Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 We used the GPL about 3 yrs ago for the casein and gluten test and were extremely appreciative to Dr Shaw for having created the test. I did not do the full panel though and cannot remember why. Maybe it was not available? In a message dated 6/3/03 12:26:29 AM Eastern Daylight Time, msanch3@... writes: > My daughter and I attended the CASD conference. We are interested in > knowing if anyone has used the The Great Plains Laboratory for testing and we also > would like to know how helpful the information from the testing results was Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 We used the GPL about 3 yrs ago for the casein and gluten test and were extremely appreciative to Dr Shaw for having created the test. I did not do the full panel though and cannot remember why. Maybe it was not available? In a message dated 6/3/03 12:26:29 AM Eastern Daylight Time, msanch3@... writes: > My daughter and I attended the CASD conference. We are interested in > knowing if anyone has used the The Great Plains Laboratory for testing and we also > would like to know how helpful the information from the testing results was Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hi, My wife and I did several tests including the Food allergy profile at Great Plains. In retrospect, we feel the information we gained was invaluable. At 2 1/2 years old, my son would only agree to eat 4 foods- peanut butter, Mc's french fries, yogurt and milk. Food testing revealed strong reactions for all of those foods. So we put him on a diet that removed ALL of the foods he had strong reactions to- which included the 4 foods he only wanted to eat. Using ABA, we prompted him to learn to eat alternative foods that he did not react to. The biggest impact was from when we removed Dairy, but we also saw substantial improvement from removing Wheat AND other foods on his Food Allergy profile. We think the food testing is ESSENTIAL. Because if you remove just Gluten or just Gluten and Casein,... you may still be feeding them foods they have reactions to. This could manifest itself in the results such that you may see no benefit from being on the diet (and simply think the diet itself is not working). Dietary treatment without the Food Allergy testing is like " shooting in the dark " , ... you don't really know what you are aiming at and you won't know if you hit the target or not. I must include, that there is still controversy in the " medical community " as to whether food allergys are " True " allergies or not. Some believe they are simply false positives (not truly an allergy). But, I like to point out that there are a growing number of kids and people with an " allergy " to peanuts, and eating the tiniest amount can trigger a response leading to death (some kids have died form eating peanuts). So did they have a " true " allergy to peanuts or not? What we found in OUR son is that different foods AFFECT him negatively. Removing those foods helps him to be more alert, regulates his bowel movements and normalizes his behavior. Whether or not he has any " true " allergies to foods is nothing but semantics to us. Good luck, J. P. Reirdon Webmaster http://www.autismtreatment.info/ <http://www.autismtreatment.info/> You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Biomedical Treatments My daughter and I attended the CASD conference. We are interested in knowing if anyone has used the The Great Plains Laboratory for testing and we also would like to know how helpful the information from the testing results was. Fitzgerald Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hi, My wife and I did several tests including the Food allergy profile at Great Plains. In retrospect, we feel the information we gained was invaluable. At 2 1/2 years old, my son would only agree to eat 4 foods- peanut butter, Mc's french fries, yogurt and milk. Food testing revealed strong reactions for all of those foods. So we put him on a diet that removed ALL of the foods he had strong reactions to- which included the 4 foods he only wanted to eat. Using ABA, we prompted him to learn to eat alternative foods that he did not react to. The biggest impact was from when we removed Dairy, but we also saw substantial improvement from removing Wheat AND other foods on his Food Allergy profile. We think the food testing is ESSENTIAL. Because if you remove just Gluten or just Gluten and Casein,... you may still be feeding them foods they have reactions to. This could manifest itself in the results such that you may see no benefit from being on the diet (and simply think the diet itself is not working). Dietary treatment without the Food Allergy testing is like " shooting in the dark " , ... you don't really know what you are aiming at and you won't know if you hit the target or not. I must include, that there is still controversy in the " medical community " as to whether food allergys are " True " allergies or not. Some believe they are simply false positives (not truly an allergy). But, I like to point out that there are a growing number of kids and people with an " allergy " to peanuts, and eating the tiniest amount can trigger a response leading to death (some kids have died form eating peanuts). So did they have a " true " allergy to peanuts or not? What we found in OUR son is that different foods AFFECT him negatively. Removing those foods helps him to be more alert, regulates his bowel movements and normalizes his behavior. Whether or not he has any " true " allergies to foods is nothing but semantics to us. Good luck, J. P. Reirdon Webmaster http://www.autismtreatment.info/ <http://www.autismtreatment.info/> You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Biomedical Treatments My daughter and I attended the CASD conference. We are interested in knowing if anyone has used the The Great Plains Laboratory for testing and we also would like to know how helpful the information from the testing results was. Fitzgerald Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 Amen, ! I can't tell you how many times I've gotten called by desparate parents after their children regressed only to find out that so many different supplements and treatments were started at once that there's no way to determine what may have triggered the problems. It is so important to go slow with these kids both to ensure that their bodies can tolerate a specific supplement or treatment and to not overwhelm their systems. I do find it interesting though that if what you're listing as the generic protocol steps from the DAN conference is what they are recommending now, why do so many DAN doctors try to pressure parents into jumping into a lot of supplements right in the beginning? I was shocked at TCART's biomedical conference when Dr. McCandless, who I consider to be a very knowledgable and caring doctor, spouted off a huge list of supplements she urged that every parent in the audience get their kids on right away without having a clue as to what was going on with each child. I know they're eager to help the kids but it really seems dangerous in my opinion. Biomedical can be extremely helpful for these kids but it does need to be done slowly and carefully, with much monitoring and individualization. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 Amen, ! I can't tell you how many times I've gotten called by desparate parents after their children regressed only to find out that so many different supplements and treatments were started at once that there's no way to determine what may have triggered the problems. It is so important to go slow with these kids both to ensure that their bodies can tolerate a specific supplement or treatment and to not overwhelm their systems. I do find it interesting though that if what you're listing as the generic protocol steps from the DAN conference is what they are recommending now, why do so many DAN doctors try to pressure parents into jumping into a lot of supplements right in the beginning? I was shocked at TCART's biomedical conference when Dr. McCandless, who I consider to be a very knowledgable and caring doctor, spouted off a huge list of supplements she urged that every parent in the audience get their kids on right away without having a clue as to what was going on with each child. I know they're eager to help the kids but it really seems dangerous in my opinion. Biomedical can be extremely helpful for these kids but it does need to be done slowly and carefully, with much monitoring and individualization. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 In a message dated 7/28/03 10:31:48 AM Central Daylight Time, jreirdon@... writes: > But, I disagree with one point you made- that " I know they're eager to help > the kids but it really seems dangerous in my opinion. " > > Yes, that did sound a bit too strong when I re-read it. Don't get me wrong. I am wholeheartedly for wholistic and DAN-type treatments and have found them to be extremely helpful with my son and many many others. However, there is a current trend among some DAN docs of jumping into many different supplements and treatments all at once which I feel can be harmful (more short-term, not death or major illness in most cases) to the child's health and progress. Often the regression or problems last for a few weeks or less but sometimes they can linger for several months or more. Many of these kids have dysregulated immune systems which can be thrown off further by the wrong supplement or treatment, leading to further dysregulation or a crash that is difficult to come back from. If you think of it as more of a balancing act, then treating in more of a sequential form rather than throwing tons of stuff at the kid all at once makes more sense. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 In a message dated 7/28/03 10:31:48 AM Central Daylight Time, jreirdon@... writes: > But, I disagree with one point you made- that " I know they're eager to help > the kids but it really seems dangerous in my opinion. " > > Yes, that did sound a bit too strong when I re-read it. Don't get me wrong. I am wholeheartedly for wholistic and DAN-type treatments and have found them to be extremely helpful with my son and many many others. However, there is a current trend among some DAN docs of jumping into many different supplements and treatments all at once which I feel can be harmful (more short-term, not death or major illness in most cases) to the child's health and progress. Often the regression or problems last for a few weeks or less but sometimes they can linger for several months or more. Many of these kids have dysregulated immune systems which can be thrown off further by the wrong supplement or treatment, leading to further dysregulation or a crash that is difficult to come back from. If you think of it as more of a balancing act, then treating in more of a sequential form rather than throwing tons of stuff at the kid all at once makes more sense. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 In a message dated 7/28/03 12:00:24 PM Central Daylight Time, sebas_irv@... writes: > the reason our doctor suggesting starting them all at > once was for that reason: " they will not hurt the > ----when your child is under 5, you feel like > you're racing against a clock (the time he turns 5), > when supposedly they don't respond as well to > treatments. I have seen many many kids over the age of 5 respond well to treatments. In fact, my son has responded better to treatments as he's gotten older and stronger. Then again, we became much more careful about introducing things one at a time as he became older too. I understand there is a tendency to want to hurry since you feel like you are racing against the clock. In many cases, the kids are fine and respond well to the supplements and treatments or revert back to their old selves immediately after they are stopped, but in some cases it causes problems that can linger for much longer than most parents would feel comfortable. Unfortunately, there is really no way to know up front which kids are going to do fine and which will regress. In the case of what you're using, the assertion that " it will not hurt the child " may be true but sometimes docs say this without really knowing what the things will do -- especially with newer treatments. Then later, they backtrack. I really don't want to sound like I'm trying to dissuade anyone from trying biomedical or scare anyone but experience has shown me that jumping into too many treatments and supplements can lead to regressions and health problems in SOME kids. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 In a message dated 7/28/03 12:00:24 PM Central Daylight Time, sebas_irv@... writes: > the reason our doctor suggesting starting them all at > once was for that reason: " they will not hurt the > ----when your child is under 5, you feel like > you're racing against a clock (the time he turns 5), > when supposedly they don't respond as well to > treatments. I have seen many many kids over the age of 5 respond well to treatments. In fact, my son has responded better to treatments as he's gotten older and stronger. Then again, we became much more careful about introducing things one at a time as he became older too. I understand there is a tendency to want to hurry since you feel like you are racing against the clock. In many cases, the kids are fine and respond well to the supplements and treatments or revert back to their old selves immediately after they are stopped, but in some cases it causes problems that can linger for much longer than most parents would feel comfortable. Unfortunately, there is really no way to know up front which kids are going to do fine and which will regress. In the case of what you're using, the assertion that " it will not hurt the child " may be true but sometimes docs say this without really knowing what the things will do -- especially with newer treatments. Then later, they backtrack. I really don't want to sound like I'm trying to dissuade anyone from trying biomedical or scare anyone but experience has shown me that jumping into too many treatments and supplements can lead to regressions and health problems in SOME kids. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I agree with you in principle that all of the treatments shouldn't be started at once, to allow seeing what does and does not work and to know if one thing is or is not causing a reaction. But, I disagree with one point you made- that " I know they're eager to help the kids but it really seems dangerous in my opinion. " I think this is a little strong, most of these treatments are MUCH safer than say..... injecting a day old child with a serum containing a weakend infectious agent, Mercury (a proven neurotoxin), and several known carcinogenic chemicals with undetermined amounts and numbers of viruses from the animal tissues it was grown in and strained through!!!! After all, I haven't heard of ANY children having severe adverse reactions (or death) to any of the approved Biomedical treatments on the DAN protocol. So, as I said, I agree with you in principle, but I think the biggest danger of dumping all these Biomedical treatments at once is perhaps digestion problems or not knowing what is responsible for the success or failure of a given treatment. Anyone, disagree? or heard of any deaths or severe adverse reactions to these treatments we are talking about? J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs Re: biomedical treatments Amen, ! I can't tell you how many times I've gotten called by desparate parents after their children regressed only to find out that so many different supplements and treatments were started at once that there's no way to determine what may have triggered the problems. It is so important to go slow with these kids both to ensure that their bodies can tolerate a specific supplement or treatment and to not overwhelm their systems. I do find it interesting though that if what you're listing as the generic protocol steps from the DAN conference is what they are recommending now, why do so many DAN doctors try to pressure parents into jumping into a lot of supplements right in the beginning? I was shocked at TCART's biomedical conference when Dr. McCandless, who I consider to be a very knowledgable and caring doctor, spouted off a huge list of supplements she urged that every parent in the audience get their kids on right away without having a clue as to what was going on with each child. I know they're eager to help the kids but it really seems dangerous in my opinion. Biomedical can be extremely helpful for these kids but it does need to be done slowly and carefully, with much monitoring and individualization. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I agree with you in principle that all of the treatments shouldn't be started at once, to allow seeing what does and does not work and to know if one thing is or is not causing a reaction. But, I disagree with one point you made- that " I know they're eager to help the kids but it really seems dangerous in my opinion. " I think this is a little strong, most of these treatments are MUCH safer than say..... injecting a day old child with a serum containing a weakend infectious agent, Mercury (a proven neurotoxin), and several known carcinogenic chemicals with undetermined amounts and numbers of viruses from the animal tissues it was grown in and strained through!!!! After all, I haven't heard of ANY children having severe adverse reactions (or death) to any of the approved Biomedical treatments on the DAN protocol. So, as I said, I agree with you in principle, but I think the biggest danger of dumping all these Biomedical treatments at once is perhaps digestion problems or not knowing what is responsible for the success or failure of a given treatment. Anyone, disagree? or heard of any deaths or severe adverse reactions to these treatments we are talking about? J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs Re: biomedical treatments Amen, ! I can't tell you how many times I've gotten called by desparate parents after their children regressed only to find out that so many different supplements and treatments were started at once that there's no way to determine what may have triggered the problems. It is so important to go slow with these kids both to ensure that their bodies can tolerate a specific supplement or treatment and to not overwhelm their systems. I do find it interesting though that if what you're listing as the generic protocol steps from the DAN conference is what they are recommending now, why do so many DAN doctors try to pressure parents into jumping into a lot of supplements right in the beginning? I was shocked at TCART's biomedical conference when Dr. McCandless, who I consider to be a very knowledgable and caring doctor, spouted off a huge list of supplements she urged that every parent in the audience get their kids on right away without having a clue as to what was going on with each child. I know they're eager to help the kids but it really seems dangerous in my opinion. Biomedical can be extremely helpful for these kids but it does need to be done slowly and carefully, with much monitoring and individualization. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I agree, it does make more sense with an " add one at a time " approach. J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs Re: biomedical treatments In a message dated 7/28/03 10:31:48 AM Central Daylight Time, jreirdon@... writes: > But, I disagree with one point you made- that " I know they're eager to help > the kids but it really seems dangerous in my opinion. " > > Yes, that did sound a bit too strong when I re-read it. Don't get me wrong. I am wholeheartedly for wholistic and DAN-type treatments and have found them to be extremely helpful with my son and many many others. However, there is a current trend among some DAN docs of jumping into many different supplements and treatments all at once which I feel can be harmful (more short-term, not death or major illness in most cases) to the child's health and progress. Often the regression or problems last for a few weeks or less but sometimes they can linger for several months or more. Many of these kids have dysregulated immune systems which can be thrown off further by the wrong supplement or treatment, leading to further dysregulation or a crash that is difficult to come back from. If you think of it as more of a balancing act, then treating in more of a sequential form rather than throwing tons of stuff at the kid all at once makes more sense. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I agree, it does make more sense with an " add one at a time " approach. J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs Re: biomedical treatments In a message dated 7/28/03 10:31:48 AM Central Daylight Time, jreirdon@... writes: > But, I disagree with one point you made- that " I know they're eager to help > the kids but it really seems dangerous in my opinion. " > > Yes, that did sound a bit too strong when I re-read it. Don't get me wrong. I am wholeheartedly for wholistic and DAN-type treatments and have found them to be extremely helpful with my son and many many others. However, there is a current trend among some DAN docs of jumping into many different supplements and treatments all at once which I feel can be harmful (more short-term, not death or major illness in most cases) to the child's health and progress. Often the regression or problems last for a few weeks or less but sometimes they can linger for several months or more. Many of these kids have dysregulated immune systems which can be thrown off further by the wrong supplement or treatment, leading to further dysregulation or a crash that is difficult to come back from. If you think of it as more of a balancing act, then treating in more of a sequential form rather than throwing tons of stuff at the kid all at once makes more sense. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I would like to add my two cents to this discussion. I believe that biomedical treatments are one of the most important things you can do for an autistic child. At least it was for my 28 months old son. I agree that ABA therapy is a more powerful tool when you apply it to a healthy child. If you child is sick and in pain it will be more difficult to teach him and progress will be slow. But implementing a biomedical treatment plan can be very difficult and frustrating. You should always add one supplement at a time to make sure that your child can tolerate it. But even that is no guarantee. Sometimes it would take my son three to four weeks to react to a supplement and by that time I had already added more vitamins. So I would have to stop and restart all over again. However, he would usually respond well to the supplement the second time around. I took me from January to April to get my son to tolerate all his supplements. That shows you how sick he was. So giving yourself a deadline of one month is completely unrealistic. If you are serious about implementing a supplementation plan you need time and patience. However, it pays off at the end. I have a completely different child now. He is doing tremendous progress at his ABA therapy. He has gone from a speech level of 9 to 12 months to 20 months during this 6- month period. And this period includes all the regressions he had because of intolerance to any given supplement! And believe me there were many. He has also been in the GFCF diet since he was 20 months old and we are currently chelating with DMSA. He goes to bed at 8:30 - 9:00 pm and sleeps straight until 7:30 am and that was a direct benefit of the diet since I added the supplements two months after starting the diet. Maybe my son is different but I have solid and measurable results that I can directly link to the diet and supplementation. I recommend finding a DAN doctor to help you with the plan, it can be quite overwhelming to do it on your own. I am working with Dr. Arturo Volpe here in Houston and I don't think I could have made it without his help. Also keep in mind that the plan is a work-in- progress and you may need to review from time to time. I had to change mine at least four times during the 6-month period. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 I am interested in learning more about the biomedical treatments. Thanks --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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