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I am not sure about how old they are when they start doing throat cultures.

My girls were 6 and 1 when they were diagnosed. But I wouldn't think it would

be hard to take a swap from the back of there throat. Deb

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I am guessing that the " throat culture " is taken from when a child

coughs up mucus? - Is there any way they do this on a baby as a baby

cannot cough up mucus? Do they do throat cultures in babies?

Kirsty & 4months wcf

> Does it really make a difference to wash your sheets every day?!

>

> Amy

>

> P.S. Deb -- the dr we saw from Ia City was Dr. Weinberger (unsure of

> spelling) Tristan did have a throat culture about 3 weeks ago right

when the

> cough started and it was negative, but the cough hasn't gotten

better,

> actually worse. He has been on two doses of Zithromax and we go

back to our

> dr next Tuesday. They are waiting to see how he responds to the

Zithromax

> and increased nebulizer treatments I guess. I can't stand the

waiting and

> get more worried by the day! The dr keeps telling us if he is

eating,

> sleeping, and active like normal then not to worry a lot. Easy for

him to

> say!

>

> Re: Pseudomonas

>

> Psuedomonas is a very common bacteria you find it in ear infections

a

> pimple

> is psueodomonas. They say that psuedomonas is on people skin all of

the

> time

> that is why good hand washing is very important. Kids that have CF

can

> get it

> in there lungs and it can do damage to there lungs if not treated.

It

> can

> enter though the nose or mouth. It is not the worst bacteria there

is

> Burkholderia Cepacia that is hard to treat because it doesn't always

> respond

> to antibiotic. But our doctor tells us that kids that are really

sick

> are

> more at risk to get this bacteria. The say it lives in things like

raw

> onions

> or dead tree bark. The best think to do to keep your kid healthy is

wash

> you

> hands and clean you sheets on you bed every day because if they

have

> psuedomonas and there spit gets on there sheets they can reinfect

> themselves

> and never get rid of it. I hope this helps Deb

>

>

>

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Hi , just to let you know in case you don't know children have different

signs and symptoms that don't always show up early, believe me my 3 1/2 year

old just was diagnosed about 2 1/2 months ago because of chronic diarehea

that just started one day actually about eight months ago, nothing else, he

basically has hayfever not any pulmonary problems except for a touch of

astma, which his dr isn't even worried about it. he is healthy and in the 75

percentile on his weight and 50 percentile on his height, I take the blame on

that I am short, only 5 ft, My son had a throat culture done recently and it

came back with some bacteria, I cant remember the name but the cf dr said

that was normal and even healthy people carry it, and that he did not want to

do anything about it because it was not affecting his lungs, so it is good

that they keep checking so they can keep an eye on your childs health, but

like I said it all depends on your child, each child is different. And to all

the other cfers what is that bacteria, for the life of me I cannot remember

it.

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Pseudomonas is the bacteria that people get that have CF but they have

treatment for that. It's not a bacteria they would let go. Maybe it's staph?

My daughter was diagnosed with staph and they have her on cephalexon and

found out yesterday that they want her on it for 2 years to see if they can

lower the colonies. Deb

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A throat culture is taken with a long swab. It looks similar to a q-

tip and it can and is done on babies.

Christen

mom to 2 yrs old wcf

> > Does it really make a difference to wash your sheets every

day?!

> >

> > Amy

> >

> > P.S. Deb -- the dr we saw from Ia City was Dr. Weinberger (unsure

of

> > spelling) Tristan did have a throat culture about 3 weeks ago

right

> when the

> > cough started and it was negative, but the cough hasn't gotten

> better,

> > actually worse. He has been on two doses of Zithromax and we go

> back to our

> > dr next Tuesday. They are waiting to see how he responds to the

> Zithromax

> > and increased nebulizer treatments I guess. I can't stand the

> waiting and

> > get more worried by the day! The dr keeps telling us if he is

> eating,

> > sleeping, and active like normal then not to worry a lot. Easy

for

> him to

> > say!

> >

> > Re: Pseudomonas

> >

> > Psuedomonas is a very common bacteria you find it in ear

infections

> a

> > pimple

> > is psueodomonas. They say that psuedomonas is on people skin all

of

> the

> > time

> > that is why good hand washing is very important. Kids that have

CF

> can

> > get it

> > in there lungs and it can do damage to there lungs if not

treated.

> It

> > can

> > enter though the nose or mouth. It is not the worst bacteria

there

> is

> > Burkholderia Cepacia that is hard to treat because it doesn't

always

> > respond

> > to antibiotic. But our doctor tells us that kids that are really

> sick

> > are

> > more at risk to get this bacteria. The say it lives in things

like

> raw

> > onions

> > or dead tree bark. The best think to do to keep your kid healthy

is

> wash

> > you

> > hands and clean you sheets on you bed every day because if they

> have

> > psuedomonas and there spit gets on there sheets they can reinfect

> > themselves

> > and never get rid of it. I hope this helps Deb

> >

> >

> >

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I am surpirsed that you have not had any throat cultures done yet. They just

stick a long q-tip swab down the back of the throat and send it in for

culture. They do them on at every appt. (twice a year, I would say),

just to make sure nothing is growing back there. They gag a little, but

it's only a quick second.

Melinda - 2.5 wcf and sister 25 wcf

Re: Pseudomonas

>

> Psuedomonas is a very common bacteria you find it in ear infections

a

> pimple

> is psueodomonas. They say that psuedomonas is on people skin all of

the

> time

> that is why good hand washing is very important. Kids that have CF

can

> get it

> in there lungs and it can do damage to there lungs if not treated.

It

> can

> enter though the nose or mouth. It is not the worst bacteria there

is

> Burkholderia Cepacia that is hard to treat because it doesn't always

> respond

> to antibiotic. But our doctor tells us that kids that are really

sick

> are

> more at risk to get this bacteria. The say it lives in things like

raw

> onions

> or dead tree bark. The best think to do to keep your kid healthy is

wash

> you

> hands and clean you sheets on you bed every day because if they

have

> psuedomonas and there spit gets on there sheets they can reinfect

> themselves

> and never get rid of it. I hope this helps Deb

>

>

>

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Kristy,

My son was born with CF 6 weeks ago and does still not

show any CF symptoms. He gets a throat culture done

every week so that they can be better prepared when he

does get sick.

-

Father of Jack 3yo wocf and Sam 5wks wcf

=====

Carlson Wagonlit Travel/Underwood Travel Assoc.

510 East Main Street

Carnegie, PA 15106

, fax

Website: www.CarlsonUTA.com

__________________________________________________

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,

Sorry to hear that Sam has Cf. Alot of the kids don't show any Cf symptoms

for a long time. I know my daughter had no sign until 13months, however she

was diagnosed at 3 weeks so we knew she had it.

Re: Throat Culture

> Kristy,

> My son was born with CF 6 weeks ago and does still not

> show any CF symptoms. He gets a throat culture done

> every week so that they can be better prepared when he

> does get sick.

> -

> Father of Jack 3yo wocf and Sam 5wks wcf

>

> =====

> Carlson Wagonlit Travel/Underwood Travel Assoc.

> 510 East Main Street

> Carnegie, PA 15106

> , fax

> Website: www.CarlsonUTA.com

>

> __________________________________________________

>

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Yes...they take a long stick - like a gian straw and put in down babys throat

into lungs..baby is screaming and parents sweating while holding down the

baby. Its terrible!!!!

Rosemary in NY who say with baby many times while they did this.....

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CALL anytime you have a question. It's your " CALL " . Your

paying them..........dearly too!!

LOVE , GRDMBEV

Re: Throat Culture

maybe that was it, should I call to see why they did not give him medicine

for that?

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Torsten,

Didn't you say that you daughter has staph? So they are not treating her

either? That is very interesting. They have her on cephalexon and they want

her on it or 2 years. They are also talking about putting my two girls on a

preventive treatment with tobi doing it for 28 days then go two months

without anything then do a throat culture then start the Tobi again. Are they

doing anything like this in Germany? The doctors are telling me that it will

keep pseudomonas away longer also. What is you input on this. Deb

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When my son Nik goes to the CF clinic they put this long tube up his nose

down his throat and it sucks out bloody mucus. This is the most terrible

part of going to the doctor's. He is 23 months and they have been doing

this for about a year.

Does anybody else have this done?

I would rather have a cotton stick.

Thank you

Jeri

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Hi Jerry,

I am in contact with a mom, whose daughter attends the clinic in

Copenhagen, Denmark. This procedure is done there too, it is a

compromise between the more invasive bronchoscopy and the throat

swab, that only tells what's going on in the throat.

Peace

Torsten, dad of Fiona 4wcf

>

> When my son Nik goes to the CF clinic they put this long tube up

his nose

> down his throat and it sucks out bloody mucus. This is the most

terrible

> part of going to the doctor's. He is 23 months and they have been

doing

> this for about a year.

>

> Does anybody else have this done?

>

> I would rather have a cotton stick.

>

> Thank you

> Jeri

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Hi Deb,

have your docs discussed the pros and cons of this treatment.

According to some studies long-term use of antibiotics against staph

increases the risk of getting infected with Pseudomonas (see abstract

below and the pdf-file about antistaphylococcal treatment in the

Research Files).

Peace

Torsten

Pediatr Pulmonol 2001 Jan;31(1):13-6

Effect of continuous antistaphylococcal therapy on the rate of P.

aeruginosa acquisition in patients with cystic fibrosis.

Ratjen F, Comes G, K, Posselt HG, Wagner TO, Harms K; German

Board of the European Registry for Cystic Fibrosis (ERCF).

Children's Hospital, University of Essen, Hufelandstr. 55, D-45122

Essen, Germany. f.ratjen@...

SUMMARY. Continuous therapy with antistaphylococcal antibiotics is

advocated by some cystic fibrosis (CF) centers, but it is unclear

whether this strategy favors early colonization with P. aeruginosa.

We used the data base for the German Centers of the European Registry

for Cystic Fibrosis (ERCF) to assess the effect of continuous

antistaphyloccocal therapy on the rate of P. aeruginosa acquisition

in CF patients. Patients included in this analysis had to be < 18

years of age, P. aeruginosa-negative prior to entry in the ERCF, and

to have had at least 2 additional P. aeruginosa-negative respiratory

cultures while followed in the ERCF. Of the 639 patients fulfilling

these criteria, 48.2% received continuous antistaphyloccocal therapy,

40.4% intermittent antibiotic therapy, and 11.4% no antibiotic

therapy. There were no differences between the groups in body mass

index, as well as forced vital capacity (FVC) and forced expired

volume in 1 sec (FEV(1)) at baseline. The rate at which patients

acquired positive respiratory cultures for Staph. aureus was

significantly lower in the group receiving continuous

antistaphyloccocal antibiotic therapy than in those not receiving

such therapy. Patients receiving continuous antistaphyloccocal

antibiotic therapy had a significantly higher rate of P. aeruginosa

acquisition compared to patients receiving only intermittent or no

antibiotic therapy. This difference was especially apparent for

children younger than age 6 years. We conclude that continuous

therapy with antistapyloccocal antibiotics directed against Staph.

aureus increases the risk of colonization with P. aeruginosa. How

this affects the clinical outcome of these patients remains to be

determined. Copyright 2001 Wiley-Liss, Inc.

PMID: 11180669 [PubMed - indexed for MEDLINE]

> Pseudomonas is the bacteria that people get that have CF but they

have

> treatment for that. It's not a bacteria they would let go. Maybe

it's staph?

> My daughter was diagnosed with staph and they have her on

cephalexon and

> found out yesterday that they want her on it for 2 years to see if

they can

> lower the colonies. Deb

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My daughter is 4 and was diagnosed at 4 days and they have never done this to

her! It does sound terrible. Where do you go to clinic?

Christy

Mom to Mackenzie 4 w/cf and Peyton 1 w/o cf

RE: Throat Culture

When my son Nik goes to the CF clinic they put this long tube up his nose

down his throat and it sucks out bloody mucus. This is the most terrible

part of going to the doctor's. He is 23 months and they have been doing

this for about a year.

Does anybody else have this done?

I would rather have a cotton stick.

Thank you

Jeri

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I go to the St 's in New York

Re: Throat Culture

My daughter is 4 and was diagnosed at 4 days and they have never done this

to her! It does sound terrible. Where do you go to clinic?

Christy

Mom to Mackenzie 4 w/cf and Peyton 1 w/o cf

RE: Throat Culture

When my son Nik goes to the CF clinic they put this long tube up his nose

down his throat and it sucks out bloody mucus. This is the most terrible

part of going to the doctor's. He is 23 months and they have been doing

this for about a year.

Does anybody else have this done?

I would rather have a cotton stick.

Thank you

Jeri

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Kirsty,

I am a little confused about that too, b/c they said they did a throat

culture on our son (17months) and it came back negative. He also had really

bad nasal congestion at the time, so I'm unclear on whether they actually

got what you are supposed to from the throat culture to test or if it was

just drainage from his nose. I am planning to ask our doc when we see him

on Tuesday.

Amy

Re: Pseudomonas

>

> Psuedomonas is a very common bacteria you find it in ear infections

a

> pimple

> is psueodomonas. They say that psuedomonas is on people skin all of

the

> time

> that is why good hand washing is very important. Kids that have CF

can

> get it

> in there lungs and it can do damage to there lungs if not treated.

It

> can

> enter though the nose or mouth. It is not the worst bacteria there

is

> Burkholderia Cepacia that is hard to treat because it doesn't always

> respond

> to antibiotic. But our doctor tells us that kids that are really

sick

> are

> more at risk to get this bacteria. The say it lives in things like

raw

> onions

> or dead tree bark. The best think to do to keep your kid healthy is

wash

> you

> hands and clean you sheets on you bed every day because if they

have

> psuedomonas and there spit gets on there sheets they can reinfect

> themselves

> and never get rid of it. I hope this helps Deb

>

>

>

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Hi,

My daughter swabbed positive for staph but was not treated either because the

amount was small. As it happened she got an ear infection a few weeks later and

was put on cephalexin (sp?). When she was swabbed again 6 weeks later she was

clear...so the antibiotic must have knocked it out. My ped. told us that 1/3 of

the population is walking around with staph in their throats and it is not worth

treating unless an infection flares.

Jane

gdattig@... wrote:

> Torsten,

> Didn't you say that you daughter has staph? So they are not treating her

> either? That is very interesting. They have her on cephalexon and they want

> her on it or 2 years. They are also talking about putting my two girls on a

> preventive treatment with tobi doing it for 28 days then go two months

> without anything then do a throat culture then start the Tobi again. Are they

> doing anything like this in Germany? The doctors are telling me that it will

> keep pseudomonas away longer also. What is you input on this. Deb

>

>

> PLEASE do not post religious emails to the list.

>

> -------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

>

>

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Throat cultures are done on my son, 19 months, by swabbing his throat with a

cotton swab. They use a tongue depressor and have him open wide.

Leigh, mom to three, youngest w/cf

Re: Pseudomonas

>

> Psuedomonas is a very common bacteria you find it in ear infections

a

> pimple

> is psueodomonas. They say that psuedomonas is on people skin all of

the

> time

> that is why good hand washing is very important. Kids that have CF

can

> get it

> in there lungs and it can do damage to there lungs if not treated.

It

> can

> enter though the nose or mouth. It is not the worst bacteria there

is

> Burkholderia Cepacia that is hard to treat because it doesn't always

> respond

> to antibiotic. But our doctor tells us that kids that are really

sick

> are

> more at risk to get this bacteria. The say it lives in things like

raw

> onions

> or dead tree bark. The best think to do to keep your kid healthy is

wash

> you

> hands and clean you sheets on you bed every day because if they

have

> psuedomonas and there spit gets on there sheets they can reinfect

> themselves

> and never get rid of it. I hope this helps Deb

>

>

>

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Deb,

we only treat Fiona's staph, when she shows symptoms (productive

cough). Then we give cefachlor for three weeks and usually the

symptoms are gone afterwards for three to six months.

TOBI still isn't available here as a standard treatment. I could try

to get it prescribed, but won't fight for it at the moment. But aside

from that preventative inhalation of TOBI sounds interesting. I

wished they would have studied this intensively already. I would opt

for this rather than put her on antistaphylococcal antibiotics alone.

Torsten

> Torsten,

> Didn't you say that you daughter has staph? So they are not

treating her

> either? That is very interesting. They have her on cephalexon and

they want

> her on it or 2 years. They are also talking about putting my two

girls on a

> preventive treatment with tobi doing it for 28 days then go two

months

> without anything then do a throat culture then start the Tobi

again. Are they

> doing anything like this in Germany? The doctors are telling me

that it will

> keep pseudomonas away longer also. What is you input on this. Deb

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Christy -

I have never heard of this being done. My sister is 25 wcf, I'll ask her if

she has had this done?!?!

Melinda - son 2.5 wcf and sister 25 wcf

Re: Throat Culture

My daughter is 4 and was diagnosed at 4 days and they have never done this

to her! It does sound terrible. Where do you go to clinic?

Christy

Mom to Mackenzie 4 w/cf and Peyton 1 w/o cf

RE: Throat Culture

When my son Nik goes to the CF clinic they put this long tube up his

nose

down his throat and it sucks out bloody mucus. This is the most

terrible

part of going to the doctor's. He is 23 months and they have been doing

this for about a year.

Does anybody else have this done?

I would rather have a cotton stick.

Thank you

Jeri

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