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Cystic Fibrosis

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Welcome Deborah,

I am a Deborah too but I go by Deb A. I have three girls and two of them have

CF there ages are 9,7,4. I dread the teenage year so you will have to prepare

me for those year too come. And I hear that girls are worse then boys. Deb A

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Hi . I am a mother of three boys ages are 11,14,and16. My oldest one has cf. He

is doing go od to.His doctors are IN duke hospital in Durham n.c. . Im having

problems with .He doesn't want to take his medicine or do his vest. He's a

typical teenager. He was working at arestaurant. for 2 years. He got mad and

quit. Anyway It will be nice to talk to other parents with cf. thank-you for

letting m e join . it helps to know that Im not alone.

Deborah Waller

---------------------------------

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You are never alone here, that's for sure. My

granddaughter is 17 . (just had birthday) and she

also goes to the Duke CF Center. She loves it.

Bill Taub is her favorite ,He is the social

worker. Very nice, laid back guy. ERIN is very

motivated as she is getting ready for college and

her boyfriend is already there. she is applying

for every scholarship there is :):):) There are

quite a few , especially for CF & for chronically

ill disease persons. They don't have to be really

sickly , just have the disease.

TEENS are in a hard spot whether they have CF or

not .......that just adds to it. you sound like a

very dedicated and loving mom , so he will pull

thru this.

Write anytime. Many will have similar stories, you

aren't ever alone here.!!:):):)

LOVE & HUGS, grandmomBEV

Cystic Fibrosis

Hi . I am a mother of three boys ages are

11,14,and16. My oldest one has cf. He is doing go

od to.His doctors are IN duke hospital in Durham

n.c. . Im having problems with .He doesn't want

to take his medicine or do his vest. He's a

typical teenager. He was working at arestaurant.

for 2 years. He got mad and quit. Anyway It will

be nice to talk to other parents with cf.

thank-you for letting m e join . it helps to

know that Im not alone.

Deborah Waller

---------------------------------

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Hi DEB A:

I was just reading the posts and found yours. I know

a lady from a small town in arkansas that has three

girls and two of them have CF. I was wondering if you

might be the same person......mom of jake 16 y/o w/cf

--- gdattig@... wrote:

> Welcome Deborah,

> I am a Deborah too but I go by Deb A. I have three

> girls and two of them have

> CF there ages are 9,7,4. I dread the teenage year so

> you will have to prepare

> me for those year too come. And I hear that girls

> are worse then boys. Deb A

>

__________________________________________________

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In a message dated 10/31/01 2:31:40 PM Central Standard Time,

aheartlike_his@... writes:

<< Hi DEB A:

I was just reading the posts and found yours. I know

a lady from a small town in arkansas that has three

girls and two of them have CF. I was wondering if you

might be the same person......mom of jake 16 y/o w/cf >>

Nope I live in Iowa but I do have a sister in law that lives in Arkansas. Deb

A

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>

>Reply-To: cfparents

>To: cfparents

>CC: special759@...

>Subject: Cystic Fibrosis

>Date: Wed, 31 Oct 2001 10:02:21 -0800 (PST)

>

>Hi . I am a mother of three boys ages are 11,14,and16. My oldest one has

>cf. He is doing go od to.His doctors are IN duke hospital in Durham n.c. .

>Im having problems with .He doesn't want to take his medicine or do his

>vest. He's a typical teenager. He was working at arestaurant. for 2 years.

>He got mad and quit. Anyway It will be nice to talk to other parents with

>cf. thank-you for letting m e join . it helps to know that Im not alone.

>

>

> Deborah Waller

>

>

>

>

>---------------------------------

>

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Deborah,

Hi... I can completely relate to your post. I also have a son, 16, that goes

to Vanderbilt in Nashville. And he is another typical teen... doesn't want

to do his vest or medications either... I consider it a major accomplishment

if we go thru just one day with him doing all of the treatments and meds...

He is also doing well, but could be better if he were to take his treatments

more seriously. I believe that most teens think themselves invincible, and

cf kids are no exception. They may even go to a more extreme level, just to

prove that they can be a " normal " teen too...Welcome to the group and...

Good luck!....

Weathers

Reply-To: cfparents

Date: Wed, 31 Oct 2001 10:02:21 -0800 (PST)

To: cfparents

Cc: special759@...

Subject: Cystic Fibrosis

Hi . I am a mother of three boys ages are 11,14,and16. My oldest one has

cf. He is doing go od to.His doctors are IN duke hospital in Durham n.c. .

Im having problems with .He doesn't want to take his medicine or do his

vest. He's a typical teenager. He was working at arestaurant. for 2 years.

He got mad and quit. Anyway It will be nice to talk to other parents with

cf. thank-you for letting m e join . it helps to know that Im not alone.

Deborah Waller

---------------------------------

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I know this probably is not what you want to hear, but my sister did the

same thing. She completely quit enzymes, treatments, vitamins. Everything!

About the same age. My mom went to the doctors in tears, and they told her

that my sister was old enough to understand the necessity for these things

for her health, she was going to have to make her own decisions, and at this

point, there was not much good in trying to make her do what she was not

going to do. It was so hard for Mom and I, to watch her do this, and she's

still doing it at 25! But, I guess there is some truth in it. My sister

did just fine, and occasionally realizes that it's time to see the doc., but

not nearly as timely as we would like. I think that they do know the

consequences and will take charge as they need to. I think that if they

need the enzymes - the stomach aches will be unbearable - and the gas! And

I think, if your son needs his treatments, you will hear it in his cough or

breathing. Try not to worry too much - but consult your doctor and social

worker for some advice too - they probably see this a lot! They are just

discovering themselves and it may take some time. I think it is important

to keep stressing the importance of enzymes and treatments, and the awful

repercussions that could follow if he does not start taking charge of his CF

on his own!

Melinda - son 2.5 wcf and sister 25 wcf

Cystic Fibrosis

Hi . I am a mother of three boys ages are 11,14,and16. My oldest one has

cf. He is doing go od to.His doctors are IN duke hospital in Durham n.c. .

Im having problems with .He doesn't want to take his medicine or do his

vest. He's a typical teenager. He was working at arestaurant. for 2 years.

He got mad and quit. Anyway It will be nice to talk to other parents with

cf. thank-you for letting m e join . it helps to know that Im not alone.

Deborah Waller

---------------------------------

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