Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 My 41 month son was diagnosed with dysarthria. He goes to Beckman and Associates. His therapist uses the owner's (Debra Beckman) oral motor therapy exercises in addition to PROMPT. My son has been using PECS since last August and we just got a couple of augmentive Communicators (Go Talk and a Wrist Talk). Like your son mine is smart. He's much younger at not quite 3 1/2 but for example he knows his colors and numbers but he can't say them. Today at therapy he tried to say something to his OT and you could see in his eyes that he was frustrated she did not understand him. I hadn't noticed this budding awareness yet. He's only been in therapy since January of this year though. > > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Hi Marie, My son is 4 and his therapists go between saying his delays are due to dysarthria and apraxia. They say that only time will tell which one is truly causing his speech delays. Does your son have an underlying cause for his low muscle tone? My son also has a very weak mouth due to a neuronal migration disorder called Polymicrogyria (diagnosed by brain MRI) He gets 2 hours of private speech and 2 hours of speech at school per week. The therapists do lots of oral motor work, but there has not been any significant improvements (he has been receiving speech since 10months of age). He also uses a Dynavox and does an amazing job navigating pages! Basically, the only " word " he says consistently is " Mom " , he does vocalize, you just can't understand what he is saying unless he pairs it with a gesture or sign. I would love to hear more about your son and what Kauffman's final opinion is. Best, Krista > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Not to sound like a broken record...but have you tried vit E and omega 3? - > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 I have worked with and really enjoy working with children with dysarthria. My very favorite approach with them is the Beckman Oral Motor approach. I have seen amazing results. This approach directs treatment at the individual muscles in the face by activating them individually. There is a website and some trained providers are listed there (although you may find a provider that has had the training but isn't listed-one has to request to be listed). Katina http://www.beckmanoralmotor.com/ > > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 , I haven't , but the Pro-Efa. Pro-Epa never did help my son ... Are you seeing kids respond to this that DIDN " T respond to the intial EFA protocol? And NO you don't sound like a broken record , just a very wonderful advocate for our kids! Thanks,Marie [ ] Re: Dysarthria ??? Not to sound like a broken record...but have you tried vit E and omega 3? - > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 My 41 month son was diagnosed with dysarthria. He goes to Beckman and Associates. His therapist uses the owner's (Debra Beckman) oral motor therapy exercises in addition to PROMPT. My son has been using PECS since last August and we just got a couple of augmentive Communicators (Go Talk and a Wrist Talk). Like your son mine is smart. He's much younger at not quite 3 1/2 but for example he knows his colors and numbers but he can't say them. Today at therapy he tried to say something to his OT and you could see in his eyes that he was frustrated she did not understand him. I hadn't noticed this budding awareness yet. He's only been in therapy since January of this year though. > > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Hi Marie, My son is 4 and his therapists go between saying his delays are due to dysarthria and apraxia. They say that only time will tell which one is truly causing his speech delays. Does your son have an underlying cause for his low muscle tone? My son also has a very weak mouth due to a neuronal migration disorder called Polymicrogyria (diagnosed by brain MRI) He gets 2 hours of private speech and 2 hours of speech at school per week. The therapists do lots of oral motor work, but there has not been any significant improvements (he has been receiving speech since 10months of age). He also uses a Dynavox and does an amazing job navigating pages! Basically, the only " word " he says consistently is " Mom " , he does vocalize, you just can't understand what he is saying unless he pairs it with a gesture or sign. I would love to hear more about your son and what Kauffman's final opinion is. Best, Krista > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 Not to sound like a broken record...but have you tried vit E and omega 3? - > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 I have worked with and really enjoy working with children with dysarthria. My very favorite approach with them is the Beckman Oral Motor approach. I have seen amazing results. This approach directs treatment at the individual muscles in the face by activating them individually. There is a website and some trained providers are listed there (although you may find a provider that has had the training but isn't listed-one has to request to be listed). Katina http://www.beckmanoralmotor.com/ > > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 , I haven't , but the Pro-Efa. Pro-Epa never did help my son ... Are you seeing kids respond to this that DIDN " T respond to the intial EFA protocol? And NO you don't sound like a broken record , just a very wonderful advocate for our kids! Thanks,Marie [ ] Re: Dysarthria ??? Not to sound like a broken record...but have you tried vit E and omega 3? - > Hi All: > Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. > he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. > I would love to hear if anyone else is going thru this and if Therapies have helped ? > My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech > Thanks , Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 Hi - Yep, Josh also received a dysarthria diagnosis from . I've been trying to get his current SLP to do more oral motor work with him but her attitude (I don't necessarily agree with it so I'm working a lot with Josh at home to build muscle tone in the jaw/mouth/etc.) is isolating exercises are not going to work very well - it's better to get him to build the tone in a more " useful " setting. So, no whistle therapies, etc. at school - she's working instead on chewing (they had an oral motor specialist observe him during eating), straw use, etc. She is working closely with the OT since the sensory issues have such a big effect on everything. I figure between the three of us, there will be more improvement. Josh did do whistle therapies with his old SLP and did quite well. Pronounciation is still hard on some letters/sounds but is much better since the diagnosis about 3 years ago (Josh is 8 - he was diagnosed with the apraxia - oral and verbal - when he was about 3 yo, was confirmed at 4 yo, then saw him when he was about 5 or so). Good luck! Sherry (and Josh) marie4k Hansen <marie4k@...> wrote: Hi All: Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. I would love to hear if anyone else is going thru this and if Therapies have helped ? My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech Thanks , Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 > > > Not to sound like a broken record...but have you tried vit E and > omega 3? - > > > Hi All: > > Has anyone recieved a Dysarthria DX? I have been working with the > Kaufman Center and thinks my son may have this . She needs to > see his tape first. > > he has WAY low muscle tone and still hasn't gained any clear > speech at 6 1/2 yrs. > > I would love to hear if anyone else is going thru this and if > Therapies have helped ? > > My son is using PECS and AAC and does quite well with both , but > he is SO smart I just wish he could gain some speech > > Thanks , Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 Hi - Yep, Josh also received a dysarthria diagnosis from . I've been trying to get his current SLP to do more oral motor work with him but her attitude (I don't necessarily agree with it so I'm working a lot with Josh at home to build muscle tone in the jaw/mouth/etc.) is isolating exercises are not going to work very well - it's better to get him to build the tone in a more " useful " setting. So, no whistle therapies, etc. at school - she's working instead on chewing (they had an oral motor specialist observe him during eating), straw use, etc. She is working closely with the OT since the sensory issues have such a big effect on everything. I figure between the three of us, there will be more improvement. Josh did do whistle therapies with his old SLP and did quite well. Pronounciation is still hard on some letters/sounds but is much better since the diagnosis about 3 years ago (Josh is 8 - he was diagnosed with the apraxia - oral and verbal - when he was about 3 yo, was confirmed at 4 yo, then saw him when he was about 5 or so). Good luck! Sherry (and Josh) marie4k Hansen <marie4k@...> wrote: Hi All: Has anyone recieved a Dysarthria DX? I have been working with the Kaufman Center and thinks my son may have this . She needs to see his tape first. he has WAY low muscle tone and still hasn't gained any clear speech at 6 1/2 yrs. I would love to hear if anyone else is going thru this and if Therapies have helped ? My son is using PECS and AAC and does quite well with both , but he is SO smart I just wish he could gain some speech Thanks , Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 , He was on the 2 Pro-Efas - 1 Pro Epa per day .. What is the higher dose ? Thanks , Marie [ ] Re: Dysarthria ??? > > > Not to sound like a broken record...but have you tried vit E and > omega 3? - > > > Hi All: > > Has anyone recieved a Dysarthria DX? I have been working with the > Kaufman Center and thinks my son may have this . She needs to > see his tape first. > > he has WAY low muscle tone and still hasn't gained any clear > speech at 6 1/2 yrs. > > I would love to hear if anyone else is going thru this and if > Therapies have helped ? > > My son is using PECS and AAC and does quite well with both , but > he is SO smart I just wish he could gain some speech > > Thanks , Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 > > > Not to sound like a broken record...but have you tried vit E and > omega 3? - > > > Hi All: > > Has anyone recieved a Dysarthria DX? I have been working with the > Kaufman Center and thinks my son may have this . She needs to > see his tape first. > > he has WAY low muscle tone and still hasn't gained any clear > speech at 6 1/2 yrs. > > I would love to hear if anyone else is going thru this and if > Therapies have helped ? > > My son is using PECS and AAC and does quite well with both , but > he is SO smart I just wish he could gain some speech > > Thanks , Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 , He was on the 2 Pro-Efas - 1 Pro Epa per day .. What is the higher dose ? Thanks , Marie [ ] Re: Dysarthria ??? > > > Not to sound like a broken record...but have you tried vit E and > omega 3? - > > > Hi All: > > Has anyone recieved a Dysarthria DX? I have been working with the > Kaufman Center and thinks my son may have this . She needs to > see his tape first. > > he has WAY low muscle tone and still hasn't gained any clear > speech at 6 1/2 yrs. > > I would love to hear if anyone else is going thru this and if > Therapies have helped ? > > My son is using PECS and AAC and does quite well with both , but > he is SO smart I just wish he could gain some speech > > Thanks , Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 > > > > > > Not to sound like a broken record...but have you tried vit E and > > omega 3? - > > > > > Hi All: > > > Has anyone recieved a Dysarthria DX? I have been working with > the > > Kaufman Center and thinks my son may have this . She needs > to > > see his tape first. > > > he has WAY low muscle tone and still hasn't gained any clear > > speech at 6 1/2 yrs. > > > I would love to hear if anyone else is going thru this and if > > Therapies have helped ? > > > My son is using PECS and AAC and does quite well with both , but > > he is SO smart I just wish he could gain some speech > > > Thanks , Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 > > > > > > Not to sound like a broken record...but have you tried vit E and > > omega 3? - > > > > > Hi All: > > > Has anyone recieved a Dysarthria DX? I have been working with > the > > Kaufman Center and thinks my son may have this . She needs > to > > see his tape first. > > > he has WAY low muscle tone and still hasn't gained any clear > > speech at 6 1/2 yrs. > > > I would love to hear if anyone else is going thru this and if > > Therapies have helped ? > > > My son is using PECS and AAC and does quite well with both , but > > he is SO smart I just wish he could gain some speech > > > Thanks , Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 Marie, Hello. This is my first time on this group and I read your message. My 4-year old son is a patient of Dr. Agin's. He was diagnosed with Global Apraxia when he was 2 years old. We have been giving him very high doses of ProEFA and ProEPA for the past 6 months and have seen wonderful results. We were giving him 3 ProEFA and 1 ProEPA 2X a day. We recently saw Dr. Agin for a follow-up and switched to 2 ProEFA and 1 ProEPA 3X a day, adding in the Vit. E. We have seen another surge. When we started with ProEFA 1 year ago, we tried low doses and saw very little if any improvement. For us, the high doses has been the key to our success. Hope this helps. Alesia Richter > > > > > > Not to sound like a broken record...but have you tried vit E and > > omega 3? - > > > > > Hi All: > > > Has anyone recieved a Dysarthria DX? I have been working with > the > > Kaufman Center and thinks my son may have this . She needs > to > > see his tape first. > > > he has WAY low muscle tone and still hasn't gained any clear > > speech at 6 1/2 yrs. > > > I would love to hear if anyone else is going thru this and if > > Therapies have helped ? > > > My son is using PECS and AAC and does quite well with both , but > > he is SO smart I just wish he could gain some speech > > > Thanks , Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Marie, Hello. This is my first time on this group and I read your message. My 4-year old son is a patient of Dr. Agin's. He was diagnosed with Global Apraxia when he was 2 years old. We have been giving him very high doses of ProEFA and ProEPA for the past 6 months and have seen wonderful results. We were giving him 3 ProEFA and 1 ProEPA 2X a day. We recently saw Dr. Agin for a follow-up and switched to 2 ProEFA and 1 ProEPA 3X a day, adding in the Vit. E. We have seen another surge. When we started with ProEFA 1 year ago, we tried low doses and saw very little if any improvement. For us, the high doses has been the key to our success. Hope this helps. Alesia Richter > > > > > > Not to sound like a broken record...but have you tried vit E and > > omega 3? - > > > > > Hi All: > > > Has anyone recieved a Dysarthria DX? I have been working with > the > > Kaufman Center and thinks my son may have this . She needs > to > > see his tape first. > > > he has WAY low muscle tone and still hasn't gained any clear > > speech at 6 1/2 yrs. > > > I would love to hear if anyone else is going thru this and if > > Therapies have helped ? > > > My son is using PECS and AAC and does quite well with both , but > > he is SO smart I just wish he could gain some speech > > > Thanks , Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
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