Re: Traditional Chinese translation/Please help if you can!

[Guest guest]

Hi everyone!

It's OK with Lily to post her message here in hopes that as a group

we can help. From what I heard from there are a few other

older/teenage non-verbal children like Jacky in Hong Kong but in

most cases the parents have given up, and that in two cases that

Lily knows of the Mothers committed suicide (!!!how horrible!!!)

said that Lily has not given up at all and is desperately

seeking advice to help her teenage son Jacky who is essentially non-

verbal. Please let's work on this as a group to get information to

help bring Jacky a voice. To help all parents there like here to

always have hope.

Below is Lily's most recent message to me (that she sent to me

already translated to English! Yay Lily!) and then 's message

from Lily. translated Lily's to English (shorter messages are

fine to translate at the free translation sites -but more complex

messages don't translate well in those places which is why it's

awesome we have to help us) Please answer if you can here and

can assist us in translating the information back to Lily in

Chinese.

Here's Lily's most recent message to me:

" Dear : you receive a very pleasant reply.

I would like to! you let everyone know Jacky.

I am very willing to! Let CHERAB grouplist Member awareness Jacky.

I write English letter, I e-mail to you again soon!

Thank you very much!

Lily "

And here is the English translation of Lily's letter from

(thank you so much !!)

" Hi, ,

Just got the email fr Lily. She gave me a simplified version of

the long

email you got about Jacky's seizures and some questions for you:

Jacky got his first seizure/epliepsy(?) on 16-8-2003 8:30am. It

was a

really bad one with whole body spasms. We went to the University of

HK's

affiliated hospital for EEG and MRI. Both came out normal. The

seizures would

come every 3 -4 months, during which time Jacky took the

medicine 'Epilim'(

Sodium valproate) for 2 years with no avail. Then in 2005, the

neurologist fr

HKU, Wong recommended acupuncture. We also started seeing a

traditional

Chinese doctor at Baptist University for Jacky's seizures. The

results were

very good. We then stopped using Epilim. We also started giving

Jacky

massages by Chinese practioners. The seizures stopped completely.

My questions are:

1. For conditions like jacky, what is the best dosage to start with

proEFA? I

believe has more knowledge and experience about proEFA and

therefore would

like to help give some ideas.

2. asked about what kind of ST Jacky is having. i just want to

tell

taht after so many years, both our emotional and financial quota are

spent and

we no longer have spare money for Jacky to take ST despite knowing

that Jacky

needs it. So I started teaching jacky myself from what I learnt

after so many

years of working with therapists. Can recommend any good method

to teach

language? jacky had ST fr 3 -6 years old, had tried music therapy at

3, and had

tried sensory therapy(translation notes:not sure about this one, has

to call

Lily to ask for more details.) fr 6 - 8 yrs old (out of our own

pockets). The

only result now is Jacky got really good music sense and enjoys

listening to

Mozart, Bach and can sit quietly and listen.

Even though I am physically and emotionally tired, I will try my

best to

learn everything to help my poor and lovely boy and help him to

progress and

protect him.

I will be happy and content even with very little improvements.

I love kids all the more because of Jacky, especially kids with

disabilities. May God Bless them!

Many Blessings,

Respectfully,

Lily fr HK "

Thanks again everyone here who offered and offers to help Lily and

Jacky from Hong Kong -and again thank you for being the voice

for each of us!

=====

[Guest guest]

Dear ,

I adopted my daughter from China and I belong to a support adoption network

known as FCC (Families with Children from China). I will send this email on to

them in hopes that someone may be able to assist with this translation.

>

> I need help for a parent in Hong Kong who only speaks traditional

> and some simple Chinese. The two of us have been going back and

> forth trying to communicate through the translation sites but she

> doesn't speak English and I don't speak Chinese and the translation

> sites help just so much, so much doesn't translate well. (even

> when I wrote " Hi Lily " that translates in Chinese to " feeds the

> lily " !) Lily found our group through The Late Talker book which is

> published in Chinese that she has already read. She sounds like an

> awesome Mom who is out there desperately seeking help for her child.

>

> I so wish that there was someone here that can reach out to help

> them. Lily's son Jacky is 16 and from what I gather is essentially

> non-verbal. He only makes simple babble like sounds like " ma ma " .

> Her son has had seizures as well at some point -but I can't make out

> what type of therapy he's had for speech.

>

> She also is asking about the fish oils

> (it's confusing enough trying to understand it in a language you

know!)

>

> Please email me at lisa@... if you can help Lily and Jacky.

> Even if you don't speak Chinese but know someone that does that

> would like to help -that would be fine too. Just someone who can

> help be a go between. Here for example is her latest email to me

> (that I translated at AltaVista from Chinese to English)

>

> " you give an opinion I extremely have the confidence to you! Jacky

> now taught by me in the home that, Jacky once first time had the

> insane epilepsy in 16-8-2003 8:30am, was greatly manifests suddenly,

> the whole body spasm, I thought the matter, I panic-stricken

> extremely, went to the fragrant ¡õuniversity hospital brain god fine

> branch to examine the card afterwards, the electroencephalogram

> normally, the magnetic force resonated looks up the brain, the brain

> is normal; The food western medicine 2 years, every 3-4 ¡õmonth also

> manifests suddenly a time, in 2005 brain god fine branch professor

> introduced Jacky makes Chinese " the needle ÖË " therapy, I go to the

> Chinese medicine in a big way ¡õto ask professor to open the Chinese

> native medicine to Jacky, the present oneself stops using the

> western medicine, completely uses the Chinese native medicine and

> the massage presses the mold, the effect is extremely good, the

> insane epilepsy oneself stops I clearly knew does not have the

> language treatment not to be good to Jacky, but I now -odd money has

> not paid own expenses on the language treatment, several years

> painful experience is weary to our body and mind, the money oneself

> exhausts, but I still persisted defends ¡õthe son, is him mother --

> the teacher -- nurse, I diligently absorb the education and the

> China and the West medicine treatment knowledge, unceasingly

> progresses, uses for to help I pitiful - beloved son Jacky, I am

> willing life-long to study and to discuss and study diligently wait

> for help him! I think in the world each parents ¡õlike this!

Compares

> with , I do ‰ò am not many, you grasped child's gold time to

> train; My error Jacky study language gold time Then I need to

> double - double, again doubles makes up Will need your advising from

> now on in me! Your field of vision is broader than me; Contacts more

> medicines to grind, hoped you many advise! I am willing to make your

> life the friend! Respects you Lily from HK "

>

> When I translated my clear messages from English to Chinese to send

> to Lily and then take what has translated and translate it back

> again to English, it was just as hard as Lily's message above to me

> to understand. Talk about a communication problem huh?!

>

> Thank you for anyone who can help!!

>

> =====

>

[Guest guest]

Hi Lily!

I have a few comments and questions and hopefully others through

CHERAB can jump in with their opinions and comments to help as well!

Did Jacky have seizures as an infant or child or was Jacky's first

seizure at 13 years old? I'm trying to make sure I have his current

age and the dates correct. He is 16 now and the first seizure was

in 2003? Not that I believe the seizures are the cause of his lack

of speech if his first seizure was at 13 years old, but I ask

because seizures, even subtle ones, can cause speech loss. It

sounds like the seizures happened suddenly from 13 to 16 years

old... and then stopped either due to treatment of some sort -or

whatever caused the seizures to happen in the first sudden place was

gone. In the US and through CHERAB I've heard much about

neurologist Dr. Mike Chez. He's behind an amino-acid

supplementation of carnosine which may help with both seizures and

speech. The one website on information is http://www.carn-

aware.com I'm not saying to try this first prior to the EFAs -but

just to keep in mind. Also perhaps can help you to send a

letter to Dr. Chez's office to see if he can help/has any words of

advice as to reasons why someone would have frequent seizures for

the first time at 13 that would just stop after 3 years.

There are other reasons to lose speech that had been gained -not

just seizures, but want to get a better picture. So for this reason

was there any point in Jacky's development prior to 3 years old

where he appeared to be " normal " in all ways or was he always

a " late talker " ? Up to age 3 was Jacky viewed as " normal " ? Did he

pass developmental milestones on time? (crawling, sitting up,

walking etc.)

If you don't recall those type of things...do you recall if Jacky

appeared to babble normally at one point, and then loose those

sounds? For example my son Tanner was babbling normally at one

point and was saying for example " ma ma " and " da da " and many other

sounds. Then at 11 months old after 2 weeks of fevers he lost the

ability to say all sounds except " ma " and " mmm "

Does Hong Kong have a birth to three early intervention program?

What programs are available for those that qualify at any age? Are

there programs for those that are in need but can't afford to pay

for them? Are there university speech and language departments near

you where you can possibly secure inexpensive (or even free)

services for Jacky? It appears that Jacky had speech therapy for

just three years of his life, 3 to 6 years old, and all of that was

out of pocket for you and your husband. When Jacky did receive

speech therapy what type of therapy was it if you recall? Since you

paid for the therapy yourself I " m guessing it wasn't that intensive

nor daily. Was it a 1/2 hour or hour session one or two days a

week? Did you notice any improvement at all from the therapy? For

example even with inappropriate therapy for apraxia some parents

notice improvements in some oral motor ability like the child may be

able to blow bubbles for the first time.

What is the situation when it comes to speech therapy in Hong Kong?

Is finding a speech therapist easy or hard? What I mean is are

there enough speech therapists for all those children that need

them? Probably not but were the MDs that worked with Jacky during

the time he had the seizures knowledgeable about speech

impairments? What were their views on the fact that he is a

teenager who is pretty much on the expressive level of an infant?

If in fact Jacky has apraxia one does not outgrow that and it

requires an intensive amount of therapy. The EFAs will accelerate

the progress but we have very few members in this group anyway who

have their child on EFAs without any therapy. There are a few cases

however where the EFAs were started during the summer or in between

therapists and the parents have reported the surges even without the

therapy -but therapy is vital too. The brain responds to multiple

stimuli.

Traditional speech therapy is not enough for one who requires say

therapy for a motor planning impairment even if it was therapy 5

times a week. It would help of course, but this is why an

appropriate diagnosis is so important -so that you can secure

appropriate therapy Without appropriate therapy a child with

apraxia will remain non-verbal or essentially non-verbal...like

Jacky is today.

Did Jacky ever say a word or phrase and shock everyone to never say

that word or phrase again? Does Jacky have any signs of motor

planning issues in his body or did he ever? (long after others his

age mastered the skill did he still have trouble for example holding

a pencil correctly, riding a bike, climbing stairs, tying his

shoe) Was Jacky ever diagnosed as having low tone in the muscles

during the time he had the seizures? It would also be called

hypotonia. Has Jacky received any occupational therapy at any

point? It appears most of his therapy has been either speech or

auditory -movement can assist in stimulating speech as well. Have

you noticed does Jacky make more sounds during any time? When he is

running or being chased for example

One therapy method that may help you to help Jacky is the Kaufman

Kit developed by Kaufman which puts words into a hierarchy of

simple to more and more complex. This method provides what is

called a " motor bridge " to bring the ability to the level of the

individual so that they will attempt to say it. At times when a

word like say " bubble " is too complex the speech impaired individual

may not say anything. (I'm being careful not to say " child " since

Jacky is now a teenager!) Thing is the kit is in just English and

I " m sure that's going to be a problem. I'll put a call into

and see if she has any suggestions. I know Rhonda from ECHO of

Canada used that kit to help her daughter Maddie prior to her being

able to find appropriate speech therapists. She said that she was

her child's best therapist at that point.

What methods if any does Jacky use to communicate? Is he able to

read and write? Does he know how to sign or use pictures to

communicate? (PECS -picture exchange communication system) What

about electronic devices that can speak for him called augmentative

devices? Are you aware of them? These methods can be used while

Jacky continues to learn how to speak verbally.

How is Jacky doing in school and what type of placement is he in?

What skills does he excel in outside of speech? For example any

sports, video games, etc. What does he enjoy to do in his free

time? How does Jacky deal with is inability to communicate? Is he

frustrated? Does he have friends? What is the deaf community like

there in Hong Kong? In general here in the US when there is a lack

of awareness and compassion and support for the verbal disabled (a

group Jacky definitely falls into) there is far more in this area.

As far as fish oils, because of Jacky's prior sudden and unusual

seizure history from unknown origin I would feel most comfortable if

that was done under the supervision of an MD. Not that I believe

the EFAs had anything to do with them -but with his history I

wouldn't feel comfortable recommending higher dosages. You should

notice a change even at a lower dosage of 2 capsules of ProEFA a

day -which would probably be the minimum amount needed to see

anything at Jacky's age. Again however I would recommend speaking

with his doctors about this -perhaps show them the information from

The Late Talker book where you found it.

I guess this is enough to start. We'll talk again!

=====

[Guest guest]

Thanks so much !

I thought I had posted a message here that I've sent on to from

this group who has offered to translate. Perhaps however could

use help if there are too many messages to Lily that have to be

translated. Let us know what you find out and thank you.

=====

[Guest guest]

I can speak Cantonese, how can I help?

--- " Kowkabany, "

<.Kowkabany@...> wrote:

> Dear ,

> I adopted my daughter from China and I belong to a

> support adoption network known as FCC (Families with

> Children from China). I will send this email on to

> them in hopes that someone may be able to assist

> with this translation.

>

>

>

>

>

> >

> > I need help for a parent in Hong Kong who only

> speaks traditional

> > and some simple Chinese. The two of us have been

> going back and

> > forth trying to communicate through the

> translation sites but she

> > doesn't speak English and I don't speak Chinese

> and the translation

> > sites help just so much, so much doesn't translate

> well. (even

> > when I wrote " Hi Lily " that translates in Chinese

> to " feeds the

> > lily " !) Lily found our group through The Late

> Talker book which is

> > published in Chinese that she has already read.

> She sounds like an

> > awesome Mom who is out there desperately seeking

> help for her child.

[Guest guest]

Thanks !

from this group is helping with translation as well. Probably

the more help the better since the emails are so long and probably

take awhile to translate (don't want to burn out!) Lily's

email is tonyno1@... tonyno1 at netvigator.com

Email Lily to let her know that you speak Cantonese, are also there

for her for support, and can possibly also help translate as well.

She doesn't speak any English at all -so it's been hard for me to

try to help since so much has been lost in translation.

I'd really love to build up more support in this area. I just sent

an email to Kaufman to see what can be done about her kit

being translated.

Thank you so much!

=====