Re: Celiac panel .... & other tests

[Guest guest]

The simplest thing might be to just go gluten-free for a trial. My

daughter also had high IgG to gliadin, as well as gluten, wheat and

relatives of wheat, and dairy products were totally off the charts.

She is not currently GFCF, but it was only after implementing the

diet that she was able to potty train.

Kerri

>

> Hi all

>

> I have been so busy lately (vacation, IEP, therapies) that I have

not

> been able to keep up with messages.

> I do have some lab results back and I could use some help

> interpreting. Of course nothing is obviously wrong (that would be

to

> easy) and my pediatrician isn't looking beyond the basics.

>

> Will's gliadin IGG is 14.1 (the lab has <10 as normal). All other -

> gliadin IGA, reticulin IGA and endomysial IGA are in the normal

range.

>

> What does the elevated gliadin IGG mean? From my google search it

can

> be a false positive for celiac. Should we see another dr? Who? an

> allergist/immunologist or a gstroenterologist?

>

> Thanks for the input!!

>

> Martha

>

[Guest guest]

In the past a positive IgG with negative TTG and other celiac

markers was considered a " false positive'. But WAY TOO MANY of our

kids with apraxia have a positive anti gliadin IgG. Since this

antibody can cross react to cells of the brain as if it were gluten

it is very suspect that all these kids have positive gliadin

antibodies. I'm wondering if this is part of the apraxia picture for

many kids???? Did you have other fat soluble vitamins checked?

I would suggest you trial a gluten/dairy free diet for a month or 2

and keep a diary of any changes you see. Some changes that seem

subtle initially are obviously changes down the road. If nothing

happens after this time, return to your previous diet.

Does your child have any gastrointestinal symptoms? Like diarrhea,

constipation, reflux, abd pain...food allergies, asthma etc? Just

wondering. Some people would recommend a biopsy of the gut to rule

out celiac disease, but I suspect it would be negative...unless

there are other risk factors for celiac disease...like symptoms,

failure to thrive or family history. -

> Hi all

>

> I have been so busy lately (vacation, IEP, therapies) that I have

not

> been able to keep up with messages.

> I do have some lab results back and I could use some help

> interpreting. Of course nothing is obviously wrong (that would be

to

> easy) and my pediatrician isn't looking beyond the basics.

>

> Will's gliadin IGG is 14.1 (the lab has <10 as normal). All other -

> gliadin IGA, reticulin IGA and endomysial IGA are in the normal

range.

>

> What does the elevated gliadin IGG mean? From my google search it

can

> be a false positive for celiac. Should we see another dr? Who? an

> allergist/immunologist or a gstroenterologist?

>

> Thanks for the input!!

>

> Martha

>

[Guest guest]

The simplest thing might be to just go gluten-free for a trial. My

daughter also had high IgG to gliadin, as well as gluten, wheat and

relatives of wheat, and dairy products were totally off the charts.

She is not currently GFCF, but it was only after implementing the

diet that she was able to potty train.

Kerri

>

> Hi all

>

> I have been so busy lately (vacation, IEP, therapies) that I have

not

> been able to keep up with messages.

> I do have some lab results back and I could use some help

> interpreting. Of course nothing is obviously wrong (that would be

to

> easy) and my pediatrician isn't looking beyond the basics.

>

> Will's gliadin IGG is 14.1 (the lab has <10 as normal). All other -

> gliadin IGA, reticulin IGA and endomysial IGA are in the normal

range.

>

> What does the elevated gliadin IGG mean? From my google search it

can

> be a false positive for celiac. Should we see another dr? Who? an

> allergist/immunologist or a gstroenterologist?

>

> Thanks for the input!!

>

> Martha

>

[Guest guest]

In the past a positive IgG with negative TTG and other celiac

markers was considered a " false positive'. But WAY TOO MANY of our

kids with apraxia have a positive anti gliadin IgG. Since this

antibody can cross react to cells of the brain as if it were gluten

it is very suspect that all these kids have positive gliadin

antibodies. I'm wondering if this is part of the apraxia picture for

many kids???? Did you have other fat soluble vitamins checked?

I would suggest you trial a gluten/dairy free diet for a month or 2

and keep a diary of any changes you see. Some changes that seem

subtle initially are obviously changes down the road. If nothing

happens after this time, return to your previous diet.

Does your child have any gastrointestinal symptoms? Like diarrhea,

constipation, reflux, abd pain...food allergies, asthma etc? Just

wondering. Some people would recommend a biopsy of the gut to rule

out celiac disease, but I suspect it would be negative...unless

there are other risk factors for celiac disease...like symptoms,

failure to thrive or family history. -

> Hi all

>

> I have been so busy lately (vacation, IEP, therapies) that I have

not

> been able to keep up with messages.

> I do have some lab results back and I could use some help

> interpreting. Of course nothing is obviously wrong (that would be

to

> easy) and my pediatrician isn't looking beyond the basics.

>

> Will's gliadin IGG is 14.1 (the lab has <10 as normal). All other -

> gliadin IGA, reticulin IGA and endomysial IGA are in the normal

range.

>

> What does the elevated gliadin IGG mean? From my google search it

can

> be a false positive for celiac. Should we see another dr? Who? an

> allergist/immunologist or a gstroenterologist?

>

> Thanks for the input!!

>

> Martha

>

[Guest guest]

Clauia - Is reflux very prevalent among people with celiac disease?

I've seen it listed as a possible sign but no more than that. My son

has had reflux his whole life and has been taking Zantac to control

it since he was 3 months old (he's 3 years, 4 months now). He also

has a peanut allergy. When I was nursing it seemed that everything I

ate hurt his tummy but it seemed to correspond more to acidic

(e.g.orange juice) and spicy (e.g.spaghetti), so I lived on turkey

sandwiches for a year. I never cut out gluten - never even gave it a

thought.

I picked up Drs. orders today to have blood work done

for " everything " (I requested a list of tests that you had posted

earlier - thank you! The ped didn't question me on bit on any of

them. It includes a celiac panel. My son and I both went gluten

free 1.5 weeks ago but I've reintroduced a some back into his diet so

we can get more reliable results. We've kept the dairy in. BTW - I

feel GREAT on a gluten-free diet!

I'm sure I'll need to post our results and ask your advice as our ped

has already told me he expects to get a low yield of info from it but

supports it so that " I'll know " and won't have to keep wondering.

I'm really hoping to prove him wrong.

> In the past a positive IgG with negative TTG and other celiac

> markers was considered a " false positive'. But WAY TOO MANY of our

> kids with apraxia have a positive anti gliadin IgG. Since this

> antibody can cross react to cells of the brain as if it were gluten

> it is very suspect that all these kids have positive gliadin

> antibodies. I'm wondering if this is part of the apraxia picture

for

> many kids???? Did you have other fat soluble vitamins checked?

>

> I would suggest you trial a gluten/dairy free diet for a month or 2

> and keep a diary of any changes you see. Some changes that seem

> subtle initially are obviously changes down the road. If nothing

> happens after this time, return to your previous diet.

>

> Does your child have any gastrointestinal symptoms? Like diarrhea,

> constipation, reflux, abd pain...food allergies, asthma etc? Just

> wondering. Some people would recommend a biopsy of the gut to rule

> out celiac disease, but I suspect it would be negative...unless

> there are other risk factors for celiac disease...like symptoms,

> failure to thrive or family history. -

>

>

> > Hi all

> >

> > I have been so busy lately (vacation, IEP, therapies) that I have

> not

> > been able to keep up with messages.

> > I do have some lab results back and I could use some help

> > interpreting. Of course nothing is obviously wrong (that would be

> to

> > easy) and my pediatrician isn't looking beyond the basics.

> >

> > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

other -

>

> > gliadin IGA, reticulin IGA and endomysial IGA are in the normal

> range.

> >

> > What does the elevated gliadin IGG mean? From my google search it

> can

> > be a false positive for celiac. Should we see another dr? Who? an

> > allergist/immunologist or a gstroenterologist?

> >

> > Thanks for the input!!

> >

> > Martha

> >

>

[Guest guest]

I did get other tests - carnitine (free, total & esthers), Vits D,

K, A & E were all normal. Howver E & K could be considered low side

of normal. Lead was negative for a recent exposure (but haven't done

hair yet).

I did read on celiac.com that something like 20% of people with a

positive gliadin Igg antibodies have some other intestinal disorder.

hmmmmmm I have been reading " Children with Starving Brains " and this

makes me wonder about overall intestinal health. I just don't know

where to go with the info. My pediatrician is just not on board with

all of this and there are no DAN doctors in the area - and if we

have to travel I want to be sure it is necessary and worthwhile.

I am willing to try GF but does it have to be GF/CF? Oh man that

will be tough. I can hit the healthfood store to get alternative

products but my son literally only eats gluten!!! He actually likes

raw instant oatmeal!!!! I had beeen hoping the test would shed some

light without putting our household through that level of stress.

Martha

In , " claudia.morris "

<claudia.morris@...> wrote:

>

>

> In the past a positive IgG with negative TTG and other celiac

> markers was considered a " false positive'. But WAY TOO MANY of our

> kids with apraxia have a positive anti gliadin IgG. Since this

> antibody can cross react to cells of the brain as if it were

gluten

> it is very suspect that all these kids have positive gliadin

> antibodies. I'm wondering if this is part of the apraxia picture

for

> many kids???? Did you have other fat soluble vitamins checked?

>

> I would suggest you trial a gluten/dairy free diet for a month or

2

> and keep a diary of any changes you see. Some changes that seem

> subtle initially are obviously changes down the road. If nothing

> happens after this time, return to your previous diet.

>

> Does your child have any gastrointestinal symptoms? Like diarrhea,

> constipation, reflux, abd pain...food allergies, asthma etc? Just

> wondering. Some people would recommend a biopsy of the gut to

rule

> out celiac disease, but I suspect it would be negative...unless

> there are other risk factors for celiac disease...like symptoms,

> failure to thrive or family history. -

>

>

> > Hi all

> >

> > I have been so busy lately (vacation, IEP, therapies) that I

have

> not

> > been able to keep up with messages.

> > I do have some lab results back and I could use some help

> > interpreting. Of course nothing is obviously wrong (that would

be

> to

> > easy) and my pediatrician isn't looking beyond the basics.

> >

> > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

other -

>

> > gliadin IGA, reticulin IGA and endomysial IGA are in the normal

> range.

> >

> > What does the elevated gliadin IGG mean? From my google search

it

> can

> > be a false positive for celiac. Should we see another dr? Who?

an

> > allergist/immunologist or a gstroenterologist?

> >

> > Thanks for the input!!

> >

> > Martha

> >

>

[Guest guest]

I'll be honest and say that I have not read the entire chain of

posts here, but I can comment on the gfcf and reflux. My son joey

now 3 1/2 is on a gfcf diet and it virtually eliminated all reflux

and constipation within a few weeks of starting the diet. He was

tested at just under 2 1/2 for food sensitives via blood and also

for the possiblity of celiac disease. His blood tests showed a

sensitivity to all gluten containing grains, eggs, milk, corn, rice,

most nuts, etc. He also was said to have mild to moderate gluten

sensitivity but not necessarily Celiac if that makes sense. Just to

let you know that has never taken any reflux meds and this diet

did the trick - it was absolutely amazing.

Katrina and

> > In the past a positive IgG with negative TTG and other celiac

> > markers was considered a " false positive'. But WAY TOO MANY of

our

> > kids with apraxia have a positive anti gliadin IgG. Since this

> > antibody can cross react to cells of the brain as if it were

gluten

> > it is very suspect that all these kids have positive gliadin

> > antibodies. I'm wondering if this is part of the apraxia picture

> for

> > many kids???? Did you have other fat soluble vitamins checked?

> >

> > I would suggest you trial a gluten/dairy free diet for a month

or 2

> > and keep a diary of any changes you see. Some changes that seem

> > subtle initially are obviously changes down the road. If nothing

> > happens after this time, return to your previous diet.

> >

> > Does your child have any gastrointestinal symptoms? Like

diarrhea,

> > constipation, reflux, abd pain...food allergies, asthma etc?

Just

> > wondering. Some people would recommend a biopsy of the gut to

rule

> > out celiac disease, but I suspect it would be negative...unless

> > there are other risk factors for celiac disease...like symptoms,

> > failure to thrive or family history. -

> >

> >

> > > Hi all

> > >

> > > I have been so busy lately (vacation, IEP, therapies) that I

have

> > not

> > > been able to keep up with messages.

> > > I do have some lab results back and I could use some help

> > > interpreting. Of course nothing is obviously wrong (that would

be

> > to

> > > easy) and my pediatrician isn't looking beyond the basics.

> > >

> > > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

> other -

> >

> > > gliadin IGA, reticulin IGA and endomysial IGA are in the

normal

> > range.

> > >

> > > What does the elevated gliadin IGG mean? From my google search

it

> > can

> > > be a false positive for celiac. Should we see another dr? Who?

an

> > > allergist/immunologist or a gstroenterologist?

> > >

> > > Thanks for the input!!

> > >

> > > Martha

> > >

> >

>

[Guest guest]

Clauia - Is reflux very prevalent among people with celiac disease?

I've seen it listed as a possible sign but no more than that. My son

has had reflux his whole life and has been taking Zantac to control

it since he was 3 months old (he's 3 years, 4 months now). He also

has a peanut allergy. When I was nursing it seemed that everything I

ate hurt his tummy but it seemed to correspond more to acidic

(e.g.orange juice) and spicy (e.g.spaghetti), so I lived on turkey

sandwiches for a year. I never cut out gluten - never even gave it a

thought.

I picked up Drs. orders today to have blood work done

for " everything " (I requested a list of tests that you had posted

earlier - thank you! The ped didn't question me on bit on any of

them. It includes a celiac panel. My son and I both went gluten

free 1.5 weeks ago but I've reintroduced a some back into his diet so

we can get more reliable results. We've kept the dairy in. BTW - I

feel GREAT on a gluten-free diet!

I'm sure I'll need to post our results and ask your advice as our ped

has already told me he expects to get a low yield of info from it but

supports it so that " I'll know " and won't have to keep wondering.

I'm really hoping to prove him wrong.

> In the past a positive IgG with negative TTG and other celiac

> markers was considered a " false positive'. But WAY TOO MANY of our

> kids with apraxia have a positive anti gliadin IgG. Since this

> antibody can cross react to cells of the brain as if it were gluten

> it is very suspect that all these kids have positive gliadin

> antibodies. I'm wondering if this is part of the apraxia picture

for

> many kids???? Did you have other fat soluble vitamins checked?

>

> I would suggest you trial a gluten/dairy free diet for a month or 2

> and keep a diary of any changes you see. Some changes that seem

> subtle initially are obviously changes down the road. If nothing

> happens after this time, return to your previous diet.

>

> Does your child have any gastrointestinal symptoms? Like diarrhea,

> constipation, reflux, abd pain...food allergies, asthma etc? Just

> wondering. Some people would recommend a biopsy of the gut to rule

> out celiac disease, but I suspect it would be negative...unless

> there are other risk factors for celiac disease...like symptoms,

> failure to thrive or family history. -

>

>

> > Hi all

> >

> > I have been so busy lately (vacation, IEP, therapies) that I have

> not

> > been able to keep up with messages.

> > I do have some lab results back and I could use some help

> > interpreting. Of course nothing is obviously wrong (that would be

> to

> > easy) and my pediatrician isn't looking beyond the basics.

> >

> > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

other -

>

> > gliadin IGA, reticulin IGA and endomysial IGA are in the normal

> range.

> >

> > What does the elevated gliadin IGG mean? From my google search it

> can

> > be a false positive for celiac. Should we see another dr? Who? an

> > allergist/immunologist or a gstroenterologist?

> >

> > Thanks for the input!!

> >

> > Martha

> >

>

[Guest guest]

I did get other tests - carnitine (free, total & esthers), Vits D,

K, A & E were all normal. Howver E & K could be considered low side

of normal. Lead was negative for a recent exposure (but haven't done

hair yet).

I did read on celiac.com that something like 20% of people with a

positive gliadin Igg antibodies have some other intestinal disorder.

hmmmmmm I have been reading " Children with Starving Brains " and this

makes me wonder about overall intestinal health. I just don't know

where to go with the info. My pediatrician is just not on board with

all of this and there are no DAN doctors in the area - and if we

have to travel I want to be sure it is necessary and worthwhile.

I am willing to try GF but does it have to be GF/CF? Oh man that

will be tough. I can hit the healthfood store to get alternative

products but my son literally only eats gluten!!! He actually likes

raw instant oatmeal!!!! I had beeen hoping the test would shed some

light without putting our household through that level of stress.

Martha

In , " claudia.morris "

<claudia.morris@...> wrote:

>

>

> In the past a positive IgG with negative TTG and other celiac

> markers was considered a " false positive'. But WAY TOO MANY of our

> kids with apraxia have a positive anti gliadin IgG. Since this

> antibody can cross react to cells of the brain as if it were

gluten

> it is very suspect that all these kids have positive gliadin

> antibodies. I'm wondering if this is part of the apraxia picture

for

> many kids???? Did you have other fat soluble vitamins checked?

>

> I would suggest you trial a gluten/dairy free diet for a month or

2

> and keep a diary of any changes you see. Some changes that seem

> subtle initially are obviously changes down the road. If nothing

> happens after this time, return to your previous diet.

>

> Does your child have any gastrointestinal symptoms? Like diarrhea,

> constipation, reflux, abd pain...food allergies, asthma etc? Just

> wondering. Some people would recommend a biopsy of the gut to

rule

> out celiac disease, but I suspect it would be negative...unless

> there are other risk factors for celiac disease...like symptoms,

> failure to thrive or family history. -

>

>

> > Hi all

> >

> > I have been so busy lately (vacation, IEP, therapies) that I

have

> not

> > been able to keep up with messages.

> > I do have some lab results back and I could use some help

> > interpreting. Of course nothing is obviously wrong (that would

be

> to

> > easy) and my pediatrician isn't looking beyond the basics.

> >

> > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

other -

>

> > gliadin IGA, reticulin IGA and endomysial IGA are in the normal

> range.

> >

> > What does the elevated gliadin IGG mean? From my google search

it

> can

> > be a false positive for celiac. Should we see another dr? Who?

an

> > allergist/immunologist or a gstroenterologist?

> >

> > Thanks for the input!!

> >

> > Martha

> >

>

[Guest guest]

I'll be honest and say that I have not read the entire chain of

posts here, but I can comment on the gfcf and reflux. My son joey

now 3 1/2 is on a gfcf diet and it virtually eliminated all reflux

and constipation within a few weeks of starting the diet. He was

tested at just under 2 1/2 for food sensitives via blood and also

for the possiblity of celiac disease. His blood tests showed a

sensitivity to all gluten containing grains, eggs, milk, corn, rice,

most nuts, etc. He also was said to have mild to moderate gluten

sensitivity but not necessarily Celiac if that makes sense. Just to

let you know that has never taken any reflux meds and this diet

did the trick - it was absolutely amazing.

Katrina and

> > In the past a positive IgG with negative TTG and other celiac

> > markers was considered a " false positive'. But WAY TOO MANY of

our

> > kids with apraxia have a positive anti gliadin IgG. Since this

> > antibody can cross react to cells of the brain as if it were

gluten

> > it is very suspect that all these kids have positive gliadin

> > antibodies. I'm wondering if this is part of the apraxia picture

> for

> > many kids???? Did you have other fat soluble vitamins checked?

> >

> > I would suggest you trial a gluten/dairy free diet for a month

or 2

> > and keep a diary of any changes you see. Some changes that seem

> > subtle initially are obviously changes down the road. If nothing

> > happens after this time, return to your previous diet.

> >

> > Does your child have any gastrointestinal symptoms? Like

diarrhea,

> > constipation, reflux, abd pain...food allergies, asthma etc?

Just

> > wondering. Some people would recommend a biopsy of the gut to

rule

> > out celiac disease, but I suspect it would be negative...unless

> > there are other risk factors for celiac disease...like symptoms,

> > failure to thrive or family history. -

> >

> >

> > > Hi all

> > >

> > > I have been so busy lately (vacation, IEP, therapies) that I

have

> > not

> > > been able to keep up with messages.

> > > I do have some lab results back and I could use some help

> > > interpreting. Of course nothing is obviously wrong (that would

be

> > to

> > > easy) and my pediatrician isn't looking beyond the basics.

> > >

> > > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

> other -

> >

> > > gliadin IGA, reticulin IGA and endomysial IGA are in the

normal

> > range.

> > >

> > > What does the elevated gliadin IGG mean? From my google search

it

> > can

> > > be a false positive for celiac. Should we see another dr? Who?

an

> > > allergist/immunologist or a gstroenterologist?

> > >

> > > Thanks for the input!!

> > >

> > > Martha

> > >

> >

>

[Guest guest]

> > In the past a positive IgG with negative TTG and other celiac

> > markers was considered a " false positive'. But WAY TOO MANY of

our

> > kids with apraxia have a positive anti gliadin IgG. Since this

> > antibody can cross react to cells of the brain as if it were

gluten

> > it is very suspect that all these kids have positive gliadin

> > antibodies. I'm wondering if this is part of the apraxia picture

> for

> > many kids???? Did you have other fat soluble vitamins checked?

> >

> > I would suggest you trial a gluten/dairy free diet for a month

or 2

> > and keep a diary of any changes you see. Some changes that seem

> > subtle initially are obviously changes down the road. If nothing

> > happens after this time, return to your previous diet.

> >

> > Does your child have any gastrointestinal symptoms? Like

diarrhea,

> > constipation, reflux, abd pain...food allergies, asthma etc?

Just

> > wondering. Some people would recommend a biopsy of the gut to

rule

> > out celiac disease, but I suspect it would be negative...unless

> > there are other risk factors for celiac disease...like symptoms,

> > failure to thrive or family history. -

> >

> >

> > > Hi all

> > >

> > > I have been so busy lately (vacation, IEP, therapies) that I

have

> > not

> > > been able to keep up with messages.

> > > I do have some lab results back and I could use some help

> > > interpreting. Of course nothing is obviously wrong (that would

be

> > to

> > > easy) and my pediatrician isn't looking beyond the basics.

> > >

> > > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

> other -

> >

> > > gliadin IGA, reticulin IGA and endomysial IGA are in the

normal

> > range.

> > >

> > > What does the elevated gliadin IGG mean? From my google search

it

> > can

> > > be a false positive for celiac. Should we see another dr? Who?

an

> > > allergist/immunologist or a gstroenterologist?

> > >

> > > Thanks for the input!!

> > >

> > > Martha

> > >

> >

>

[Guest guest]

> > In the past a positive IgG with negative TTG and other celiac

> > markers was considered a " false positive'. But WAY TOO MANY of

our

> > kids with apraxia have a positive anti gliadin IgG. Since this

> > antibody can cross react to cells of the brain as if it were

gluten

> > it is very suspect that all these kids have positive gliadin

> > antibodies. I'm wondering if this is part of the apraxia picture

> for

> > many kids???? Did you have other fat soluble vitamins checked?

> >

> > I would suggest you trial a gluten/dairy free diet for a month

or 2

> > and keep a diary of any changes you see. Some changes that seem

> > subtle initially are obviously changes down the road. If nothing

> > happens after this time, return to your previous diet.

> >

> > Does your child have any gastrointestinal symptoms? Like

diarrhea,

> > constipation, reflux, abd pain...food allergies, asthma etc?

Just

> > wondering. Some people would recommend a biopsy of the gut to

rule

> > out celiac disease, but I suspect it would be negative...unless

> > there are other risk factors for celiac disease...like symptoms,

> > failure to thrive or family history. -

> >

> >

> > > Hi all

> > >

> > > I have been so busy lately (vacation, IEP, therapies) that I

have

> > not

> > > been able to keep up with messages.

> > > I do have some lab results back and I could use some help

> > > interpreting. Of course nothing is obviously wrong (that would

be

> > to

> > > easy) and my pediatrician isn't looking beyond the basics.

> > >

> > > Will's gliadin IGG is 14.1 (the lab has <10 as normal). All

> other -

> >

> > > gliadin IGA, reticulin IGA and endomysial IGA are in the

normal

> > range.

> > >

> > > What does the elevated gliadin IGG mean? From my google search

it

> > can

> > > be a false positive for celiac. Should we see another dr? Who?

an

> > > allergist/immunologist or a gstroenterologist?

> > >

> > > Thanks for the input!!

> > >

> > > Martha

> > >

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