Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 Hi everyone, We had to take Eilish into emergency about 12pm Wednesday night as she was vomitting mucus and she coughed non-stop for over 5 hours. They have kept her in and put a PICC line in on Thursday. That was a headache. It bled alot at the sight when she was back from theatre so I had to sit there for 10minutes at apply pressure to the vein in her neck . There was blood all down her front and her gown, made me feel ill. Well anyway they said they would need to redress it the following morning. I chickened out and got to take the morning off work as stay there for it as I couldnt do it. Its still a headache as she having trouble with the backflow as apparently its a 'juicy vein' with out alot of blood following in it. So they had a clamp on the picc line when it wasnt in use (looks like green plastic scissors). I have her home with me for a couple of hours tonight before we head back aroung 9pm. So that were well be this next 2 weeks. I'll be there for the whole next week as cannot take time of as he's just back from holidays. said there were a few messages for me ( Kirsty - ) could you resend them as they have all vanished from my computer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 Oh ! (((Eilish))) I hope she gets well soon. mama to 1 yo w/CF and 3 yo woCF > > > Hi everyone, > > We had to take Eilish into emergency about 12pm Wednesday night as she was > vomitting mucus and she coughed non-stop for over 5 hours. They have kept her > in and put a PICC line in on Thursday. That was a headache. It bled alot at > the sight when she was back from theatre so I had to sit there for 10minutes > at apply pressure to the vein in her neck . There was blood all down her > front and her gown, made me feel ill. Well anyway they said they would need > to redress it the following morning. I chickened out and got to take > the morning off work as stay there for it as I couldnt do it. Its still a > headache as she having trouble with the backflow as apparently its a 'juicy > vein' with out alot of blood following in it. So they had a clamp on the picc > line when it wasnt in use (looks like green plastic scissors). I have her > home with me for a couple of hours tonight before we head back aroung 9pm. So > that were well be this next 2 weeks. I'll be there for the whole next week as > cannot take time of as he's just back from holidays. > > said there were a few messages for me ( Kirsty - ) could you resend > them as they have all vanished from my computer. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 I am soooooo sorry about this ER visit , etc. I hold her in my get well thoughts . I am heading back out to hotel to the CFF conf. It is the last day --Sunday ............ til 1:00 .... take care now, LOVE & HUGS< GRANDMOMBEV Eilish in hsp Hi everyone, We had to take Eilish into emergency about 12pm Wednesday night as she was vomitting mucus and she coughed non-stop for over 5 hours. They have kept her in and put a PICC line in on Thursday. That was a headache. It bled alot at the sight when she was back from theatre so I had to sit there for 10minutes at apply pressure to the vein in her neck . There was blood all down her front and her gown, made me feel ill. Well anyway they said they would need to redress it the following morning. I chickened out and got to take the morning off work as stay there for it as I couldnt do it. Its still a headache as she having trouble with the backflow as apparently its a 'juicy vein' with out alot of blood following in it. So they had a clamp on the picc line when it wasnt in use (looks like green plastic scissors). I have her home with me for a couple of hours tonight before we head back aroung 9pm. So that were well be this next 2 weeks. I'll be there for the whole next week as cannot take time of as he's just back from holidays. said there were a few messages for me ( Kirsty - ) could you resend them as they have all vanished from my computer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Hi , sorry to hear about Eilish :-(( Here is hoping that she'll get out of the club soon! Peace Torsten, dad of Fiona 4wcf e-mail: aberdeen95@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 , Big (((((((hugs))))))) for you all especially Eilish. I hope she bounces back really quickly! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 , Im sorry to hear that Eilish is not feeling well. I hope that she is feeling well very soon!!!! Hang in there! Take care, mom to Chris(16wocf),Dakota(13wocf),(10wocf),and Alyssa (2wcf) --- Baxter scottie@...> wrote: > Hi everyone, > > We had to take Eilish into emergency about 12pm > Wednesday night as she was vomitting mucus and she > coughed non-stop for over 5 hours. They have kept > her in and put a PICC line in on Thursday. That was > a headache. It bled alot at the sight when she was > back from theatre so I had to sit there for > 10minutes at apply pressure to the vein in her neck > . There was blood all down her front and her gown, > made me feel ill. Well anyway they said they would > need to redress it the following morning. I > chickened out and got to take the morning off > work as stay there for it as I couldnt do it. Its > still a headache as she having trouble with the > backflow as apparently its a 'juicy vein' with out > alot of blood following in it. So they had a clamp > on the picc line when it wasnt in use (looks like > green plastic scissors). I have her home with me > for a couple of hours tonight before we head back > aroung 9pm. So that were well be this next 2 weeks. > I'll be there for the whole next week as > cannot take time of as he's just back from holidays. > > said there were a few messages for me ( Kirsty > - ) could you resend them as they have all > vanished from my computer. > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Hi , So sorry to hear Eilish is in the hospital. Wish there was another way where you don't have to go through all this. Shantell is fighting an infection now too. The Tobi doesn't seem to be working quite as well as before. Her lung functions have dropped to the lowest ever (60). I know that's not bad for her age, but for her she always keeps in the 80-90 range. Hope Eilish is better soon, and be sure to take care of yourself. It's important that you keep well, too. FG, mom of Shantell 19 1/2 yr wcf > [Original Message] > > To: cfparents > > Date: 10/27/2001 8:02:56 PM > Subject: Eilish in hsp > > Hi everyone, > > We had to take Eilish into emergency about 12pm Wednesday night as she was vomitting mucus and she coughed non-stop for over 5 hours. They have kept her in and put a PICC line in on Thursday. That was a headache. It bled alot at the sight when she was back from theatre so I had to sit there for 10minutes at apply pressure to the vein in her neck . There was blood all down her front and her gown, made me feel ill. Wellanyway they said they would need to redress it the following morning. I chickened out and got to take the morning off work as stay there for it as I couldnt do it. Its still a headache as she having trouble with the backflow as apparently its a 'juicy vein' with out alot of blood following in it. So they had a clamp on the picc line when it wasnt in use (looks like green plastic scissors). I have her home with me for a couple of hours tonight before we head back aroung 9pm. So that were well be this next 2 weeks. I'll be there for the whole next week as cannot take time of as he's just back from holidays. > > said there were a few messages for me ( Kirsty - ) could you resend them as they have all vanished from my computer. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hi , They test by blowing and the finger. The gadget on the finger tests the oxygen levels in the body, which also gives a good indication how much is reaching the fingertips. Yes, her lung functions are down because she's fighting an infection. But it's really dusty here now, and the air quality is poor. That always triggers her asthma. She started the Tobi a couple of days ago, and now has no cough at all. She's usually good when on Tobi, but for some reason it wasn't as effective last time. I believe she wasn't getting as much Tobi inhaled due to the nebulizer, so we switched. Yes, we always do home IV's when necessary. However, we've been lucky (knock on wood)so far as she's only had to be on IV's three times in her life. It comes close to once a year since she turned 16 and got pseudomonas. She infuses them with the elastomeric device last time and it really wasn't that hard to do home IV's. I'm glad they found out what was wrong with Eilish's IV! I can't believe it had a hole in it! YIKES! Where is the IV placed, on her neck? Poor little one. I hope she gets out soon, two weeks is a long time. Shantell has never stayed in the hospital more than 3 days. Take care of yourself and that darling little girl! FG, mom of Shantell 19 1/2 years old. > [Original Message] > > To: cfparents > > Date: 10/30/2001 5:15:57 AM > Subject: Re: Eilish in hsp > > , > > Do they test the lung function by blowing or by the gadget on the finger? > Hope Shantell comes good again. Is hers lung function down because she's > sick? Does she do home IV's? > > > Eilish in hsp > > > > > > Hi everyone, > > > > > > > > > > We had to take Eilish into emergency about 12pm Wednesday night as she > > was vomitting mucus and she coughed non-stop for over 5 hours. They have > > kept her in and put a PICC line in on Thursday. That was a headache. It > > bled alot at the sight when she was back from theatre so I had to sit > there > > for 10minutes at apply pressure to the vein in her neck . There was blood > > all down her front and her gown, made me feel ill. Wellanyway they said > > they would need to redress it the following morning. I chickened out and > > got to take the morning off work as stay there for it as I couldnt > do > > it. Its still a headache as she having trouble with the backflow as > > apparently its a 'juicy vein' with out alot of blood following in it. So > > they had a clamp on the picc line when it wasnt in use (looks like green > > plastic scissors). I have her home with me for a couple of hours tonight > > before we head back aroung 9pm. So that were well be this next 2 weeks. > > I'll be there for the whole next week as cannot take time of as he's > > just back from holidays. > > > > > > > > > > said there were a few messages for me ( Kirsty - ) could you > > resend them as they have all vanished from my computer. > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 , Do they test the lung function by blowing or by the gadget on the finger? Hope Shantell comes good again. Is hers lung function down because she's sick? Does she do home IV's? Eilish in hsp > > > > Hi everyone, > > > > > > We had to take Eilish into emergency about 12pm Wednesday night as she > was vomitting mucus and she coughed non-stop for over 5 hours. They have > kept her in and put a PICC line in on Thursday. That was a headache. It > bled alot at the sight when she was back from theatre so I had to sit there > for 10minutes at apply pressure to the vein in her neck . There was blood > all down her front and her gown, made me feel ill. Wellanyway they said > they would need to redress it the following morning. I chickened out and > got to take the morning off work as stay there for it as I couldnt do > it. Its still a headache as she having trouble with the backflow as > apparently its a 'juicy vein' with out alot of blood following in it. So > they had a clamp on the picc line when it wasnt in use (looks like green > plastic scissors). I have her home with me for a couple of hours tonight > before we head back aroung 9pm. So that were well be this next 2 weeks. > I'll be there for the whole next week as cannot take time of as he's > just back from holidays. > > > > > > said there were a few messages for me ( Kirsty - ) could you > resend them as they have all vanished from my computer. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hi, troops! I assume that by " the finger thing, " you are talking about oxygen satura tion on room air, and that there are two other things being talked about, a " pipe " de vice for the sinuses, and conventional pulmonary function tests (PFTs) which involve blowing in and out, and are hard for young children to do. I am getting confused, which is not unusual for me. Love to all of you, in and out of " the club. " n Rojas Quote Link to comment Share on other sites More sharing options...
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