Re: Kirsty /response

[Guest guest]

MRSA is Methicillin Resistant Staphylococcus Aeuroginosa (golden); this one

I'm

sure of. I thought I would add it to the discussion between and

Kirsty--hope

you two don't mind--n the Menace at 2:03 a.m. in California!

[Guest guest]

In a message dated 11/21/01 4:06:03 AM Central Standard Time, Mcesana@...

writes:

<< MRSA is Methicillin Resistant Staphylococcus Aeuroginosa (golden) >>

Resistant so does this mean you can't get rid of this bacteria? Deb A

[Guest guest]

No, but it does mean that you are colonized sufficiently with it to be a

danger to any other person or child with cf; the symptoms

can often be controlled quite readily. s Hopkins recommends

synergy testing through the Columbia University Laboratory in

which Dr. Saimens has been able to study sputum cultures and

often discover that the individual is NOT resistant to a certain

class of antibiotics and therefore can be treated, although this

has been more effective with Burkholderia Cepacia than with

MRSA--still worth a try. I lost Dr. Saimen's URL; if I can find it,

I will post it to the list and label the subject line in your name.

Meanwhile, you might find it under LSaimens@columbiauniversity

..edu. I'm off to hunt. Love to you,

n, the perpetual hunter!

[Guest guest]

n,

Your imput is always welcome. I only heard what iw was through a TV show.

I do know however that MRSA cf kids are not treated on the same floor or in

the clinic as the other cf kids. And of course cepacia cf kids do home

IV's. Neither of these groups are allowed to any functions.

Re: Kirsty /response

> MRSA is Methicillin Resistant Staphylococcus Aeuroginosa (golden); this

one

> I'm

> sure of. I thought I would add it to the discussion between and

> Kirsty--hope

> you two don't mind--n the Menace at 2:03 a.m. in California!

>

>

>

[Guest guest]

It is the same here; some clinics even separate Pseudomonas

Aeuroginosa patients from those growing the Mucoid form of

Pseudomonas. It's a bit like forms of the Plague or something,

and I think that we are all scared of bacteria, yet it does seem

harsh to be frightened of one another, of other people's kids, etc.

And yet, both as a patient and as a mother, having lived through

several eras of this, I am convinced that cross-colonization is a

serious concern, along with cross-infection. Today, I think one

must do what today's doctor's would have us do. However, I was

so impressed with Neils Hoiby of Denmark this year; they treat

both staphylococcus (all forms) and pseudomonas (all forms)

vigorously from birth and have a high rate of survival, longevity,

and almost no transplantation--in their own population, which is

not very diverse. I hate to think of conferences ceasing to exist,

yet, I think that is, for the time being, going to be the wise trend.

Parent (non-cf) conferences are a good idea, but, of course, to do

any good, would leave parents with cf out. However, persons with

no other lung disease are continuing to gather. I guess we will

have cyber-conferences. Many years back I was invited to speak

at an Australian conference in Sydney--only to find myself too sick

to go once I had saved up my money.

Gosh, I never get up this early, and seldom say a thing on line be

fore 1:00 p.m.--don't know what has come over me! Thank you

for your kind note, and Love to you and all of yours,

n Rojas, wcf, mom of 3 adult " kids, " youngest with cf, too.

PS some new antibiotics coming down the road--let's hope that

these will work with MRSA as well as with P.A.