Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Ok, just did a little more research on this and guess what...we never thought about RECYCLED products...seems LOTS of gluten are used in these types of products to hold it together because its not formed form the " original pulp " of the tree! I have had a few problems (down there)but never thought about that...and as it turns out I use to buy recycled toilet paper and never thought about the effects. I stopped over a year ago (becuase someone else liked his better) and have haven't had too much of a sensistivity any more. The reason I checked out recylced products was because I thought i was glutened at a local restaurant (that I eat at often and never got glutened before), however this time I ordered the chicken wings (with gluten free hot sauce)and used the paper towels they provide on the table for you...which are recycled. Now I know...AND this is a hoot...got a dh outbreak on my face (just above my lip) from wiping my face off! UGH! BE CAREFUL OUT THERE! in south florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 But, here's the thing about my dd's DH, she reacts to items with gluten topically if her skin is scratched or chapped or whatever. Otoh, she reacts severely to glue...hmm...okay, maybe her symptoms are not so much the gluten in the glue, but the glue itself. Put a bandaid on her and in minutes she has a severe chemical burn. > > > I would think you have to ingest gluten to have a > > reaction. > > I had DH and never had another rash after I went on > > a gf diet. > > fran > > ----- Original Message ----- > > I agree and so do celiac experts. Touching gluten does > not cause DH outbreaks. > > richard > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 But, here's the thing about my dd's DH, she reacts to items with gluten topically if her skin is scratched or chapped or whatever. Otoh, she reacts severely to glue...hmm...okay, maybe her symptoms are not so much the gluten in the glue, but the glue itself. Put a bandaid on her and in minutes she has a severe chemical burn. > > > I would think you have to ingest gluten to have a > > reaction. > > I had DH and never had another rash after I went on > > a gf diet. > > fran > > ----- Original Message ----- > > I agree and so do celiac experts. Touching gluten does > not cause DH outbreaks. > > richard > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 But, here's the thing about my dd's DH, she reacts to items with gluten topically if her skin is scratched or chapped or whatever. Otoh, she reacts severely to glue...hmm...okay, maybe her symptoms are not so much the gluten in the glue, but the glue itself. Put a bandaid on her and in minutes she has a severe chemical burn. > > > I would think you have to ingest gluten to have a > > reaction. > > I had DH and never had another rash after I went on > > a gf diet. > > fran > > ----- Original Message ----- > > I agree and so do celiac experts. Touching gluten does > not cause DH outbreaks. > > richard > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 ALSO, I just remembered that my eldest son who's had problems is also allergic to wheat (on top of being celiac.) So...maybe he's having contact problems due to that? Depending on how much he eats, he gets a full body, temporary derm reaction to wheat (along with those special DH spots from the gluten, he's one lucky kid.) > > > I would think you have to ingest gluten to have a > > reaction. > > I had DH and never had another rash after I went on > > a gf diet. > > fran > > ----- Original Message ----- > > I agree and so do celiac experts. Touching gluten does > not cause DH outbreaks. > > richard > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 ALSO, I just remembered that my eldest son who's had problems is also allergic to wheat (on top of being celiac.) So...maybe he's having contact problems due to that? Depending on how much he eats, he gets a full body, temporary derm reaction to wheat (along with those special DH spots from the gluten, he's one lucky kid.) > > > I would think you have to ingest gluten to have a > > reaction. > > I had DH and never had another rash after I went on > > a gf diet. > > fran > > ----- Original Message ----- > > I agree and so do celiac experts. Touching gluten does > not cause DH outbreaks. > > richard > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 , another thought is what they use to soften the TP with. Many celiacs also have problems with soy - I am allergic myself - and have found that many TP makers use a form of vegetable oil to " soften " their product. I generally don't have a problem with the recycled TP, but get me one like Charmin that is super softened and I get a pretty sore tushy. Just a thought. Cheryl in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 , another thought is what they use to soften the TP with. Many celiacs also have problems with soy - I am allergic myself - and have found that many TP makers use a form of vegetable oil to " soften " their product. I generally don't have a problem with the recycled TP, but get me one like Charmin that is super softened and I get a pretty sore tushy. Just a thought. Cheryl in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 , another thought is what they use to soften the TP with. Many celiacs also have problems with soy - I am allergic myself - and have found that many TP makers use a form of vegetable oil to " soften " their product. I generally don't have a problem with the recycled TP, but get me one like Charmin that is super softened and I get a pretty sore tushy. Just a thought. Cheryl in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 I'm not certain what it is that doesn't make sense to you on this one, sorry if I answer the wrong thing. My son has the more typical gluten reactions, nasty DH patches, stomach pains and knock'em out migraines, but he also tested positive at the allergist for wheat, the IgE response? He was being allergy tested for a number of things and they tested him for wheat even though he was already on a GF diet. He only tested IgG positive (not IgA,) btw, but he's so sensitive the doctor never ordered the biopsy. > > > > > I would think you have to ingest gluten to have a > > > reaction. > > > I had DH and never had another rash after I went on > > > a gf diet. > > > fran > > > ----- Original Message ----- > > > > I agree and so do celiac experts. Touching gluten does > > not cause DH outbreaks. > > > > richard > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 I agree with you. I have the exact same things happen to me. > > Could the confusion be the difference between gluten intolerant and wheat > allergy? The two are different. > > My 2 cents: > As far as DH... before I knew I had CD, I was washing with a shampoo that > had wheat. Of course, it produced a rash (DH) on my scalp. Now, if I eat > gluten.. sure... I get a rash there. However, even if I don't eat gluten, > but use the shampoo... the rash (not much.. but enough) does come back. > > My belief is that my scalp is now ultra sensitive to the wheat in the > shampoo (I had used it for 3 years). If I use the shampoo on any other part > of my body right now, there would not be a breakout. So, I disagree with > the doctors that say DH is not topical. I was gluten free for 1 year before > I decided to use the shampoo to see if I could use it. Sure enough, it > produced the rash (and no.. didn't ingest gluten). Of course, I no longer > use the shampoo... I think more testing needs to be done before doctors can > say that DH is not caused topically. After all, how many doctors didn't > think some of us had CD? Yet, we did... Just because they don't think > it... doesn't mean it couldn't happen. > > Carol M Heppner > Updated website: www.carolheppner.com > New Paper Arts Book: INKING by Carol Heppner (Sterling/Chapelle) 2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 I understand this. I have a contact allergy to grass,hay, wheat and other substances as well as Celiac. I get hives. I never could understand why my hands got itchy after making my non-celiac daughter a sandwich. Also my head gets itchy after using shampoo with wheat. I do not have DH.Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 > > > > Could the confusion be the difference between gluten intolerant > and wheat > > allergy? The two are different. > > > > My 2 cents: > > As far as DH... before I knew I had CD, I was washing with a > shampoo that > > had wheat. Of course, it produced a rash (DH) on my scalp. Now, > if I eat > > gluten.. sure... I get a rash there. However, even if I don't eat > gluten, > > but use the shampoo... the rash (not much.. but enough) does come > back. > > > > My belief is that my scalp is now ultra sensitive to the wheat in > the > > shampoo (I had used it for 3 years). If I use the shampoo on any > other part > > of my body right now, there would not be a breakout. So, I > disagree with > > the doctors that say DH is not topical. I was gluten free for 1 > year before > > I decided to use the shampoo to see if I could use it. Sure > enough, it > > produced the rash (and no.. didn't ingest gluten). Of course, I > no longer > > use the shampoo... I think more testing needs to be done before > doctors can > > say that DH is not caused topically. After all, how many doctors > didn't > > think some of us had CD? Yet, we did... Just because they don't > think > > it... doesn't mean it couldn't happen. Dermatitis Herpetiformis (DH) 'autoimmunity' is mediated by epidermal Transglutaminase a protein related to tissue transglutaminase. The theory here is that antibodies to tTG crossreact to eTG and vice versa. Since the wheat in shampoo can crosslink to eTG on the surface of the skin particularly in areas where some cell damage has occurred one can expect a reaction. Some people who have CD never have clinical DH, but most if not all clinical DH is associated with CD. However, it appears that almost all clinical CD have epidermal sensitivities of some kind so that there may be a pathology but that pathology does not reach clinical level. In terms of allergies and the production of IgE, and classical allergic reactions, many with CD have both gluten intolerance (principally cellular reaction to gluten and IgA or IgA to alpha/beta gliadin but more importantly tTG) and higher levels of IgE to other gliadins (omega). These can be dependent or independent of CD, but it is noticed that people with CD have a greater tendancy and exercise induced anaphalaxis is a serious complication of CD. It is also important to note that family members of CD or individual with gluten allergies tend, at higher frequencies, to have either of these ailments, and for the allergic component it is not neccesary to have DQ2.5, DQ8, or [DQ2.2/DQ7.55] although these are frequently found. There are other genes, cytokines, that are involved in both the allergic response and CD. The combinations of cytokine levels that tend to be familiarly inherited that result in this have not been developed. It should also be noted that a person might have CD and spontaneously develope EIA, or have asthma with allergy to wheat and spontaneously develope CD. Anecdotally, I never had DH, but was always senstitive to synthetic fabrics, soaps and shampoos, such that I minimized the use of these things. It is possible that if I had not done this I might have had clinical DH and many here, prior to having identified CD, did the same. When I was younger (in 20s) i developed allergies to the soap in laundry detergent and hence clothes and particularly bedsheets and pillow cases were rinsed twice. I have no evidence any of these contained wheat, and the synthetic fabrics also do not contain wheat, therefore there could be other sensitivity factors involved in CD patients. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 I have had psoriasis for 24 years and found out i was cd 4 years ago. Since being gluten free my psoriasis is doing better, but i have noticed that if i use shampoo with wheat or lotions on my body with oat or wheat that my psoriasis goes crazy. I don't know for certain if it's a cd reaction, all i know is if i use products that are gf my skin does fine.. that is good enough for me. i tend to use my body's reactions as my guideline rather than what the doc's say, after being treated like a guinea pig for 15 years before finally being diagnosed with cd i tend to trust my body more than i do the docs. lanie Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 What is exercise induced anaphylaxis? These can be dependent or independent of CD, but it is noticed that people with CD have a greater tendancy and exercise induced anaphalaxis is a serious complication of CD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 There are actually allergies to things like cold, heat and when a person exercises. Most of the time, it only involves urticaria (hives or raised, reddened, itchy patches on the skin), but sometimes it can be severe enough as to actually progress to anaphylaxis. My sister has a cold allergy and a friend has all three (heat, cold and exercise induced). Both are at least gluten intolerant and both have other autoimmune disorders. No one really knows what causes these reactions, only that they happen. Hope this helps. Cheryl in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 So what actually happens to a person when this occurs? > > There are actually allergies to things like cold, heat and when a person exercises. Most > of the time, it only involves urticaria (hives or raised, reddened, itchy patches on the > skin), but sometimes it can be severe enough as to actually progress to anaphylaxis. > > My sister has a cold allergy and a friend has all three (heat, cold and exercise > induced). Both are at least gluten intolerant and both have other autoimmune disorders. > No one really knows what causes these reactions, only that they happen. > > Hope this helps. > Cheryl in MN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 I have a problem with water.... but usually it is in later winter when the water tables are skanky and low. There is often a smell of algae, so I have assumed it was the increased algae growth at that time of year. I would break out in hives in the shower (before using any soap or shampoo, so I know it was the water itself). Cheryl in MN Cheryl rxp_us@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Rhiannon asked: So what actually happens to a person when this occurs? For my sister, anytime she has a beverage that has ice in it, her lips begin to swell and so does her tongue. He throat gets itchy. When she goes outside in the winter, she needs to wear a mask otherwise the cold air will make her wheeze. Any skin exposed (even in just clothes, not under a jacket) will get large, red, itchy welts. For my friend, she first noticed welts on her legs in the winter whenever she would go outside. They would begin about mid-thigh -- right where her jacket stopped. I told her about my sister and the cold allergy and sure enough her doctor confirmed it. The next spring, when she went out to garden, any part of her that was exposed to the sun also started to break out in hives. Then the same thing when she would start to exercise. Once her body gets too warm, she breaks out in hives. I should say that for both of these people, time and a lack of exposure will make the welts go away and Benadryl really helps with the itching and the reaction. Hope this helps. Cheryl in MN Quote Link to comment Share on other sites More sharing options...
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