Re: We are going to do a 4.5:1 ratio now/Satnam

[Guest guest]

Hi Satnam,

Almost missed your question.

Protonix is a perscription reflux medicine. It works wonders for

Ethan. The pharmacy has to special order the 25mg tablets my son

takes. Or maybe it is 50mg. THe drug ususally comes in a higher mg

amount.

HOw's handling the 4.5:1 ratio. Has it helped with

seizure control or getting higher ketones, yet? Maybe it is too

soon to tell.

Gretchen

> > > Hi everyone, as Kristan is not getting into high ketosis, our

> last

> > > desperate attempt is to go to a 4.5:1 ratio for a few weeks

see

> if

> > > that works and if not then try 5:1 ratio for a few weeks. We

> just

> > > met with our keto team and this was there suggestion. We also

> > > started Carnitor which has raised her ketones to a 4

consistently

> > now

> > > but no higher. Carnitor helps with her bowel movements, since

> > > starting it she goes twice a day. If the higher ratios don't

> > work,

> > > then I think we will stop the diet, we will wean her off. We

> have

> > > been going back and forth about the diet and I am so afraid to

> > stop,

> > > but we just think if she has good days and bad days on the

diet,

> > > what's the point, she could be like this on a regular diet. I

> > wanted

> > > to commit to a year and it will be a year on August 19.

> > >

> > > Kristan's neuro has suggested Lamictal (I know , I

remember

> > what

> > > Langan went through) and I am real hesistant, but Kristan's

neuro

> > > said there are fewer side effects as you increase slowly with

> > > Lamictal and fewer side effects when you start on a lower

dose.

> > If

> > > we do stop the diet, we are actually going to try a naturopath

> > first,

> > > Kristan's general practitioner knows of a naturopath who has

been

> > > successful in treating patients with epilepsy by giving

> > supplements,

> > > I need to look into it more as I am not sure if he has treated

> > kids

> > > and anyone with as many seizures as Kristan has had, but going

> > with a

> > > naturopath will be our first choice than a drug.

> > >

> > > Kristan is still working on her independent sitting, which we

are

> > so

> > > happy about, she still can't get up when she falls over. She

is

> > > still delayed in other areas, no consistent looking at you, no

> > > laughing or smiling (it just breaks our heart, especially for

my

> > > husband, when he comes home from work, he is so excited to see

> her

> > > and Kristan is not happy to see him as he puts it), but when

she

> > uses

> > > her voice, you can tell she is in a good mood and her eyes

look

> > real

> > > bright as if she is happy, even the neuro and dietitian said

> that,

> > > she was very vocal at the last apointment.

> > >

> > > So, that's my update. Wish us luck.

> > >

> > > Satnam,mom to Kristan, 20 months

> > > Keto kid since August 2003