Re: Question for ...Neurologist???

[Guest guest]

Trish-

I am not , but as you know she is a busy lady and probably

cannot answer everything.

My son has both apraxia and epilepsy. We have seen a neurologist for

many years, of course, to manage his epilepsy. I will tell you that

he is of absolutely no value when it comes to 's apraxia and other

developmental struggles. He " wants " to be helpful, but simply is not.

But, he has does have additional training in pediatric epilepsy, and

boy is he good in that regard! Our doctors are at a Mayo Clinic

affiliated hospital - highly regarded in all respects - but there is

not a neurologist in the group that would be of any more help in this

regard.

That being said, it may be of some value for you to find a specialist

that understands not just apraxia, but any other delays. But,

depending on where you live and who the doctors are near you, this may

or may not be a neurologist. It may be a pediatrician who has

received additional training in developmental issues. It may be a

psychiatrist who has a special interest in learning disabilities of

all kinds. Or, of course, it may be a neurologist - if they have the

extra training and interest.

I would ask around to other parents in your area, or maybe some of the

teachers and therapists at your preschool, who the highly regarded

doctors are. Believe me, when you start in the special ed community

(which, I hate to admit, we are now in), everybody knows who these

doctors are.

Best of luck-

th

>

> Hi ,

> I know you are busy, but just wanted to ask your opinion. Jackie has

> not officially been diagnosed, but i believe she is apraxic as well

> as her therapist. I dont know why there is no official dianosis, but

> she is recieving the services she needs so I guess I am kinda just

> happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus PT 2

> X 30 and is an integrated classroom setting for 3 and 4 year olds.

> My question is this...should I have her evaluated by a neurologist?

> Why and why not should I. Im just confused. I dont want to miss

> anything. If I do take her what kind of tests should I expect? I

> just want to be sure that I am doing all that I can for her and dont

> want to miss anything...

> We have seen wonderful improvement since starting the supplements,

> but her expressive language is still very delayed. I have been

> recommended to one neurologist that I hear wonderful things about.

> Supposedly an exceptional diagnostition, but of course she doesnt

> accept any insurance...Im just not sure if I should take her or not.

> Just wondering your oppinion...

>

> Thanks for everything,

> Again, this forum has been my lifeline...

>

> Trish

>

[Guest guest]

> >

> > Hi ,

> > I know you are busy, but just wanted to ask your opinion.

Jackie has

> > not officially been diagnosed, but i believe she is apraxic as

well

> > as her therapist. I dont know why there is no official

dianosis, but

> > she is recieving the services she needs so I guess I am kinda

just

> > happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

PT 2

> > X 30 and is an integrated classroom setting for 3 and 4 year

olds.

> > My question is this...should I have her evaluated by a

neurologist?

> > Why and why not should I. Im just confused. I dont want to

miss

> > anything. If I do take her what kind of tests should I expect?

I

> > just want to be sure that I am doing all that I can for her and

dont

> > want to miss anything...

> > We have seen wonderful improvement since starting the

supplements,

> > but her expressive language is still very delayed. I have been

> > recommended to one neurologist that I hear wonderful things

about.

> > Supposedly an exceptional diagnostition, but of course she

doesnt

> > accept any insurance...Im just not sure if I should take her or

not.

> > Just wondering your oppinion...

> >

> > Thanks for everything,

> > Again, this forum has been my lifeline...

> >

> > Trish

> >

>

[Guest guest]

Hi Trish:

I took my son to a neuroligist when he was 26 months old for a

diagnosis of apraxia to help get more services from Early

Intervention. He wasn't getting the apropriate therapy before the

diagnosis. Your child is getting a really good amount of speech

therapy. And it sounds like the therapist thinks it is also

apraxia. Is the therapist doing speech therapy as if your child

does have apraxia? I think the appropriate therapy is what is most

important.

Tina

Mom to Landon 3yrs

>

> Hi ,

> I know you are busy, but just wanted to ask your opinion. Jackie

has

> not officially been diagnosed, but i believe she is apraxic as

well

> as her therapist. I dont know why there is no official dianosis,

but

> she is recieving the services she needs so I guess I am kinda just

> happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

PT 2

> X 30 and is an integrated classroom setting for 3 and 4 year

olds.

> My question is this...should I have her evaluated by a

neurologist?

> Why and why not should I. Im just confused. I dont want to miss

> anything. If I do take her what kind of tests should I expect? I

> just want to be sure that I am doing all that I can for her and

dont

> want to miss anything...

> We have seen wonderful improvement since starting the supplements,

> but her expressive language is still very delayed. I have been

> recommended to one neurologist that I hear wonderful things

about.

> Supposedly an exceptional diagnostition, but of course she doesnt

> accept any insurance...Im just not sure if I should take her or

not.

> Just wondering your oppinion...

>

> Thanks for everything,

> Again, this forum has been my lifeline...

>

> Trish

>

[Guest guest]

Trish-

I am not , but as you know she is a busy lady and probably

cannot answer everything.

My son has both apraxia and epilepsy. We have seen a neurologist for

many years, of course, to manage his epilepsy. I will tell you that

he is of absolutely no value when it comes to 's apraxia and other

developmental struggles. He " wants " to be helpful, but simply is not.

But, he has does have additional training in pediatric epilepsy, and

boy is he good in that regard! Our doctors are at a Mayo Clinic

affiliated hospital - highly regarded in all respects - but there is

not a neurologist in the group that would be of any more help in this

regard.

That being said, it may be of some value for you to find a specialist

that understands not just apraxia, but any other delays. But,

depending on where you live and who the doctors are near you, this may

or may not be a neurologist. It may be a pediatrician who has

received additional training in developmental issues. It may be a

psychiatrist who has a special interest in learning disabilities of

all kinds. Or, of course, it may be a neurologist - if they have the

extra training and interest.

I would ask around to other parents in your area, or maybe some of the

teachers and therapists at your preschool, who the highly regarded

doctors are. Believe me, when you start in the special ed community

(which, I hate to admit, we are now in), everybody knows who these

doctors are.

Best of luck-

th

>

> Hi ,

> I know you are busy, but just wanted to ask your opinion. Jackie has

> not officially been diagnosed, but i believe she is apraxic as well

> as her therapist. I dont know why there is no official dianosis, but

> she is recieving the services she needs so I guess I am kinda just

> happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus PT 2

> X 30 and is an integrated classroom setting for 3 and 4 year olds.

> My question is this...should I have her evaluated by a neurologist?

> Why and why not should I. Im just confused. I dont want to miss

> anything. If I do take her what kind of tests should I expect? I

> just want to be sure that I am doing all that I can for her and dont

> want to miss anything...

> We have seen wonderful improvement since starting the supplements,

> but her expressive language is still very delayed. I have been

> recommended to one neurologist that I hear wonderful things about.

> Supposedly an exceptional diagnostition, but of course she doesnt

> accept any insurance...Im just not sure if I should take her or not.

> Just wondering your oppinion...

>

> Thanks for everything,

> Again, this forum has been my lifeline...

>

> Trish

>

[Guest guest]

> >

> > Hi ,

> > I know you are busy, but just wanted to ask your opinion.

Jackie has

> > not officially been diagnosed, but i believe she is apraxic as

well

> > as her therapist. I dont know why there is no official

dianosis, but

> > she is recieving the services she needs so I guess I am kinda

just

> > happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

PT 2

> > X 30 and is an integrated classroom setting for 3 and 4 year

olds.

> > My question is this...should I have her evaluated by a

neurologist?

> > Why and why not should I. Im just confused. I dont want to

miss

> > anything. If I do take her what kind of tests should I expect?

I

> > just want to be sure that I am doing all that I can for her and

dont

> > want to miss anything...

> > We have seen wonderful improvement since starting the

supplements,

> > but her expressive language is still very delayed. I have been

> > recommended to one neurologist that I hear wonderful things

about.

> > Supposedly an exceptional diagnostition, but of course she

doesnt

> > accept any insurance...Im just not sure if I should take her or

not.

> > Just wondering your oppinion...

> >

> > Thanks for everything,

> > Again, this forum has been my lifeline...

> >

> > Trish

> >

>

[Guest guest]

Hi Trish:

I took my son to a neuroligist when he was 26 months old for a

diagnosis of apraxia to help get more services from Early

Intervention. He wasn't getting the apropriate therapy before the

diagnosis. Your child is getting a really good amount of speech

therapy. And it sounds like the therapist thinks it is also

apraxia. Is the therapist doing speech therapy as if your child

does have apraxia? I think the appropriate therapy is what is most

important.

Tina

Mom to Landon 3yrs

>

> Hi ,

> I know you are busy, but just wanted to ask your opinion. Jackie

has

> not officially been diagnosed, but i believe she is apraxic as

well

> as her therapist. I dont know why there is no official dianosis,

but

> she is recieving the services she needs so I guess I am kinda just

> happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

PT 2

> X 30 and is an integrated classroom setting for 3 and 4 year

olds.

> My question is this...should I have her evaluated by a

neurologist?

> Why and why not should I. Im just confused. I dont want to miss

> anything. If I do take her what kind of tests should I expect? I

> just want to be sure that I am doing all that I can for her and

dont

> want to miss anything...

> We have seen wonderful improvement since starting the supplements,

> but her expressive language is still very delayed. I have been

> recommended to one neurologist that I hear wonderful things

about.

> Supposedly an exceptional diagnostition, but of course she doesnt

> accept any insurance...Im just not sure if I should take her or

not.

> Just wondering your oppinion...

>

> Thanks for everything,

> Again, this forum has been my lifeline...

>

> Trish

>

[Guest guest]

Trish,

I just wanted to share my experience with you....

My son was always speech delayed as well as other dev delays. Many

signs to me pointed to apraxia but because we tried to get the

apraxia dx so late (after almost a year of constant weekly ST and

OT) it's possible if he had apraxia it was starting to look like

severe phono disorder, so he techniquically didn't fit the apraxia

components for the offical dx at age 3.

Then we started to seek for answers with the neurologist...Boy am I

sure glad we went that route....because we then found out that an

area of his brain had some damage(through an MRI)- basically meaning

he has mild CP and the part that was affected was the part that

controls speech,motor planning and sensory. It all made since! We

also did some EEG testing on the brain as well and we also got some

other shocking news, he had regisitered some seizure activity which

we were unaware of (absense seizures is what they are called).

So I highly suggest anyone whose kid has dev delays to also consider

what testing a neurologist might do. It differently made the world

of difference in our case!

Best wishes.

Janel

>

> Hi ,

> I know you are busy, but just wanted to ask your opinion. Jackie

has

> not officially been diagnosed, but i believe she is apraxic as

well

> as her therapist. I dont know why there is no official dianosis,

but

> she is recieving the services she needs so I guess I am kinda just

> happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

PT 2

> X 30 and is an integrated classroom setting for 3 and 4 year

olds.

> My question is this...should I have her evaluated by a

neurologist?

> Why and why not should I. Im just confused. I dont want to miss

> anything. If I do take her what kind of tests should I expect? I

> just want to be sure that I am doing all that I can for her and

dont

> want to miss anything...

> We have seen wonderful improvement since starting the supplements,

> but her expressive language is still very delayed. I have been

> recommended to one neurologist that I hear wonderful things

about.

> Supposedly an exceptional diagnostition, but of course she doesnt

> accept any insurance...Im just not sure if I should take her or

not.

> Just wondering your oppinion...

>

> Thanks for everything,

> Again, this forum has been my lifeline...

>

> Trish

>

[Guest guest]

Hey Tina,

Thanks so much for the reply. Yes we are treating her as if she were

apraxic! She recieves Oral Motor and Prompt therapy, along with ot

and pt. Multisensory approach. She is on supplements as well, and

making wonderful progress. I too agree that the right therapy is

essential for our children. Unfortunately I learned that the hard

way when Jackie first started speech. She had Language Stim for

about 8 months with no progress. As soon as we switched therapists

and worked more on oral motor, and eventually worked up to Prompt, we

saw improvement. Slow, but improvement! Thanks again for your

input..I truly appreciate it!

Trish

> >

> > Hi ,

> > I know you are busy, but just wanted to ask your opinion. Jackie

> has

> > not officially been diagnosed, but i believe she is apraxic as

> well

> > as her therapist. I dont know why there is no official dianosis,

> but

> > she is recieving the services she needs so I guess I am kinda

just

> > happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

> PT 2

> > X 30 and is an integrated classroom setting for 3 and 4 year

> olds.

> > My question is this...should I have her evaluated by a

> neurologist?

> > Why and why not should I. Im just confused. I dont want to miss

> > anything. If I do take her what kind of tests should I expect?

I

> > just want to be sure that I am doing all that I can for her and

> dont

> > want to miss anything...

> > We have seen wonderful improvement since starting the

supplements,

> > but her expressive language is still very delayed. I have been

> > recommended to one neurologist that I hear wonderful things

> about.

> > Supposedly an exceptional diagnostition, but of course she

doesnt

> > accept any insurance...Im just not sure if I should take her or

> not.

> > Just wondering your oppinion...

> >

> > Thanks for everything,

> > Again, this forum has been my lifeline...

> >

> > Trish

> >

>

[Guest guest]

Trish,

I just wanted to share my experience with you....

My son was always speech delayed as well as other dev delays. Many

signs to me pointed to apraxia but because we tried to get the

apraxia dx so late (after almost a year of constant weekly ST and

OT) it's possible if he had apraxia it was starting to look like

severe phono disorder, so he techniquically didn't fit the apraxia

components for the offical dx at age 3.

Then we started to seek for answers with the neurologist...Boy am I

sure glad we went that route....because we then found out that an

area of his brain had some damage(through an MRI)- basically meaning

he has mild CP and the part that was affected was the part that

controls speech,motor planning and sensory. It all made since! We

also did some EEG testing on the brain as well and we also got some

other shocking news, he had regisitered some seizure activity which

we were unaware of (absense seizures is what they are called).

So I highly suggest anyone whose kid has dev delays to also consider

what testing a neurologist might do. It differently made the world

of difference in our case!

Best wishes.

Janel

>

> Hi ,

> I know you are busy, but just wanted to ask your opinion. Jackie

has

> not officially been diagnosed, but i believe she is apraxic as

well

> as her therapist. I dont know why there is no official dianosis,

but

> she is recieving the services she needs so I guess I am kinda just

> happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

PT 2

> X 30 and is an integrated classroom setting for 3 and 4 year

olds.

> My question is this...should I have her evaluated by a

neurologist?

> Why and why not should I. Im just confused. I dont want to miss

> anything. If I do take her what kind of tests should I expect? I

> just want to be sure that I am doing all that I can for her and

dont

> want to miss anything...

> We have seen wonderful improvement since starting the supplements,

> but her expressive language is still very delayed. I have been

> recommended to one neurologist that I hear wonderful things

about.

> Supposedly an exceptional diagnostition, but of course she doesnt

> accept any insurance...Im just not sure if I should take her or

not.

> Just wondering your oppinion...

>

> Thanks for everything,

> Again, this forum has been my lifeline...

>

> Trish

>

[Guest guest]

Hi Trish,

More of not but it's great to see people replying to your

post. My take on this is that it IS important to get that diagnosis

in writing from someone with at least an MD after their name. The

reason I say that is that my son has been in therapy since he was

late in his 2nd year. He has worked hard, I've worked hard and he

has made incredible gains. He's on supplements and out of 4

therapists we've had one that really helped him. Fast forward to

school. They did their " Kindergarten screening " and guess what?

Nick did not get flagged for speech therapy. I was floored when

they told me that he had passed their speech screening but he did

despite his having severe word retrieval issues and almost being

unable to relate a story, plus having a rough time with a number of

consonants. Anyway, the bottom line is because I have the

neurologist's diagnosis in his file they HAVE to give him services.

They flat out told me that if he did not have a medical diagnosis

they would not have given him ANYTHING.

If I were you I would try to get recommendations for your area. You

can even post here asking if anyone knows of a good one where you

live. If that doesn't turn anything up I'd call all their offices

and ask if the docs have EXPERIENCE in diagnosing apraxia. Does it

have to be a nuero? Not necessarily but nueros and developmental

docs seem to hold a lot of power when it comes to schools.

Take care and good luck,

McCann

> >

> > Hi ,

> > I know you are busy, but just wanted to ask your opinion.

Jackie

> has

> > not officially been diagnosed, but i believe she is apraxic as

> well

> > as her therapist. I dont know why there is no official

dianosis,

> but

> > she is recieving the services she needs so I guess I am kinda

just

> > happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

> PT 2

> > X 30 and is an integrated classroom setting for 3 and 4 year

> olds.

> > My question is this...should I have her evaluated by a

> neurologist?

> > Why and why not should I. Im just confused. I dont want to

miss

> > anything. If I do take her what kind of tests should I expect?

I

> > just want to be sure that I am doing all that I can for her and

> dont

> > want to miss anything...

> > We have seen wonderful improvement since starting the

supplements,

> > but her expressive language is still very delayed. I have been

> > recommended to one neurologist that I hear wonderful things

> about.

> > Supposedly an exceptional diagnostition, but of course she

doesnt

> > accept any insurance...Im just not sure if I should take her or

> not.

> > Just wondering your oppinion...

> >

> > Thanks for everything,

> > Again, this forum has been my lifeline...

> >

> > Trish

> >

>

[Guest guest]

Hey Tina,

Thanks so much for the reply. Yes we are treating her as if she were

apraxic! She recieves Oral Motor and Prompt therapy, along with ot

and pt. Multisensory approach. She is on supplements as well, and

making wonderful progress. I too agree that the right therapy is

essential for our children. Unfortunately I learned that the hard

way when Jackie first started speech. She had Language Stim for

about 8 months with no progress. As soon as we switched therapists

and worked more on oral motor, and eventually worked up to Prompt, we

saw improvement. Slow, but improvement! Thanks again for your

input..I truly appreciate it!

Trish

> >

> > Hi ,

> > I know you are busy, but just wanted to ask your opinion. Jackie

> has

> > not officially been diagnosed, but i believe she is apraxic as

> well

> > as her therapist. I dont know why there is no official dianosis,

> but

> > she is recieving the services she needs so I guess I am kinda

just

> > happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

> PT 2

> > X 30 and is an integrated classroom setting for 3 and 4 year

> olds.

> > My question is this...should I have her evaluated by a

> neurologist?

> > Why and why not should I. Im just confused. I dont want to miss

> > anything. If I do take her what kind of tests should I expect?

I

> > just want to be sure that I am doing all that I can for her and

> dont

> > want to miss anything...

> > We have seen wonderful improvement since starting the

supplements,

> > but her expressive language is still very delayed. I have been

> > recommended to one neurologist that I hear wonderful things

> about.

> > Supposedly an exceptional diagnostition, but of course she

doesnt

> > accept any insurance...Im just not sure if I should take her or

> not.

> > Just wondering your oppinion...

> >

> > Thanks for everything,

> > Again, this forum has been my lifeline...

> >

> > Trish

> >

>

[Guest guest]

Hi Trish,

More of not but it's great to see people replying to your

post. My take on this is that it IS important to get that diagnosis

in writing from someone with at least an MD after their name. The

reason I say that is that my son has been in therapy since he was

late in his 2nd year. He has worked hard, I've worked hard and he

has made incredible gains. He's on supplements and out of 4

therapists we've had one that really helped him. Fast forward to

school. They did their " Kindergarten screening " and guess what?

Nick did not get flagged for speech therapy. I was floored when

they told me that he had passed their speech screening but he did

despite his having severe word retrieval issues and almost being

unable to relate a story, plus having a rough time with a number of

consonants. Anyway, the bottom line is because I have the

neurologist's diagnosis in his file they HAVE to give him services.

They flat out told me that if he did not have a medical diagnosis

they would not have given him ANYTHING.

If I were you I would try to get recommendations for your area. You

can even post here asking if anyone knows of a good one where you

live. If that doesn't turn anything up I'd call all their offices

and ask if the docs have EXPERIENCE in diagnosing apraxia. Does it

have to be a nuero? Not necessarily but nueros and developmental

docs seem to hold a lot of power when it comes to schools.

Take care and good luck,

McCann

> >

> > Hi ,

> > I know you are busy, but just wanted to ask your opinion.

Jackie

> has

> > not officially been diagnosed, but i believe she is apraxic as

> well

> > as her therapist. I dont know why there is no official

dianosis,

> but

> > she is recieving the services she needs so I guess I am kinda

just

> > happy with that. She recieves speech 5 X 30 plus OT 2 X 30 plus

> PT 2

> > X 30 and is an integrated classroom setting for 3 and 4 year

> olds.

> > My question is this...should I have her evaluated by a

> neurologist?

> > Why and why not should I. Im just confused. I dont want to

miss

> > anything. If I do take her what kind of tests should I expect?

I

> > just want to be sure that I am doing all that I can for her and

> dont

> > want to miss anything...

> > We have seen wonderful improvement since starting the

supplements,

> > but her expressive language is still very delayed. I have been

> > recommended to one neurologist that I hear wonderful things

> about.

> > Supposedly an exceptional diagnostition, but of course she

doesnt

> > accept any insurance...Im just not sure if I should take her or

> not.

> > Just wondering your oppinion...

> >

> > Thanks for everything,

> > Again, this forum has been my lifeline...

> >

> > Trish

> >

>