Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I am not sure about how old they are when they start doing throat cultures. My girls were 6 and 1 when they were diagnosed. But I wouldn't think it would be hard to take a swap from the back of there throat. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Do they complain of sore throats all the time? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I am guessing that the " throat culture " is taken from when a child coughs up mucus? - Is there any way they do this on a baby as a baby cannot cough up mucus? Do they do throat cultures in babies? Kirsty & 4months wcf > Does it really make a difference to wash your sheets every day?! > > Amy > > P.S. Deb -- the dr we saw from Ia City was Dr. Weinberger (unsure of > spelling) Tristan did have a throat culture about 3 weeks ago right when the > cough started and it was negative, but the cough hasn't gotten better, > actually worse. He has been on two doses of Zithromax and we go back to our > dr next Tuesday. They are waiting to see how he responds to the Zithromax > and increased nebulizer treatments I guess. I can't stand the waiting and > get more worried by the day! The dr keeps telling us if he is eating, > sleeping, and active like normal then not to worry a lot. Easy for him to > say! > > Re: Pseudomonas > > Psuedomonas is a very common bacteria you find it in ear infections a > pimple > is psueodomonas. They say that psuedomonas is on people skin all of the > time > that is why good hand washing is very important. Kids that have CF can > get it > in there lungs and it can do damage to there lungs if not treated. It > can > enter though the nose or mouth. It is not the worst bacteria there is > Burkholderia Cepacia that is hard to treat because it doesn't always > respond > to antibiotic. But our doctor tells us that kids that are really sick > are > more at risk to get this bacteria. The say it lives in things like raw > onions > or dead tree bark. The best think to do to keep your kid healthy is wash > you > hands and clean you sheets on you bed every day because if they have > psuedomonas and there spit gets on there sheets they can reinfect > themselves > and never get rid of it. I hope this helps Deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Hi , just to let you know in case you don't know children have different signs and symptoms that don't always show up early, believe me my 3 1/2 year old just was diagnosed about 2 1/2 months ago because of chronic diarehea that just started one day actually about eight months ago, nothing else, he basically has hayfever not any pulmonary problems except for a touch of astma, which his dr isn't even worried about it. he is healthy and in the 75 percentile on his weight and 50 percentile on his height, I take the blame on that I am short, only 5 ft, My son had a throat culture done recently and it came back with some bacteria, I cant remember the name but the cf dr said that was normal and even healthy people carry it, and that he did not want to do anything about it because it was not affecting his lungs, so it is good that they keep checking so they can keep an eye on your childs health, but like I said it all depends on your child, each child is different. And to all the other cfers what is that bacteria, for the life of me I cannot remember it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Pseudomonas is the bacteria that people get that have CF but they have treatment for that. It's not a bacteria they would let go. Maybe it's staph? My daughter was diagnosed with staph and they have her on cephalexon and found out yesterday that they want her on it for 2 years to see if they can lower the colonies. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 maybe that was it, should I call to see why they did not give him medicine for that? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 A throat culture is taken with a long swab. It looks similar to a q- tip and it can and is done on babies. Christen mom to 2 yrs old wcf > > Does it really make a difference to wash your sheets every day?! > > > > Amy > > > > P.S. Deb -- the dr we saw from Ia City was Dr. Weinberger (unsure of > > spelling) Tristan did have a throat culture about 3 weeks ago right > when the > > cough started and it was negative, but the cough hasn't gotten > better, > > actually worse. He has been on two doses of Zithromax and we go > back to our > > dr next Tuesday. They are waiting to see how he responds to the > Zithromax > > and increased nebulizer treatments I guess. I can't stand the > waiting and > > get more worried by the day! The dr keeps telling us if he is > eating, > > sleeping, and active like normal then not to worry a lot. Easy for > him to > > say! > > > > Re: Pseudomonas > > > > Psuedomonas is a very common bacteria you find it in ear infections > a > > pimple > > is psueodomonas. They say that psuedomonas is on people skin all of > the > > time > > that is why good hand washing is very important. Kids that have CF > can > > get it > > in there lungs and it can do damage to there lungs if not treated. > It > > can > > enter though the nose or mouth. It is not the worst bacteria there > is > > Burkholderia Cepacia that is hard to treat because it doesn't always > > respond > > to antibiotic. But our doctor tells us that kids that are really > sick > > are > > more at risk to get this bacteria. The say it lives in things like > raw > > onions > > or dead tree bark. The best think to do to keep your kid healthy is > wash > > you > > hands and clean you sheets on you bed every day because if they > have > > psuedomonas and there spit gets on there sheets they can reinfect > > themselves > > and never get rid of it. I hope this helps Deb > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I would if it was psuedomonas. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I am surpirsed that you have not had any throat cultures done yet. They just stick a long q-tip swab down the back of the throat and send it in for culture. They do them on at every appt. (twice a year, I would say), just to make sure nothing is growing back there. They gag a little, but it's only a quick second. Melinda - 2.5 wcf and sister 25 wcf Re: Pseudomonas > > Psuedomonas is a very common bacteria you find it in ear infections a > pimple > is psueodomonas. They say that psuedomonas is on people skin all of the > time > that is why good hand washing is very important. Kids that have CF can > get it > in there lungs and it can do damage to there lungs if not treated. It > can > enter though the nose or mouth. It is not the worst bacteria there is > Burkholderia Cepacia that is hard to treat because it doesn't always > respond > to antibiotic. But our doctor tells us that kids that are really sick > are > more at risk to get this bacteria. The say it lives in things like raw > onions > or dead tree bark. The best think to do to keep your kid healthy is wash > you > hands and clean you sheets on you bed every day because if they have > psuedomonas and there spit gets on there sheets they can reinfect > themselves > and never get rid of it. I hope this helps Deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Kristy, My son was born with CF 6 weeks ago and does still not show any CF symptoms. He gets a throat culture done every week so that they can be better prepared when he does get sick. - Father of Jack 3yo wocf and Sam 5wks wcf ===== Carlson Wagonlit Travel/Underwood Travel Assoc. 510 East Main Street Carnegie, PA 15106 , fax Website: www.CarlsonUTA.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 , Sorry to hear that Sam has Cf. Alot of the kids don't show any Cf symptoms for a long time. I know my daughter had no sign until 13months, however she was diagnosed at 3 weeks so we knew she had it. Re: Throat Culture > Kristy, > My son was born with CF 6 weeks ago and does still not > show any CF symptoms. He gets a throat culture done > every week so that they can be better prepared when he > does get sick. > - > Father of Jack 3yo wocf and Sam 5wks wcf > > ===== > Carlson Wagonlit Travel/Underwood Travel Assoc. > 510 East Main Street > Carnegie, PA 15106 > , fax > Website: www.CarlsonUTA.com > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Yes...they take a long stick - like a gian straw and put in down babys throat into lungs..baby is screaming and parents sweating while holding down the baby. Its terrible!!!! Rosemary in NY who say with baby many times while they did this..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 CALL anytime you have a question. It's your " CALL " . Your paying them..........dearly too!! LOVE , GRDMBEV Re: Throat Culture maybe that was it, should I call to see why they did not give him medicine for that? PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Jeri, Oh how awful I have never heard of that being done before. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Torsten, Didn't you say that you daughter has staph? So they are not treating her either? That is very interesting. They have her on cephalexon and they want her on it or 2 years. They are also talking about putting my two girls on a preventive treatment with tobi doing it for 28 days then go two months without anything then do a throat culture then start the Tobi again. Are they doing anything like this in Germany? The doctors are telling me that it will keep pseudomonas away longer also. What is you input on this. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 When my son Nik goes to the CF clinic they put this long tube up his nose down his throat and it sucks out bloody mucus. This is the most terrible part of going to the doctor's. He is 23 months and they have been doing this for about a year. Does anybody else have this done? I would rather have a cotton stick. Thank you Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi Jerry, I am in contact with a mom, whose daughter attends the clinic in Copenhagen, Denmark. This procedure is done there too, it is a compromise between the more invasive bronchoscopy and the throat swab, that only tells what's going on in the throat. Peace Torsten, dad of Fiona 4wcf > > When my son Nik goes to the CF clinic they put this long tube up his nose > down his throat and it sucks out bloody mucus. This is the most terrible > part of going to the doctor's. He is 23 months and they have been doing > this for about a year. > > Does anybody else have this done? > > I would rather have a cotton stick. > > Thank you > Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi Deb, have your docs discussed the pros and cons of this treatment. According to some studies long-term use of antibiotics against staph increases the risk of getting infected with Pseudomonas (see abstract below and the pdf-file about antistaphylococcal treatment in the Research Files). Peace Torsten Pediatr Pulmonol 2001 Jan;31(1):13-6 Effect of continuous antistaphylococcal therapy on the rate of P. aeruginosa acquisition in patients with cystic fibrosis. Ratjen F, Comes G, K, Posselt HG, Wagner TO, Harms K; German Board of the European Registry for Cystic Fibrosis (ERCF). Children's Hospital, University of Essen, Hufelandstr. 55, D-45122 Essen, Germany. f.ratjen@... SUMMARY. Continuous therapy with antistaphylococcal antibiotics is advocated by some cystic fibrosis (CF) centers, but it is unclear whether this strategy favors early colonization with P. aeruginosa. We used the data base for the German Centers of the European Registry for Cystic Fibrosis (ERCF) to assess the effect of continuous antistaphyloccocal therapy on the rate of P. aeruginosa acquisition in CF patients. Patients included in this analysis had to be < 18 years of age, P. aeruginosa-negative prior to entry in the ERCF, and to have had at least 2 additional P. aeruginosa-negative respiratory cultures while followed in the ERCF. Of the 639 patients fulfilling these criteria, 48.2% received continuous antistaphyloccocal therapy, 40.4% intermittent antibiotic therapy, and 11.4% no antibiotic therapy. There were no differences between the groups in body mass index, as well as forced vital capacity (FVC) and forced expired volume in 1 sec (FEV(1)) at baseline. The rate at which patients acquired positive respiratory cultures for Staph. aureus was significantly lower in the group receiving continuous antistaphyloccocal antibiotic therapy than in those not receiving such therapy. Patients receiving continuous antistaphyloccocal antibiotic therapy had a significantly higher rate of P. aeruginosa acquisition compared to patients receiving only intermittent or no antibiotic therapy. This difference was especially apparent for children younger than age 6 years. We conclude that continuous therapy with antistapyloccocal antibiotics directed against Staph. aureus increases the risk of colonization with P. aeruginosa. How this affects the clinical outcome of these patients remains to be determined. Copyright 2001 Wiley-Liss, Inc. PMID: 11180669 [PubMed - indexed for MEDLINE] > Pseudomonas is the bacteria that people get that have CF but they have > treatment for that. It's not a bacteria they would let go. Maybe it's staph? > My daughter was diagnosed with staph and they have her on cephalexon and > found out yesterday that they want her on it for 2 years to see if they can > lower the colonies. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 My daughter is 4 and was diagnosed at 4 days and they have never done this to her! It does sound terrible. Where do you go to clinic? Christy Mom to Mackenzie 4 w/cf and Peyton 1 w/o cf RE: Throat Culture When my son Nik goes to the CF clinic they put this long tube up his nose down his throat and it sucks out bloody mucus. This is the most terrible part of going to the doctor's. He is 23 months and they have been doing this for about a year. Does anybody else have this done? I would rather have a cotton stick. Thank you Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 I go to the St 's in New York Re: Throat Culture My daughter is 4 and was diagnosed at 4 days and they have never done this to her! It does sound terrible. Where do you go to clinic? Christy Mom to Mackenzie 4 w/cf and Peyton 1 w/o cf RE: Throat Culture When my son Nik goes to the CF clinic they put this long tube up his nose down his throat and it sucks out bloody mucus. This is the most terrible part of going to the doctor's. He is 23 months and they have been doing this for about a year. Does anybody else have this done? I would rather have a cotton stick. Thank you Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Kirsty, I am a little confused about that too, b/c they said they did a throat culture on our son (17months) and it came back negative. He also had really bad nasal congestion at the time, so I'm unclear on whether they actually got what you are supposed to from the throat culture to test or if it was just drainage from his nose. I am planning to ask our doc when we see him on Tuesday. Amy Re: Pseudomonas > > Psuedomonas is a very common bacteria you find it in ear infections a > pimple > is psueodomonas. They say that psuedomonas is on people skin all of the > time > that is why good hand washing is very important. Kids that have CF can > get it > in there lungs and it can do damage to there lungs if not treated. It > can > enter though the nose or mouth. It is not the worst bacteria there is > Burkholderia Cepacia that is hard to treat because it doesn't always > respond > to antibiotic. But our doctor tells us that kids that are really sick > are > more at risk to get this bacteria. The say it lives in things like raw > onions > or dead tree bark. The best think to do to keep your kid healthy is wash > you > hands and clean you sheets on you bed every day because if they have > psuedomonas and there spit gets on there sheets they can reinfect > themselves > and never get rid of it. I hope this helps Deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi, My daughter swabbed positive for staph but was not treated either because the amount was small. As it happened she got an ear infection a few weeks later and was put on cephalexin (sp?). When she was swabbed again 6 weeks later she was clear...so the antibiotic must have knocked it out. My ped. told us that 1/3 of the population is walking around with staph in their throats and it is not worth treating unless an infection flares. Jane gdattig@... wrote: > Torsten, > Didn't you say that you daughter has staph? So they are not treating her > either? That is very interesting. They have her on cephalexon and they want > her on it or 2 years. They are also talking about putting my two girls on a > preventive treatment with tobi doing it for 28 days then go two months > without anything then do a throat culture then start the Tobi again. Are they > doing anything like this in Germany? The doctors are telling me that it will > keep pseudomonas away longer also. What is you input on this. Deb > > > PLEASE do not post religious emails to the list. > > ------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Throat cultures are done on my son, 19 months, by swabbing his throat with a cotton swab. They use a tongue depressor and have him open wide. Leigh, mom to three, youngest w/cf Re: Pseudomonas > > Psuedomonas is a very common bacteria you find it in ear infections a > pimple > is psueodomonas. They say that psuedomonas is on people skin all of the > time > that is why good hand washing is very important. Kids that have CF can > get it > in there lungs and it can do damage to there lungs if not treated. It > can > enter though the nose or mouth. It is not the worst bacteria there is > Burkholderia Cepacia that is hard to treat because it doesn't always > respond > to antibiotic. But our doctor tells us that kids that are really sick > are > more at risk to get this bacteria. The say it lives in things like raw > onions > or dead tree bark. The best think to do to keep your kid healthy is wash > you > hands and clean you sheets on you bed every day because if they have > psuedomonas and there spit gets on there sheets they can reinfect > themselves > and never get rid of it. I hope this helps Deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Deb, we only treat Fiona's staph, when she shows symptoms (productive cough). Then we give cefachlor for three weeks and usually the symptoms are gone afterwards for three to six months. TOBI still isn't available here as a standard treatment. I could try to get it prescribed, but won't fight for it at the moment. But aside from that preventative inhalation of TOBI sounds interesting. I wished they would have studied this intensively already. I would opt for this rather than put her on antistaphylococcal antibiotics alone. Torsten > Torsten, > Didn't you say that you daughter has staph? So they are not treating her > either? That is very interesting. They have her on cephalexon and they want > her on it or 2 years. They are also talking about putting my two girls on a > preventive treatment with tobi doing it for 28 days then go two months > without anything then do a throat culture then start the Tobi again. Are they > doing anything like this in Germany? The doctors are telling me that it will > keep pseudomonas away longer also. What is you input on this. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Christy - I have never heard of this being done. My sister is 25 wcf, I'll ask her if she has had this done?!?! Melinda - son 2.5 wcf and sister 25 wcf Re: Throat Culture My daughter is 4 and was diagnosed at 4 days and they have never done this to her! It does sound terrible. Where do you go to clinic? Christy Mom to Mackenzie 4 w/cf and Peyton 1 w/o cf RE: Throat Culture When my son Nik goes to the CF clinic they put this long tube up his nose down his throat and it sucks out bloody mucus. This is the most terrible part of going to the doctor's. He is 23 months and they have been doing this for about a year. Does anybody else have this done? I would rather have a cotton stick. Thank you Jeri Quote Link to comment Share on other sites More sharing options...
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