sleep issues/

[Guest guest]

,

If I recall right you have tried giving Langan melatonin but stopped it due

to not being sure if it was making matters worse or if something else was

causing the problem (perhaps this was the digestive enzymes...can't

remember). If this is the case, now that you know more of what is going on

how about trying it again? If you do try it, I would not use the extended

release. I don't think that Langan is producing adequate melatonin as the

sun begins to go down. She needs this if she is going to go to sleep. She

reminds me so much of what Shan use to be like. She would not fall asleep

until around 11 at night. She would lay in bed for a couple hours kicking

the wall and doing all kinds of things, up to the bathroom over and over.

The melatonin has regulated her. She went off it for 3-6 months and did

well but started to have sleeping problems again so we put her back on 1mg.

We could skip giving it to her and she would still get tired and go to

sleep. It may be well worth trying again especially if it proved to help

Langan.

Rhonda

Once Langan fell asleep last night (and it is always a mess b/c she

tries to stay awake and then screams at every tiny sound or movement

until she is out) she slept better than she has in a while. She had

a sz at 4:30am but went back to sleep after and was pretty peaceful

before and after. She actually crashed until 10am! I guess after

so long without good sleep, her body needed it. She is in fine

spirits, now, though. Until bedtime.... Ugh...

[Guest guest]

,

We tried a couple times giving the slow release and had the same problem,

groggy in the morning. Try the non extended release.

Rhonda

Re: sleep issues/Rhonda

Rhonda,

Ahhh. Great minds think alike!! = )

I actually did give Langan melatonin on Saturday and Sunday night.

Something had to give. She slept better but still woke up with szs.

= ( But she wasn't as nuts as before so maybe it is helping. The

problem is that both Sunday and today she is just wiped out- no

energy. So I wonder if it is the melatonin. I did give the slow

release- maybe that is the problem. Maybe it's too slow??

We are awaiting a call from the neuro- looks like we're going to be

going the med route soon. We just can't take this many szs AND the

diet. I don't have much hope for the meds helping but we have to try

something and increasing the ratio is out of the question b/c of the

acidosis. Ugh. Never dull!

I hope Shan is doing well. We will continue to eat the yogurt

(although maybe not from cream once we're off keto). Langan LOVES

it! Thanks again for that tip!