Has anyone experienced this?

[Guest guest]

,

Here is my unmedical opinion (being the unmedical person I am), which

I base on what happened when my son started enzymes. I think my son

and many of our kids are not limited to having difficulty with only

gluten and casein. I took my son off gluten and casein with very

good results, but then problems slowly started to creep back in. I

had to go on to remove eggs, soy, corn, sorghum flour, vinegar,

tomatoes, all but two or three fruits, colorings, and on and on.

It seemed whatever my son was eating the most became the next

culprit. So - what is promoted as a " safe " diet became not so safe

for my son. He was down to not very many foods when the Houston

enzymes came out. The enzymes helped my son in many areas of

development and behavior - even while still on the diet. My theory

is that even the few " safe " foods he was still on were a problem.

Once on enzymes though, most of these foods were being processed

properly.

Eventually, I took my son off the diet with the Houston enzymes. He

did even better. One day, I gave him was I thought used to be

a " safe " snack, rice cakes, without enzymes. He developed a firey

red bottom which was one of his food intolerance signs, so I decided

to give enzymes with all foods, whether or not they were gfcf.

I wonder if your daughter has a peptide problem with some other food

you are not aware of and eating that as part of the gfcf " safe " foods

triggered some of that old opioid effect. Having some of

that " drugged " type feeling again may have made her crave it more and

so she went searching for the cheese and wheat which maybe give her

that effect the most.

Just a theory.

> My dd went gfcf Feb. 2000 without much trouble. She started Houston

> enzymes in March of this year and saw some improvement so beginning

> in June I started reintroducing a regular diet and did not get a

> negative reaction. Last week we ran out of enzymes so I put her

back

> on a gfcf diet with hfs enzymes.She easily accepted the gfcf food

at

> mealtime, but has started sneaking cheese and bread;something she

> never did before. Now I'm getting tantrumming, and spacey stimmey

> behavior, which is usually pretty mild. I'm confused now as to

> whether this means she really can't tolerate the gluten and

casien,or

> that she only tolerates it enzymes. I don't think it is just that

she

> misses regular food as that wouldn't really explain the behavior

and

> she is eating gfcf food without a fuss. Any ideas?

>

[Guest guest]

The HFS enzymes are probably not strong enough, or don't have the

right combo of enzymes needed, most certainly they don't have the DPP

IV. Many parents report that the cravings for dairy and wheat will

decrease once on a good enzyme product.

Devin

> My dd went gfcf Feb. 2000 without much trouble. She started Houston

> enzymes in March of this year and saw some improvement so beginning

> in June I started reintroducing a regular diet and did not get a

> negative reaction. Last week we ran out of enzymes so I put her

back

> on a gfcf diet with hfs enzymes.She easily accepted the gfcf food

at

> mealtime, but has started sneaking cheese and bread;something she

> never did before. Now I'm getting tantrumming, and spacey stimmey

> behavior, which is usually pretty mild. I'm confused now as to

> whether this means she really can't tolerate the gluten and

casien,or

> that she only tolerates it enzymes. I don't think it is just that

she

> misses regular food as that wouldn't really explain the behavior

and

> she is eating gfcf food without a fuss. Any ideas?

>

[Guest guest]

My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

when he was two.

I have noticed behavior that concerns me, if anyone has experienced

this with their own child or has any ideas please share...

My son on two occasions now has said a word that he is very familiar

with, peanut butter (and on another occasion , picnic,) and

prounounced it " pato " (picnic was poo)He looked very disturbed when he

was saying the word, like he knew he was saying it wrong but could do

nothing to change the pronuciation. He repeated the words over and

over until he became hysterical...very sad.

His SLP had me call the dev. ped and she said if it happens again we

will need an EEG to check for abcense seizures.

Has anyone experienced this?

Also my mother and sister called my attention to the fact that

whenever my son is having a difficult time speaking (he has frequent

disflencies also...) he moves his left foot incessently. I had never

noticed this but it is true...

Please if anyone knows anything I would be very thankful for information

[Guest guest]

Hi ,

My son will turn 5 y next month and even though he is improving a

lot, there are many words that he can say quite well one day and

another day I can hardly understand. His SLP explained to me that

kids with Apraxia learn by repetition, until their brain is trained

to say that word. Have you read the book The Late Talker? I just

love the chapter My Mouth doesn't work... it explains what happens

w/ Apraxic kids (they know what they want to say, however the mouth

does not respond...) I always try to put myself in 's

position, knowing and understanding everything that is going on and

knowing what I want to say, etc, but being unable to express myself

w/ words, it is extremely frustrating. I noticed that it gets worse

after a few trials if I don't understand, so now, after the 2nd

attempt, I say, ok, talk slowly and show me what you want and it has

been working well. Have you tried Vit E? My son's speech is

becoming clearer every day! What methods is your SLP using with

him? I just mentioned this because we waisted 2 years w/

conventional speech therapy that did not work for him, and when we

switched to an Apraxia experienced Therapist, I am finally seing

results. Deborah

>

> My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> when he was two.

>

> I have noticed behavior that concerns me, if anyone has experienced

> this with their own child or has any ideas please share...

>

> My son on two occasions now has said a word that he is very

familiar

> with, peanut butter (and on another occasion , picnic,) and

> prounounced it " pato " (picnic was poo)He looked very disturbed

when he

> was saying the word, like he knew he was saying it wrong but could

do

> nothing to change the pronuciation. He repeated the words over and

> over until he became hysterical...very sad.

>

> His SLP had me call the dev. ped and she said if it happens again

we

> will need an EEG to check for abcense seizures.

> Has anyone experienced this?

>

> Also my mother and sister called my attention to the fact that

> whenever my son is having a difficult time speaking (he has

frequent

> disflencies also...) he moves his left foot incessently. I had

never

> noticed this but it is true...

>

> Please if anyone knows anything I would be very thankful for

information

>

>

>

[Guest guest]

> >

> > My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> > when he was two.

> >

> > I have noticed behavior that concerns me, if anyone has experienced

> > this with their own child or has any ideas please share...

> >

> > My son on two occasions now has said a word that he is very

> familiar

> > with, peanut butter (and on another occasion , picnic,) and

> > prounounced it " pato " (picnic was poo)He looked very disturbed

> when he

> > was saying the word, like he knew he was saying it wrong but could

> do

> > nothing to change the pronuciation. He repeated the words over and

> > over until he became hysterical...very sad.

> >

> > His SLP had me call the dev. ped and she said if it happens again

> we

> > will need an EEG to check for abcense seizures.

> > Has anyone experienced this?

> >

> > Also my mother and sister called my attention to the fact that

> > whenever my son is having a difficult time speaking (he has

> frequent

> > disflencies also...) he moves his left foot incessently. I had

> never

> > noticed this but it is true...

> >

> > Please if anyone knows anything I would be very thankful for

> information

> >

> >

> >

>

[Guest guest]

Hi ,

My son will turn 5 y next month and even though he is improving a

lot, there are many words that he can say quite well one day and

another day I can hardly understand. His SLP explained to me that

kids with Apraxia learn by repetition, until their brain is trained

to say that word. Have you read the book The Late Talker? I just

love the chapter My Mouth doesn't work... it explains what happens

w/ Apraxic kids (they know what they want to say, however the mouth

does not respond...) I always try to put myself in 's

position, knowing and understanding everything that is going on and

knowing what I want to say, etc, but being unable to express myself

w/ words, it is extremely frustrating. I noticed that it gets worse

after a few trials if I don't understand, so now, after the 2nd

attempt, I say, ok, talk slowly and show me what you want and it has

been working well. Have you tried Vit E? My son's speech is

becoming clearer every day! What methods is your SLP using with

him? I just mentioned this because we waisted 2 years w/

conventional speech therapy that did not work for him, and when we

switched to an Apraxia experienced Therapist, I am finally seing

results. Deborah

>

> My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> when he was two.

>

> I have noticed behavior that concerns me, if anyone has experienced

> this with their own child or has any ideas please share...

>

> My son on two occasions now has said a word that he is very

familiar

> with, peanut butter (and on another occasion , picnic,) and

> prounounced it " pato " (picnic was poo)He looked very disturbed

when he

> was saying the word, like he knew he was saying it wrong but could

do

> nothing to change the pronuciation. He repeated the words over and

> over until he became hysterical...very sad.

>

> His SLP had me call the dev. ped and she said if it happens again

we

> will need an EEG to check for abcense seizures.

> Has anyone experienced this?

>

> Also my mother and sister called my attention to the fact that

> whenever my son is having a difficult time speaking (he has

frequent

> disflencies also...) he moves his left foot incessently. I had

never

> noticed this but it is true...

>

> Please if anyone knows anything I would be very thankful for

information

>

>

>

[Guest guest]

> >

> > My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> > when he was two.

> >

> > I have noticed behavior that concerns me, if anyone has experienced

> > this with their own child or has any ideas please share...

> >

> > My son on two occasions now has said a word that he is very

> familiar

> > with, peanut butter (and on another occasion , picnic,) and

> > prounounced it " pato " (picnic was poo)He looked very disturbed

> when he

> > was saying the word, like he knew he was saying it wrong but could

> do

> > nothing to change the pronuciation. He repeated the words over and

> > over until he became hysterical...very sad.

> >

> > His SLP had me call the dev. ped and she said if it happens again

> we

> > will need an EEG to check for abcense seizures.

> > Has anyone experienced this?

> >

> > Also my mother and sister called my attention to the fact that

> > whenever my son is having a difficult time speaking (he has

> frequent

> > disflencies also...) he moves his left foot incessently. I had

> never

> > noticed this but it is true...

> >

> > Please if anyone knows anything I would be very thankful for

> information

> >

> >

> >

>

[Guest guest]

Ok, if you want, I have saved the messages that I found to be the most

informative ones on Vit E and I can email you the word document as an

attachment, just let me know! Deborah

jamie_kuzmicic <jamie_kuzmicic@...> wrote:

> >

> > My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> > when he was two.

> >

> > I have noticed behavior that concerns me, if anyone has experienced

> > this with their own child or has any ideas please share...

> >

> > My son on two occasions now has said a word that he is very

> familiar

> > with, peanut butter (and on another occasion , picnic,) and

> > prounounced it " pato " (picnic was poo)He looked very disturbed

> when he

> > was saying the word, like he knew he was saying it wrong but could

> do

> > nothing to change the pronuciation. He repeated the words over and

> > over until he became hysterical...very sad.

> >

> > His SLP had me call the dev. ped and she said if it happens again

> we

> > will need an EEG to check for abcense seizures.

> > Has anyone experienced this?

> >

> > Also my mother and sister called my attention to the fact that

> > whenever my son is having a difficult time speaking (he has

> frequent

> > disflencies also...) he moves his left foot incessently. I had

> never

> > noticed this but it is true...

> >

> > Please if anyone knows anything I would be very thankful for

> information

> >

> >

> >

>

__________________________________________________

[Guest guest]

This is not unusual, even with words the child used frequently.

Families and therapists work hard to maintain words that have been

acquired, but sometimes this does happen. Sometimes is takes time

to get them back and sometimes they seem to come back on their own.

It is baffling really. Katina

> >

> > Hello Deborah,

>

> Thank you so much for responding to my post! Yes I know that

apraxic

> children sometimes can " lose " words if they are not very familiar

with

> them...in this instance I was just so confused because Dylan uses

> these words all the time without issue..it seemed odd to us and his

> SLP that he would spontaneously forget how to pronounce the word

and

> than go back to saying it correctly...

>

> Yes I have read The Late Talker when Dylan was diagnosed and it

really

> calm many of my initial concerns about his condition.

> We just found an excellent SLP about on emonth ago who is very

> experienced with apraxic children and who gives lectures for our

local

> apraxia-kids support group. This was however after a string of six

> therapists in a year half of whom quit their jobs and the others

who

> we very quickly were not experienced enough...

>

> We have not tried Vit E , we are giving Dylan Nordic Naturals fish

oil

> I had not yet read about Vit E that is wonderful that it is helping

> your son!

>

> Thank you so much for your advice, it is nice to hear from others

who

> are experiencing what we are and to know we are not alone.

>

> My best wishes to your family

>

[Guest guest]

> > >

> > > My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> > > when he was two.

> > >

> > > I have noticed behavior that concerns me, if anyone has experienced

> > > this with their own child or has any ideas please share...

> > >

> > > My son on two occasions now has said a word that he is very

> > familiar

> > > with, peanut butter (and on another occasion , picnic,) and

> > > prounounced it " pato " (picnic was poo)He looked very disturbed

> > when he

> > > was saying the word, like he knew he was saying it wrong but could

> > do

> > > nothing to change the pronuciation. He repeated the words over and

> > > over until he became hysterical...very sad.

> > >

> > > His SLP had me call the dev. ped and she said if it happens again

> > we

> > > will need an EEG to check for abcense seizures.

> > > Has anyone experienced this?

> > >

> > > Also my mother and sister called my attention to the fact that

> > > whenever my son is having a difficult time speaking (he has

> > frequent

> > > disflencies also...) he moves his left foot incessently. I had

> > never

> > > noticed this but it is true...

> > >

> > > Please if anyone knows anything I would be very thankful for

> > information

> > >

> > >

> > >

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

> > >

> > > My son is 3.5 and was diagnosed with verbal and oral motor aptaxia

> > > when he was two.

> > >

> > > I have noticed behavior that concerns me, if anyone has experienced

> > > this with their own child or has any ideas please share...

> > >

> > > My son on two occasions now has said a word that he is very

> > familiar

> > > with, peanut butter (and on another occasion , picnic,) and

> > > prounounced it " pato " (picnic was poo)He looked very disturbed

> > when he

> > > was saying the word, like he knew he was saying it wrong but could

> > do

> > > nothing to change the pronuciation. He repeated the words over and

> > > over until he became hysterical...very sad.

> > >

> > > His SLP had me call the dev. ped and she said if it happens again

> > we

> > > will need an EEG to check for abcense seizures.

> > > Has anyone experienced this?

> > >

> > > Also my mother and sister called my attention to the fact that

> > > whenever my son is having a difficult time speaking (he has

> > frequent

> > > disflencies also...) he moves his left foot incessently. I had

> > never

> > > noticed this but it is true...

> > >

> > > Please if anyone knows anything I would be very thankful for

> > information

> > >

> > >

> > >

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

> > > >

> > > > My son is 3.5 and was diagnosed with verbal and oral motor

aptaxia

> > > > when he was two.

> > > >

> > > > I have noticed behavior that concerns me, if anyone has

experienced

> > > > this with their own child or has any ideas please share...

> > > >

> > > > My son on two occasions now has said a word that he is very

> > > familiar

> > > > with, peanut butter (and on another occasion , picnic,) and

> > > > prounounced it " pato " (picnic was poo)He looked very

disturbed

> > > when he

> > > > was saying the word, like he knew he was saying it wrong but

could

> > > do

> > > > nothing to change the pronuciation. He repeated the words

over and

> > > > over until he became hysterical...very sad.

> > > >

> > > > His SLP had me call the dev. ped and she said if it happens

again

> > > we

> > > > will need an EEG to check for abcense seizures.

> > > > Has anyone experienced this?

> > > >

> > > > Also my mother and sister called my attention to the fact

that

> > > > whenever my son is having a difficult time speaking (he has

> > > frequent

> > > > disflencies also...) he moves his left foot incessently. I

had

> > > never

> > > > noticed this but it is true...

> > > >

> > > > Please if anyone knows anything I would be very thankful for

> > > information

> > > >

> > > >

> > > >

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

> > > > His SLP had me call the dev. ped and she said if it happens

again

> > > we

> > > > will need an EEG to check for abcense seizures.

> > > > Has anyone experienced this?

Our son had a 24 hour EEG - as recommended by our dev ped & despite

my feeling that it was a waste of time - and it was the best thing

that we ever did. That & find a neurologist (we went to 3 in order

to get a tie-breaker opinion) who would treat his seizures even

though he was only having them in his sleep.

He has been on Depakote for about 8 weeks now & is a completely

different kid. He is talking more, is more coordinated & able to

self-regulate (better than many typical almost 3-year-olds), and his

sensory issues are almost gone. His OT thinks that, once he ages out

of EI, he won't need individual OT any more, and his PT thinks that

he doens't need her anymore either. We still have a lot of speech

work ahead of us, but i feel as though a huge hurdle has been

cleared out of his way.

I HIGHLY recomend getting this done - especially if you're getting

advice from your SLP to do so.

You can email me off-list if you'd like more details.

(mom to - 2.10 verbal apraxia...and that's pretty much it now!)

[Guest guest]

> > > >

> > > > My son is 3.5 and was diagnosed with verbal and oral motor

aptaxia

> > > > when he was two.

> > > >

> > > > I have noticed behavior that concerns me, if anyone has

experienced

> > > > this with their own child or has any ideas please share...

> > > >

> > > > My son on two occasions now has said a word that he is very

> > > familiar

> > > > with, peanut butter (and on another occasion , picnic,) and

> > > > prounounced it " pato " (picnic was poo)He looked very

disturbed

> > > when he

> > > > was saying the word, like he knew he was saying it wrong but

could

> > > do

> > > > nothing to change the pronuciation. He repeated the words

over and

> > > > over until he became hysterical...very sad.

> > > >

> > > > His SLP had me call the dev. ped and she said if it happens

again

> > > we

> > > > will need an EEG to check for abcense seizures.

> > > > Has anyone experienced this?

> > > >

> > > > Also my mother and sister called my attention to the fact

that

> > > > whenever my son is having a difficult time speaking (he has

> > > frequent

> > > > disflencies also...) he moves his left foot incessently. I

had

> > > never

> > > > noticed this but it is true...

> > > >

> > > > Please if anyone knows anything I would be very thankful for

> > > information

> > > >

> > > >

> > > >

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

> > > > His SLP had me call the dev. ped and she said if it happens

again

> > > we

> > > > will need an EEG to check for abcense seizures.

> > > > Has anyone experienced this?

Our son had a 24 hour EEG - as recommended by our dev ped & despite

my feeling that it was a waste of time - and it was the best thing

that we ever did. That & find a neurologist (we went to 3 in order

to get a tie-breaker opinion) who would treat his seizures even

though he was only having them in his sleep.

He has been on Depakote for about 8 weeks now & is a completely

different kid. He is talking more, is more coordinated & able to

self-regulate (better than many typical almost 3-year-olds), and his

sensory issues are almost gone. His OT thinks that, once he ages out

of EI, he won't need individual OT any more, and his PT thinks that

he doens't need her anymore either. We still have a lot of speech

work ahead of us, but i feel as though a huge hurdle has been

cleared out of his way.

I HIGHLY recomend getting this done - especially if you're getting

advice from your SLP to do so.

You can email me off-list if you'd like more details.

(mom to - 2.10 verbal apraxia...and that's pretty much it now!)

[Guest guest]

my Apraxic son is almost 5 and when he has difficulty saying words he will lick

his lips ALOT. He also is aware when he mispronounces words and also becomes

upset. When JoeJoe was 3.5 is when I started the Omegas and until then he had no

real words. Now he is much more vocal and says alot more but still becomes a lil

aggitated when he can not pronounce something and even more so if I ask him to

repeat himself because I did not understand. I am not sure if this behavior is

typical but I do not worry. Might not be much help to you but my son does

similiar things.

Life is too short to spend it placing blame on things and people who no longer

make a difference.

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

my Apraxic son is almost 5 and when he has difficulty saying words he will lick

his lips ALOT. He also is aware when he mispronounces words and also becomes

upset. When JoeJoe was 3.5 is when I started the Omegas and until then he had no

real words. Now he is much more vocal and says alot more but still becomes a lil

aggitated when he can not pronounce something and even more so if I ask him to

repeat himself because I did not understand. I am not sure if this behavior is

typical but I do not worry. Might not be much help to you but my son does

similiar things.

Life is too short to spend it placing blame on things and people who no longer

make a difference.

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.