Re: Neuro exam -- big disappointment

[Guest guest]

-A speech Lannguage Pathologist is the right proffesional.They are

the on ewho diagnose and treat apraxia

-- In , Jan Compton

<mar4com2003@...> wrote:

>

> What about a Speech and Language Pathologist? I believe that is who

dx my son with Apraxia.

>

> Jan In Ca

>

> myjunkytrash <myjunkytrash@...> wrote:

> We took our 31 mos old son to see a neurologist today.

Our

> pediatrician referred us when I asked about the blood work

> described to us and about testing for Fragile X. The neurologist

> seemed pretty put out that we were there for something

> " developmental " and suggested that we bring our son to a

> psychiatrist or psychologist (my son has some " red flag " behaviors

> in addition to the not talking).

>

> The doctor was not interested in doing any blood work or further

> testing (mainstream or otherwise) because he said such tests

produce

> a " low yield " in terms of answers. He thinks restricted diets

> (GFCF) and chelation are a " bunch of garbage. " He didn't mind that

> we had our son on fish oils and Vit E though. He said it couldn't

> hurt.

>

> I specifically asked him about apraxia (which I thought was a

> neurological disorder) and he said my son has symptoms consistent

> with apraxia but that he couldn't diagnose that. He said my son's

> OT and SLPs should make that call.

>

> I'm not sure what to do next. I guess I need to bring my son to a

> psychiatrist (and maybe myself to one while I'm at it), but then

who

> can I bring him to regarding whether or not he has apraxia? In

> spite of what the neuro said, my son's therapists don't feel it is

> their place to make medical diagnoses. And then there's the blood

> work suggested, I suppose I could find a DAN doctor to do

> it, but then I will have to pay out of pocket and I have heard it

is

> very expensive. Maybe I should just tinker with the supplements

> more and add Carnaware just in case? I HATE dealing with the

> doctors on this because I just don't feel I can explain myself well

> enough when it comes to all these tests, and it is so emotional to

> have someone tell you your child has a major disorder that getting

> past that to talk about further testing … well it just didn't work

> very well.

>

> I just really feel like I failed.

>

>

>

>

>

>

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