Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Hi Yes you have to be a member to join the forum - if you have any problems then let me know - Bruce (our web designer) has kept it pretty simple so I have no doubt that you will be fine! Be nice if you did pop in - we have a load of new people starting the diet soon (via the trial) so we are expecting more to come on site that will need some support in those early panic stricken days!!!!! is okay - his blood tests and gases have come back and his consultant is happy with them all. He is not acidic, he is alkaline - can you explain to me what the importance of these two are (sorry if I am sounding thick here). His glucose blood readings are coming down in the mornings, they are averaging about 3.9 whereas before they were 4.8 and 4.9, we have kept the calorie increase at 400 cals at the moment - but think that we will have to reduce slightly once this settles down. is tending to have about 3 seizures early morning and be a bit wobbly/spaced in the mornings but then get better in the afternoons. His ketones are not as high especially in the morning so I am adding more MCT oil to try and get ketones up - but at the moment not having much luck! Will keep going with that one. The one thing that is worrying me is that when he wakes up in the morning he has lost the use of his left side. It is after these early morning seizures and it is like he can't put any weight on his left leg. He certainly can't walk without a lot of support. These seizures are really affecting his left side at the moment. I will reply to your e-mail later today (when I get a minute - ha ha) - got a gathering of keto-kids and mums this afternoon!!! Take Care Emma - Mum to - doing okay. > Banish the guilt and anger Emma - like I said last night, 20/20 hindsight > and live and learn, it is not a common scenario and not one that most would > be on the look out for. I felt that too initially though, hell I have felt > it with just about everything I think that has gone wrong with 's > treatments over the years fullstop, but we'll end up as little balls curled > up on the floor if we don't let things like that go > How is he doing now? Still improving? Keeping everything crossed for you. > Will def keep a lookout for from NZ, and will try and pop into > s friends later on this afternoon and see if I can log in to send a > message, er, do we log in to do that btw? I saw the various forums, but > wasn't sure if you had to be a member to say anything? Be gentle with me, > pute techie, I am not..... > > > > ----- Original Message ----- > From: " ketomum68 " > > > The guilt is setting in now - I had noticed he > > wasn't getting taller but he was doing so well and was bright and > > happy etc, all the time with a ticking timebomb ready to go off. > > Not a mistake I will be making again. Urrrrgh - I am so angry at > > myself for not pushing the fact harder that he had not grown. > > > ended up having 3 seizures last night but with no meds - so > > that is an improvement on the night before (half of me is not wanting > > to write this in case he goes nuts again tonight) I will be > > monitoring him again tonight (sleep, what is that?!) > > > > Thanks again - you are a star! > > > > Emma. - Mum to a brighter today. > > > > P.S. We have had a lady that has come onto s Friends site > > from Wellington in New Zealand whose child has been on the diet for 7 > > years! She is called and she says that she is excited about > > talking to other families about the diet as she feels that she is on > > her own - 2 of us so far have replied to her and said that she has a > > wealth of knowledge in New Zealand - namely YOU!!! We have pointed > > her over to this site as well - so keep a look out for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Will come back later Emma, but just wanted to know if all 's blood gases (like base excess, bicarb etc) showed as alkaline in the testing, or was it just his actual blood ph? Is this usual for him, do you have other blood gases to compare to? Flying out the door shortly (fri evening here, yipeee....) back tomorrow hopefully, Re: Update//acidic-alkaline help? > Hi > > Yes you have to be a member to join the forum - if you have any > problems then let me know - Bruce (our web designer) has kept it > pretty simple so I have no doubt that you will be fine! Be nice if > you did pop in - we have a load of new people starting the diet soon > (via the trial) so we are expecting more to come on site that will > need some support in those early panic stricken days!!!!! > > is okay - his blood tests and gases have come back and his > consultant is happy with them all. He is not acidic, he is alkaline - > can you explain to me what the importance of these two are (sorry if > I am sounding thick here). His glucose blood readings are coming > down in the mornings, they are averaging about 3.9 whereas before > they were 4.8 and 4.9, we have kept the calorie increase at 400 cals > at the moment - but think that we will have to reduce slightly once > this settles down. is tending to have about 3 seizures early > morning and be a bit wobbly/spaced in the mornings but then get > better in the afternoons. His ketones are not as high especially in > the morning so I am adding more MCT oil to try and get ketones up - > but at the moment not having much luck! Will keep going with that > one. > > The one thing that is worrying me is that when he wakes up in the > morning he has lost the use of his left side. It is after these > early morning seizures and it is like he can't put any weight on his > left leg. He certainly can't walk without a lot of support. These > seizures are really affecting his left side at the moment. > > I will reply to your e-mail later today (when I get a minute - ha > ha) - got a gathering of keto-kids and mums this afternoon!!! > > Take Care > > Emma - Mum to - doing okay. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 > Flying out the door shortly (fri evening here, yipeee....) back tomorrow > hopefully, > > > Ahem... flying out the door to where, might I ask??? Actually, I'm just (sniff, sniff) jealous. Have one for me, k? Cammie Quote Link to comment Share on other sites More sharing options...
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