camp experience

[Guest guest]

I'm sad to read this and it makes me realize what I may have coming

with my HOH 3 year old twins...

I think it is a good idea to give the copied info. to the counselor.

You can't have thousands of dollars of hearing equipment getting

damaged by a down pour!

You don't sound overbearing to me. I am a teacher by profession. You

sound like a parent should sound, and the fact that you haven't gotten

angrier makes me think that you will not come off as overbearing.

I question why a five year old is left at a lunch table alone with

other kids. Doesn't sound too structured. I wonder if they have even

told the kids that age what the bathroom routine would be - kids that

age need a lot of direction, handholding, adn reminding in general. I

wonder what other parents of kids (not hearing impaired) that age are

thinking about the camp.

And yes your son will need some extra help. It goes with this. You

(we) shouldn't feel bad about that. Go advocate! You sound

intelligent and sensitive and I believe that you will come off just fine!

Cathy

>

> At this moment the issue I'm concerned about it fresh in my mind.

I'm typing to my listen-up friends to vent and maybe get some

suggestions before I go off writing letters or phrasing things poorly

to my son's camp.

>

> My son, , is 5.5 years old. He uses a CI and hearing aid. He

is going to a half day summer camp program 8:30 - noon daily. Each

week there are several different themed programs to choose from with

varying age groups, so the campers and teachers/counselors change each

week.

>

> Several weeks before camp I sent a letter of introduction to the

camp director with some information about and tips for

communicating with a child with a hearing loss and CI. I explained

where the listening challenges would be and also detailed the

precautions to take with the equipment. (water and static) In the

letter I stated I would like to set up a time when I could come by and

show them how to change batteries and answer any questions about

or the equipment. I hadn't heard anything from the director the week

before camp so I called. I had to leave a message and didn't hear

back from her. I called again a couple days later. She suggested

getting with me the first day of camp right after I dropped off.

I realize people don't really " get it " when it comes to what they

need to know. She had told me that she had read through all the

information and she thought they were ready to go. I did stress

gently that I thought it was important just to go over the information

when she wouldn't be distracted or rushed, so I stopped by her office

with the following day to show her how to change batteries. I

also showed her how to readjust the earhook should it fall off and how

the coil sometimes falls off. She mentioned that if anything happened

the counselor would let her know and she would take care of it. I

didn't push things at that point, but I really felt like the counselor

should be in on this education too. I left feeling it was okay to

send him down to her if there were battery issues.

>

> The first day of camp I met the counselor briefly when I dropped him

off. There really wasn't time to start talking about concerns. I

don't want to be that overbearing mother who expects a report everyday

and wants special treatment. But I really do want to know how he's

fitting in and I worry about him being lost in the shuffle. I was

pleased with the first week. seemed really happy and adjusted

well. His group that week was only about 5-6 kids. I think he

benefitted from having a small group that allowed for more one on one

and the counselor was an experienced school teacher.

>

> This was the first day of the second week so we start over with a

new theme and new counselors. It's " pirate week " and apparently this

is popular theme because he's got about 15 kids in his group this

time. My husband dropped off and briefly chatted with the

counselor but it was so busy and noisy that he really couldn't talk

much. My husband got the impression that the counselor wasn't even

briefed on having a child with hearing loss in the group which

disappointed me. I had provided all that printed info to the director

so I figured she would share that with everyone who would be working

with . My husband had said something like... I guess you know

that he uses a cochlear implant and a hearing aid so... and went on to

explain some tips... and the counselor said, " No, I didn't know. "

Grrrr... This time the counselors were young people so I'm thinking

they might not be as knowlegeable about communicating with

kindergarteners.

>

> Well today it really hit me how 's hearing loss can leave him

out of the loop. I pick him up daily in the cafeteria where he's

having lunch from 12:30. The kids are on their own at the tables and

the counselors are seated at a main table in the center of the

cafeteria. I have no idea what the rules or routine are for this

period. But anyway, I picked up at the table and he told me, " I

didn't have a lunch box today. " Well yes he did. He brought one, and

I remember my husband telling me they were instructed to leave it in a

cubby in the cafeteria. So I looked along the wall and there it was.

So I told that yes, he did bring his lunchbox and that he put it

in a cubby. He said, " But I don't know where it is. " I'm just

wondering why someone wasn't looking out for him. I realize they

don't have to " hold everyone's hands " but it really bothered me that

had to sit there the whole time without lunch. I don't know why

he didn't remember or know where his lunch was. I think he just isn't

familiar with the routine and doesn't know who to turn to or ask.

He's only 5 years old so I'm sure he doesn't really know how to

problem solve in an unfamiliar environment. I told him that he should

talk to a counselor next time he needs something, but again I think

that takes a lot of assertiveness to approach the big table of

counselors to express his concern. I will say something to them

tomorrow. I did see the director on my way out and I asked if there

was a new routine this week about where they put their lunchboxes.

She told me no and explained that they leave them in the cubbies. I

told her that didn't have lunch today because he didn't know

where his was. She said, " Oh, they told the kids to get them in their

cubbies. " And it was at that point I realized that in a noisy

cafeteria with a bunch of campers buzzing around and the counselor

shouting out over the chaos as to where and when to get your lunches,

just didn't hear it. I bet he didn't even SEE it either. I just

said, " I guess he didn't hear them, " and I think she realized the

problem.

>

> Last week I picked him up on two separate occasions and he mentioned

how he had to use the bathroom and he " just kept waiting and waiting. "

I asked him why he didn't tell a counselor. He just didn't know what

to do. I think he really needs to know what the " rules " are and the

expectations. He didn't know what he was supposed to do if he needed

to go to the bathroom. I also think he thinks it's like school where

he is used to a very structured day and every day is the same routine,

which includes bathroom breaks and not spending a lot of time chatting

at lunch time. I really feel bad for him during that free lunch

period because I know he can't keep up socially due to his age and the

hearing challenge.

>

> How do I get them to look out for him without being that mom who is

trying to tell everyone what to do? I'm so apprehensive about asking

for special treatment, but at the same time I feel deserves it.

He's doing great so far and isn't complaining. I'm sure he doesn't

know what he's missing. I just want to give him as much access as I

can, while at the same time letting him learn how to manage in these

challenging circumstances.

>

> I'm thinking of writing a note to the counselor for tomorrow and

including the two page info I provided for the director. There are

just too many circumstances where I think they need to know how to

deal. for instance it was raining today... I wondered if they would

have known what to do if they were stuck in an unexpected downpour on

the playground. Or what about when they go on field trips? They had

two last week and I worried about the possibility of battery changes

during that. I bet the counselor wouldn't have a clue.

>

> K

>

>

[Guest guest]

Oh - hugs to you. I know just how you feel. I remember when Tom

was that age (5 or maybe 6 - he was in first grade) being left on the

playground in the sandbox playing by himself at dusk at the after school

program - grrrrrrrrr! I was so angry, I could hardly see straight.

Worse is when you know he's not being included or missing stuff - it's

such a sinking feeling.

In reading what you gave the counsellor, I wonder if you could make it

shorter. (this is of course not having seen it!) In my experience, if

you give too much information to teachers, particularly ones who've not

worked with HI/deaf kids before (who come with technology!) it can be

overwhelming. I do a short list with each point bulleted and that's

seemed to help. So for example you might do something like this:

Processor:

* can't get wet

* when swimming, put in white container

In class:

* Be sure is setting next to you in circle (or wherever you like

him to be)

* Repeat any questions asked so he can hear

etc.

We found that helped with our boys a bunch!

Good luck - and keep us posted?

Barbara

Kearns wrote:

> At this moment the issue I'm concerned about it fresh in my mind. I'm typing

to my listen-up friends to vent and maybe get some suggestions before I go off

writing letters or phrasing things poorly to my son's camp.

>

> My son, , is 5.5 years old. He uses a CI and hearing aid. He is going to

a half day summer camp program 8:30 - noon daily. Each week there are several

different themed programs to choose from with varying age groups, so the campers

and teachers/counselors change each week.

>

> Several weeks before camp I sent a letter of introduction to the camp director

with some information about and tips for communicating with a child with a

hearing loss and CI. I explained where the listening challenges would be and

also detailed the precautions to take with the equipment. (water and static) In

the letter I stated I would like to set up a time when I could come by and show

them how to change batteries and answer any questions about or the

equipment. I hadn't heard anything from the director the week before camp so I

called. I had to leave a message and didn't hear back from her. I called again

a couple days later. She suggested getting with me the first day of camp right

after I dropped off. I realize people don't really " get it " when it comes

to what they need to know. She had told me that she had read through all the

information and she thought they were ready to go. I did stress gently that I

thought it was important just to go over !

> the information when she wouldn't be distracted or rushed, so I stopped by

her office with the following day to show her how to change batteries. I

also showed her how to readjust the earhook should it fall off and how the coil

sometimes falls off. She mentioned that if anything happened the counselor

would let her know and she would take care of it. I didn't push things at that

point, but I really felt like the counselor should be in on this education too.

I left feeling it was okay to send him down to her if there were battery issues.

>

> The first day of camp I met the counselor briefly when I dropped him off.

There really wasn't time to start talking about concerns. I don't want to be

that overbearing mother who expects a report everyday and wants special

treatment. But I really do want to know how he's fitting in and I worry about

him being lost in the shuffle. I was pleased with the first week. seemed

really happy and adjusted well. His group that week was only about 5-6 kids. I

think he benefitted from having a small group that allowed for more one on one

and the counselor was an experienced school teacher.

>

> This was the first day of the second week so we start over with a new theme

and new counselors. It's " pirate week " and apparently this is popular theme

because he's got about 15 kids in his group this time. My husband dropped

off and briefly chatted with the counselor but it was so busy and noisy that he

really couldn't talk much. My husband got the impression that the counselor

wasn't even briefed on having a child with hearing loss in the group which

disappointed me. I had provided all that printed info to the director so I

figured she would share that with everyone who would be working with . My

husband had said something like... I guess you know that he uses a cochlear

implant and a hearing aid so... and went on to explain some tips... and the

counselor said, " No, I didn't know. " Grrrr... This time the counselors were

young people so I'm thinking they might not be as knowlegeable about

communicating with kindergarteners.

>

> Well today it really hit me how 's hearing loss can leave him out of the

loop. I pick him up daily in the cafeteria where he's having lunch from 12:30.

The kids are on their own at the tables and the counselors are seated at a main

table in the center of the cafeteria. I have no idea what the rules or routine

are for this period. But anyway, I picked up at the table and he told me,

" I didn't have a lunch box today. " Well yes he did. He brought one, and I

remember my husband telling me they were instructed to leave it in a cubby in

the cafeteria. So I looked along the wall and there it was. So I told

that yes, he did bring his lunchbox and that he put it in a cubby. He said,

" But I don't know where it is. " I'm just wondering why someone wasn't looking

out for him. I realize they don't have to " hold everyone's hands " but it really

bothered me that had to sit there the whole time without lunch. I don't

know why he didn't remember or know where his!

> lunch was. I think he just isn't familiar with the routine and doesn't know

who to turn to or ask. He's only 5 years old so I'm sure he doesn't really know

how to problem solve in an unfamiliar environment. I told him that he should

talk to a counselor next time he needs something, but again I think that takes a

lot of assertiveness to approach the big table of counselors to express his

concern. I will say something to them tomorrow. I did see the director on my

way out and I asked if there was a new routine this week about where they put

their lunchboxes. She told me no and explained that they leave them in the

cubbies. I told her that didn't have lunch today because he didn't know

where his was. She said, " Oh, they told the kids to get them in their cubbies. "

And it was at that point I realized that in a noisy cafeteria with a bunch of

campers buzzing around and the counselor shouting out over the chaos as to where

and when to get your lunches, just di!

> dn't hear it. I bet he didn't even SEE it either. I just said, " I gu

> ess he didn't hear them, " and I think she realized the problem.

>

> Last week I picked him up on two separate occasions and he mentioned how he

had to use the bathroom and he " just kept waiting and waiting. " I asked him why

he didn't tell a counselor. He just didn't know what to do. I think he really

needs to know what the " rules " are and the expectations. He didn't know what he

was supposed to do if he needed to go to the bathroom. I also think he thinks

it's like school where he is used to a very structured day and every day is the

same routine, which includes bathroom breaks and not spending a lot of time

chatting at lunch time. I really feel bad for him during that free lunch period

because I know he can't keep up socially due to his age and the hearing

challenge.

>

> How do I get them to look out for him without being that mom who is trying to

tell everyone what to do? I'm so apprehensive about asking for special

treatment, but at the same time I feel deserves it. He's doing great so

far and isn't complaining. I'm sure he doesn't know what he's missing. I just

want to give him as much access as I can, while at the same time letting him

learn how to manage in these challenging circumstances.

>

> I'm thinking of writing a note to the counselor for tomorrow and including the

two page info I provided for the director. There are just too many

circumstances where I think they need to know how to deal. for instance it was

raining today... I wondered if they would have known what to do if they were

stuck in an unexpected downpour on the playground. Or what about when they go

on field trips? They had two last week and I worried about the possibility of

battery changes during that. I bet the counselor wouldn't have a clue.

>

> K

>

>

[Guest guest]

,

My heart goes out to you and your experience brought tears to my eyes. I

wish I could give you great advice, but as my son ( also) is newly

diagnosed and is just 2.5 yr old we haven't experienced any of this yet. I

will say that you don't come across at all as an over-the-top mom. Until

your son is old/mature enough to advocate for himself, you are going to have

to do it for him. I wish the camp director were being more helpful. I

think your idea of a note that you could give to the counselor is a good

idea - providing it is brief. Then s/he can read it during a slow moment in

the morning. Or are the counselors available right from the start, like

could you arrive 15 min early and maybe get to him/her for 5 min before the

chaos begins? Perhaps you could role play at home too with on how he

could ask for help? Like I said, I have no experience at this and have no

idea what works best, these are just ideas off the top of my head.

Good luck!

Sherry

camp experience

At this moment the issue I'm concerned about it fresh in my mind. I'm

typing to my listen-up friends to vent and maybe get some suggestions before

I go off writing letters or phrasing things poorly to my son's camp.

My son, , is 5.5 years old. He uses a CI and hearing aid. He is going

to a half day summer camp program 8:30 - noon daily. Each week there are

several different themed programs to choose from with varying age groups, so

the campers and teachers/counselors change each week.

Several weeks before camp I sent a letter of introduction to the camp

director with some information about and tips for communicating with a

child with a hearing loss and CI. I explained where the listening

challenges would be and also detailed the precautions to take with the

equipment. (water and static) In the letter I stated I would like to set up

a time when I could come by and show them how to change batteries and answer

any questions about or the equipment. I hadn't heard anything from the

director the week before camp so I called. I had to leave a message and

didn't hear back from her. I called again a couple days later. She

suggested getting with me the first day of camp right after I dropped

off. I realize people don't really " get it " when it comes to what they need

to know. She had told me that she had read through all the information and

she thought they were ready to go. I did stress gently that I thought it

was important just to go over the information when she wouldn't be

distracted or rushed, so I stopped by her office with the following day

to show her how to change batteries. I also showed her how to readjust the

earhook should it fall off and how the coil sometimes falls off. She

mentioned that if anything happened the counselor would let her know and she

would take care of it. I didn't push things at that point, but I really

felt like the counselor should be in on this education too. I left feeling

it was okay to send him down to her if there were battery issues.

The first day of camp I met the counselor briefly when I dropped him off.

There really wasn't time to start talking about concerns. I don't want to

be that overbearing mother who expects a report everyday and wants special

treatment. But I really do want to know how he's fitting in and I worry

about him being lost in the shuffle. I was pleased with the first week.

seemed really happy and adjusted well. His group that week was only

about 5-6 kids. I think he benefitted from having a small group that allowed

for more one on one and the counselor was an experienced school teacher.

This was the first day of the second week so we start over with a new theme

and new counselors. It's " pirate week " and apparently this is popular theme

because he's got about 15 kids in his group this time. My husband dropped

off and briefly chatted with the counselor but it was so busy and noisy

that he really couldn't talk much. My husband got the impression that the

counselor wasn't even briefed on having a child with hearing loss in the

group which disappointed me. I had provided all that printed info to the

director so I figured she would share that with everyone who would be

working with . My husband had said something like... I guess you know

that he uses a cochlear implant and a hearing aid so... and went on to

explain some tips... and the counselor said, " No, I didn't know. " Grrrr...

This time the counselors were young people so I'm thinking they might not be

as knowlegeable about communicating with kindergarteners.

Well today it really hit me how 's hearing loss can leave him out of the

loop. I pick him up daily in the cafeteria where he's having lunch from

12:30. The kids are on their own at the tables and the counselors are

seated at a main table in the center of the cafeteria. I have no idea what

the rules or routine are for this period. But anyway, I picked up at

the table and he told me, " I didn't have a lunch box today. " Well yes he

did. He brought one, and I remember my husband telling me they were

instructed to leave it in a cubby in the cafeteria. So I looked along the

wall and there it was. So I told that yes, he did bring his lunchbox

and that he put it in a cubby. He said, " But I don't know where it is. "

I'm just wondering why someone wasn't looking out for him. I realize they

don't have to " hold everyone's hands " but it really bothered me that

had to sit there the whole time without lunch. I don't know why he didn't

remember or know where his lunch was. I think he just isn't familiar with

the routine and doesn't know who to turn to or ask. He's only 5 years old

so I'm sure he doesn't really know how to problem solve in an unfamiliar

environment. I told him that he should talk to a counselor next time he

needs something, but again I think that takes a lot of assertiveness to

approach the big table of counselors to express his concern. I will say

something to them tomorrow. I did see the director on my way out and I

asked if there was a new routine this week about where they put their

lunchboxes. She told me no and explained that they leave them in the

cubbies. I told her that didn't have lunch today because he didn't

know where his was. She said, " Oh, they told the kids to get them in their

cubbies. " And it was at that point I realized that in a noisy cafeteria

with a bunch of campers buzzing around and the counselor shouting out over

the chaos as to where and when to get your lunches, just didn't hear

it. I bet he didn't even SEE it either. I just said, " I guess he didn't

hear them, " and I think she realized the problem.

Last week I picked him up on two separate occasions and he mentioned how he

had to use the bathroom and he " just kept waiting and waiting. " I asked him

why he didn't tell a counselor. He just didn't know what to do. I think he

really needs to know what the " rules " are and the expectations. He didn't

know what he was supposed to do if he needed to go to the bathroom. I also

think he thinks it's like school where he is used to a very structured day

and every day is the same routine, which includes bathroom breaks and not

spending a lot of time chatting at lunch time. I really feel bad for him

during that free lunch period because I know he can't keep up socially due

to his age and the hearing challenge.

How do I get them to look out for him without being that mom who is trying

to tell everyone what to do? I'm so apprehensive about asking for special

treatment, but at the same time I feel deserves it. He's doing great

so far and isn't complaining. I'm sure he doesn't know what he's missing.

I just want to give him as much access as I can, while at the same time

letting him learn how to manage in these challenging circumstances.

I'm thinking of writing a note to the counselor for tomorrow and including

the two page info I provided for the director. There are just too many

circumstances where I think they need to know how to deal. for instance it

was raining today... I wondered if they would have known what to do if they

were stuck in an unexpected downpour on the playground. Or what about when

they go on field trips? They had two last week and I worried about the

possibility of battery changes during that. I bet the counselor wouldn't

have a clue.

K

[Guest guest]

In a message dated 6/26/2006 2:33:13 P.M. Central Standard Time,

lisak555@... writes:

just didn't hear it. I bet he didn't even SEE it either. I just said,

" I guess he didn't hear them, " and I think she realized the problem.

,

I had a similar situation when I went to day camp for Girl Scouts. I was

left out of a lot of things because I couldn't hear the change in routine or

activities. Looking back, I think it would have been so helpful to have a

counselor come up to me each time and summarize what was happening next, but my

mom wasn't even aware of what was happening so she couldn't advocate. I can

remember going through so many crafts where I didn't know what to do and

constantly had to look around to figure out how to make things because I didn't

hear the directions. I can also remember just moving my mouth and pretending

to sing songs because again, I had no clue what the words were. I can

remember nature hikes where the counselors were talking about trees and plants,

but

I just skipped along.

Do you think you'd be able to volunteer for a day and perhaps provide some

input to the counselors as you work with them? You're not asking for special

treatment-- you're asking the counselors to level the playing field so your

child has access to communication during his day.

Putz

Illinois Families for Hands & Voices

_www.handsandvoices.org_ (http://www.handsandvoices.org/)

_www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/)

Email: support@...

[Guest guest]

In a message dated 6/26/2006 2:33:13 P.M. Central Standard Time,

lisak555@... writes:

just didn't hear it. I bet he didn't even SEE it either. I just said,

" I guess he didn't hear them, " and I think she realized the problem.

,

I had a similar situation when I went to day camp for Girl Scouts. I was

left out of a lot of things because I couldn't hear the change in routine or

activities. Looking back, I think it would have been so helpful to have a

counselor come up to me each time and summarize what was happening next, but my

mom wasn't even aware of what was happening so she couldn't advocate. I can

remember going through so many crafts where I didn't know what to do and

constantly had to look around to figure out how to make things because I didn't

hear the directions. I can also remember just moving my mouth and pretending

to sing songs because again, I had no clue what the words were. I can

remember nature hikes where the counselors were talking about trees and plants,

but

I just skipped along.

Do you think you'd be able to volunteer for a day and perhaps provide some

input to the counselors as you work with them? You're not asking for special

treatment-- you're asking the counselors to level the playing field so your

child has access to communication during his day.

Putz

Illinois Families for Hands & Voices

_www.handsandvoices.org_ (http://www.handsandvoices.org/)

_www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/)

Email: support@...

[Guest guest]

In a message dated 6/26/2006 2:33:13 P.M. Central Standard Time,

lisak555@... writes:

just didn't hear it. I bet he didn't even SEE it either. I just said,

" I guess he didn't hear them, " and I think she realized the problem.

,

I had a similar situation when I went to day camp for Girl Scouts. I was

left out of a lot of things because I couldn't hear the change in routine or

activities. Looking back, I think it would have been so helpful to have a

counselor come up to me each time and summarize what was happening next, but my

mom wasn't even aware of what was happening so she couldn't advocate. I can

remember going through so many crafts where I didn't know what to do and

constantly had to look around to figure out how to make things because I didn't

hear the directions. I can also remember just moving my mouth and pretending

to sing songs because again, I had no clue what the words were. I can

remember nature hikes where the counselors were talking about trees and plants,

but

I just skipped along.

Do you think you'd be able to volunteer for a day and perhaps provide some

input to the counselors as you work with them? You're not asking for special

treatment-- you're asking the counselors to level the playing field so your

child has access to communication during his day.

Putz

Illinois Families for Hands & Voices

_www.handsandvoices.org_ (http://www.handsandvoices.org/)

_www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/)

Email: support@...

[Guest guest]

Yes, you should talk to the counselor and tell the director what's

going on and why. You are not being overbearing, but if you think

you are tell the counselor that. Hayley went to a typical day

care/camp in Calif for years and while she did not have the

oral/aural ability that has, I had relationships with the

counselors assigned to her group. The counselors need to know that

wears expensive equipment and how to take care of it.

In fact, we went back last week when we were visiting (got to see

Yuka on this list ) and was surprised to see one of the counselors

who bonded with Hayley (and signed) back at the camp. She told me

she is now an interpreter in Fresno.

Don't discount the counselors because they are younger. They might

have deaf kids in their classrooms. They might actually know more

about it than the camp director.

mary

>

> At this moment the issue I'm concerned about it fresh in my mind.

I'm typing to my listen-up friends to vent and maybe get some

suggestions before I go off writing letters or phrasing things

poorly to my son's camp.

>

> My son, , is 5.5 years old. He uses a CI and hearing aid. He

is going to a half day summer camp program 8:30 - noon daily. Each

week there are several different themed programs to choose from with

varying age groups, so the campers and teachers/counselors change

each week.

>

> Several weeks before camp I sent a letter of introduction to the

camp director with some information about and tips for

communicating with a child with a hearing loss and CI. I explained

where the listening challenges would be and also detailed the

precautions to take with the equipment. (water and static) In the

letter I stated I would like to set up a time when I could come by

and show them how to change batteries and answer any questions about

or the equipment. I hadn't heard anything from the director

the week before camp so I called. I had to leave a message and

didn't hear back from her. I called again a couple days later. She

suggested getting with me the first day of camp right after I

dropped off. I realize people don't really " get it " when it

comes to what they need to know. She had told me that she had read

through all the information and she thought they were ready to go.

I did stress gently that I thought it was important just to go over

the information when she wouldn't be distracted or rushed, so I

stopped by her office with the following day to show her how to

change batteries. I also showed her how to readjust the earhook

should it fall off and how the coil sometimes falls off. She

mentioned that if anything happened the counselor would let her know

and she would take care of it. I didn't push things at that point,

but I really felt like the counselor should be in on this education

too. I left feeling it was okay to send him down to her if there

were battery issues.

>

> The first day of camp I met the counselor briefly when I dropped

him off. There really wasn't time to start talking about concerns.

I don't want to be that overbearing mother who expects a report

everyday and wants special treatment. But I really do want to know

how he's fitting in and I worry about him being lost in the

shuffle. I was pleased with the first week. seemed really

happy and adjusted well. His group that week was only about 5-6

kids. I think he benefitted from having a small group that allowed

for more one on one and the counselor was an experienced school

teacher.

>

> This was the first day of the second week so we start over with a

new theme and new counselors. It's " pirate week " and apparently

this is popular theme because he's got about 15 kids in his group

this time. My husband dropped off and briefly chatted with

the counselor but it was so busy and noisy that he really couldn't

talk much. My husband got the impression that the counselor wasn't

even briefed on having a child with hearing loss in the group which

disappointed me. I had provided all that printed info to the

director so I figured she would share that with everyone who would

be working with . My husband had said something like... I guess

you know that he uses a cochlear implant and a hearing aid so... and

went on to explain some tips... and the counselor said, " No, I

didn't know. " Grrrr... This time the counselors were young people

so I'm thinking they might not be as knowlegeable about

communicating with kindergarteners.

>

> Well today it really hit me how 's hearing loss can leave him

out of the loop. I pick him up daily in the cafeteria where he's

having lunch from 12:30. The kids are on their own at the tables

and the counselors are seated at a main table in the center of the

cafeteria. I have no idea what the rules or routine are for this

period. But anyway, I picked up at the table and he told

me, " I didn't have a lunch box today. " Well yes he did. He brought

one, and I remember my husband telling me they were instructed to

leave it in a cubby in the cafeteria. So I looked along the wall

and there it was. So I told that yes, he did bring his

lunchbox and that he put it in a cubby. He said, " But I don't know

where it is. " I'm just wondering why someone wasn't looking out for

him. I realize they don't have to " hold everyone's hands " but it

really bothered me that had to sit there the whole time without

lunch. I don't know why he didn't remember or know where his lunch

was. I think he just isn't familiar with the routine and doesn't

know who to turn to or ask. He's only 5 years old so I'm sure he

doesn't really know how to problem solve in an unfamiliar

environment. I told him that he should talk to a counselor next

time he needs something, but again I think that takes a lot of

assertiveness to approach the big table of counselors to express his

concern. I will say something to them tomorrow. I did see the

director on my way out and I asked if there was a new routine this

week about where they put their lunchboxes. She told me no and

explained that they leave them in the cubbies. I told her that

didn't have lunch today because he didn't know where his was. She

said, " Oh, they told the kids to get them in their cubbies. " And it

was at that point I realized that in a noisy cafeteria with a bunch

of campers buzzing around and the counselor shouting out over the

chaos as to where and when to get your lunches, just didn't

hear it. I bet he didn't even SEE it either. I just said, " I guess

he didn't hear them, " and I think she realized the problem.

>

> Last week I picked him up on two separate occasions and he

mentioned how he had to use the bathroom and he " just kept waiting

and waiting. " I asked him why he didn't tell a counselor. He just

didn't know what to do. I think he really needs to know what

the " rules " are and the expectations. He didn't know what he was

supposed to do if he needed to go to the bathroom. I also think he

thinks it's like school where he is used to a very structured day

and every day is the same routine, which includes bathroom breaks

and not spending a lot of time chatting at lunch time. I really

feel bad for him during that free lunch period because I know he

can't keep up socially due to his age and the hearing challenge.

>

> How do I get them to look out for him without being that mom who

is trying to tell everyone what to do? I'm so apprehensive about

asking for special treatment, but at the same time I feel

deserves it. He's doing great so far and isn't complaining. I'm

sure he doesn't know what he's missing. I just want to give him as

much access as I can, while at the same time letting him learn how

to manage in these challenging circumstances.

>

> I'm thinking of writing a note to the counselor for tomorrow and

including the two page info I provided for the director. There are

just too many circumstances where I think they need to know how to

deal. for instance it was raining today... I wondered if they would

have known what to do if they were stuck in an unexpected downpour

on the playground. Or what about when they go on field trips? They

had two last week and I worried about the possibility of battery

changes during that. I bet the counselor wouldn't have a clue.

>

> K

>

>

[Guest guest]

,

I'm sorry you've had a bad experience with summer camp. We put our 5

year old daughter in camp for the first time this summer and I was

very leery. I got the blank stare on the first day when I met the

teacher and gave my very brief run down of what the implant was all

about. For some odd reason they perked up and listened intently when

I mentioned the cost to replace a processor and how important the

things that I've been explaining are. I also put a page of info

together to keep in 's backpack, but positioned it as more of a

troubleshooting guide.

Stick with it and continue to advocate for your son.

Randi

[Guest guest]

,

{Hugs}

is only 6 months so I am a long way from this

experience, but I am writing from the other point. I

used to work in summer camps (counselor, unit head and

waterfront director). I would definately call and

speak with the Director again and the counselor this

time. Maybe find out the counselor for next week and

meet with them after the kids go home (stay 15 minutes

extra) to talk with them. I wouldn't take no for an

answer. They need to understand what needs to

fit in and get the most out of this experience.

Good luck

Marni

__________________________________________________

[Guest guest]

wrote:

You're not asking for special treatment-- you're asking the counselors to

level the playing field so your

child has access to communication during his day.

**

Amen!

may " only " have a loss in one ear, but it seems to cause more problems

during summer camp/school than any other time. The kids go on *lots* of

field trips, and I think it took last year's camp staff momentarily losing

track of him to realize that if he's really interested in what they're

supposed to be seeing/doing, he *doesn't* hear the teachers tell the group

that it's time to move on.

This year, I got lucky - the teacher he had for preschool is the director of

staff at the summer school he's attending, and his classroom teacher's

mother has unilateral hearing loss (not to the same degree as , but

badly enough that I didn't have to repeat myself like I usually do). One of

the agreements that we have is that when it's time for field trips, one

teacher is specifically assigned to keeping tabs on and his

whereabouts. She also knows that she has to keep a special eye on him when

the class walks to the park that's four blocks away, since hearing oncoming

traffic is a real challenge for him.

I'm sure, though, that *something* will happen over the summer that will be

cause for me to call the school and chat with the teacher or the director.

Just remember - there's a difference between being an overbearing

pain-in-the-rear, and being an advocate for your child's health and safety.

What you've brought up definitely falls into the health and safety area -

and if the camp director takes offense to you reinforcing the concept of

your child's accessibility needs, then that would raise a red flag to me.

Hugs to you,

Kris

Mom to (almost 8, Profound/Complete SNL, Left Ear) and Ethan (6,

hearing)

[Guest guest]

wrote:

You're not asking for special treatment-- you're asking the counselors to

level the playing field so your

child has access to communication during his day.

**

Amen!

may " only " have a loss in one ear, but it seems to cause more problems

during summer camp/school than any other time. The kids go on *lots* of

field trips, and I think it took last year's camp staff momentarily losing

track of him to realize that if he's really interested in what they're

supposed to be seeing/doing, he *doesn't* hear the teachers tell the group

that it's time to move on.

This year, I got lucky - the teacher he had for preschool is the director of

staff at the summer school he's attending, and his classroom teacher's

mother has unilateral hearing loss (not to the same degree as , but

badly enough that I didn't have to repeat myself like I usually do). One of

the agreements that we have is that when it's time for field trips, one

teacher is specifically assigned to keeping tabs on and his

whereabouts. She also knows that she has to keep a special eye on him when

the class walks to the park that's four blocks away, since hearing oncoming

traffic is a real challenge for him.

I'm sure, though, that *something* will happen over the summer that will be

cause for me to call the school and chat with the teacher or the director.

Just remember - there's a difference between being an overbearing

pain-in-the-rear, and being an advocate for your child's health and safety.

What you've brought up definitely falls into the health and safety area -

and if the camp director takes offense to you reinforcing the concept of

your child's accessibility needs, then that would raise a red flag to me.

Hugs to you,

Kris

Mom to (almost 8, Profound/Complete SNL, Left Ear) and Ethan (6,

hearing)

[Guest guest]

,

Stop worrying about being " that " mom. You are paying fort his camp, yes?

Even if it is a free one through your town, that director is a paid professional

and should be expected to do her job. And sharing information about a

disabled child is part of that.

Your son may be very " high functioning " and capable of holding his own, but

he is still a special needs kid. The director has NOT done what she should

have, what she said she would do, and there have been unacceptable incidences.

Not eating lunch and not using the bathroom indicates that the kid is more

confused than I'd find acceptable.

I'd have a polite but pointed talk with the director again. I wouldn't try

to sneak instruction to the counselors, but ask that each Monday morning, when

I drop off my son, that in the midst of all that chaos, I get 10 minutes with

the head counselor to explain my son's needs. I would guild this lily a

bit as well and bring up safety concerns. Your son cannot follow instructions

he can't hear and therefore could be hurt. This director should be taking this

more seriously than she is and that is not good.

You tried to handle your son's needs before camp started but it has not been

given sufficient attention. 's counselors need to know that they have a

D/HOH child in their group so that they can make sure they face him when

speaking and make sure that he is on the same page as all the rest of the kids.

It does not take a huge amount of effort to make sure your son is keeping up.

Plus, like I said, this cold be a safety issue. If he can't ear

instructions, he can't follow them. In that crowded lunchroom, if they were

screaming out

evacuation or fire drill type instructions, someone needs to know that they

have to take your son's hand.

You're not being " that " mother for no reason. You're being her because it is

who you need to be to make sure your son is safe and has a good experience at

camp.

Best -- Jill

[Guest guest]

,

Stop worrying about being " that " mom. You are paying fort his camp, yes?

Even if it is a free one through your town, that director is a paid professional

and should be expected to do her job. And sharing information about a

disabled child is part of that.

Your son may be very " high functioning " and capable of holding his own, but

he is still a special needs kid. The director has NOT done what she should

have, what she said she would do, and there have been unacceptable incidences.

Not eating lunch and not using the bathroom indicates that the kid is more

confused than I'd find acceptable.

I'd have a polite but pointed talk with the director again. I wouldn't try

to sneak instruction to the counselors, but ask that each Monday morning, when

I drop off my son, that in the midst of all that chaos, I get 10 minutes with

the head counselor to explain my son's needs. I would guild this lily a

bit as well and bring up safety concerns. Your son cannot follow instructions

he can't hear and therefore could be hurt. This director should be taking this

more seriously than she is and that is not good.

You tried to handle your son's needs before camp started but it has not been

given sufficient attention. 's counselors need to know that they have a

D/HOH child in their group so that they can make sure they face him when

speaking and make sure that he is on the same page as all the rest of the kids.

It does not take a huge amount of effort to make sure your son is keeping up.

Plus, like I said, this cold be a safety issue. If he can't ear

instructions, he can't follow them. In that crowded lunchroom, if they were

screaming out

evacuation or fire drill type instructions, someone needs to know that they

have to take your son's hand.

You're not being " that " mother for no reason. You're being her because it is

who you need to be to make sure your son is safe and has a good experience at

camp.

Best -- Jill

[Guest guest]

,

Stop worrying about being " that " mom. You are paying fort his camp, yes?

Even if it is a free one through your town, that director is a paid professional

and should be expected to do her job. And sharing information about a

disabled child is part of that.

Your son may be very " high functioning " and capable of holding his own, but

he is still a special needs kid. The director has NOT done what she should

have, what she said she would do, and there have been unacceptable incidences.

Not eating lunch and not using the bathroom indicates that the kid is more

confused than I'd find acceptable.

I'd have a polite but pointed talk with the director again. I wouldn't try

to sneak instruction to the counselors, but ask that each Monday morning, when

I drop off my son, that in the midst of all that chaos, I get 10 minutes with

the head counselor to explain my son's needs. I would guild this lily a

bit as well and bring up safety concerns. Your son cannot follow instructions

he can't hear and therefore could be hurt. This director should be taking this

more seriously than she is and that is not good.

You tried to handle your son's needs before camp started but it has not been

given sufficient attention. 's counselors need to know that they have a

D/HOH child in their group so that they can make sure they face him when

speaking and make sure that he is on the same page as all the rest of the kids.

It does not take a huge amount of effort to make sure your son is keeping up.

Plus, like I said, this cold be a safety issue. If he can't ear

instructions, he can't follow them. In that crowded lunchroom, if they were

screaming out

evacuation or fire drill type instructions, someone needs to know that they

have to take your son's hand.

You're not being " that " mother for no reason. You're being her because it is

who you need to be to make sure your son is safe and has a good experience at

camp.

Best -- Jill

[Guest guest]

LIsa, I used to do a one page thing on Maggie's hearing specifically for

swimming. She swims on a team snf started at about 4 swimming in meets. I did

it with lots of color and bullets and kept it simple, similar to what Barbara

suggested. Used graphics even. I laminated it so it could be used over and

over. Had lots of copies so if I saw a new person there I'd give them one. I

used it at girl scout day and overnight camp too. One thing I always

highlighted is to NOT ask her if she heard you. The answer would always be Yes.

Said to have her repeat the instructions instead. Mags was 7 or 8 and had been

swimming in meets for a couple of years before she realized there were 4 basic

strokes, not 5. She thoought one particular drill they did a lot was an actual

stroke! It does feel awful, and we were lucky that another child came along 6

or 8 years before Maggie who was deaf and whose brother's were star swimmers.

So the entire team structure was used to a deaf/HOH child. The deaf older girl

lifeguarded and did part time coaching. She and Maggie became buddies.

Everyone realized how deaf they both were when the entire pool had evacuated due

to thunder and they were still in the middle of the pool clueless!

[Guest guest]

LIsa, I used to do a one page thing on Maggie's hearing specifically for

swimming. She swims on a team snf started at about 4 swimming in meets. I did

it with lots of color and bullets and kept it simple, similar to what Barbara

suggested. Used graphics even. I laminated it so it could be used over and

over. Had lots of copies so if I saw a new person there I'd give them one. I

used it at girl scout day and overnight camp too. One thing I always

highlighted is to NOT ask her if she heard you. The answer would always be Yes.

Said to have her repeat the instructions instead. Mags was 7 or 8 and had been

swimming in meets for a couple of years before she realized there were 4 basic

strokes, not 5. She thoought one particular drill they did a lot was an actual

stroke! It does feel awful, and we were lucky that another child came along 6

or 8 years before Maggie who was deaf and whose brother's were star swimmers.

So the entire team structure was used to a deaf/HOH child. The deaf older girl

lifeguarded and did part time coaching. She and Maggie became buddies.

Everyone realized how deaf they both were when the entire pool had evacuated due

to thunder and they were still in the middle of the pool clueless!

[Guest guest]

LIsa, I used to do a one page thing on Maggie's hearing specifically for

swimming. She swims on a team snf started at about 4 swimming in meets. I did

it with lots of color and bullets and kept it simple, similar to what Barbara

suggested. Used graphics even. I laminated it so it could be used over and

over. Had lots of copies so if I saw a new person there I'd give them one. I

used it at girl scout day and overnight camp too. One thing I always

highlighted is to NOT ask her if she heard you. The answer would always be Yes.

Said to have her repeat the instructions instead. Mags was 7 or 8 and had been

swimming in meets for a couple of years before she realized there were 4 basic

strokes, not 5. She thoought one particular drill they did a lot was an actual

stroke! It does feel awful, and we were lucky that another child came along 6

or 8 years before Maggie who was deaf and whose brother's were star swimmers.

So the entire team structure was used to a deaf/HOH child. The deaf older girl

lifeguarded and did part time coaching. She and Maggie became buddies.

Everyone realized how deaf they both were when the entire pool had evacuated due

to thunder and they were still in the middle of the pool clueless!

[Guest guest]

Oh yes - good point, - if you ask either of my kids if they hear

you, they'll nod and say " yes " so you need to ask them a question that

requires more than a yes or no answer as in " what is your favorite

color " - that type of thing.

We've found that oftentimes camp counsellors - who might not be as well

trained as say, teachers - can be somewhat overwhelmed by our boys'

hearing technology but most have appreciated us stepping in. IN 's

case too, , I'm guessing he probably has good speech. I've found

it's a mixed blessing - that because my own boys do have pretty clear

speech, folks who don't know them don't realize their hearing needs...

Barbara

pcknott@... wrote:

> LIsa, I used to do a one page thing on Maggie's hearing specifically for

swimming. She swims on a team snf started at about 4 swimming in meets. I did

it with lots of color and bullets and kept it simple, similar to what Barbara

suggested. Used graphics even. I laminated it so it could be used over and

over. Had lots of copies so if I saw a new person there I'd give them one. I

used it at girl scout day and overnight camp too. One thing I always

highlighted is to NOT ask her if she heard you. The answer would always be Yes.

Said to have her repeat the instructions instead. Mags was 7 or 8 and had been

swimming in meets for a couple of years before she realized there were 4 basic

strokes, not 5. She thoought one particular drill they did a lot was an actual

stroke! It does feel awful, and we were lucky that another child came along 6

or 8 years before Maggie who was deaf and whose brother's were star swimmers.

So the entire team structure was used to a deaf/HOH chi!

> ld. The deaf older girl lifeguarded and did part time coaching. She and

Maggie became buddies. Everyone realized how deaf they both were when the

entire pool had evacuated due to thunder and they were still in the middle of

the pool clueless!

>

>

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

>

[Guest guest]

Oh yes - good point, - if you ask either of my kids if they hear

you, they'll nod and say " yes " so you need to ask them a question that

requires more than a yes or no answer as in " what is your favorite

color " - that type of thing.

We've found that oftentimes camp counsellors - who might not be as well

trained as say, teachers - can be somewhat overwhelmed by our boys'

hearing technology but most have appreciated us stepping in. IN 's

case too, , I'm guessing he probably has good speech. I've found

it's a mixed blessing - that because my own boys do have pretty clear

speech, folks who don't know them don't realize their hearing needs...

Barbara

pcknott@... wrote:

> LIsa, I used to do a one page thing on Maggie's hearing specifically for

swimming. She swims on a team snf started at about 4 swimming in meets. I did

it with lots of color and bullets and kept it simple, similar to what Barbara

suggested. Used graphics even. I laminated it so it could be used over and

over. Had lots of copies so if I saw a new person there I'd give them one. I

used it at girl scout day and overnight camp too. One thing I always

highlighted is to NOT ask her if she heard you. The answer would always be Yes.

Said to have her repeat the instructions instead. Mags was 7 or 8 and had been

swimming in meets for a couple of years before she realized there were 4 basic

strokes, not 5. She thoought one particular drill they did a lot was an actual

stroke! It does feel awful, and we were lucky that another child came along 6

or 8 years before Maggie who was deaf and whose brother's were star swimmers.

So the entire team structure was used to a deaf/HOH chi!

> ld. The deaf older girl lifeguarded and did part time coaching. She and

Maggie became buddies. Everyone realized how deaf they both were when the

entire pool had evacuated due to thunder and they were still in the middle of

the pool clueless!

>

>

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

>

[Guest guest]

Oh yes - good point, - if you ask either of my kids if they hear

you, they'll nod and say " yes " so you need to ask them a question that

requires more than a yes or no answer as in " what is your favorite

color " - that type of thing.

We've found that oftentimes camp counsellors - who might not be as well

trained as say, teachers - can be somewhat overwhelmed by our boys'

hearing technology but most have appreciated us stepping in. IN 's

case too, , I'm guessing he probably has good speech. I've found

it's a mixed blessing - that because my own boys do have pretty clear

speech, folks who don't know them don't realize their hearing needs...

Barbara

pcknott@... wrote:

> LIsa, I used to do a one page thing on Maggie's hearing specifically for

swimming. She swims on a team snf started at about 4 swimming in meets. I did

it with lots of color and bullets and kept it simple, similar to what Barbara

suggested. Used graphics even. I laminated it so it could be used over and

over. Had lots of copies so if I saw a new person there I'd give them one. I

used it at girl scout day and overnight camp too. One thing I always

highlighted is to NOT ask her if she heard you. The answer would always be Yes.

Said to have her repeat the instructions instead. Mags was 7 or 8 and had been

swimming in meets for a couple of years before she realized there were 4 basic

strokes, not 5. She thoought one particular drill they did a lot was an actual

stroke! It does feel awful, and we were lucky that another child came along 6

or 8 years before Maggie who was deaf and whose brother's were star swimmers.

So the entire team structure was used to a deaf/HOH chi!

> ld. The deaf older girl lifeguarded and did part time coaching. She and

Maggie became buddies. Everyone realized how deaf they both were when the

entire pool had evacuated due to thunder and they were still in the middle of

the pool clueless!

>

>

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

>

[Guest guest]

,

My son goes to a wonderful private school where they have gone out of

their way to accomodate my son's needs. I never wanted to be pushy and

also wanted him to learn to take care of himself, so I generally was

very low key. In addition, I came late to the HL thing because he

wasn't diagnosed until he was 9.

When he was in 7th grade, his class went on a week long outdoor ed

trip. I got a call the night they returned home from his teacher,

apologizing about the hypothermia. It was a garbled story and I quickly

realized that she was trying to tell her story before I heard from my

son. She was concerned about him, but also about herself. The kids had

done an exercise on rafts where thay had to figure out as a group how

to get from one place to another. There wasn't enough raft space for

everyone, so some people had to hang on to the side, taking turns

sitting on the raft. I don't remember all the details at this point.

My son ended up in the water the whole time because he didn't

understand what was going on (no hearing aids) and didn't know how to

get his needs across. After quite a while, a teacher noticed that my

son was blue and they realized that of course he couldn't hear and this

was the wrong thing for him to be doing. They got him out of the water

and warmed him up. He thought this was a great adventure and did not

want me to make a fuss, so I didn't, at the time.

But I realized that I needed to take a much more proactive role in

teacher education both to let my son's teachers know what was needed

(and even the best, when dealing with a group don't necessarily think

about my son first unless I have made a fuss) and to show him how to

deal with a difficult situation. He learned to evaluate a situation for

potential difficulties and to speak about problems as they arise. As

much as I would like teachers to anticipate his needs, I know it's not

going to happen. In general, they prefer hearing from me what to do, so

they can go about doing it. They don't have the time or experience to

do otherwise. For those who think I am being overprotective, I respect

their opinion but choose to be a squeaky wheel.

camp experience

At this moment the issue I'm concerned about it fresh in my

mind. I'm typing to my listen-up friends to vent and maybe get some

suggestions before I go off writing letters or phrasing things poorly

to my son's camp.

My son, , is 5.5 years old. He uses a CI and hearing aid. He is

going to a half day summer camp program 8:30 - noon daily. Each week

there are several different themed programs to choose from with varying

age groups, so the campers and teachers/counselors change each week.

Several weeks before camp I sent a letter of introduction to the camp

director with some information about and tips for communicating

with a child with a hearing loss and CI. I explained where the

listening challenges would be and also detailed the precautions to take

with the equipment. (water and static) In the letter I stated I would

like to set up a time when I could come by and show them how to change

batteries and answer any questions about or the equipment. I

hadn't heard anything from the director the week before camp so I

called. I had to leave a message and didn't hear back from her. I

called again a couple days later. She suggested getting with me the

first day of camp right after I dropped off. I realize people

don't really " get it " when it comes to what they need to know. She had

told me that she had read through all the information and she thought

they were ready to go. I did stress gently that I thought it was

important just to go over the information when she wouldn't be

distracted or rushed, so I stopped by her office with the

following day to show her how to change batteries. I also showed her

how to readjust the earhook should it fall off and how the coil

sometimes falls off. She mentioned that if anything happened the

counselor would let her know and she would take care of it. I didn't

push things at that point, but I really felt like the counselor should

be in on this education too. I left feeling it was okay to send him

down to her if there were battery issues.

The first day of camp I met the counselor briefly when I dropped him

off. There really wasn't time to start talking about concerns. I don't

want to be that overbearing mother who expects a report everyday and

wants special treatment. But I really do want to know how he's fitting

in and I worry about him being lost in the shuffle. I was pleased with

the first week. seemed really happy and adjusted well. His group

that week was only about 5-6 kids. I think he benefitted from having a

small group that allowed for more one on one and the counselor was an

experienced school teacher.

This was the first day of the second week so we start over with a new

theme and new counselors. It's " pirate week " and apparently this is

popular theme because he's got about 15 kids in his group this time. My

husband dropped off and briefly chatted with the counselor but it

was so busy and noisy that he really couldn't talk much. My husband got

the impression that the counselor wasn't even briefed on having a child

with hearing loss in the group which disappointed me. I had provided

all that printed info to the director so I figured she would share that

with everyone who would be working with . My husband had said

something like... I guess you know that he uses a cochlear implant and

a hearing aid so... and went on to explain some tips... and the

counselor said, " No, I didn't know. " Grrrr... This time the counselors

were young people so I'm thinking they might not be as knowlegeable

about communicating with kindergarteners.

Well today it really hit me how 's hearing loss can leave him out

of the loop. I pick him up daily in the cafeteria where he's having

lunch from 12:30. The kids are on their own at the tables and the

counselors are seated at a main table in the center of the cafeteria. I

have no idea what the rules or routine are for this period. But anyway,

I picked up at the table and he told me, " I didn't have a lunch

box today. " Well yes he did. He brought one, and I remember my husband

telling me they were instructed to leave it in a cubby in the

cafeteria. So I looked along the wall and there it was. So I told

that yes, he did bring his lunchbox and that he put it in a cubby. He

said, " But I don't know where it is. " I'm just wondering why someone

wasn't looking out for him. I realize they don't have to " hold

everyone's hands " but it really bothered me that had to sit there

the whole time without lunch. I don't know why he didn't remember or

know where his lunch was. I think he just isn't familiar with the

routine and doesn't know who to turn to or ask. He's only 5 years old

so I'm sure he doesn't really know how to problem solve in an

unfamiliar environment. I told him that he should talk to a counselor

next time he needs something, but again I think that takes a lot of

assertiveness to approach the big table of counselors to express his

concern. I will say something to them tomorrow. I did see the director

on my way out and I asked if there was a new routine this week about

where they put their lunchboxes. She told me no and explained that they

leave them in the cubbies. I told her that didn't have lunch today

because he didn't know where his was. She said, " Oh, they told the kids

to get them in their cubbies. " And it was at that point I realized that

in a noisy cafeteria with a bunch of campers buzzing around and the

counselor shouting out over the chaos as to where and when to get your

lunches, just didn't hear it. I bet he didn't even SEE it either.

I just said, " I guess he didn't hear them, " and I think she realized

the problem.

Last week I picked him up on two separate occasions and he mentioned

how he had to use the bathroom and he " just kept waiting and waiting. "

I asked him why he didn't tell a counselor. He just didn't know what to

do. I think he really needs to know what the " rules " are and the

expectations. He didn't know what he was supposed to do if he needed to

go to the bathroom. I also think he thinks it's like school where he is

used to a very structured day and every day is the same routine, which

includes bathroom breaks and not spending a lot of time chatting at

lunch time. I really feel bad for him during that free lunch period

because I know he can't keep up socially due to his age and the hearing

challenge.

How do I get them to look out for him without being that mom who is

trying to tell everyone what to do? I'm so apprehensive about asking

for special treatment, but at the same time I feel deserves it.

He's doing great so far and isn't complaining. I'm sure he doesn't know

what he's missing. I just want to give him as much access as I can,

while at the same time letting him learn how to manage in these

challenging circumstances.

I'm thinking of writing a note to the counselor for tomorrow and

including the two page info I provided for the director. There are just

too many circumstances where I think they need to know how to deal. for

instance it was raining today... I wondered if they would have known

what to do if they were stuck in an unexpected downpour on the

playground. Or what about when they go on field trips? They had two

last week and I worried about the possibility of battery changes during

that. I bet the counselor wouldn't have a clue.

K

[Guest guest]

,

My son goes to a wonderful private school where they have gone out of

their way to accomodate my son's needs. I never wanted to be pushy and

also wanted him to learn to take care of himself, so I generally was

very low key. In addition, I came late to the HL thing because he

wasn't diagnosed until he was 9.

When he was in 7th grade, his class went on a week long outdoor ed

trip. I got a call the night they returned home from his teacher,

apologizing about the hypothermia. It was a garbled story and I quickly

realized that she was trying to tell her story before I heard from my

son. She was concerned about him, but also about herself. The kids had

done an exercise on rafts where thay had to figure out as a group how

to get from one place to another. There wasn't enough raft space for

everyone, so some people had to hang on to the side, taking turns

sitting on the raft. I don't remember all the details at this point.

My son ended up in the water the whole time because he didn't

understand what was going on (no hearing aids) and didn't know how to

get his needs across. After quite a while, a teacher noticed that my

son was blue and they realized that of course he couldn't hear and this

was the wrong thing for him to be doing. They got him out of the water

and warmed him up. He thought this was a great adventure and did not

want me to make a fuss, so I didn't, at the time.

But I realized that I needed to take a much more proactive role in

teacher education both to let my son's teachers know what was needed

(and even the best, when dealing with a group don't necessarily think

about my son first unless I have made a fuss) and to show him how to

deal with a difficult situation. He learned to evaluate a situation for

potential difficulties and to speak about problems as they arise. As

much as I would like teachers to anticipate his needs, I know it's not

going to happen. In general, they prefer hearing from me what to do, so

they can go about doing it. They don't have the time or experience to

do otherwise. For those who think I am being overprotective, I respect

their opinion but choose to be a squeaky wheel.

camp experience

At this moment the issue I'm concerned about it fresh in my

mind. I'm typing to my listen-up friends to vent and maybe get some

suggestions before I go off writing letters or phrasing things poorly

to my son's camp.

My son, , is 5.5 years old. He uses a CI and hearing aid. He is

going to a half day summer camp program 8:30 - noon daily. Each week

there are several different themed programs to choose from with varying

age groups, so the campers and teachers/counselors change each week.

Several weeks before camp I sent a letter of introduction to the camp

director with some information about and tips for communicating

with a child with a hearing loss and CI. I explained where the

listening challenges would be and also detailed the precautions to take

with the equipment. (water and static) In the letter I stated I would

like to set up a time when I could come by and show them how to change

batteries and answer any questions about or the equipment. I

hadn't heard anything from the director the week before camp so I

called. I had to leave a message and didn't hear back from her. I

called again a couple days later. She suggested getting with me the

first day of camp right after I dropped off. I realize people

don't really " get it " when it comes to what they need to know. She had

told me that she had read through all the information and she thought

they were ready to go. I did stress gently that I thought it was

important just to go over the information when she wouldn't be

distracted or rushed, so I stopped by her office with the

following day to show her how to change batteries. I also showed her

how to readjust the earhook should it fall off and how the coil

sometimes falls off. She mentioned that if anything happened the

counselor would let her know and she would take care of it. I didn't

push things at that point, but I really felt like the counselor should

be in on this education too. I left feeling it was okay to send him

down to her if there were battery issues.

The first day of camp I met the counselor briefly when I dropped him

off. There really wasn't time to start talking about concerns. I don't

want to be that overbearing mother who expects a report everyday and

wants special treatment. But I really do want to know how he's fitting

in and I worry about him being lost in the shuffle. I was pleased with

the first week. seemed really happy and adjusted well. His group

that week was only about 5-6 kids. I think he benefitted from having a

small group that allowed for more one on one and the counselor was an

experienced school teacher.

This was the first day of the second week so we start over with a new

theme and new counselors. It's " pirate week " and apparently this is

popular theme because he's got about 15 kids in his group this time. My

husband dropped off and briefly chatted with the counselor but it

was so busy and noisy that he really couldn't talk much. My husband got

the impression that the counselor wasn't even briefed on having a child

with hearing loss in the group which disappointed me. I had provided

all that printed info to the director so I figured she would share that

with everyone who would be working with . My husband had said

something like... I guess you know that he uses a cochlear implant and

a hearing aid so... and went on to explain some tips... and the

counselor said, " No, I didn't know. " Grrrr... This time the counselors

were young people so I'm thinking they might not be as knowlegeable

about communicating with kindergarteners.

Well today it really hit me how 's hearing loss can leave him out

of the loop. I pick him up daily in the cafeteria where he's having

lunch from 12:30. The kids are on their own at the tables and the

counselors are seated at a main table in the center of the cafeteria. I

have no idea what the rules or routine are for this period. But anyway,

I picked up at the table and he told me, " I didn't have a lunch

box today. " Well yes he did. He brought one, and I remember my husband

telling me they were instructed to leave it in a cubby in the

cafeteria. So I looked along the wall and there it was. So I told

that yes, he did bring his lunchbox and that he put it in a cubby. He

said, " But I don't know where it is. " I'm just wondering why someone

wasn't looking out for him. I realize they don't have to " hold

everyone's hands " but it really bothered me that had to sit there

the whole time without lunch. I don't know why he didn't remember or

know where his lunch was. I think he just isn't familiar with the

routine and doesn't know who to turn to or ask. He's only 5 years old

so I'm sure he doesn't really know how to problem solve in an

unfamiliar environment. I told him that he should talk to a counselor

next time he needs something, but again I think that takes a lot of

assertiveness to approach the big table of counselors to express his

concern. I will say something to them tomorrow. I did see the director

on my way out and I asked if there was a new routine this week about

where they put their lunchboxes. She told me no and explained that they

leave them in the cubbies. I told her that didn't have lunch today

because he didn't know where his was. She said, " Oh, they told the kids

to get them in their cubbies. " And it was at that point I realized that

in a noisy cafeteria with a bunch of campers buzzing around and the

counselor shouting out over the chaos as to where and when to get your

lunches, just didn't hear it. I bet he didn't even SEE it either.

I just said, " I guess he didn't hear them, " and I think she realized

the problem.

Last week I picked him up on two separate occasions and he mentioned

how he had to use the bathroom and he " just kept waiting and waiting. "

I asked him why he didn't tell a counselor. He just didn't know what to

do. I think he really needs to know what the " rules " are and the

expectations. He didn't know what he was supposed to do if he needed to

go to the bathroom. I also think he thinks it's like school where he is

used to a very structured day and every day is the same routine, which

includes bathroom breaks and not spending a lot of time chatting at

lunch time. I really feel bad for him during that free lunch period

because I know he can't keep up socially due to his age and the hearing

challenge.

How do I get them to look out for him without being that mom who is

trying to tell everyone what to do? I'm so apprehensive about asking

for special treatment, but at the same time I feel deserves it.

He's doing great so far and isn't complaining. I'm sure he doesn't know

what he's missing. I just want to give him as much access as I can,

while at the same time letting him learn how to manage in these

challenging circumstances.

I'm thinking of writing a note to the counselor for tomorrow and

including the two page info I provided for the director. There are just

too many circumstances where I think they need to know how to deal. for

instance it was raining today... I wondered if they would have known

what to do if they were stuck in an unexpected downpour on the

playground. Or what about when they go on field trips? They had two

last week and I worried about the possibility of battery changes during

that. I bet the counselor wouldn't have a clue.

K

[Guest guest]

,

I just wanted to share with you what my experience was last year when Bobby

was five and put into a regular mainstream camp. Until then he had been in

school directed special need camps, but he progressed so well during the

year that they said he didn't need services in the summer anymore. I was

happy, and decided he could go into a Y camp instead. same as your son,

tried to give them a heads up ahead of time, tried to talk to everyone, no

one really took it seriously, that kind of thing.

the first day I went to pick him up. Now thank God my three older kids were

at the same camp, and they were supposed to be in a separate part of the

camp doing older things, but at times they were all together. this was also

before I knew Bobby had a hearing loss, so he was unaided and didn't hear

well. Anyway, the first day my 14 year old was in tears because she had

taken care of him the entire day. It started when Bobby walked into the

girls' bathroom because he can't read and he probably didn't hear anyone

explain anything to him, if they even did. He was told not to after all the

girls ran out (I think it was a locker room) screaming. It really scared

him. And my older kids were so upset they wouldn't leave him alone after

that.

Bottom line is that I pulled him out and didn't let him back in again.

These are young kids on a summer job, and they don't have enough life

experience to have any clue what these kids really need.

No answers, just to tell you that I know how you feel.

Trish

[Guest guest]

,

I just wanted to share with you what my experience was last year when Bobby

was five and put into a regular mainstream camp. Until then he had been in

school directed special need camps, but he progressed so well during the

year that they said he didn't need services in the summer anymore. I was

happy, and decided he could go into a Y camp instead. same as your son,

tried to give them a heads up ahead of time, tried to talk to everyone, no

one really took it seriously, that kind of thing.

the first day I went to pick him up. Now thank God my three older kids were

at the same camp, and they were supposed to be in a separate part of the

camp doing older things, but at times they were all together. this was also

before I knew Bobby had a hearing loss, so he was unaided and didn't hear

well. Anyway, the first day my 14 year old was in tears because she had

taken care of him the entire day. It started when Bobby walked into the

girls' bathroom because he can't read and he probably didn't hear anyone

explain anything to him, if they even did. He was told not to after all the

girls ran out (I think it was a locker room) screaming. It really scared

him. And my older kids were so upset they wouldn't leave him alone after

that.

Bottom line is that I pulled him out and didn't let him back in again.

These are young kids on a summer job, and they don't have enough life

experience to have any clue what these kids really need.

No answers, just to tell you that I know how you feel.

Trish

[Guest guest]

In a message dated 6/30/2006 5:32:02 P.M. Eastern Daylight Time,

Barbara.T.Mellert@... writes:

Oh - that's so funny re: booty - my boys would have said the same

thing!

So am I the last one to learn about this joke?

Q - why can't fifth graders see the Pirate movie?

A - because it's rated arghhhhhhhhhhhhhhhhA

Ah, the pirate stage, I remember it well. It was second only to the

seemingly endless fascination with dinosaurs and frogs. How about this one ...

Q: Where do pirates keep their buccaneers?

A: Under their buckin' hats, of course.

My kids loved that one because it sounded so-o-o-o-o naughty. LOL

Jill