Re: Do high doses of EFA and vitamin E improve sensory integration dysfunction?

[Guest guest]

I currently give my son who is apraxic with SID the following

ProEFA

ProEPA

Carnaware

Vitamin E

I can tell you that his sensory issues except for feeding have improved

dramatically..not gone but improved...not sure if they've contributed or

it's been maturation on his part...he too is 5y.o.

" maurasullivan22 "

<qsutpzu02@...

m> cc:

Sent by: Subject:

[ ] Do high doses of EFA and vitamin E improve

@yaho sensory integration

dysfunction?

ogroups.com

11/01/2006 05:54 PM

Please respond to

Hello all,

My 5.5 year old son has sensory integration dysfunction (SID) but not

apraxia. I have read the recent postings on this group about

supplementing EFA together with vitamin E. My question is whether any

of your children with SID have seen improvements in those symptoms, or

if the supplements have only positively affected speech issues. Just

wondering whether I should give this a try with my son. Thanks, Maura

[Guest guest]

My daughter has improvement in her SID symptoms as well. Those

improvements aren't as dramatic as the speech but they are still big

gains.

Kris

On Nov 1, 2006, at 2:54 PM, maurasullivan22 wrote:

> Hello all,

> My 5.5 year old son has sensory integration dysfunction (SID) but not

> apraxia. I have read the recent postings on this group about

> supplementing EFA together with vitamin E. My question is whether any

> of your children with SID have seen improvements in those symptoms, or

> if the supplements have only positively affected speech issues. Just

> wondering whether I should give this a try with my son. Thanks, Maura

>

>

[Guest guest]

The vitamin E basically fixed all the sensory issues my son had...the

biggest one being no pain sensation...but he also no longer reacts

abnormally to loud sounds or soft touch as if it hurts. His

proprioception and vestibular sense is much improved (although

vestibular still tests " below average " ). When we first started

supplementing omega 3 (without additional E)...we saw a worsing of the

sensory issues on cod liver oil. I was not sure why that is, but now I

suspect since CLO has no vit E, and omegas increase the bodies demand

for vitamin E...omegas without additional Vit E could theoretically

WORSEN sensory integration dysfunction. That is exactly what

happened. But off the CLO - significant regression in vocalizations

(all we had was babble back then...about 1 year ago) and loss of

coordination. Switched to nordic naturals EFA...and within a week we

regained our loses and quickly surpassed where we were. I really

couldn't explain this...why a high DHA to EPA formula would worsen

sensory issues. But if vit E deficiency plays a role in SID - it now

makes sense. EFA has some vit E in it, whereas CLO dose not.

Anyway...such is my evolving theory.

It is definitely worth trying 400 IU - 800 IU a day of alpha-d-

tocophorol for SID. If it works - great. If not, stop the supplement

and you are no worse off. -

I have a friend whose child has no other issues except sensory

> Hello all,

> My 5.5 year old son has sensory integration dysfunction (SID) but

not

> apraxia. I have read the recent postings on this group about

> supplementing EFA together with vitamin E. My question is whether

any

> of your children with SID have seen improvements in those symptoms,

or

> if the supplements have only positively affected speech issues.

Just

> wondering whether I should give this a try with my son. Thanks,

Maura

>

[Guest guest]

Hi there,

My daughter Jackie does not have SID, however she does have some

sensory " issues " . When starting the EFA's I noticed a dramatic

improvement in sensory issues as well as speech. She has been on

Omega's since Jan. 2006. I recently added vitamin E to her supplements

and she starting feeling pain more. She always had a high pain

tolerance. So i dont know if you would consider this as more " sensory

Issues " since on the vitamin E, but now we, once again, have fights

about Face Washing and Hair Brushing...nothing major, just wanted to

put my 2 cents in! She is no longer taking Vitamin E, so Im not sure

what will be happening in the near future...I will keep you posted..

Hope this helps...

Trish

>

> Hello all,

> My 5.5 year old son has sensory integration dysfunction (SID) but not

> apraxia. I have read the recent postings on this group about

> supplementing EFA together with vitamin E. My question is whether

any

> of your children with SID have seen improvements in those symptoms,

or

> if the supplements have only positively affected speech issues. Just

> wondering whether I should give this a try with my son. Thanks, Maura

>

[Guest guest]

I currently give my son who is apraxic with SID the following

ProEFA

ProEPA

Carnaware

Vitamin E

I can tell you that his sensory issues except for feeding have improved

dramatically..not gone but improved...not sure if they've contributed or

it's been maturation on his part...he too is 5y.o.

" maurasullivan22 "

<qsutpzu02@...

m> cc:

Sent by: Subject:

[ ] Do high doses of EFA and vitamin E improve

@yaho sensory integration

dysfunction?

ogroups.com

11/01/2006 05:54 PM

Please respond to

Hello all,

My 5.5 year old son has sensory integration dysfunction (SID) but not

apraxia. I have read the recent postings on this group about

supplementing EFA together with vitamin E. My question is whether any

of your children with SID have seen improvements in those symptoms, or

if the supplements have only positively affected speech issues. Just

wondering whether I should give this a try with my son. Thanks, Maura

[Guest guest]

My daughter has improvement in her SID symptoms as well. Those

improvements aren't as dramatic as the speech but they are still big

gains.

Kris

On Nov 1, 2006, at 2:54 PM, maurasullivan22 wrote:

> Hello all,

> My 5.5 year old son has sensory integration dysfunction (SID) but not

> apraxia. I have read the recent postings on this group about

> supplementing EFA together with vitamin E. My question is whether any

> of your children with SID have seen improvements in those symptoms, or

> if the supplements have only positively affected speech issues. Just

> wondering whether I should give this a try with my son. Thanks, Maura

>

>

[Guest guest]

The vitamin E basically fixed all the sensory issues my son had...the

biggest one being no pain sensation...but he also no longer reacts

abnormally to loud sounds or soft touch as if it hurts. His

proprioception and vestibular sense is much improved (although

vestibular still tests " below average " ). When we first started

supplementing omega 3 (without additional E)...we saw a worsing of the

sensory issues on cod liver oil. I was not sure why that is, but now I

suspect since CLO has no vit E, and omegas increase the bodies demand

for vitamin E...omegas without additional Vit E could theoretically

WORSEN sensory integration dysfunction. That is exactly what

happened. But off the CLO - significant regression in vocalizations

(all we had was babble back then...about 1 year ago) and loss of

coordination. Switched to nordic naturals EFA...and within a week we

regained our loses and quickly surpassed where we were. I really

couldn't explain this...why a high DHA to EPA formula would worsen

sensory issues. But if vit E deficiency plays a role in SID - it now

makes sense. EFA has some vit E in it, whereas CLO dose not.

Anyway...such is my evolving theory.

It is definitely worth trying 400 IU - 800 IU a day of alpha-d-

tocophorol for SID. If it works - great. If not, stop the supplement

and you are no worse off. -

I have a friend whose child has no other issues except sensory

> Hello all,

> My 5.5 year old son has sensory integration dysfunction (SID) but

not

> apraxia. I have read the recent postings on this group about

> supplementing EFA together with vitamin E. My question is whether

any

> of your children with SID have seen improvements in those symptoms,

or

> if the supplements have only positively affected speech issues.

Just

> wondering whether I should give this a try with my son. Thanks,

Maura

>

[Guest guest]

Hi there,

My daughter Jackie does not have SID, however she does have some

sensory " issues " . When starting the EFA's I noticed a dramatic

improvement in sensory issues as well as speech. She has been on

Omega's since Jan. 2006. I recently added vitamin E to her supplements

and she starting feeling pain more. She always had a high pain

tolerance. So i dont know if you would consider this as more " sensory

Issues " since on the vitamin E, but now we, once again, have fights

about Face Washing and Hair Brushing...nothing major, just wanted to

put my 2 cents in! She is no longer taking Vitamin E, so Im not sure

what will be happening in the near future...I will keep you posted..

Hope this helps...

Trish

>

> Hello all,

> My 5.5 year old son has sensory integration dysfunction (SID) but not

> apraxia. I have read the recent postings on this group about

> supplementing EFA together with vitamin E. My question is whether

any

> of your children with SID have seen improvements in those symptoms,

or

> if the supplements have only positively affected speech issues. Just

> wondering whether I should give this a try with my son. Thanks, Maura

>

[Guest guest]

I have to add a comment on this.My apraxic 8 year old daughter is on the

vitamin E and what a difference we have seen with SID Last night was the

first time since we had her in our care I heard her and saw her jump up from

the bathtub as if to say that water is hot.I always remind her to check it

first before climbing in and as I was checking it myself and said wait I

need to add more cold water she sat down and then jumped right up!! I was so

excited and then thought back she no longer stands at the bathroom sink and

runs hot water over her mouth and chin.She is feeling things.slivers on the

botton of her foot, a hangnail.and the real puzzler is her right heel is

hurting her and she chuckles and says I have a pain a new word for her but

very appropriate.

I took her to our favorite chiropractor for her opinion as there was no

swelling, or redness (the pediatrician couldn't fit her in .The

chiropractor said we know her joints tend to be loose but to give it a bit

of time and if it doesn't clear up (as it may be growing pain) then she will

xray it. ..

She is on the carnitine replacement(she tested low)and I am not sure of all

it is doing for her (she does have some diarraha from it) but her thigh

muscles also are giving her " pain " when she moves to an upright and walking

position ..very confusing is it a growth spurt or is it the carnitine

stating to help build up her weak muscles??

So many questions

But it is so great to see her adding new words everyday and starting to

string longer and longer sentences..We will make those Nordic Naturals

people rich.. to bad we couldn't get the prescription health insurance to

cover it.

's Mom

_____

From:

[mailto: ] On Behalf Of

myra.bauza@...

Sent: Thursday, November 02, 2006 2:17 PM

Subject: Re: [ ] Do high doses of EFA and vitamin E

improve sensory integration dysfunction?

I currently give my son who is apraxic with SID the following

ProEFA

ProEPA

Carnaware

Vitamin E

I can tell you that his sensory issues except for feeding have improved

dramatically..not gone but improved...not sure if they've contributed or

it's been maturation on his part...he too is 5y.o.

[Guest guest]

I have to add a comment on this.My apraxic 8 year old daughter is on the

vitamin E and what a difference we have seen with SID Last night was the

first time since we had her in our care I heard her and saw her jump up from

the bathtub as if to say that water is hot.I always remind her to check it

first before climbing in and as I was checking it myself and said wait I

need to add more cold water she sat down and then jumped right up!! I was so

excited and then thought back she no longer stands at the bathroom sink and

runs hot water over her mouth and chin.She is feeling things.slivers on the

botton of her foot, a hangnail.and the real puzzler is her right heel is

hurting her and she chuckles and says I have a pain a new word for her but

very appropriate.

I took her to our favorite chiropractor for her opinion as there was no

swelling, or redness (the pediatrician couldn't fit her in .The

chiropractor said we know her joints tend to be loose but to give it a bit

of time and if it doesn't clear up (as it may be growing pain) then she will

xray it. ..

She is on the carnitine replacement(she tested low)and I am not sure of all

it is doing for her (she does have some diarraha from it) but her thigh

muscles also are giving her " pain " when she moves to an upright and walking

position ..very confusing is it a growth spurt or is it the carnitine

stating to help build up her weak muscles??

So many questions

But it is so great to see her adding new words everyday and starting to

string longer and longer sentences..We will make those Nordic Naturals

people rich.. to bad we couldn't get the prescription health insurance to

cover it.

's Mom

_____

From:

[mailto: ] On Behalf Of

myra.bauza@...

Sent: Thursday, November 02, 2006 2:17 PM

Subject: Re: [ ] Do high doses of EFA and vitamin E

improve sensory integration dysfunction?

I currently give my son who is apraxic with SID the following

ProEFA

ProEPA

Carnaware

Vitamin E

I can tell you that his sensory issues except for feeding have improved

dramatically..not gone but improved...not sure if they've contributed or

it's been maturation on his part...he too is 5y.o.

[Guest guest]

That's great news! The experiences regarding SID are starting to

stream in. I have a good friend whose child ONLY has sensory issues -

no apraxia, speech or coordination problems. She is a different

child on vitamin E. (Omegas made no difference for her - she was on

them for months). This family has done 2 trials off the vitamin

E...just to see (plus the psychologist working with her wanted to

make sure it was really the vit E and not something that would have

just improved on its own...she is 8 years old and has had " sensory

issues " since infancy). Things fell apart within 2 days in each

case...with a return of the " old " issues like not being able to

regulate herself, falling apart when little things didn't go right,

and daily meltdowns. Back on each time...things improved. I really

do think this is fascinating.

Not sure what to make of the " pains " ...but kids will often get these

sort of pains and we don't know what causes it, but it usually goes

away and get's chalked up to " growing pains " . As long as you know

that calcium and vitamin D is fine, then really probably not much to

worry about. But " bone pain " in one of our kids, after seeing the

number of kids with abnormal fat soluble vitamin levels (and 2 cases

of rickets)...its the one thing I would check if not done alreay.

Carnitine should not cause pain. If she is more active... because

she is stronger, so doing more running/climbing etc...it may just be

muscle fatigue, from getting more exercise. ph used to be the

sort of kid that sat on the floor (didn't move much)...and watched

everyone around him. Now we can't keep up with him, and he rarely

falls down any more, and doesn't bump into the walls etc. So he's

getting a ton more exercise than he used to. -claudia

> I have to add a comment on this.My apraxic 8 year old daughter is

on the

> vitamin E and what a difference we have seen with SID Last night

was the

> first time since we had her in our care I heard her and saw her

jump up from

> the bathtub as if to say that water is hot.I always remind her to

check it

> first before climbing in and as I was checking it myself and said

wait I

> need to add more cold water she sat down and then jumped right

up!! I was so

> excited and then thought back she no longer stands at the bathroom

sink and

> runs hot water over her mouth and chin.She is feeling

things.slivers on the

> botton of her foot, a hangnail.and the real puzzler is her right

heel is

> hurting her and she chuckles and says I have a pain a new word

for her but

> very appropriate.

>

> I took her to our favorite chiropractor for her opinion as there

was no

> swelling, or redness (the pediatrician couldn't fit her in .The

> chiropractor said we know her joints tend to be loose but to give

it a bit

> of time and if it doesn't clear up (as it may be growing pain)

then she will

> xray it. ..

>

> She is on the carnitine replacement(she tested low)and I am not

sure of all

> it is doing for her (she does have some diarraha from it) but her

thigh

> muscles also are giving her " pain " when she moves to an upright

and walking

> position ..very confusing is it a growth spurt or is it the

carnitine

> stating to help build up her weak muscles??

>

> So many questions

>

> But it is so great to see her adding new words everyday and

starting to

> string longer and longer sentences..We will make those Nordic

Naturals

> people rich.. to bad we couldn't get the prescription health

insurance to

> cover it.

>

> 's Mom

>

> _____

>

> From:

> [mailto: ] On Behalf Of

> myra.bauza@...

> Sent: Thursday, November 02, 2006 2:17 PM

>

> Subject: Re: [ ] Do high doses of EFA and

vitamin E

> improve sensory integration dysfunction?

>

>

>

> I currently give my son who is apraxic with SID the following

> ProEFA

> ProEPA

> Carnaware

> Vitamin E

>

> I can tell you that his sensory issues except for feeding have

improved

> dramatically..not gone but improved...not sure if they've

contributed or

> it's been maturation on his part...he too is 5y.o.

>

[Guest guest]

That's great news! The experiences regarding SID are starting to

stream in. I have a good friend whose child ONLY has sensory issues -

no apraxia, speech or coordination problems. She is a different

child on vitamin E. (Omegas made no difference for her - she was on

them for months). This family has done 2 trials off the vitamin

E...just to see (plus the psychologist working with her wanted to

make sure it was really the vit E and not something that would have

just improved on its own...she is 8 years old and has had " sensory

issues " since infancy). Things fell apart within 2 days in each

case...with a return of the " old " issues like not being able to

regulate herself, falling apart when little things didn't go right,

and daily meltdowns. Back on each time...things improved. I really

do think this is fascinating.

Not sure what to make of the " pains " ...but kids will often get these

sort of pains and we don't know what causes it, but it usually goes

away and get's chalked up to " growing pains " . As long as you know

that calcium and vitamin D is fine, then really probably not much to

worry about. But " bone pain " in one of our kids, after seeing the

number of kids with abnormal fat soluble vitamin levels (and 2 cases

of rickets)...its the one thing I would check if not done alreay.

Carnitine should not cause pain. If she is more active... because

she is stronger, so doing more running/climbing etc...it may just be

muscle fatigue, from getting more exercise. ph used to be the

sort of kid that sat on the floor (didn't move much)...and watched

everyone around him. Now we can't keep up with him, and he rarely

falls down any more, and doesn't bump into the walls etc. So he's

getting a ton more exercise than he used to. -claudia

> I have to add a comment on this.My apraxic 8 year old daughter is

on the

> vitamin E and what a difference we have seen with SID Last night

was the

> first time since we had her in our care I heard her and saw her

jump up from

> the bathtub as if to say that water is hot.I always remind her to

check it

> first before climbing in and as I was checking it myself and said

wait I

> need to add more cold water she sat down and then jumped right

up!! I was so

> excited and then thought back she no longer stands at the bathroom

sink and

> runs hot water over her mouth and chin.She is feeling

things.slivers on the

> botton of her foot, a hangnail.and the real puzzler is her right

heel is

> hurting her and she chuckles and says I have a pain a new word

for her but

> very appropriate.

>

> I took her to our favorite chiropractor for her opinion as there

was no

> swelling, or redness (the pediatrician couldn't fit her in .The

> chiropractor said we know her joints tend to be loose but to give

it a bit

> of time and if it doesn't clear up (as it may be growing pain)

then she will

> xray it. ..

>

> She is on the carnitine replacement(she tested low)and I am not

sure of all

> it is doing for her (she does have some diarraha from it) but her

thigh

> muscles also are giving her " pain " when she moves to an upright

and walking

> position ..very confusing is it a growth spurt or is it the

carnitine

> stating to help build up her weak muscles??

>

> So many questions

>

> But it is so great to see her adding new words everyday and

starting to

> string longer and longer sentences..We will make those Nordic

Naturals

> people rich.. to bad we couldn't get the prescription health

insurance to

> cover it.

>

> 's Mom

>

> _____

>

> From:

> [mailto: ] On Behalf Of

> myra.bauza@...

> Sent: Thursday, November 02, 2006 2:17 PM

>

> Subject: Re: [ ] Do high doses of EFA and

vitamin E

> improve sensory integration dysfunction?

>

>

>

> I currently give my son who is apraxic with SID the following

> ProEFA

> ProEPA

> Carnaware

> Vitamin E

>

> I can tell you that his sensory issues except for feeding have

improved

> dramatically..not gone but improved...not sure if they've

contributed or

> it's been maturation on his part...he too is 5y.o.

>