I went out and bought him a doll, a doll-house, pretend foods, puppets...and did just that. I found that the more he obtained Speech, the more the pretend play manifested itself. Now at 4.5 y.o., he is constantly pretend playing and having these pretend conversations back and forth with his toys...so, it's the language factor...(in my case). My son is intelligible only about 50% of the time..he speaks 4-6 word phrases and cannot yet dialogue but he is pretend playing. So, give it a chance. I think professionals today are labeling children too quickly with Autism & PDD and not taking into account other factors like their immaturity and lack of Speech into play. Don't be SCARED! You would know as his mother if there was something more than the Apraxia to deal with... " april_twin_mom " <april_twin_mom@... <mailto:april_twin_mom%40.co> To: <mailto: %40> m> cc: Sent by: Subject: [ ] Terrified that there is more than Apraxia @yaho ogroups.com 06/13/2006 01:22 PM Please respond to I have 2 year old twin boys who have been in speech thereapy since October. The speech therepist and their special ed teacher are both leaning toward apraxia. To get a diagnoses the boys need to see a developmental pediatrician...the appointment is 4 months away. Both teacher DO NOT see any sines of autism or any other PDD problems. The special ed teach has said she is concerned about the way they play with toys. They don't do anyhitng autistic weird, but they do not pretend as much as she thinks 2 year olds should. They still do mouth a lot of ites, but the speech therepist said the the apraxic girl she just finished working with always did too. It is just so long to wait for that 4 month visit, to " rule out " everything. I'm just scared... Does anyone have anything they can tell me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Oh thank you! I am trying to pretend withthem more no, I had read that you shouldnot stifle their creativity by inserting your own. I will continue to pretend. Thank you so much. myra.bauza@... wrote: Don't get upset over this...My son @ 3y.o. was not playing to his SLP's liking either and even when I took him to the dev. pediatrician at 3y.o., she expressed concern, but told me to play pretend with him as much as possible. I went out and bought him a doll, a doll-house, pretend foods, puppets...and did just that. I found that the more he obtained Speech, the more the pretend play manifested itself. Now at 4.5 y.o., he is constantly pretend playing and having these pretend conversations back and forth with his toys...so, it's the language factor...(in my case). My son is intelligible only about 50% of the time..he speaks 4-6 word phrases and cannot yet dialogue but he is pretend playing. So, give it a chance. I think professionals today are labeling children too quickly with Autism & PDD and not taking into account other factors like their immaturity and lack of Speech into play. Don't be SCARED! You would know as his mother if there was something more than the Apraxia to deal with... " april_twin_mom " <april_twin_mom@... m> cc: Sent by: Subject: [ ] Terrified that there is more than Apraxia @yaho ogroups.com 06/13/2006 01:22 PM Please respond to I have 2 year old twin boys who have been in speech thereapy since October. The speech therepist and their special ed teacher are both leaning toward apraxia. To get a diagnoses the boys need to see a developmental pediatrician...the appointment is 4 months away. Both teacher DO NOT see any sines of autism or any other PDD problems. The special ed teach has said she is concerned about the way they play with toys. They don't do anyhitng autistic weird, but they do not pretend as much as she thinks 2 year olds should. They still do mouth a lot of ites, but the speech therepist said the the apraxic girl she just finished working with always did too. It is just so long to wait for that 4 month visit, to " rule out " everything. I'm just scared... Does anyone have anything they can tell me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi April. I'm kind of in the same boat as you. We are scared of a PDD diagnosis and my son DOES exhibit some of those " red flag " behaviors, but from what I've read, those behaviors can also accompany apraxia (or even " just " late talking), sensory processing issues (or full blown SPD), and to make matters worse, many people believe there is a trend now to diagnose a child with autism or PDD just because he's language delayed but especially if he is language delayed and exhibits these other symptoms. So I'm at the point now where I'm not sure I'll trust any diagnosis! So then what good is the diagnosis?? Here's the dilemma: I don't want to be in denial if my child does have PDD, but I don't want to accept a diagnosis that isn't really true. As for pretend play, I'm worried mine doesn't do that enough either (what is enough?) He likes cause and effect toys, pouring water and sand. He will " feed " a baby doll a bottle and fly a little airplane around but I think he's just imitating me. I don't know if he is really pretending. How can you tell? I will say this though, I think mouthing toys might be a good thing because they can learn more about how their mouth works and different sensations. Mine didn't really mouth toys as a baby, so I think it's kind of good when he does it now (which only seems to be when he's teething). I know I'm not helping much, but I'm hoping someone else can guide us both! > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician...the appointment is 4 months away. Both > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 In a study by Simon Baron-Cohen, he identified three things most indicative of an autism diagnosis. Ask yourself these three questions: 1. Does my child engage in pretend play, that is, using an object as a substitute for another object (driving a block along and making a car noise) or pretend something is present that is not (sipping imaginary juice from a cup)? 2. Does my child point in order to show me something (Children with autism often point in order to obtain things - protoimperative pointing-, but this type of pointing -protodeclarative pointing- is simply to share something with you, such as " look at that bird!). 3. Does your child follow your gaze in order to see what you are looking at? For instance, if you are facing your child and suddenly look toward the ceiling, does your child look there, also, in order to see what you are looking at? I can understand your concerns and worry. An autism diagnosis is indeed a difficult thing. However, sometimes the diagnosis opens the door to a number of services that a child with only an apraxia diagnosis cannot get. Your kids are very young and so much can be done. A diagnosis is simply a bunch of words. They are what they are, and a " label " won't change them from the wonderful kids they surely are. Best, [ ] Terrified that there is more than Apraxia I have 2 year old twin boys who have been in speech thereapy since October. The speech therepist and their special ed teacher are both leaning toward apraxia. To get a diagnoses the boys need to see a developmental pediatrician...the appointment is 4 months away. Both teacher DO NOT see any sines of autism or any other PDD problems. The special ed teach has said she is concerned about the way they play with toys. They don't do anyhitng autistic weird, but they do not pretend as much as she thinks 2 year olds should. They still do mouth a lot of ites, but the speech therepist said the the apraxic girl she just finished working with always did too. It is just so long to wait for that 4 month visit, to " rule out " everything. I'm just scared... Does anyone have anything they can tell me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Archive! From: " kiddietalk " <kiddietalk@...> Date: Sat Mar 13, 2004 6:28 pm Subject: Re: Trish-socially engaging but still autistic???/perhaps not -imagination Hi Traci, and Trish and all! About imagination...now this is long! I wouldn't jump to conclusions that a young child with a communication impairment has problems with imagination. Like anything when you are fighting to keep your head above water so you won't drown, it's hard to enjoy the beauty of the ocean. (yes I was a lifeguard) In other words -when a child is struggling to communicate basic needs, imagination may take a back seat. It may be there, but needs to be encouraged out. Tanner today at 7 years old is not at 'all' shy. If anything it amazes his teachers how outgoing he is and not the least bit self conscious of the way he speaks, even though he still has obvious speaking problems at times. But...it wasn't always like that. Preschool age and pre - knowledge age of what Tanner was dealing with -he actually would withdraw around others and go into a shell. Tanner did well with one on one playdates -not at all group. Tanner was never considered autistic or PDD by any of the neurodevelopmental MDs or SLPs or OTs or teachers that worked with him professionally. Nor was he ever considered autistic by any lay people. There is a difference in autism and apraxia -and differences in how to work with both appropriately. Proper diagnosis of one or both is most important. I find this to be a very important topic and very misunderstood even by some professionals. So below is a three year archived history of some tips we used to assist Tanner in developing a strong imagination. Here are some ways to do this that I posted when Tanner was 4 From: " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi, Isn't it just great how you have to wait 4 months for such a nerve- wracking appointment?? SO frustrating... we've been there. My daughter has moderate apraxia and sensory integration dysfunction. She also has some red flags of autism but no diagnosis. It's one of those frustrating situations where one developmental ped. thinks she is def. NOT on the autism spectrum, but both of her therapists think she is, her normal pediatrician is not sure but thinks no, but possible ADHD.... totally frustrating. We are moving ahead as if she has autism because of the red flags... But I have decided to come to terms with the reality that no one really has any clue. We have identified her areas of need and are addressing those areas, and not worrying about the label. As some have said, labels can be helpful for obtaining a lot of services, but who wants your child to have a PDD label if they don't have PDD?! Basically we were told there are 3 parts to an autism diagnosis: sensory integration issues, language issues (except with asperger's) and social issues. If your sons seem to socialize nonverbally pretty well and have some pretend play AND your gut and their therpists both think they are not PDD then they very likely are not. Apraxia is a misunderstood disorder and many things that just go along with a serious speech disorder and sensory integration issues can mimic autism. Hang in there > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician...the appointment is 4 months away. Both > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Okay, this is probably a stupid question, but does it count if you have to teach them to pretend play? I've been working on pretend play some with my son and I wonder if he's supposed to just come up with this on his own and if he's really pretending or just imitating me. Also, does it count if you have to teach them to point or should that just come naturally? Sorry two (potentially) stupid questions! Don't get upset over this...My son @ 3y.o. was not playing to his SLP's > liking either and even when I took him to the dev. pediatrician at 3y.o., > she expressed concern, but told me to play pretend with him as much as > possible. I went out and bought him a doll, a doll-house, pretend foods, > puppets...and did just that. I found that the more he obtained Speech, the > more the pretend play manifested itself. Now at 4.5 y.o., he is constantly > pretend playing and having these pretend conversations back and forth with > his toys...so, it's the language factor...(in my case). My son is > intelligible only about 50% of the time..he speaks 4-6 word phrases and > cannot yet dialogue but he is pretend playing. So, give it a chance. I > think professionals today are labeling children too quickly with Autism & > PDD and not taking into account other factors like their immaturity and > lack of Speech into play. Don't be SCARED! You would know as his mother if > there was something more than the Apraxia to deal with... > > " april_twin_mom " > <april_twin_mom@... > m> cc: > Sent by: Subject: [ ] Terrified that there is more than Apraxia > @yaho > ogroups.com > > > 06/13/2006 01:22 PM > Please respond to > > > > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician...the appointment is 4 months away. Both > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 One thing that I learned along my path is that for some kids, they do need to be shown the way to pretend land. They're great at recreating TV or books, but in order to help them, you've got to show them - help them open their minds. Facilitate, if you will. One other thing to remember is that children with motor planning disorders often don't play with toys the same way other kids do. It's part of the planning for them. They might pretend, but seem kind of rigid in their pretending because they don't know how to extend the crane on the truck, or figure out how to make a pretend dam in the front yard with all the sticks. That's why so many of us report that our kids dumped out toyboxes over and over and played in the mess of toys - they didn't know what else to do with them. Marina Don't get upset over this...My son > @ 3y.o. was not playing to his SLP's > > liking either and even when I took him to the dev. pediatrician at > 3y.o., > > she expressed concern, but told me to play pretend with him as > much as > > possible. I went out and bought him a doll, a doll-house, pretend > foods, > > puppets...and did just that. I found that the more he obtained > Speech, the > > more the pretend play manifested itself. Now at 4.5 y.o., he is > constantly > > pretend playing and having these pretend conversations back and > forth with > > his toys...so, it's the language factor...(in my case). My son is > > intelligible only about 50% of the time..he speaks 4-6 word > phrases and > > cannot yet dialogue but he is pretend playing. So, give it a > chance. I > > think professionals today are labeling children too quickly with > Autism & > > PDD and not taking into account other factors like their > immaturity and > > lack of Speech into play. Don't be SCARED! You would know as his > mother if > > there was something more than the Apraxia to deal with... > > > > " april_twin_mom " > > <april_twin_mom@ > > m> cc: > > Sent by: Subject: [ ] Terrified that there is > more than Apraxia > > @yaho > > ogroups.com > > > > > > 06/13/2006 01:22 PM > > Please respond to > > > > > > > > > > I have 2 year old twin boys who have been in speech thereapy since > > October. The speech therepist and their special ed teacher are both > > leaning toward apraxia. To get a diagnoses the boys need to see a > > developmental pediatrician...the appointment is 4 months away. Both > > teacher DO NOT see any sines of autism or any other PDD problems. > The > > special ed teach has said she is concerned about the way they play > > with toys. They don't do anyhitng autistic weird, but they do not > > pretend as much as she thinks 2 year olds should. They still do > mouth > > a lot of ites, but the speech therepist said the the apraxic girl > she > > just finished working with always did too. It is just so long to > wait > > for that 4 month visit, to " rule out " everything. I'm just > scared... > > Does anyone have anything they can tell me? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 I am so lost, is there anyone who has instatn messenger and can chat. i find the mesage board so slow. I have until 9 before i have other stuff to do. marina3029 <philipmary@...> wrote: One thing that I learned along my path is that for some kids, they do need to be shown the way to pretend land. They're great at recreating TV or books, but in order to help them, you've got to show them - help them open their minds. Facilitate, if you will. One other thing to remember is that children with motor planning disorders often don't play with toys the same way other kids do. It's part of the planning for them. They might pretend, but seem kind of rigid in their pretending because they don't know how to extend the crane on the truck, or figure out how to make a pretend dam in the front yard with all the sticks. That's why so many of us report that our kids dumped out toyboxes over and over and played in the mess of toys - they didn't know what else to do with them. Marina Don't get upset over this...My son > @ 3y.o. was not playing to his SLP's > > liking either and even when I took him to the dev. pediatrician at > 3y.o., > > she expressed concern, but told me to play pretend with him as > much as > > possible. I went out and bought him a doll, a doll-house, pretend > foods, > > puppets...and did just that. I found that the more he obtained > Speech, the > > more the pretend play manifested itself. Now at 4.5 y.o., he is > constantly > > pretend playing and having these pretend conversations back and > forth with > > his toys...so, it's the language factor...(in my case). My son is > > intelligible only about 50% of the time..he speaks 4-6 word > phrases and > > cannot yet dialogue but he is pretend playing. So, give it a > chance. I > > think professionals today are labeling children too quickly with > Autism & > > PDD and not taking into account other factors like their > immaturity and > > lack of Speech into play. Don't be SCARED! You would know as his > mother if > > there was something more than the Apraxia to deal with... > > > > " april_twin_mom " > > <april_twin_mom@ > > m> cc: > > Sent by: Subject: [ ] Terrified that there is > more than Apraxia > > @yaho > > ogroups.com > > > > > > 06/13/2006 01:22 PM > > Please respond to > > > > > > > > > > I have 2 year old twin boys who have been in speech thereapy since > > October. The speech therepist and their special ed teacher are both > > leaning toward apraxia. To get a diagnoses the boys need to see a > > developmental pediatrician...the appointment is 4 months away. Both > > teacher DO NOT see any sines of autism or any other PDD problems. > The > > special ed teach has said she is concerned about the way they play > > with toys. They don't do anyhitng autistic weird, but they do not > > pretend as much as she thinks 2 year olds should. They still do > mouth > > a lot of ites, but the speech therepist said the the apraxic girl > she > > just finished working with always did too. It is just so long to > wait > > for that 4 month visit, to " rule out " everything. I'm just > scared... > > Does anyone have anything they can tell me? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 At 05:20 PM 6/13/2006, you wrote: >Okay, this is probably a stupid question, but does it count if you >have to teach them to pretend play? I've been working on pretend >play some with my son and I wonder if he's supposed to just come up >with this on his own and if he's really pretending or just imitating >me. Also, does it count if you have to teach them to point or >should that just come naturally? Sorry two (potentially) stupid >questions! I had to teach my child to point because he couldn't make a pointer finger due to minor motor planning issues in his fingers. The lack of pointing is one of the reasons they mis-diagnosed him with autism. As for pretend play there is a little girl at my son's school who has autism. She was playing at the bird seed table last summer with some other children. I was there as well and they were filling up little cups and it looked like ice cream cones. I said, mmm, that looks like ice cream and she got excited and proceeded to actually try to lick it instead of pretend. It wasn't just imitation. She understood and couldn't understand why I would say something like that because that kind of thinking was too different for her. On the other hand when I said that my son and the others accepted that it was a symbol and pretend and would play along. I don't know if at that time my son would have come up with that kind of play on his own, but he could accept it as a way to play. Miche Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 I can completely empathize, since I've been in the same place with both my children. I don't think a speech therapist or a special ed teacher are qualifed to diagnose mild autism, so it's good that you have appointments with a developmental ped. Children with mild autism spectrum disorder still tend to be diagnosed later, and this can severely hamper their chances of a good outcome because of the importance of early diagnosis. In my situation, it turned out that my son did not have apraxia at all, but instead ASD (his symptoms were mild and he was diagnosed at age 4). My daughter was later diagnosed with both apraxia and ASD at age 2. Because my daughter was diagnosed so young, she responded to all treatments and therapies more rapidly, and now at age 4 her language and development is completely normal in all areas. She has lost both diagnoses. My kids never did any of the " weird " things with toys that are the stereotypes of behavior in autism - no lining up toys, flicking hands in front of their faces, hand flapping, etc. They both had abnormal play for their age, though it wasn't anything that was very noticeable to a casual observer. The day my daughter was diagnosed (right after she turned 2) was one of the hardest days of my life, and yet I'm now grateful that her neurologist gave her the diagnosis instead of taking the " wait and see " approach of her speech therapist and pediatrician. If he had waited longer to diagnose, I don't believe she would be recovered now. Don't underestimate what you can do for your kids if they do have an autism spectrum disorder - there are effective treatments and therapies. Find the CHAT screening test online and see how your boys do on that (it should be done by a pediatrician, but you can try it yourself as well). This may give you a better feeling for what is going on with your boys, even though this screen is usually given at 18 months. > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician...the appointment is 4 months away. Both > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 and all, Wondering if you can help on this topic and forgive me in advance if my wording sounds harsh but this is a topic I am interested in. Do you believe that your child was " cured " of autism? Or did your daughter not have autism to begin with, but speech, sensory and/or social issues that resolved themselves over time with the help of early intervention of s/t and o/t or p/t? Even if it was diagnosed as mild or high functioning autism, does a person get cured of it, or do they still just have it but don't have enough symptoms to still be classified as autistic on the many types of tests they have? My interest is this, my son (6) went to a developmental ped and he said that since my son had pragmatic and semantic language usage problems but many of his other issues have resolved in time, that he may be one of the lucky ones who outgrows autism. This whole concept to me doesn't make sense. To me, you either are autistic or not, like Temple Gradin (hope I spelled her name right) she has written books and gives lectures, is autistic and she has not grown out of it. She is very successful, an author, teacher and lecturer. But I don't believe she ever said she " grew out it " . She has had autism all of her life. So while I highly believe in early intervention, like your post says, I have to wonder, why is it according to the DSMV IV and what will the criteria be for the V, VI, VII, VIII, IX and X th edition publications. If we are already on the 4th reconfiguration, wouldn't it lend to the fact that the publication is still a work in progress and that we don't know enough about the disorder in order to classify children that are high functioning or mild cases? I do firmly believe that there are some children that have " autistic like " characteristics that mimic autism and that these are the children that " outgrow " the diagnosis. What do you or anyone else out there think? Thanks for your time, Lori in a message dated 6/14/2006 7:51:38 A.M. Eastern Daylight Time, eberlein@... writes: I can completely empathize, since I've been in the same place with both my children. I don't think a speech therapist or a special ed teacher are qualifed to diagnose mild autism, so it's good that you have appointments with a developmental ped. Children with mild autism spectrum disorder still tend to be diagnosed later, and this can severely hamper their chances of a good outcome because of the importance of early diagnosis. In my situation, it turned out that my son did not have apraxia at all, but instead ASD (his symptoms were mild and he was diagnosed at age 4). My daughter was later diagnosed with both apraxia and ASD at age 2. Because my daughter was diagnosed so young, she responded to all treatments and therapies more rapidly, and now at age 4 her language and development is completely normal in all areas. She has lost both diagnoses. My kids never did any of the " weird " things with toys that are the stereotypes of behavior in autism - no lining up toys, flicking hands in front of their faces, hand flapping, etc. They both had abnormal play for their age, though it wasn't anything that was very noticeable to a casual observer. The day my daughter was diagnosed (right after she turned 2) was one of the hardest days of my life, and yet I'm now grateful that her neurologist gave her the diagnosis instead of taking the " wait and see " approach of her speech therapist and pediatrician. If he had waited longer to diagnose, I don't believe she would be recovered now. Don't underestimate what you can do for your kids if they do have an autism spectrum disorder - there are effective treatments and therapies. Find the CHAT screening test online and see how your boys do on that (it should be done by a pediatrician, but you can try it yourself as well). This may give you a better feeling for what is going on with your boys, even though this screen is usually given at 18 months. > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician. developmental pediatrician.<WBR>..the appoin > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 , Do you think that the ASD dx for your daughter was correct since it was later dropped? I didn't think you could " outgrow " autism, though the more I learn about ASD and PDD the more confused I become. What therapies (prescribed b/c of her dx) do you think helped your daughter? And if you don't mind my asking, how was your children's play " abnormal " ? I'm trying to judge the normalcy of my child's play. Thanks, Kristi > > > > I have 2 year old twin boys who have been in speech thereapy since > > October. The speech therepist and their special ed teacher are both > > leaning toward apraxia. To get a diagnoses the boys need to see a > > developmental pediatrician...the appointment is 4 months away. Both > > teacher DO NOT see any sines of autism or any other PDD problems. The > > special ed teach has said she is concerned about the way they play > > with toys. They don't do anyhitng autistic weird, but they do not > > pretend as much as she thinks 2 year olds should. They still do mouth > > a lot of ites, but the speech therepist said the the apraxic girl she > > just finished working with always did too. It is just so long to wait > > for that 4 month visit, to " rule out " everything. I'm just scared... > > Does anyone have anything they can tell me? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 I was specifically instructed not only by his nuero-developmental pediatrician and his SLP to pretend play with him...As for pointing, my son didn't start to point until he was almost 4 y.o. and here too we would ask him and show him to use his finger to communicate what he wanted. I've found that nothing comes " naturally " with children with Apraxia, SID and mild hypotonia. They need prompters; us, to lead them. Questions are never stupid. Assuming you know it all, is stupid. Okay, this is probably a stupid question, but does it count if you have to teach them to pretend play? I've been working on pretend play some with my son and I wonder if he's supposed to just come up with this on his own and if he's really pretending or just imitating me. Also, does it count if you have to teach them to point or should that just come naturally? Sorry two (potentially) stupid questions! Don't get upset over this...My son @ 3y.o. was not playing to his SLP's > liking either and even when I took him to the dev. pediatrician at 3y.o., > she expressed concern, but told me to play pretend with him as much as > possible. I went out and bought him a doll, a doll-house, pretend foods, > puppets...and did just that. I found that the more he obtained Speech, the > more the pretend play manifested itself. Now at 4.5 y.o., he is constantly > pretend playing and having these pretend conversations back and forth with > his toys...so, it's the language factor...(in my case). My son is > intelligible only about 50% of the time..he speaks 4-6 word phrases and > cannot yet dialogue but he is pretend playing. So, give it a chance. I > think professionals today are labeling children too quickly with Autism & > PDD and not taking into account other factors like their immaturity and > lack of Speech into play. Don't be SCARED! You would know as his mother if > there was something more than the Apraxia to deal with... > > " april_twin_mom " > <april_twin_mom@... > m> cc: > Sent by: Subject: [ ] Terrified that there is more than Apraxia > @yaho > ogroups.com > > > 06/13/2006 01:22 PM > Please respond to > > > > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician...the appointment is 4 months away. Both > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 I have done the CHAT test, i have looked up every sign i canfind. I have spent the last 2 weeks not playing with them, but testing them. If the play toolong with a toy they are autistic, if the don't play long enough they are autistic. Don't eat dinner well, autistic...throw a toy, autistic! Wake up in themornign lolling in bed as happy as can be, autistic....having a temper tantrum autistic!! I really may be losingmy mind. i get up in the middle of the night while they are sleeping and hold onto one, crying because im convinced that within the year they will not let me touch them. I get into staring contest, just to see if they make eye contac, counting the seconds they do... It is going to be along 4 months. maryebe <eberlein@...> wrote: I can completely empathize, since I've been in the same place with both my children. I don't think a speech therapist or a special ed teacher are qualifed to diagnose mild autism, so it's good that you have appointments with a developmental ped. Children with mild autism spectrum disorder still tend to be diagnosed later, and this can severely hamper their chances of a good outcome because of the importance of early diagnosis. In my situation, it turned out that my son did not have apraxia at all, but instead ASD (his symptoms were mild and he was diagnosed at age 4). My daughter was later diagnosed with both apraxia and ASD at age 2. Because my daughter was diagnosed so young, she responded to all treatments and therapies more rapidly, and now at age 4 her language and development is completely normal in all areas. She has lost both diagnoses. My kids never did any of the " weird " things with toys that are the stereotypes of behavior in autism - no lining up toys, flicking hands in front of their faces, hand flapping, etc. They both had abnormal play for their age, though it wasn't anything that was very noticeable to a casual observer. The day my daughter was diagnosed (right after she turned 2) was one of the hardest days of my life, and yet I'm now grateful that her neurologist gave her the diagnosis instead of taking the " wait and see " approach of her speech therapist and pediatrician. If he had waited longer to diagnose, I don't believe she would be recovered now. Don't underestimate what you can do for your kids if they do have an autism spectrum disorder - there are effective treatments and therapies. Find the CHAT screening test online and see how your boys do on that (it should be done by a pediatrician, but you can try it yourself as well). This may give you a better feeling for what is going on with your boys, even though this screen is usually given at 18 months. > > I have 2 year old twin boys who have been in speech thereapy since > October. The speech therepist and their special ed teacher are both > leaning toward apraxia. To get a diagnoses the boys need to see a > developmental pediatrician...the appointment is 4 months away. Both > teacher DO NOT see any sines of autism or any other PDD problems. The > special ed teach has said she is concerned about the way they play > with toys. They don't do anyhitng autistic weird, but they do not > pretend as much as she thinks 2 year olds should. They still do mouth > a lot of ites, but the speech therepist said the the apraxic girl she > just finished working with always did too. It is just so long to wait > for that 4 month visit, to " rule out " everything. I'm just scared... > Does anyone have anything they can tell me? > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Yes, I do think the ASD dx and the apraxia dx were both correct. She definitely met the criteria for PDD-NOS. Many consider autism an lifelong disorder, but regressive autism in particular is not well-understood and is a fairly recent phenomenon. My son no longer completely meets the definition of ASD either, but has continued to receive the label from professionals because his receptive language is moderately impaired and he has some other typical deficits that remain as well (he is not functioning typically in all areas like my daughter). I've known other children who recovered besides my daughter. The most important therapy we did with her (and that we still do with my son) is ABA (applied behavior analysis). My daughter started ABA right after she turned 2, and it had the side benefit of helping a great deal with her apraxia. (We had an awesome lead ABA therapist who went to great lengths to research ways to treat apraxic children - she is like this about any area of concern with the kids she works with). Biomedical treatment with a Dan! doctor has also been very, very important for both my kids. My daughter had little interest in other children and restricted interests in play activities. Her language was severely delayed, and she displayed repetitive behaviors, etc. My daughter's disordered play was very different from my son's - my son has always been social and wanted to play with other children, though he was rejected by other kids early on (he would come home crying about how the other kids didn't like him... it was heartbreaking). Even though I have two children who have received an ASD dx, they have not had very similar presentations of the disorder. > > > > > > I have 2 year old twin boys who have been in speech thereapy > since > > > October. The speech therepist and their special ed teacher are > both > > > leaning toward apraxia. To get a diagnoses the boys need to see > a > > > developmental pediatrician...the appointment is 4 months away. > Both > > > teacher DO NOT see any sines of autism or any other PDD > problems. The > > > special ed teach has said she is concerned about the way they > play > > > with toys. They don't do anyhitng autistic weird, but they do > not > > > pretend as much as she thinks 2 year olds should. They still do > mouth > > > a lot of ites, but the speech therepist said the the apraxic > girl she > > > just finished working with always did too. It is just so long > to wait > > > for that 4 month visit, to " rule out " everything. I'm just > scared... > > > Does anyone have anything they can tell me? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Joint attention and pretend play are commonly taught skills in ABA therapy for children with autism. If a child doesn't do these things, he/she needs to be taught. Pointing and pretend play are prominently featured on the CHAT screening test that is given by some pediatricians at 18 months (by that time, these skills should be developed). Don't get upset over this...My son > @ 3y.o. was not playing to his SLP's > > liking either and even when I took him to the dev. pediatrician at > 3y.o., > > she expressed concern, but told me to play pretend with him as > much as > > possible. I went out and bought him a doll, a doll-house, pretend > foods, > > puppets...and did just that. I found that the more he obtained > Speech, the > > more the pretend play manifested itself. Now at 4.5 y.o., he is > constantly > > pretend playing and having these pretend conversations back and > forth with > > his toys...so, it's the language factor...(in my case). My son is > > intelligible only about 50% of the time..he speaks 4-6 word > phrases and > > cannot yet dialogue but he is pretend playing. So, give it a > chance. I > > think professionals today are labeling children too quickly with > Autism & > > PDD and not taking into account other factors like their > immaturity and > > lack of Speech into play. Don't be SCARED! You would know as his > mother if > > there was something more than the Apraxia to deal with... > > > > " april_twin_mom " > > <april_twin_mom@ > > m> cc: > > Sent by: Subject: [ ] Terrified that there is > more than Apraxia > > @yaho > > ogroups.com > > > > > > 06/13/2006 01:22 PM > > Please respond to > > > > > > > > > > I have 2 year old twin boys who have been in speech thereapy since > > October. The speech therepist and their special ed teacher are both > > leaning toward apraxia. To get a diagnoses the boys need to see a > > developmental pediatrician...the appointment is 4 months away. Both > > teacher DO NOT see any sines of autism or any other PDD problems. > The > > special ed teach has said she is concerned about the way they play > > with toys. They don't do anyhitng autistic weird, but they do not > > pretend as much as she thinks 2 year olds should. They still do > mouth > > a lot of ites, but the speech therepist said the the apraxic girl > she > > just finished working with always did too. It is just so long to > wait > > for that 4 month visit, to " rule out " everything. I'm just > scared... > > Does anyone have anything they can tell me? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 It's fairly rare for a child to just " outgrow " autism - I recently saw a study that this perhaps happens in 1 of 84 children who are diagosed with an ASD at age 2-3 (the followup was at age 9). The vast majority receive a more severe diagnosis (going from say PDD-NOS to true autism, for example) as they grow older. But most children with autism receive no ABA and do no biomedical treatment. These two things give a child a chance at recovery. The original Lovaas ABA study showed that almost half of children who receive ABA therapy starting at a young age and with sufficient intensity will recover - that is, they will be indistinguishable from peers *in every way*. Biomedical treatment success is harder to measure, since what treatments work for different children can vary significantly. though biomed has been an important factor in recovery for many children (including my daughter). Autism spectrum disorders are defined behaviorally, so either a child satisfies the definition or not. I don't consider children like my son to be recovered - he may not meet all critera for ASD any more, but he still has common deficits that affect his life. (None of you would be able to pick him out of a group of children his age though... you might think he had ADHD and/or some language delay if you observed him over a period of time at school). The deficits of autism become so significant as a person gets older that I don't think older kids or adults with autism are " missed " . Temple Grandin is considered to be mild now, but she is still significantly affected. The inability to think abstractly and to relate to others is hard to miss. I don't know if severity is directly related to outcome, though quality of early intervention definitely is. If you let a mildly affected child go without the most helpful treatments and therapies, he/she is unlikely to improve or lose the dx. A severely affected child may do much better as a result of good interventions. The most often recommended therapies are speech and OT, and these didn't do any good for either of my children until they had received months and months (years, really) of ABA. I've known children with ASD who are in grade school now, have been doing speech and OT (only) for years, and are still non-verbal, not potty trained. They may have seemed mild when they were 3, but they don't seem so mild now. > > > > I have 2 year old twin boys who have been in speech thereapy since > > October. The speech therepist and their special ed teacher are both > > leaning toward apraxia. To get a diagnoses the boys need to see a > > developmental pediatrician. developmental pediatrician.<WBR>..the appoin > > teacher DO NOT see any sines of autism or any other PDD problems. The > > special ed teach has said she is concerned about the way they play > > with toys. They don't do anyhitng autistic weird, but they do not > > pretend as much as she thinks 2 year olds should. They still do mouth > > a lot of ites, but the speech therepist said the the apraxic girl she > > just finished working with always did too. It is just so long to wait > > for that 4 month visit, to " rule out " everything. I'm just scared... > > Does anyone have anything they can tell me? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 , Please please dont' worry. Your children do not sound to me (I'm no expert) like they are autistic. I wrote to you yesterday; they sound like my son. At 2 y.o.; he did not have any clear words! He grunted and hoo-hooed to say yes. He could not nod his head yes or no, he could not point, he played with his toys by lining them all up and going back and forth with them as he layed on the floor next to do them. He didn't have very good eye contact. He was very social. He was hitting and slapping...he was all of the things that one who didn't know him would perhaps be quick to label him. Thank God our developmental pediatrician had her doubts but she did show concern and told me so...She told me to just look out for certain signs and play, play, play with him.. I breathe a sigh of relief when she told me he wasn't autistic...she then told me he does however have a severe speech impairment. I've seen pretty high functioning children who can speak perfectly....my child struggles to learn to speak everyday...I'm not sure which is the more bitter pill to swallow...Enjoy your children and try to not to make yourself sick over something you do not have control over right now...We're on your side and we feel your angst... Subject: Re: [ ] Re: Terrified that there is more than Apraxia @yaho I have done the CHAT test, i have looked up every sign i canfind. I have spent the last 2 weeks not playing with them, but testing them. If the play toolong with a toy they are autistic, if the don't play long enough they are autistic. Don't eat dinner well, autistic...throw a toy, autistic! Wake up in themornign lolling in bed as happy as can be, autistic....having a temper tantrum autistic!! I really may be losingmy mind. i get up in the middle of the night while they are sleeping and hold onto one, crying because im convinced that within the year they will not let me touch them. I get into staring contest, just to see if they make eye contac, counting the seconds they do... It is going to be along 4 months. maryebe <eberlein@...> wrote: Find the CHAT screening test online and see how your boys do on that (it should be done by a pediatrician, but you can try it yourself as well). This may give you a better feeling for what is going on with your boys, even though this screen is usually given at 18 months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Okay. This is starting to tick me off. Are they trying to make us moms completely neurotic? I'm all for early intervention but it seems like we might be using faulty logic here. Sensory issues often go along with autism and PDD, but just because you have sensory issues (for exp) doesn't mean you have autism or PDD! Kids do weird stuff! My friends with " typical " kids NEVER have fret over whether their kids like the Tank Engine too much or agonize over what their picky eating or aversion to sand points to. When I was a kid I walked on my tip toes (still do sometimes) and my son walks on his tip toes and guess what--it's a red flag for autism! I also used to drip popsicles on the wall and lick it off (gross I know) ONLY orange ones ONLY one particular wall. I think I was 4. My mom's response? Big eye roll and a reprimand. I didn't learn to ride a bike without training wheels till I was 8, but I read posts from people worried because their 4 yr olds haven't learned to ride a bike yet. What is normal? Apparently whatever it is, I don't qualify. And while I may not be the sharpest knife in the drawer, I'm pretty sure I'm not autistic! I've managed to form friendships, get married, get and stay emplowed, graduate from college with honors, and I don't think I seem too crazy--at least not in the South, though our standards might be a little looser What does your gut tell you? Do YOU think they're okay? Or are you like me where you've maybe lost all contact with your true feelings on this? > > > > I have 2 year old twin boys who have been in speech thereapy since > > October. The speech therepist and their special ed teacher are both > > leaning toward apraxia. To get a diagnoses the boys need to see a > > developmental pediatrician...the appointment is 4 months away. Both > > teacher DO NOT see any sines of autism or any other PDD problems. The > > special ed teach has said she is concerned about the way they play > > with toys. They don't do anyhitng autistic weird, but they do not > > pretend as much as she thinks 2 year olds should. They still do mouth > > a lot of ites, but the speech therepist said the the apraxic girl she > > just finished working with always did too. It is just so long to wait > > for that 4 month visit, to " rule out " everything. I'm just scared... > > Does anyone have anything they can tell me? > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 But if this is the case: " my son has always been social and wanted to play with other children, though he was rejected by other kids early on (he would come home crying about how the other kids didn't like him... it was heartbreaking). " Then how could he have autism? I thought failure to be social and to relate was crucial for it to be autism. Reading this makes me worried! > > > > > > > > I have 2 year old twin boys who have been in speech thereapy > > since > > > > October. The speech therepist and their special ed teacher are > > both > > > > leaning toward apraxia. To get a diagnoses the boys need to see > > a > > > > developmental pediatrician...the appointment is 4 months away. > > Both > > > > teacher DO NOT see any sines of autism or any other PDD > > problems. The > > > > special ed teach has said she is concerned about the way they > > play > > > > with toys. They don't do anyhitng autistic weird, but they do > > not > > > > pretend as much as she thinks 2 year olds should. They still do > > mouth > > > > a lot of ites, but the speech therepist said the the apraxic > > girl she > > > > just finished working with always did too. It is just so long > > to wait > > > > for that 4 month visit, to " rule out " everything. I'm just > > scared... > > > > Does anyone have anything they can tell me? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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