Re: I am coping, go figure

[Guest guest]

Glad you're still smiling Nicola! The reason I'm smiling at the moment is

because I

love these websites and I have benefited so much from knowing that other people

are

sharing the same headaches and triumphs. Let the rest of the world go jump in

the

lake. is a lucky boy to have such a dedicated Mummy - good luck with

your

fine-tuning. Ben is not good today. we have had about 4/5 seizures already and

it's

about 11.15, and he only woke up at nine. However I was expecting this because

as

of Friday night we're down to 400 mg epilim, and counting... Last night he slept

in

our bed as I don't want to miss a tonic if we get another one. But he's just

read a

story to me and it was amazing - I didn't point to a single word, or prompt him,

and

he didn't get lost! It's so worth all the effort, and the blurred vision in the

morning

after a night of waking bolt upright with every twitch from the other side of

the bed.

None of it was serious though.

Hope you sort the keys out soon etc etc

Rose Toms

[Guest guest]

My goodness... well is having fewer seizures, you still have a

home, a car (that you can't drive), and your family...Well, I say you

just about have it all. Good job on keeping such a positive attitude.

And about you sister, ignorant people just say ignorant things.

Hug you kids, life is the best gift of all.

mom to Ethan

2/03-4/04

I am coping, go figure

Hi all,

back online.s seizures have greatly decreased.He is still having

more

than anyone I know on the diet(now av 40 a week )and I have no idea why

they

are less but thank you god.

Perhaps because we have been off all drugs for 8 weeks?

Noticed when I gave him more soya milk for b/fast he had more seizures ,

coincidence?

In the last week we have moved, my husband has lost his car keys and

cell

phone in the log flume(water ride) at the amusement park(the car is

still there

days later as they cant get new keys for days).Some kids snapped off my

licence plate on the front of my car.My child care helper has quit and

my mother

arrives in less that a week, oh and muy sister told me I am a crap mum

because my eldest son is messy and I have not found a cure for epilepsy

by now.

I am still smiling, still ok, have no idea why(no I am not on prozac

:.) but

am very thankful.

Going to take the plunge and try some finetuning to the keto diet.

Nicola in Devon, UK

[Guest guest]

Hi Rose,

that was so lovely re Ben reading.Matt cannot read(he is 7 1/2) but I still

live in hope that he will one day.Before the keto diet he was unteachable now

he has learnt all his colour s and most of the alphabet.

Hubbys birthday tomorrow so off to blow up balloons(for the kids really).

Matt had a really bad am cluster , worse for weeks, but think i have found

a reason for it, so better luck tomorrow, talk soon,

Nicola

[Guest guest]

Hi Rose,

that was so lovely re Ben reading.Matt cannot read(he is 7 1/2) but I still

live in hope that he will one day.Before the keto diet he was unteachable now

he has learnt all his colour s and most of the alphabet.

Hubbys birthday tomorrow so off to blow up balloons(for the kids really).

Matt had a really bad am cluster , worse for weeks, but think i have found

a reason for it, so better luck tomorrow, talk soon,

Nicola

[Guest guest]

Hi Rose,

that was so lovely re Ben reading.Matt cannot read(he is 7 1/2) but I still

live in hope that he will one day.Before the keto diet he was unteachable now

he has learnt all his colour s and most of the alphabet.

Hubbys birthday tomorrow so off to blow up balloons(for the kids really).

Matt had a really bad am cluster , worse for weeks, but think i have found

a reason for it, so better luck tomorrow, talk soon,

Nicola