slight cough,fever = nebulizer

[Guest guest]

Ok has a fever 99.1, he has had a cough on and off for about two

weeks, nothing serious, it is just a dry hack, his ped said it probaly was

his allergies so he prescribed claritin, well tonight he got the fever so I

called the cf clinic and talked to his pulm,they are going to get the

nebulizer through home care,so he could not do anything tonight for ,

what is this? does this mean that a nurse is going to come home with me and

set it up? and show me how to do it? was just wondering? tomorrow the cf

nurse is going to call me to get it , whatever that means. I am completely

confused the dr, said it could be a respitory infection but is as

hyper as before he isn't even acting sick, the dr wants to put him on

albitural,(spelling?) twice a day with the mist, what do you all think? his

cough does not sound wet and he only coughs maybe once a day not even alot,

he is sneezing and does at times have a runny nose, I am

worried,..........................Thanks mommy of w/cf and

cf? being tested

[Guest guest]

Hi

Sorry about it's a decision for you to make. My opinion I would try

something else like meds or something for a few weeks then if it don't work

then maybe I would contemplate it.I don't know, just thinking surgery and the

risk just too much fo me.Anyway good luck and I'll hope everything goes find.

Debbie Mom to Sharon 16 ncf, 10 ncf & 2 wcf

[Guest guest]

Don't be too worried. The nebulizer is easy to use and doesn't take more

than seven to ten minutes a time. On the fever thing, 's temperature

is always about 99. hardly ever gone below that. I usually don't call unless

his cough increases or he gives me his classic signs of sinus problems. I

wouldn't worry, most kids with cf have the nebulizer.

BTW FINALLY got his flu shot. He got it at four and it is now 5:30

and he is zonked. He goes to see his local ent on friday, who now suggests

surgery. So that's two maybe three ents saying this. Do we or don't we?

mom to 2yrs wcf and Brenna 6yrs wocf

>From: onespleasure@...

>Reply-To: cfparents

>To: cfparents

>Subject: slight cough,fever = nebulizer

>Date: Tue, 13 Nov 2001 19:18:49 EST

>

>Ok has a fever 99.1, he has had a cough on and off for about two

>weeks, nothing serious, it is just a dry hack, his ped said it probaly was

>his allergies so he prescribed claritin, well tonight he got the fever so I

>called the cf clinic and talked to his pulm,they are going to get the

>nebulizer through home care,so he could not do anything tonight for

>,

>what is this? does this mean that a nurse is going to come home with me and

>set it up? and show me how to do it? was just wondering? tomorrow the cf

>nurse is going to call me to get it , whatever that means. I am completely

>confused the dr, said it could be a respitory infection but is as

>hyper as before he isn't even acting sick, the dr wants to put him on

>albitural,(spelling?) twice a day with the mist, what do you all think? his

>cough does not sound wet and he only coughs maybe once a day not even

>alot,

>he is sneezing and does at times have a runny nose, I am

>worried,..........................Thanks mommy of w/cf and

> cf? being tested

_________________________________________________________________

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[Guest guest]

,

Albuterol is pretty standard treatment for kids with CF. 's used it

twice a day since diagnosis. It is just a bronchodilator, that is, it opens

up the airways. We use it before chest PT to open the airways and make the

hand PT more effective.

> From: onespleasure@...

>

> Ok has a fever 99.1, he has had a cough on and off for about two

> weeks, nothing serious, it is just a dry hack, his ped said it probaly was

> his allergies so he prescribed claritin, well tonight he got the fever so I

> called the cf clinic and talked to his pulm,they are going to get the

> nebulizer through home care,so he could not do anything tonight for ,

> what is this? does this mean that a nurse is going to come home with me and

> set it up? and show me how to do it? was just wondering? tomorrow the cf

> nurse is going to call me to get it , whatever that means. I am completely

> confused the dr, said it could be a respitory infection but is as

> hyper as before he isn't even acting sick, the dr wants to put him on

> albitural,(spelling?) twice a day with the mist, what do you all think? his

> cough does not sound wet and he only coughs maybe once a day not even alot,

> he is sneezing and does at times have a runny nose, I am

> worried,..........................Thanks mommy of w/cf and

> cf? being tested

[Guest guest]

I just wanted to reiterate. We do the exact same thing and have since

diagnosis. As said, Albuterol is a standard treatment that most

children with CF are started on immediately upon diagnosis.

Our CF center did the same thing with us regarding home care and having

someone come out and teach us. However, our pediatrician had to actually

order the equipment and did know how to do the home care thing and had us

pick it up at a pharmacy instead. The CF center seemed concerned that we

needed to be taught what to do. We never have and I've seen other people

do it at clinic and the hospital and we're doing it fine. Anyway, yes

they will send someone from a home care company to your house to

demonstrate how to use it. It's not a big deal. When they did this for

Emma's feeding tube, they were in the house a total of about 15 minutes.

- mother of Emma 16 months w/cf and Isabelle 3 years wo/cf and an

angel this week

On Tue, 13 Nov 2001 20:39:11 -0500 Ware

mamabear@...> writes:

> ,

>

> Albuterol is pretty standard treatment for kids with CF. 's

> used it

> twice a day since diagnosis. It is just a bronchodilator, that is,

> it opens

> up the airways. We use it before chest PT to open the airways and

> make the

> hand PT more effective.

>

>

>

> > From: onespleasure@...

> >

> > Ok has a fever 99.1, he has had a cough on and off for

> about two

> > weeks, nothing serious, it is just a dry hack, his ped said it

> probaly was

> > his allergies so he prescribed claritin, well tonight he got the

> fever so I

> > called the cf clinic and talked to his pulm,they are going to get

> the

> > nebulizer through home care,so he could not do anything tonight

> for ,

> > what is this? does this mean that a nurse is going to come home

> with me and

> > set it up? and show me how to do it? was just wondering? tomorrow

> the cf

> > nurse is going to call me to get it , whatever that means. I am

> completely

> > confused the dr, said it could be a respitory infection but

> is as

> > hyper as before he isn't even acting sick, the dr wants to put him

> on

> > albitural,(spelling?) twice a day with the mist, what do you all

> think? his

> > cough does not sound wet and he only coughs maybe once a day not

> even alot,

> > he is sneezing and does at times have a runny nose, I am

> > worried,..........................Thanks mommy of

> w/cf and

> > cf? being tested

>

>

>

[Guest guest]

I know this is all new to yu, but we have done albuterol/saline treaments on

since birth too. We do it one a day, preventative, and it's a breeze.

I start it with his nap, he falls asleep, and then do CPT. I know that some

kids need to cough, but we don't, so it's ok he's asleep. I do it everyday,

so that when he is sick, it's not new to him and there are no fights about

it. Let us know if you need help getting set up! I am starting TOBI

tonight for the first time, so I can understand your nervousness!

Melinda - son 3 wcf and sister 25 wcf

Re: slight cough,fever = nebulizer

Hi

Sorry about it's a decision for you to make. My opinion I would

try

something else like meds or something for a few weeks then if it don't

work

then maybe I would contemplate it.I don't know, just thinking surgery and

the

risk just too much fo me.Anyway good luck and I'll hope everything goes

find.

Debbie Mom to Sharon 16 ncf, 10 ncf & 2 wcf